required new variables for cdc-npcr cer specialized registry
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Required New Variables for CDC-NPCR CER Specialized Registry. Meichin Hsieh, MSPH, CTR Data Manager Louisiana Tumor Registry. LCRA Spring Conference April 14, 2011. CDC-NPCR Specialized Cancer Registry. Background - PowerPoint PPT PresentationTRANSCRIPT
Required New Variables for CDC-NPCR CER Specialized
RegistryMeichin Hsieh, MSPH, CTR
Data ManagerLouisiana Tumor Registry
LCRA Spring ConferenceApril 14, 2011
CDC-NPCR Specialized Cancer Registry Background
This project was funded as part of the American Recovery and Reinvestment Act (ARRA) Comparative Effectiveness Research (CER) activities through the Centers for Disease Control (CDC).
CDC-NPCR Specialized Cancer Registry Cont’d Requirements
High quality cancer registry Ability to enhance registry data Expand electronic reporting Ability to conduct CER Experienced in patterns of care and
outcomes studies Sustainability
Objectives Describe new data items that need to
be collected and sustained as a CDC-NPCR specialized cancer registry
Describe codes and coding guidelines
Required New Variables Cases Diagnosed in 2011 and after Variables required collection by CoC
hospitals Height Weight Tobacco use Source comorbidity
Height and Weight Purpose
Variables required when administering chemotherapy or other drugs given
Description Different tumors for the same
patient may have different values Should be collected from source
records once for each cancer
Height and Weight cont’d Code from medical record or
physician office record sources includes: Nursing interview guide Flow chart Vital stats
Height and Weight cont’d
Coding instruction Height & Weight entered should be that
listed at or around the time of diagnosis If no height and/or weight was listed
when cancer was diagnosis, please use the height/weight recorded on the date closest to the date of diagnosis, but before treatment was started
Height Coding
Measured in inches (1 foot=12 inches) Entered as 2 digit numbers Code “98” for 98 inches or greater Code “99” for unknown height All inches values should be rounded to
the nearest whole number For example: 62.4 inches would be 62 and
62.5 inches would be 63 inches
Height cont’d:
Height Inches Code
4’ 48 48
5’6” 66 66
6’0” 72 72
≥ 8’2” 98 98
Unknown 99
Examples: 1 foot = 12 inches
Weight Coding
Measured in pounds (1 kg=2.2 pounds) Entered as 3 digit numbers Code “999” for unknown weight All pounds values should be rounded to
the nearest whole number Ex: 155.5 pounds would be 156 pounds
If patients weight less than 100 pounds record weight with leading zero Ex: Record 98 pounds as 098
Weight cont’d:
Kg Pounds Code
36 79.2 079
75 165 165
88 193.6 194
Unknown Unknown 99
Examples: 1 kg = 2.2 pounds
Tobacco Use Variables
Cigarette Other smoking products
Pipes, cigars, kreteks (made with a blend of tobacco, cloves and other flavors)
Smokeless tobacco products Chewing tobacco, snuff, etc.
Tobacco NOS
Tobacco Use cont’d Purpose
A risk factor that is associated with several cancer (e.g. lung, oral cavity, pharynx, larynx, esophagus, bladder, ….)
Description Records the patient’s past or current
use of tobacco
Tobacco Use cont’d Code from medical record or
physician office record sources includes: Nursing interview guide Flow chart Nursing assessment section Vital stats Others: H&P
Tobacco Use cont’d Coding schema
0 Never used 1 Current user (as of date of diagnosis) 2 Former user, quit within one year of the date of diagnosis 3 Former user, quit more than one year prior to the date diagnosis 4 Former user, unknown when quit 9 Unknown/not stated/no smoking specifics provided
Tobacco Use cont’d If only “No” documented in medical
record then code 9. DO NOT code it to 0 (Never used).
If “None” documented in medical record then code 0 (Never used)
Source Comorbidity Purpose
Tracts the sources of obtaining comorbidity information
Description Record the data source from which
comorbidities/complications were collected
Source Comorbidity cont’d Coding schema
0 No comorbid condition or complication identified/Not Applicable 1 Collected from facility face sheet 2 Linkage to facility/hospital discharge data set 3 Linkage to Medicare/Medicaid data set 4 Linkage with another claims data set 5 Combination of two or more sources above 9 Other source
Source Comorbidity cont’d
CoC hospitals use only codes 0, 1 or 9
Codes 2 to 5 will be coded only at central registry
