programs connection -- april, may, june 2010

ProgramsApril • May • June

NationalMultiple SclerosisSocietySouthernCalifornia Chapter

MS in the Workplace Page 4

Finding Emotional Support Page 22 Community Groups Page 25 Counseling

Financial AssistanceA Helping Hand When It’s Needed Most

We offer financial assistance through the Direct Assistance Program to individuals with MS and their families to help access needed services that are not available using other resources (private insurance, Medicare, MediCal). The program is based on financial need and offers funding for the following services:

Rhoda Goetz Personal Care Fund: • Beauty/Wellness: A fund to assist individuals who are faced with

financial, logistical or physical barriers to maintaining healthy personal hygiene and care. Gain access to services such as hair, skin and nail care.

• In-Home Assistance Support: 8 consecutive days, 4 hours/day after a hospital stay or exacerbation. Must use licensed home care agency.

• Chore Service Program: Assistance for house cleaning service. Limit: up to $300 per fiscal year.

Durable Medical Equipment: Share of cost for durable medical equipment (wheelchairs, hand rails, etc.) if not covered by insurance. Limit: up to $400 per year.

Sherak Emergency Fund: Funding for unexpected one-time situations (food, rent, utilities). Official documentation demonstrating proof of emergency is required with application. Limit: up to $300 per year.

Physical/Occupational/Speech Therapy: In-home evaluation and five to six follow-up visits for a person who cannot leave home and whose insurance will not cover this service.

Grisanti Respite Fund: Provided through a licensed home care agency for the family member who is a full-time care partner and needs time off. Share-of-cost basis. Up to 6 days/year, up to 12 hours/day.

Supporting the Family: A fund to take care of special out-of-the-ordinary family needs (i.e. school pictures, sports uniforms, etc.). Limit: up to $300 per year.

Checks are made out and sent directly to the vendor. For more info about financial assistance, call 800.344.4867 or 310.479.4456 or visit nationalMSsociety.org/cal to download an application.

National Multiple Sclerosis SocietySouthern California Chapter310.479.44561.800.344.4867nationalMSsociety.org/cal

If You or Someone You Know Has MS...

Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. Talk to your health care professional or contact the National MS Society (NMSS) at 800.344.4867 or www.nationalMSsociety.org to learn about ways to help manage MS and about current research that may one day reveal a cure.

Information provided by the NMSS is based upon professional advice, published experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The NMSS recommends that all questions and information be discussed with a personal physician. The NMSS does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The Society assumes no liability for the use or contents of any product or service mentioned.

© 2010 NMSS, Southern California Chapter, Issue 1 - Published Triannually

Programs Connection 3

Access these programs from the comfort of homeMS in the Workplace 4Taking Care of Your Money 4Hiring Help at Home 5Book Club 8 Dodgers Tickets 8 Peer Support 24 Professional Counseling 25

Worth the DriveMS Mountain Getaway 7Weekend Getaway for Teens 9July 4th at the Hollywood Bowl 10Bilingual Family Day 11

Inland Empire/Coachella ValleyServing Riverside, San Bernardino and Inyo Counties

Active Choices 14 The ABC’s of the ADA 15MS Specialty Care 15IEAMS 15Community support groups 23

Los Angeles CountyFallProof 6Fall Prevention 6Active Choices 12 Ask the Pharmacist 16 Advocacy and MS 16 Canine Companions 17 Community support groups 22

Channel Islands Serving Ventura, Santa Barbara and San Luis Obispo Counties

FallProof 6Active Choices 13Emotional Wellness 18Resiliency 18Stress is What You Make of It 19 MS Community Circle 19Community support groups 23 Art of Safe Transfer 26

San Joaquin Valley Serving Bakersfield, Fresno, Kings, Madera and Tulare Counties

Fall Prevention 6Active Choices 14 Eating Well, Eating Easy 20CogniFitness 20Beat the Central Valley Heat 21 New MS Care Center 21Community support groups 24

Table of Contents

What’s inside? Find programs near you...

Table of Contents

SIGN ME UP! You can register for all of the programs listed inside by:

Mail or fax

Phone

Online

4 National MS Society, Southern California Chapter

Is this the year you finally get control of your money... and would you like a financial coach?

Are you serious about reducing your debt?

Is it time for you to EARN interest rather than to PAY interest?

Would you like some foolproof steps for building an emergency fund that will let you sleep better at night?

Do you really understand how to maximize your employee benefits?

If you answered “YES” to any of these questions, join this valuable teleconference, featuring Dick

Bell, co-founder of the Financial Education Partners (FEP) program which is supported by the Foundation for Financial Service Professionals (FSP). Bell has been partnering with the National MS Society for many years. He is also CEO of Bell Financial in Calabasas, CA.

The FEP program matches FSP members who are willing to share their expertise in financial planning and insurance issues on a pro bono basis with those who are in need.

Cost: FREE

Thursday, April 22 • 6:00 – 7:00 pm At-home, toll-free teleconference

Learn from Home: Teleconference

Get strategies and resources to assist you in entering, re-entering, or staying in the work force, even as you cope with the unpredictability of MS.

You will learn about…

• Federal laws that provide employment protection to Americans with MS

• How to request & implement reasonable accommodations in the workplace

• Disclosure in the workplace

• Planning for retirement

Featured presenter:Phillip Rumrill, PhD, CRC, is a Professor of Rehabilitation Counseling and Director of the Center for Disability Studies at Kent State University in Ohio. He also operates the MS Employment Assistance Service in conjunction with several chapters of the National MS Society.

Cost: FREE

Wednesday, May 19 • 6:00 – 7:30 pmAt-home, toll-free teleconference

MS in the Workplace

Taking Care of Your Money

Sign me up! One week prior to the program you will receive the toll-free dial-in number.

Mail or fax form on page 27. Call 800.344.4867

Visit nationalMSsociety.org/CALcalendar


Learn from Home: Teleconference

If you are considering in-home care for yourself or your loved one, you won’t want to miss this informative teleconference. Learn to assess your needs, choose the right type of provider to meet those needs, and how to conduct a search.

What will I learn? • Resources for hiring in-home care • The difference between certified nursing

assistance vs. nonmedical assistance, and their relative costs

• Best practices in recruiting and working with the right care service for you

Featured presenter:Susanne Rossi has a Master’s degree in Counseling and has been working with the Mountain Caregiver Resource Center for over 20 years. She is currently Director of Caregiver Services at the Center where she oversees and conducts support groups for people affected by stroke, Parkinson’s and MS. Susanne has taught many workshops that have benefited both caregivers and their loved ones.

Cost: FREE

Tuesday, June 15, 20105:00 – 6:30 pmAt-home, toll-free teleconference

Sign me up! One week prior to the program you will receive the toll-free dial-in number.

Mail or fax the form on page 27.

Call 800.344.4867.


Hiring Help at Home


Do you have poor balance? Have you lost your balance or fallen in the last year?

Falls are a leading cause of injury in those with MS and can result in broken bones and further disability. Don’t let the misfortune of a bad fall compromise your health or independence. Learn

how to improve balance and mobility and reduce your risk of falling.

FallProof ™Comprehensive balance & mobility training

What will I learn?Strategies to improve your ability to •recover from loss of balanceThe various body systems that contribute •to balance and mobilityPostural alignment and center of gravity •control trainingExercises to improve balance, strength, •and flexibilityTips to increase safety and confidence •with walking

PomonaCasa Colina, 255 E. Bonita Ave.7 Wednesdays, April 14 – May 265:30 – 7:00 pm

Simi ValleySimi Valley Senior Center, 3900 Avenida Simi

For individuals who use a cane or a walker: 8 Wednesdays, May 5 – June 23 12:45 – 1:45pm

For individuals who walk unassisted: 8 Wednesdays, May 5 – June 23 2:00 – 3:00 pm Call Francine Sullivan at 805.682.8783 for cost and to register for Simi Valley classes.

Fall PreventionDesigned for those who use a walker or a wheelchair and are able to transfer independently with or without a care partner. (Care partners are also welcome and encouraged to attend.)

You will learn:Exercises to improve balance, strength and • flexibilityWhere and why falls happen and safety tips • for preventing fallsTransfer techniques and equipment to • reduce your fall riskTechniques to reduce injury from falls• Strategies to get up after a fall•

FresnoCalifornia Neuroscience Institute 2335 E. Kashian Lane, Suite 301 8 Thursdays, April 15 – June 31:30 – 3:00 pm

West Los AngelesThe Marilyn Hilton MS Achievement Center at UCLA8 Mondays, May 3 - June 2810:30 am – 12:00 pm

Cost: $25.00 per person (unless noted)

Sign me up!

Call 800.344.4867.



Relax in the shade, soak up the sun and enjoy the clean mountain air. The MS Mountain Getaway offers 4 days of fun and relaxation in the San Bernardino Mountains, where you will meet new friends and share good times. Participants repeatedly say that the Getaway offers people with MS an opportunity to take a vacation from the daily challenges of living with the disease.

Enjoy activities including arts & crafts, adaptive exercise, a day of pampering with massages, and educational seminars. Do as much or as little as you like. See old friends, meet new ones and have the time of your life.

The campgrounds and all accommodations are completely accessible and planned with you in mind. Each of the four dormitory-style, heated cabins sleep twelve people, with a common bathroom and a sitting room with a fireplace. The grounds also include a beautiful lodge, large amphitheater, swimming pool, volleyball court and hiking trails. Many campers have commented that Paivika offers the most spectacular views anywhere.

Cost: Camper $175; Caregiver/spouse $150This price includes all lodging, meals and activities. Our priority is to provide recreational opportunities to all members of the MS community. If you are unable to fully afford this program, please ask about share of cost support or a payment plan.

Registration & Questions: Space is limited. Pre-registration required by May 1st. Register by March 31st for early bird discount. Please call Todd Eckel at 909.949.1363 to receive a complete registration packet.

Thursday, May 20 – Sunday, May 23, 2010Camp Paivika, Crestline

Sign me up!

Call 800.344.4867.

MS Mountain Getaway 4-Day Vacation Retreat


Virtual Book Club If you love to read and enjoy discussing books with other book lovers,

join the MS Book Club!

Participate from the comfort of your own home. Book club meetings take place every other month via conference call. Group members are asked to read the selection before the meetings. Please call Tiffany Jordan at 800.344.4867 to sign up and receive the dial-in number.

You may also call Tiffany to request the club’s selection from the Chapter’s lending library. Paperback copies or the book on CD are both available. We’ll even provide a return postage-paid envelope.

The next books we’ll read and meeting dates are:

Wednesday, May 19 at noonThe Reader by Bernhard Schlink

Wednesday, July 19 at noonSarah’s Key by Tatiana de Rosnay

Dodgers TicketsOur generous trustees Dave Perren and Scott Perren have once again donated pairs of seats for the 2010 Dodgers season. Reserve free, accessible tickets for your favorite game.

Please contact Tiffany Jordan at 310.479.4456 x130, 800.344.4867 or [email protected] to request your seats. Tickets are available on a first call, first serve basis.


The Great Escape is the only camp of its kind in the West, serving teens and adolescents, ages 10 – 18, with MS. Don’t miss this exciting, fun-filled weekend. Daredevils can take advantage of the high ropes course and Euro Bungee. Jump into a soccer, basketball, volleyball, or football game. Enjoy arts and crafts, karaoke, a campfire and so much more. There’s something for everyone. And the best of all, you can meet other teens who understand life with MS.

Accommodations: The dormitory-style cabins sleep twelve people are with a common bathroom, and are completely accessible.

Cost: $60 per person. Includes all lodging, meals and activities. Our priority is to provide recreational opportunities to all members of the

MS community. If you are unable to fully afford this program, please ask about share of cost support or a payment plan.

Offered by the National MS Society, Southern California Chapter in partnership with Pali Mountain.

June 11 - 13, 2010Pali Mountain, Running Springs

Sign me up! Space is limited. Completed applications are due April 21, 2010.

Please contact Tiffany Jordan at 310.479.4456 x130 or 800.344.4867.

Visit nationalMSsociety.org/CALteencamp

The Great Escape: Weekend Getaway for Teens with MS


The inspiring, stirring patriotic music; a special guest like country superstar singer/guitarist Vince Gill with his many hits; and the Bowl’s famous pyrotechnic display – all this and more make the Hollywood Bowl the very best place for you and your family to spend the July 4th holiday.

Parking: Parking is not included. People with a disabled license plate or placard may call Dept. 12 at 323.850.2125 for parking reservations or for park & ride tickets ($2.50 each way when purchased in advance; $8 day-of). Park & ride locations are available throughout Greater LA and all buses are wheelchair accessible.

Accessibility: Due to the size and elevation of this site, we recommend use of motorized wheelchairs/scooters.

Dining: Pack a picnic to enjoy at one of the Bowl’s many picnic areas or order dinner to your seat by calling 323.850.1885 or visiting http://www.patinagroup.com/.

Attire: Dress in layers as the day starts off warm but cools into the night. Show holiday spirit by wearing red, white and blue.

Cost: Discounted tickets are available on a first-come, first-serve basis for $12, $28 or $49 each. Price based on the section you choose.

Sign me up! Advance phone reservations required. Call Tiffany Jordan at 310.479.4456 or 800.344.4867 to reserve tickets by June 20th. Tickets will be held (not mailed) at Will Call, Handicap Window #13

Please contact Tiffany Jordan at 310.479.4456 x130 or 800.344.4867.


Celebrating Independence July Fourth Fireworks Spectacular


Every member in the family lives with MS when a loved one is diagnosed. It can be really hard for family members to understand MS and its symptoms.

Meet others who understand what it’s like to live with MS, while you learn to strengthen family relationships from a family therapist knowledgeable about MS in either English or Spanish. Children, ages 5 - 13, who have a parent with MS, will discuss MS, their feelings, and participate in fun activities and exercises.

Then, enjoy a Chivas USA vs. Columbus soccer Game. Your kids will have the experience of a lifetime as they take part in a private meet and greet with one of the players.

What will I learn? • How to deal with the ups and downs of

living with a chronic illness

• How to reduce your stress levels and improve communication with loved ones

• How to deal with the uncertainty that living with MS can bring

Cost: $20.00 per person, includes a light dinner, a evening of education, and a ticket to the Chivas USA game

CarsonSaturday, July 31, 20104:30 – 6:30 pm

Sign me up! Space is limited. Register by July 16, 2010.

Mail or fax form on page 27.

Call 800.344.4867


Bilingual Family Day


Los Angeles County

Glendale – Yoga Yoga at the Village, 1306 Sonora Ave.Thursdays, April 1 - June 37:30 - 8:30 pm

Long Beach-Pilates Mat & ReformerJohn Garey Pilates Studio,6539 E. Pacific Coast Hwy.Wednesdays, March 31 - June 2Participants must be ambulatory.

Marina Del Rey – Yoga Angel City Body Kinetics, 4143 Glencoe Ave.Thursdays, April 1 - June 36:30 - 8:00 pm

Redondo Beach – Pilates Mat & ReformerBeach Cities Pilates Center514 N. Prospect, 1st FloorSaturdays, April 3 - June 5, 11:00 am - noon5 weeks of mat work & 5 weeks of Reformer

Studio City – Feldenkrais Studio City Library, 12511 Moorpark St. Wednesdays, March 31 - June 211:00 am - noon

Walnut – Yoga Walnut Senior Center, 21215 La Puente Rd.Wednesdays, March 31 - June 2noon - 1:00 pm

Exercise is key to your overall health and wellness. So get moving—and have fun while doing it. Take advantage of a Chapter-sponsored or community-sponsored physical activity class.

The following pages highlight just a few of the many resources for physical activity classes available in your community. When noted, contact the facility or instructor directly to register. Or call 800.344.4867 for additional classes near you.

Active Choices

Eric Small Adaptive Iyengar Yoga Improve your balance, endurance, posture, flexibility, mobility and quality of life. Please bring a mat or beach towel. Cost for 10 weeks: $30.00*

FeldenkraisGentle, non-strenuous movements help improve flexibility & stability and manage stress & pain. Please bring a thick mat and beach towel to class. Cost for 10 weeks: $30.00*

PilatesImprove balance, flexibility and strength. Movements in Pilates reformer classes are done on specialized pieces of equipment and require strong seated balance and transfer skills.Cost for 10 weeks: $45.00*

Training & ConditioningImprove functional levels of fitness. A trainer will create a customized fitness program for each participant in a semi-private group setting.Cost for 10 weeks: $30.00* unless noted

Sign me up for Chapter-sponsored classes!

Mail/fax form on page 27. 800.344.4867. nationalMSsociety.org/CALcalendar


Channel IslandsSanta Barbara – Yoga Vista Del Monte, Patio Room, 3775 Modoc Rd.Mondays, March 29 - May 3111:00 am – 12:00 pm -or-Wednesdays, March 31 - June 211:00 am – 12:00 pm

Santa Barbara – Training & ConditioningCottage Rehab Hospital, 2415 De La Vina St.Tuesdays, March 30 - June 112:00 – 1:00 pm -or-Thursdays, April 1 - June 312:00 – 1:00 pm

Simi Valley – Yoga Yoga Nook, 2472 Sterns StreetSpecial Yoga Mat SeriesTuesdays, March 30 - June 111:30 am – 12:00 pm - or -Postures for Torso Strength & BalanceFridays, April 2 - June 412:00 – 1:00 pm

Westlake Village – Yoga TrueYoga3625 E. Thousand Oaks Blvd., #322Wednesdays,March 3 - June 22:00 - 3:00 pm

Channel Islands Community Classes

Ventura – Aquatics Ventura Aquatics Center, 901 S. Kimball Rd. Call 805.654.7511 or visit cityofventura.net/aquatics for more info about water exercise classes suitable for people with MS.

Grover Beach – Yoga Adaptive Yoga at Tullius Chiropractic & Pilates Center, 902 W. Grand Avenue. Meets each Tuesday at 11 am. Call the Center at 805.481.1566 for more information.

San Luis Obispo – YogaSan Luis Obispo Veterans Memorial Building, 804 Grand Ave. Meets Mondays & Wednesdays, starting January 11. Beginners: 5:15 - 6:15 pm; All levels: 6:30 - 7:45 pm. Contact instructor Shoosh Crotzer, who has extensive experience with MS at 805.772.3560.

San Luis Obispo - AquaticsThe San Luis Obispo Parks and Rec Dept. offers a water exercise class which can accommodate special needs. (Note: pool temp is 88 degrees.) Call the SLO Swim Center at 805.781.7288. The Swim Center is located at Sinsheimer Park, 902 Southwood. Call San Luis Sports Therapy at 805.788.0805 if you wish to use the pool with instruction/supervision from a physical therapist.


Palm Desert Tuesdays, March 30 - June 1 10:30 - 11:30 am Haberkorn Health Center, 41555 Cook St. #160

Inland Empire/Coachella Community Classes

Claremont – Yoga for people with MSMondays, 6:00 – 7:00 pmPomona Valley Health Center, 1601 Monte VistaCost: $65 for 10 classesFor more information call 951.235.1117.

Palm Springs - Adaptive Yoga Thursdays, 12:15 – 1:15 pm1180 N. Indian Canyon Dr. 3rd floor of El MiradorCost: $5.00 per classFor info and to register call 760.416.4864.

Riverside – Yoga FUN Yoga studio, 75 W Blaine St.~ or ~ Inland Yoga, Tibbetts studio 3742 Tibbetts St., Suite 202Classes taught by Christie Hall, who has trained with Eric Small and has extensive experience with MS. For more info, please e-mail [email protected] or call 909.534.6952.

Temecula - AquaticsSW Family YMCA, 29119 Margarita Rd.Water Therapy Class in a cool pool with a lift offered twice a week. Cost: free for members; $5 non members. Call 951.677.YMCA (9622) for more info.

San Joaquin Valley Bakersfield – YogaArthritis Adaptive Aquatics Center1800 Westwind Dr., Building 500Thursdays, April 1 - June 3, 10:30 - 11:30 am

Bakersfield – Training & Conditioning Total Woman Fitness, 9901 HagemanTuesdays, March 9 - June 1Sessions between 10:30 am - 12:30 pmCost: $45.00

San Joaquin Community Classes

Clovis - VarietyClovis Adult School offers adaptive fitness classes: dance, Pilates, t’ai chi, yoga and much more. Call 661.327.2842 for more information.

Bakersfield - YogaCatholic Healthcare West offers free adaptive yoga classes at Mercy Hospital, Mercy Southwest Hospital, and Memorial Hospital. Contact Sally Baker at [email protected] or 661.332.5371 for day, time, and location.

Fresno - Training/StretchSan Joaquin Valley Rehabilitation Hospital has an adaptive gym with two locations, and offers circuit training classes and “Stretch It Out” classes. Cost; $100 Initiation fee and $35 monthly dues. Contact 559.431.2635 ext. 119 for more information. Hanford - Personal TrainingIn Shape Health Club, 325 N 11th Ave. Personal trainers for adaptive one-on-one training. Call 559.585.6555 for info.

Visalia1616 W. Mineral King AveYoga for MS classes offered Tuesdays, 11:00 am - 12:15 pm. Cost: $50 for 6 classes (good for 3 months). Visit www.valleyyoga.net or call 559.561.1010 for info.

Inland Empire/Coachella Valley


The Americans with Disabilities Act was signed into law in 1990. It is undeniably the most comprehensive formulation of the rights of the people with disabilities in the history of the United States or of any other nation, and it began with local groups to advocate for the rights of people with disabilities. Join us as we explore the ADA, how it affects your life, and how you can use it to advocate for yourself.

What will I learn? • Ins and outs of the ADA • Employment Issues and the ADA • Accessibility and the ADA • How to advocate on behalf of yourself

Featured presenter: Gilbert Lopez, J.D. has over 20 years of experience as an Equal Opportunity Officer for the Riverside

County Economic Development Agency, and in that capacity developed model policies and procedures for grievances and non-discrimination that are used as models nationwide.

Cost: FREE program, includes light refreshments

VictorvilleSaturday, April 24, 201010:00 am – 12:00 pmHigh Desert Church, 14545 Hook Blvd.

Sign me up!


Call 800.344.4867


The ABC’s of the ADA

In the Inland Empire

MS Specialty Care MS practice at Eisenhower Medical Center Wall Street West Complex, 74785 Highway 111, Suite 100, Indian Wells

The new MS practice at Eisenhower Medical Center is accepting new patients. Elizabeth H. Morrison, M.D., M.S.Ed said the practice will provide state-of-the-art MS treatment, symptom management, wellness care, cognitive testing and more. For more info, please call Suellen Evavold at 760.776.5740.

IEAMSDo you have a special talent, an excellent connection, available resources, or creative ideas which can help us raise MS awareness in the Inland Empire? If so, Inland Empire Against MS (IEAMS) can use your help! Help us generate ideas for raising MS awareness in our communities. For more information, call Todd Eckel at

909.949.1363.


In the Antelope/Santa Clarita Valley

Do you have questions about MS medications? Heidi Wolfe , an A-Med Health Care representative, will talk about their specialty pharmacy’s online prescription drug program. Heidi will answer all of your questions about prescriptions you are currently taking, as well as medications you may be considering.

What will I learn? • About the A-Med Online Prescription

Drug Program • What drugs are used to treat and manage

symptoms of MS • Important side effects of these drugs

Cost: FREE program, includes light refreshments Presented in collaboration with A-Med Health Care

Santa ClaritaThursday, June 10, 2010 6:30 – 8:00 pmBlessed Kateri Catholic Church 22508 Copper Hill Dr.

PharmacistAsk theand MS

Advocacy is a “Call to Action.” What laws or proposed legislation affect you? Now is the time to act. Do you know who your state and federal legislators are? They are waiting to hear from you. You have a voice in the decision-making process when it comes to adopting bills. Let’s hear from you. We are looking for people who are willing to stand up for their rights. Come join us and see how it’s done. We need you.

What will I learn? • What the National MS Society is doing for

you in advocacy • What you can do to influence

decision-making • About your state and federal legislators • About important bills being debated right

now that affect you, including the Health Care Reform Bill

Featured presenter: Cheryl Roberto-Lvovsky, the Chapter’s Manager of Government Relations & Individual Advocacy Cost: FREE program, includes light refreshments

PalmdaleThursday, April 15, 20106:30 – 8:00 pmLarry Chimbole Cultural Center, 38350 Sierra Hwy., Primrose Room

Advocacy

Sign me up!

Mail or fax form on page 27. Call 800.344.4867



Learn how man’s best friend can aid people with disabilities. Jeremy Talamantes from K-9 Assistive Services, Inc. will bring several trained dogs to demonstrate how service dogs can be trained to help people with MS. He will explain about the partnership that is built between owner and a trained dog; how this is achieved and creating a lasting bond that will change lives.

What will I learn? • The benefits of a service dog • What is involved in the training and

partnership between dog and owner • Costs associated with service dog

ownership

Featured presenter: Jeremy Talamantes is the founder and trainer at K-9 Assistance Services,

Inc. located in Baldwin Park. This is a non-profit organization dedicated to bettering the lives of people with disabilities. Cost: FREE program, includes light refreshments

PalmdaleThursday, May 20, 20106:30 – 8:00 pmLarry Chimbole Cultural Center, 38350 Sierra Hwy., Primrose Room

Sign me up!


Call 800.344.4867


Canine Companions

In the Antelope/Santa Clarita Valley


In Channel Islands

MS can have significant emotional effects, in addition to physical symptoms. Some of these are reactions to the stresses and challenges created by this chronic, unpredictable illness, while others may be symptoms of MS itself. Learn about emotional wellness and how to maintain balance from mental health professional, Janet Lengsfelder.

Featured presenter: Janet Lengsfelder has 15 years of experience in working with

individuals with MS and their families, plus an additional 15 years training as a registered nurse. She has facilitated every aspect of emotional health for the Society, including peer support, telecounseling, and Living Well with MS.

Cost: FREE

Santa BarbaraWednesday, April 21, 201011:30 am – 1:30 pmNational MS Society office, 14 West Valerio St.

Emotional Wellness

Have you ever known a person who takes all of life’s challenges, no matter how difficult, and adapted to each one with grace and inner peace? What makes that person different? Have you wondered if you could learn to adapt to your challenges more easily? You can!

Get the tools to ‘work out’ your resilience until it is strong enough to handle the biggest obstacles life throws your way. Join us for an interactive workshop of learning and self-exploration that will help you to bounce back the next time life tries to knock you down!

What will I learn? • What makes a person resilient • What traits of resiliency you have

that are strong

• How to use those traits to manage the obstacles that come your way

• How strengthening your resilience can help you to achieve and maintain a healthier, happier you!

Cost: FREE

Santa MariaSaturday, April 310:00 am – 12:00 pmMinami Community Center, 600 W. Enos Dr.

Arroyo GrandeTuesday, June 86:00 pm – 7:30 pmUnited Methodist Church, 275 N. Halcyon

Resiliency: the Art of Bouncing Back

Sign me up!

Mail or fax form on page 27. Call 800.344.4867.



Stress can have a huge impact on one’s physical and psychological health. To avoid its ill effects, it is important not only to learn effective stress reduction techniques, but to also develop a keen awareness of how and when tension arises in mind and body so that the stress response can be averted or minimized. Bring your friends and family. This interactive program provides valuable tools that everyone can use.

Featured presenter: Devin Wallace is the Programs Manager for the San Luis Obispo and northern Santa Barbara County areas.

Devin has designed and managed therapeutic and educational programs for people with disabilities for over 12 years. He has taught stress reduction classes and workshops at rehabilitation centers in California and Washington state. Cost: FREE

Paso Robles Tuesday, April 27, 201010:00 am – 12:00 pmPaso Robles Senior Center, 270 Scott St.

Santa BarbaraWednesday, May 19, 201011:30 am – 1:30 pmNational MS Society office, 14 West Valerio St.

Sign me up!


Call 800.344.4867


Stress is What You Make of It

In Channel Islands

MS Community CircleThese groups for people with MS, and their family and friends include workshops, discussions and presentations on psychosocial topics related to personal growth, and adaptive exercise.

Meets Fridays at 10:00 am at First Presbyterian Church in San Luis Obispo. Call Devin at 805.772.2046 .

Meets 3rd Wednesday of the month at the National MS Society office in Santa Barbara. Call

Francine at 805.682.8783.


In the San Joaquin Valley

Food does not have to be the enemy! Join us for a fun talk on balancing health and diet. Registered dietitian Denise Nowack will share tips on the best “power” foods, keeping a well-stocked pantry, and plenty of low-fat, delicious ideas to keep you full and satisfied. She’ll also give you hints for keeping on track with your nutrition goals (that might just give you a head-start for summer fashions).

What will I learn? • The recommended diet for people with

MS and other chronic health conditions • Determine what gets in the way of

eating well • Identify strategies to easily integrate

healthful eating into your lifestyle

Cost: FREE, includes light refreshments

BakersfieldTuesday, April 13 • 10:30 am – noonTotal Woman Fitness Center, 9901 Hageman

Eating Well Eating Easy with MS

Do you find it difficult to focus on a task without getting distracted?

Do you have difficulty finding words or finishing your sentences?

Do you often have a hard time keeping track of activities & appointments?

If you answered yes to any of these questions, then this program is for you...

Learn to: Facilitate focus and concentration •Improve memory using new strategies • Improve organization, problem solving •& critical thinking skills

Cost: $25.00 per person

Fresno 8 Tuesdays, April 20 – June 8 10:00 am – 12:00 pm San Joaquin Valley Rehab, 7173 N. Sharon

CogniFitness Keeping the Mind Moving

Sign me up!

Mail or fax form on page 27. Call 800.344.4867.



CogniFitness Keeping the Mind Moving

Here, in the Central Valley, we deal with extremely hot summer days. Overheating can aggravate a multitude of symptoms. Increased fatigue, weakness, and visual disturbances are just a few of the problems that may occur when the body’s interior temperature rises. Learn new ways to manage the heat and helpful ways to stay cool during the summer months ahead.

What will I learn? • How heat affects the symptoms of MS • How to stay active, yet cool, during the

hot summer months • About cooling products • Tips from others with MS in your

community about ways to stay cool

Cost: FREE program, includes light refreshments

FresnoSaturday, May 15, 201010:00 am – noonSan Joaquin Valley Rehab, 7173 N. Sharon Ave.

Sign me up!


Call 800.344.4867


Beat the Central Valley Heat

New MS Care Center MS program at the Central California Neuroscience Institute 2335 E. Kashian Lane, Suite 301, Fresno

People with MS in the San Joaquin Valley can visit the California Neuroscience Institute in Fresno for access to MS neurology care, as well as other allied health services, including physical therapy, occupational therapy, speech, respiratory, and nutrition. For more information, please call 800.344.4867.

In the San Joaquin Valley


Los Angeles County

Beach Cities 2nd Sunday, 10:00 am, Beach Cities Health District Call Dena at 310.376.8426 Burbank 4th Wednesday, 3:00 pm Call Nan at 818.762.5432

Central LA 4th Saturday, noon, Bilbrew Library Call Alva at 323.233.5413

GLAMS (Gay and Lesbian Support Group) 2nd Saturday, 1:00 pm, Location varies Contact Ronni at 626.392.4321 or [email protected]

Glendora 2nd & 4th Saturdays, 10:00 am Contact Laura at 626.335.0613 or [email protected]

Lakewood/Long Beach 2nd Sunday, 1:00 pm, Lakewood Youth Center Call Fran at 562.925.4405

Lancaster/Palmdale 3nd Thursday, 6:30 pm, Chimbole Cultural Center Call Colleen at 661.225.9826

Los Angeles 3rd Thursday, 6:00 pm, Fairfax Branch Library Call Michael at 213.804.1249

LA – Spanish Speaking Group 2nd Saturday, 10:00 am Salvation Army/Red Shield Community Center Contact Maria at 818.781.0181 or [email protected]

North Hollywood - Drumming Group Learn a unique way to express yourself. No musical experience needed. Second Saturday, 3:00pm Remo Drum Center Please call Beth at 818.219.1715

Northridge last Thursday, 10:15 am, Mid Valley Regional Library Call Carolyn at 818.348.6628 orLinda at 818.989.6044 before attending.

Pasadena 2nd Monday, 10:00 am, California Assistance League Call Aynn at 626.303.4343

Santa Clarita 2nd Thursday, 6:30 pm, Blessed Katari Catholic Church Call Linda at 661.297.3040

Sherman Oaks (Social Group)3nd Saturday, 11:30 am - 2 pm, Sherman Oaks Library Call Linda at 818.222.7678

Do you ever wish you could talk with others who understand what it’s like to live with MS and the challenges the disease brings?

Community Self-Help GroupsPlease contact the group’s facilitator(s) to learn more about a specific self-help group listed below, or contact area Chapter or 800.344.4867.

Connect with others...


Torrance 2nd Tuesday, 1:00 pm, North Torrance Library Call Pattie at 310.769.0694

West Covina 2nd & 4th Wednesdays, 11:00 am Senior Center North Building Call Tadd at 626.962.7909

West LA Last Monday, 6:30 pm, National MS Society Contact Nancy at 310.827.5714 or [email protected]

West LA – Men’s Group 3rd Tuesday, 6:00 pm, National MS Society Call Larry at 310.423.3425

West Hills/Woodland Hills 1st Thursday, 7:00 pm, First United Methodist Church Call Mary Ann at 310.479.4456

Channel Islands

Arroyo Grande2nd Tuesday, 6:00 pm, United Methodist Church Call Ellen at 805.343.6094

Morro Bay last Saturday, 10:30 am St. Peters by the Sea church Call Devin at 805.772.2046

Ojai2nd Thursday, 7:00 pm Oak View Community Center or 4th Tuesday, 12:45 pm, Eggs and Things Call Donna at 805.646.3750

Paso Robles 2nd Saturday, 11:45 am at Touch of Paso or 4th Tuesday, Park Grill Call Judy at 805.468.4555

Simi Valley1st Monday, 10:00 am Sunrise Christian Fellowship Church Call Dennis Zurcher at 805.584.2526

Thousand Oaks4th Tuesday, 11:00 am, Location varies Call Darcy at 805.368.7918

VenturaLast Friday, 11:30 am, Carrow’s Call Vincy at 805.340.9627

Inland Empire/Coachella Valley

High Desert 4th Saturday, 10:00 am, High Desert Church Contact Dorothy at 760.241.6247 or [email protected]

Lake Arrrowhead1st Friday, 4:30 pm, Mountain Community Hospital Call Joyce at 909.337.7573

Montclair 1st Saturday, 10:00 am, Montclair Community Center Call Ginny at 909.981.7035

Murrieta/Temecula 4th Saturday, 10:00 am, Chancellor Place Call Bonnie at 951.674.5959

Palm Desert2nd Thursday, 10:00 am, IHOP Call Richard at 760.899.4174

Riverside1st Saturday, 10:00 am, Kaiser Call Gilbert at 951.544.1441

Temecula1st Wednesday, 10:00, Trinity Luthern ChurchCall Denise at 951.698.9725


UplandLast Wednesday, 10:00 am, Calvary Chapel Call Denise at 909.519.4410

Yucaipa 3rd Tuesday, 2:00 pm, Good Shepherd Church Call Clare at 909.795.5128 or Tom at 909.795.1717

San Joaquin Valley

Bakersfield – African American GroupCall Kim at 661.321.9512 Bakersfield1st Thursday, 7:00 pm Health South Rehab Hospital Call Carol at 661.363.9747

Bakersfield 2nd Wednesday, noon or 4th Wednesday, 9:30 am Lorene’s Coffee Shop Call Mary at 661.397.0489

Bakersfield - Family Support Group4th Saturday, 10:30 am, Call Kim at 661.321.9512

Fresno 1st Monday, 7:00 pm San Joaquin Valley Rehab CafeteriaCall Karen at 559.871.115

3rd Thursday, 9:30 am Call Yolanda at 559.908.4644 or Doris at 559.299.2072

Hanford -- NEW day/location! 1st Thursday, 10:00 am, First Christian Church Call Barbara at 559.584.1903 or Debra at 559.585.8054

Lake IsabellaCall Jennifer at 760.549.3838

Tehachapi1st Wednesday, 6:00 pm, St. Jude’s Anglican Church Call Kimberly at 661.822.7178 or [email protected]

Visalia2nd Saturday, 10:00 am, Call Jim at 559.734.7576

LiNKIf you have been recently diagnosed with MS, you probably have many questions and concerns. The LiNK program matches people who are newly diagnosed with a peer via one-on-one phone or email correspondence. Take the opportunity to ask questions of a person who personally understands life with MS.

Please call Mary Ann Holm at 800.344.4867 for more information or to sign up.

Talk to Someone with MSChat one on one with someone else who has MS! In our Peer Support program, you are matched with a trained volunteer who has MS and is dedicated to helping you navigate the challenges of the disease. This long running program has successfully paired hundreds of clients with a peer who can truly understand what it means to live with MS. Peer Support all takes place via phone, so there is no need to travel to get the support that you need and deserve. Please call Mary Ann Holm at 1.800.344.4867 for details or to sign up.

Sometimes life with MS can be difficult to cope with and there are times when it can be hard to maintain a positive attitude. Emotions can come in cycles over the course of the disease. Some of these are reactions to the stresses and challenges created by this chronic, unpredictable illness, while others seem to be symptoms of MS itself.

In a recent survey of Californians living with MS, almost half of respondents indicated that they needed emotional support over the last year. Yet there were those who noted that they could not get the help they needed because they could not afford it or because they didn’t know where to look for help.

The Chapter offers a wide array of individual and group counseling services. Licensed profesional therapists will help you find peace of mind as you cope with a diagnosis, changes in symptoms, stress and/or depression. What you’re feeling is common and you are not alone. We’re here to help you move forward. Please call 800.344.4867 to access any of the resources listed below. One-on-one counseling We can connect you to licensed mental health professionals who know and understand MS, as well as help with financial assistance for accessing these resources.

Our TELECOUNSELOR program offers 8-10 individualized sessions via telephone with a licensed therapist provided by the National MS Society. Improve your ability to cope with MS—with all of the comfort and ease of calling from your own home.

Group counselingSupport groups led by a licensed professional offer a place for you to connect with peers in a safe, comfortable environment. Eight-week groups are address specific issues, depending on where you are with your diagnosis.

A professional counselor facilitates an in-person evening group for people diagnosed in the last two years, who are looking for accurate MS information in addition to emotional support. Guest speakers include an MS neurologist and an employment specialist.

A convenient phone group offers professional support for those who are facing significant challenges and disability. This is a great way to connect with others who may be feeling isolated and alone, and have difficulties leaving home.


Get the Emotional Support You Need


The Art of Safe Transfer

There is a science to lifting, and failure to learn the basics can lead to unnecessary and often severe injury. Care giving is challenging enough in itself without adding physical risks!

In this workshop, you will receive one-to-one coaching from a licensed physical therapist on how to properly help your patient or loved one transfer, get up after a fall, or walk with assistance when necessary. These techniques take practice before they become second nature, and that’s what the workshop will provide. You’ll learn to cue yourself each time you assist so you won’t fall back into bad habits when the stress is on.

Don’t miss this valuable training opportunity for professional caregivers and family caregivers. Even if you learned these basics before, a refresher course will ensure that you haven’t forgotten important information that can preserve your back and your peace of mind.

Paso Robles Wednesday, June 9, 201010:00 am – 12:00 pmPaso Robles Senior Center, 270 Scott St. Cost: FREE

Sign me up!


Call 800.344.4867.


For the Care Partner


Name: __________________________________

Date of diagnosis: _____________ Age: _______

Address: _________________________________

City: ___________________________________

Zip: ____________________________________

Phone: __________________________________

E-mail: __________________________________

Mobility device used (if any): ________________

________________________________________

I’d like to register for these program(s):

Taking Care of Your $ (teleconference – 4/22)

MS in the Workplace (teleconference – 5/19)

Hiring Help at Home (teleconference – 6/15)

FallProof/Fall Prevention _______ # attending

Guest name(s): ________________________

Choose one: Pomona Fresno West LA

Bilingual family day ($20/person, pay below) _____ # attending

Guest name(s) & age(s): _________________

____________________________________

ABC’s of the ADA (Victorville – 4/24)_____ # attending

Guest name(s): ______________________

Sign Me Up! Mail or fax registration to your local National MS Society office. Or register online at

nationalMSsociety.org/CALcalendar

Southern California Chapter2440 S. Sepulveda Boulevard, Suite 115Los Angeles, CA 90064310.479.4436 fax

Channel Islands Office14 West Valerio StreetSanta Barbara, CA 93101805.563.1489 fax

Inland Empire Office869 E. Foothill Boulevard, Suite IUpland, CA 91786909.949.0766 fax

Coachella Valley Office73-710 Fred Waring Drive, Suite 103Palm Desert, CA 92260760.776.5742 fax

Antelope Valley & Santa Clarita Valley Office1669 West Avenue J, Suite 309Lancaster, CA 93534661.948.6875 fax

Kern County Office1800 30th Street, Suite 105Bakersfield, CA 93301661.321.9518 fax

San Joaquin Valley Office7472 N. Fresno Street, Suite 210 Fresno, CA 93720559.439.1745 fax

For more information, call 800. 344.4867 or visit nationalMSsociety.org/CALcalendar.

Registration form comtinued on next page

Total Enclosed $ _______________

Check enclosed or Charge my: Visa MasterCard AmEx Discover

Account # ___________________ Exp. Name on Card

In consideration of your acceptance of this application, I hereby, for myself, my heirs, executors and administrators, waive and release any and all rights and claims for damages I may have against the National MS Society, Southern California Chapter (NMSS) or any other people connected with this program, their agents, representatives and assign for any and all injuries suffered by, or illness to, myself resulting in participation in this program. I give the NMSS permission to use my name and my guests’ names, photograph or other media taken of us during the event for promotional materials, publications or on the NMSS Web site. Signature: _____________________________________________________Date: _______________________

Ask the Pharmacist (Santa Clarita – 6/10) _____ # attending

Guest name(s): _____________________

Advocacy & MS (Palmdale – 4/15) ____ # attending

Guest name(s): _____________________

Canine Companion (Palmdale – 5/20) ____ # attending

Guest name(s): _____________________

Emotional Wellness (Santa Barbara – 4/21)

____ # attending

Guest name(s): _____________________

Resiliency Sta Maria Arroyo Grande

____ # attending

Guest name(s): _____________________

Stress Paso Robles Sta Barbara

____ # attending

Guest name(s): _____________________

Eating Well (Bakersfield – 4/13)

____ # attending

Guest name(s): ______________________

CogniFitness (Fresno – $25/person, pay below)

Beat the Heat (Fresno – 5/15)

____ # attending

Guest name(s): ______________________

Safe Transfer (Paso Robles – 6/9)

Caregiver name: _____________________

Active Choices

Pay below for Chapter-sponsored physical activity classes. Check pages 14 - 16 for cost.

Fitness series type: ___________________

City: _____________ Day: ____________

Fitness series type: ___________________

City: _____________ Day: ____________

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2440 S. Sepulveda Boulevard, Suite 115Los Angeles, CA 90064

If not you, then who?Turn passion into action.

Join Walk MS now.

No one is more passionate about ending multiple sclerosis than those who live with the unpredictable effects of the disease each and every day. But passion alone won’t end MS — action will. That’s why, this year, we call on everyone — especially people affected by MS — to put their passion into action and join the movement.

Participate. Volunteer. Donate. If not you, then who?

walkMSsocal.org 800.344.4867

programs connection -- april, may, june 2010

Documents