sm diabetes advocacy and legislation shereen arent executive vice president government affairs and...
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Diabetes Advocacyand Legislation
Shereen ArentExecutive Vice PresidentGovernment Affairs and Advocacy
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Advocacy Goals• Increase federal and state funding for
diabetes prevention, treatment and research
• Prevent diabetes
• Improve the availability of accessible, adequate and affordable health care
• End the discrimination people with diabetes face at school, work, and elsewhere in their lives
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• NIH National Institute of Diabetes and Digestive and Kidney Diseases
• CDC Division of Diabetes Translation
• Special Diabetes Programs
• National Diabetes Prevention Program
Federal Funding for Diabetes Research and Programs
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Health Care Reform:What it Means for People with Diabetes
• Ends discrimination
• People with diabetes can't use up their insurance or have it taken away when they need it most
• Limits on out-of-pocket costs for all and an array of help for low and moderate income people with diabetes
• New focus on primary prevention
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•Coverage for kids and young adults
•Exchanges•Essential Health Benefits•Prevention
Health Care Reform: Implementation
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• Screening– Medicare– United States Preventive
Services Task Force– Diabetes in Pregnancy
• National Diabetes Prevention Program
Primary Prevention: Those at High Risk for Diabetes
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• National focus on childhood obesity
• Healthy, Hunger-Free Kids Act• FIT Kids Act• State school nutrition and
physical education legislation
Primary Prevention: Looking Upstream
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• Eliminating Disparities in Diabetes Prevention, Access and Care Act
• The Gestational Diabetes Act of 2011• The Diabetes Screening and Medicaid Savings Act
Disparities and Diabetes
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• Funding• Stem Cell Research
– Expansion– Defense
Fostering Science: Prevention, Better Treatments, Cure
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Fighting Discrimination
• Schools and Day Care Centers• Employment• Correctional Institutions• Public Accommodations
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Discrimination on the Job
• Too sick but not sick enough:The Americans with DisabilitiesAct Amendments Act• Blanket bans:
no one with diabetes need apply• Reasonable accommodations
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Discrimination at School
•Letting kids who able to manage their diabetes•Someone who can help with daily care and in an emergency•Preventing segregation
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Discrimination at School:The California Story
•One school nurse for every 2200 students
•Sick kids, kids on long-outdated treatment regimens, parents losing their jobs
•Diabetes experts, the United States Departments of Justice and Education, the California Department of Education, civil rights groups, California School Boards Association
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More InformationExperts, Resources and Other Information for Journalists:•Call 1-800-DIABETES and ask for the Communications Division•Email [email protected]•Social media information:
• www.Facebook.com/AmericanDiabetesAssociation• @AmDiabetesAssn• www.diabetesstopshere.org
Information for the Public:•1-800-DIABETES•www.diabetes.org •www.stopdiabetes.com