ten things i have learned - replica-analytics.com · learning something new. what the adversary...

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TEN THINGS I HAVE LEARNED About De - identification cc: Ashim D’Silva - https://unsplash.com/@randomlies?utm_source=haikudeck&utm_medium=referral&utm_campaign=api-credit Khaled El Emam

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Page 1: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

TEN THINGS I HAVE LEARNEDAbout De-identification

cc: Ashim D’Silva - https://unsplash.com/@randomlies?utm_source=haikudeck&utm_medium=referral&utm_campaign=api-credit

Khaled El Emam

Page 2: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

1. PRIVACY ENHANCING TECHNOLOGIES (PETs)cc: Y'amal - https://www.flickr.com/photos/17856544@N00

Page 3: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

PETS FOR SHARING1. Pseudonymization2. De-identification3. Data Synthesis

4. Federated Analysis5. Secure Computation

cc: Y'amal - https://www.flickr.com/photos/17856544@N00

Page 4: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

2. Consent and Other Obligationscc: mlibbe - https://www.flickr.com/photos/27901749@N04

Page 5: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

OBLIGATIONS• Consent• Security controls• Privacy controls• Contractual controls

cc: Luna*-- - https://www.flickr.com/photos/58683294@N00

Page 6: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

BENEFITS OF PETS• Enable secondary uses and

disclosures that would otherwise not be possible

• Cut operating costs for secondary purposes by reducing obligations -sometimes significantly

cc: Jamie Street - https://unsplash.com/@jamie452?utm_source=haikudeck&utm_medium=referral&utm_campaign=api-credit

Page 7: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

3. Identifiability and Zero Riskcc: MTSOfan - https://www.flickr.com/photos/8628862@N05

Page 8: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca

Page 9: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

ASSESSING RISK1. No zero risk2. Justification for threshold3. Due diligence on how risk /

probability is measured

cc: Nico Time - https://www.flickr.com/photos/80845204@N07

Page 10: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

4. Heterogeneity in Practicecc: Andrew Seaman - https://unsplash.com/@amseaman?utm_source=haikudeck&utm_medium=referral&utm_campaign=api-credit

Page 11: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca

Page 12: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca

threshold

Page 13: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca

Page 14: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca

threshold

Page 15: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca

Page 16: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca

Page 17: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca

Page 18: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca

Page 19: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca

6 4 4 5 2 2

6 4 4 5 2 1

1 5 6 2 4 3

1 1 1 4 5 5

Page 20: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca

6 4 4 5 2 2

6 4 4 5 2 1

1 5 6 2 4 3

1 1 1 4 5 5

Page 21: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca

6 4 4 5 2 2

6 4 4 5 2 1

1 5 6 2 4 3

1 1 1 4 5 5

Page 22: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca

0.25

0.25

0.25

0.25

6 4 4 5 2 2

6 4 4 5 2 1

1 5 6 2 4 3

1 1 1 4 5 5

Page 23: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca

0.25

0.25

0.25

0.25

6 4 4 5 2 2

6 4 4 5 2 1

1 5 6 2 4 3

1 1 1 4 5 5

0.4 0.4 0.2 0 0.6 1

end-user has no specific preferences on which criterion to optimize on

Page 24: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca

0.1

0.1

0.4

0.4

6 4 4 5 2 2

6 4 4 5 2 1

1 5 6 2 4 3

1 1 1 4 5 5

1 0.4 0.2 0.3 0 0.25

end-user optimizing on cost reduction and maximizing data utility

Page 25: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca

0.4

0.4

0.1

0.1

6 4 4 5 2 2

6 4 4 5 2 1

1 5 6 2 4 3

1 1 1 4 5 5

0 0.4 0.37 0.13 0.83 1

end-user optimizing on privacy protection and brand

Page 26: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

5. IDENTITY DISCLOSURE ?

cc: recombiner - https://www.flickr.com/photos/64121517@N05

Page 27: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

1. Identity disclosure

2. Attribute disclosure

3. Learning something new

4. Membership disclosure

cc: recombiner - https://www.flickr.com/photos/64121517@N05

Page 28: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

Identity DisclosureWhat the adversary knows

–Hiroshi is in the data

–Hiroshi is Japanese

What the adversary learns

–Hiroshi is the first record

–Hiroshi’s income

28

Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca

Page 29: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

Attribute DisclosureWhat the adversary

knows

–Hiroshi is in the data

–Hiroshi was born in the

decade 1950-59

What the adversary learns

–Hiroshi has prostate

cancer29

Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca

Page 30: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

Learning Something NewWhat the adversary knows

– Hiroshi is in the data

– Hiroshi was born in the

year 1959

– Hiroshi is male

– Hiroshi has an income of

$120k

What the adversary learns– Hiroshi is the first record

30

Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca

Page 31: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

6. Regulatory Uncertaintyand Inconsistency

cc: ssalonso - https://www.flickr.com/photos/41303012@N00

Page 32: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

7. SOCIAL LICENSE

cc: Thomas8047 - https://www.flickr.com/photos/93482748@N02

Page 33: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi
Page 34: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

8. CHANGES IN THE ENVIRONMENT

cc: kevin dooley - https://www.flickr.com/photos/12836528@N00

Page 35: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

9. ALGORITHMS MATTER

cc: Jacob Joaquin - https://www.flickr.com/photos/61198674@N00

Page 36: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca

threshold

Page 37: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

INNOVATION CONTINUEScc: Brett Jordan - https://unsplash.com/@brett_jordan?utm_source=haikudeck&utm_medium=referral&utm_campaign=api-credit

Page 38: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

Special Issue onPrivacy Enhancing Technologies

Page 39: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi
Page 40: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

10. Privacy As a Competitive Advantage

cc: joiseyshowaa - https://www.flickr.com/photos/30201239@N00

Page 41: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

QUESTIONScc: an untrained eye - https://www.flickr.com/photos/26312642@N00

Page 42: TEN THINGS I HAVE LEARNED - replica-analytics.com · Learning Something New. What the adversary knows – Hiroshi is in the data – Hiroshi was born in the year 1959 – Hiroshi

Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca

[email protected]