social media: part of the diabetes prescription?
TRANSCRIPT
Amy Tenderich Editor-‐in-‐Chief of DiabetesMine.com www.diabetesmine.com One of the world’s Top 20 Health Blogs Diabetes advocate, Book author
@DiabetesMine @AmyDBMine
Facebook.com/DiabetesMine
Constant & Growing Usage
• 790,000 on DiabeWcConnect.com (560K likes on Facebook)
• #DSMA Twi[er Chat (April 2014-‐2015): 60,577 Tweets, 141 million impressions*
• #IWishPeopleKnewThatDiabetes day (4/22): 6,000 Tweets, 12 million impressions*
*Stats compiled by Christopher Snider, Tobesugarfree.com
In a Nutshell, We… • Connect PWDs and affected others, online and off
• Share real-‐world informaWon • Acknowledge challenges, vent, commiserate
• MoWvate and cheerlead • Ba[le misconcepWons • Spread awareness • Change the relaWonship with Pharma and providers
OK, But…
• What about misinforma<on?
• Does SM improve health outcomes?
• What about reaching the masses?
Self-‐CorrecWon is Key
The SM world is self-‐policing …
• to address misinformaWon • to idenWfy and reject quackery • to earn respect (from medical professionals)
The Credibility Checklist • Honest disclosures • Accessible and readable privacy policies • Highly rated by users / readers • Voluntary accreditaWons*
Codes & Badges for Ethical PracWce in Social Media
h[p://www.rds4disclosure.org
h[p://www.hon.ch/med.html (Health on the Net FoundaWon)
h[p://www.blogwithintegrity.com
Is There Proof (aka Research) Social Media Improves Outcomes?
Does SM engagement help PWDs: • Have be[er metabolic control? • Experience fewer acute, chronic
complicaWons? • Experience less depression and more
emoWonal well-‐being?
h[p://www.npr.org/blogs/health/2012/12/03/166241115/social-‐media-‐helps-‐diabetes-‐paWents-‐and-‐drugmakers-‐connect (12/3/12)
Jury is s0ll out, but research is being conducted and is accumula0ng.
>75,000 PWDs in group educaWon less likely to end up in ER! 1
1. Nainggolan, L. Group Diabetes EducaWon Be[er Than Individual Counseling. Can J Public Health. 2004;105: e192-‐e197. Available at: h[p://www.medscape.com/viewarWcle/828195/.
Body of Research is Growing
• PaWents made more informed treatment decisions, managed symptoms more effecWvely, and coped with side effects be[er – using PaWentslikeme.com website.1
• ParWcipaWng in online support group led
to improvements in medical decision making, personal empowerment, and posiWve behavioral outcomes.2
1. Wicks P, Massagli M, Frost J, et al. Sharing health data for be[er outcomes on PaWentsLikeMe. J Med Internet Res 2008;12(2). Available at: h[p://www.jmir.org/2010/2/e19/.
2. Barak A, Boniel-‐Nissim M, Suler J. Fostering empowerment in online support groups. Computers in Human Behavior 2008; 24:1867-‐83.
• Social Networking
intervenWons beneficially reduced HbA1c when compared to controls… (and) also significantly improved systolic and diastolic blood pressure, triglycerides and total cholesterol.3
3. Athanasiou, T. Online Social Networking Services in the Management of PaWents with Diabetes Mellitus: SystemaWc Review and Meta-‐Analysis of Randomised Controlled Trials, Diabetes Research and Clinical PracWce (Impact Factor: 2.54). 11/2014; 106(2). Available at: h[p://reasearchgate.com.
Era of the ePaWent • DEFINITION: PaWents/caregivers equipped, enabled & engaged in
their health care due to the availability of Internet health info.
• “Peer-‐to-‐peer healthcare is a way for people to do what they have always done – lend a hand, lend an ear, lend advice – but at internet speed and at internet scale.”1
• ACA idenWfies paWent engagement as an integral component of quality in ACOs and PCMH2,3
1. Fox, Susannah. “Medicine 2.0: Peer-‐to-‐peer healthcare.” www.pewinternet.org/. 18 Sept. 2011. Web. 10 Apr. 2012.
2. James J: PaWent engagement. Health Affairs. 2013 (February). h[p://www.healthaffairs.org/healthpolicybriefs/brief.php?brief_id=86 (Summary of findings from February 2013 issue of Health Affairs.)
3. U.S. Department of Health and Human Services. Affordable Care Act to improve quality of care for people with Medicare. 2011. Available at: h[p://www.hhs.gov/news/press/2011pres/03/20110331a.html.)
Expanding Reach…
• #DSMA goes internaWonal: – #GBDOC: Wed, 9pm GMT – #OzDOC: Tues, 8:30 EDT
• DiabeWcConnect.com • DiabetesSisters.com (T2 blog) • TheType2Experience.com (6 bloggers) • Diabetes Hope Conference
Working on It…
The DOC is sWll disproporWonately T1D … Were constantly looking for ways be[er include & support the majority of PWDs with T2.
Call to AcWon
• Help make Social Media connecWons with the PaWent Community part of the prescrip<on!
www.hopewarshaw.com/diabetes-‐online-‐community