REFOCUS: TRANSFORMATION OF SERVICES IN A NEW ERA

Jean Pierre Wilken

President CARe EuropeProfessor of Participation, Care and Support

HU Utrecht University for Applied Sciences, Netherlands

Tallinn, 8 May 2013

Participants from 15 countries

Armenia, Belgium, Bulgaria, Croatia, Estonia, Georgia, Hungary, Kazakhstan, Kyrgyzstan, Netherlands, Slovenia, Romania, Spain, Turkey, United Kingdom.

Welcome

Thanks to:Estonian Psychosocial Rehabilitation AssociationTallinn Mental Health CentreTallinn University

Fund Storm RehabilitationMental Health InitiativeSoros Foundation

Welcome

Established in 2011 with the support of Fund Storm Rehabilitation.

Serves professionals, service users and organizations to promote and realise the transition from institutional to community-based and recovery-based care.

We are active in the field of mental health care, social care and welfare services for (and with) persons with psychiatric, learning and physical disabilities.

We connect practice, research, education and policy.

We connect Eastern and Western Europe (and central Asia).

Activities:1. Disseminating information and

knowledge2. Providing opportunities for meeting,

learning and exchange3. Supporting the development of new

initiatives by providing advice and training

4. Encouraging research and development5. Encouraging partnerships between

organisations in different countries

In collaboration with

Global Initiative on PsychiatryMental Health InitiativeEuropean Social Services Network

REFOCUS; TRANSFORMATION OF SERVICES IN A NEW ERA

How do we create / transform services towards a focus on recovery, personal development and social inclusion?

Our challenge

Inclusion is impeded by: * individual factors (e.g. self-stigma, lack of skills, lack of information, lack of self-confidence, poverty)* physical inaccessibility (e.g. buildings) * social inaccessibility (e.g. by stigma; individualised / network society)* inaccessibility legal rights (finances; discrimination)* separation between health sector and social (welfare) sector* one-sided focus of services on institutional life, professional knowledge & disability

Facts

10

Diagnosis

Connecting to meaning, & strengths

Personal medicine, learning,

increasing self-confidence, role

models etc.WRAP

Professional knowledge

psychiatrist,therapist, case

manager

Medication,

Treatment plans etc.

RECOVERY= Learning to

live with and beyond symptoms

Experiential knowledge

RECOVERY=Getting rid

of symptoms

??

?

Knowledge based on personal

experiences

Field of Mental Health Care

Professional-Institutional-Knowledge

Peer Support

We know how to support recovery, but are we doing it?

12

Assess-ment of disabiliti

es

Connecting to meaning, & strengths

learning, increasing self-confidence, role

models etc.Personal Future

Planning

Professional knowledge residential workers, therapists

Care plans etc.

PERSONAL DEVELOPME

NTdeveloping

skills; fulfilling

valued social roles

Experiential knowledge

CUSTODY=Taking care of persons.Shelter and protection

Professional-Institutional-Knowledge

Knowledge based on personal

experiences

Field of Disability Care

Social networks

Shifting towards a new vision: From focus on the disorder/disability to focus on

the person Experiential knowledge: the value of personal

experience, focus on learning/development, peer support

From illness/disability based to strengths-based From professional-directed to user-directed From individual to community

Refocus

New standards:Contemporary models of care for people with high and complex needs should be evaluated in terms of the degree to which services support people’s: • presence in the community; • active participation in every day life; • opportunities to develop, exercise and demonstrate to others their competence; • exercise of individual choice; and • dignity and rights (both legal and human)

(cf O’Brien, 1992; Wilken, 2007)

So please: re-focus!