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//FEBRUARY 2018 ISSUE

W elcome to the EPF newsle�er. Much exci�ng news this month. Keep reading!

We have been busy finalising the transla�on of the factsheet on the Roadmap to Achieving Universal Health Coverage by 2030. To check out your ownlanguage, click here.

At the end of January, the European Commission presented a legisla�ve proposal on health technology assessment (HTA). Read more about EPF’s firstreac�on on advancing towards permanent coopera�on on HTA, including mandatory uptake of joint clinical assessments.

On 2 February, we organised an educa�onal workshop for pa�ent representa�ves from our member organisa�ons on the topic of pharmaceu�calincen�ves, to understand be�er the complex technical dimensions of incen�ves, and intellectual property, and enable them to contribute to the currentEU poli�cal debate on the topic from a pa�ent perspec�ve.

Together with a coali�on of Brussels-based health stakeholders, EPF held a joint mee�ng to discuss how to priori�se pa�ent safety and public health inthe Brexit nego�a�ons. Read more here.

We also a�ended the first working mee�ng of CHRODIS-Plus in Treviso, Italy. The project, that follows up on the key findings of the Joint Ac�on CHRODIS,focuses on the dissemina�on and implementa�on of policy and prac�ces to improve the management of chronic diseases in Europe.

Our Youth Group Vice-President, Yolita, spoke at an event of the “Brain, Mind and Pain” group last 21 February at the European Parliament, where youngpa�ents and policy makers came together to share recommenda�ons and find solu�ons to #makeworkwork for young people with chronic diseases.

This month we announced our new Capacity Building Module on Empowering Leadership and Posi�ve Governance open to all EPF members, membersof its members and pa�ent organisa�ons interested in learning to lead their organisa�ons more effec�vely and ensure greater impact.

From European to Na�onal. One of the core ac�vi�es for EUPATI in 2018 is the con�nued support for growing network of EUPATI Na�onal Pla�orms(ENPs). Read more about the plans for capacity building of the pla�orms.

In our blog, Alzheimer Europe shares their two new publica�ons: a compara�ve report on “Standards for residen�al care facili�es in Europe” and adiscussion paper called “Demen�a as a disability? Implica�ons for ethics, policy and prac�ce”. Read more about the work of AE on involving people withdemen�a.

Finally, there is s�ll one more day le� to apply for the Summer Training for Young Pa�ent Advocates. Don’t miss out!

Enjoy the reading!

Marco Greco, EPF President and Nicola Bedlington, EPF Secretary General

FACTSHEET ON ROADMAP TOACHIEVE UNIVERSAL HEALTHCOVERAGE FOR ALL NOWAVAILABLE IN SEVERAL EULANGUAGES

FUTURE EUROPEAN COOPERATIONON HTA: A STEP FORWARD INIMPROVING HEALTHCARE FOR ALL

SEE OUR VIDEOS ON OUR YOUTUBEPAGE

UPCOMING EVENTS

07/03/2018 |Improving pa�ent empowerment and self-

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The factsheet, summarising the main pointsof the Roadmap for Universal HealthCoverage, is now available in 13 different EUlanguages to allow EPF members toadvocate at na�onal level.

The European Pa�ents' Forum welcomes thepublica�on of the European Commission'slegisla�ve proposal presented on 31 Januaryon health technology assessment (HTA) as animportant step in improving the life of allpa�ents.

READ MORE » READ MORE »

EDUCATIONAL WORKSHOP ONPHARMACEUTICAL INCENTIVES

BREXIT: OUR ASKS TO PRIORITISEPATIENT SAFETY AND PUBLICHEALTH

On 2 February 2018, we organised aneduca�onal workshop for pa�entrepresenta�ves from our memberorganisa�ons on the topic of pharmaceu�calincen�ves.

What does Brexit mean for pa�ents? On 21February 2018, a coali�on of Brussels-basedhealth stakeholders held a joint mee�ng todiscuss how to priori�se pa�ent safety andpublic health in the Ar�cle 50 nego�a�ons onthe future rela�onship between the UK andthe EU.

READ MORE » READ MORE »

FACING TOGETHER THE IMPACT OFCHRONIC DISEASES: CHRODIS-PLUS STARTS WORKING ONIMPLEMENTATION PROJECTS

HOW CAN THE EU#MAKEWORKWORK FOR YOUNGPEOPLE WITH CHRONICCONDITIONS?

Europe is paying a heavy price for chronicdiseases: as a follow up of the findings ofCHRODIS, we joined CHRODIS-PLUS, a three-year ini�a�ve that aims to support MemberStates through cross-na�onal ini�a�ves toreduce the burden of chronic diseases.

Employment for young people with chroniccondi�ons was the topic of a "Brain, Mindand Pain" mee�ng last 21 February at theEuropean Parliament. Our Youth Group Vice-President Yolita presented EPF's work.

READ MORE » READ MORE »

management of care in mental health

Brussels Pa�ent empowerment and self-management

EPF speaker Lyudmil Ninov

12-13/03/2018 | OECD Paris task force face-to-facemee�ng

Paris

Pa�ent reported outcomes and pa�ent experiencemeasures

EPF a�endance Kaisa Immonen

21/03/2018 |EU Pa�ent Working Party on Nutri�on

Brussels

EPF a�endance Ka�e Gallagher

21-22/03/2018 |CEPAC project mee�ng

Dublin

Project �tled "Empowering People and Communi�es-(CEPaC)" where EPF is par�cipa�ng

EPF a�endance Kaisa Immonen

28/03/2018 |'Personalised Medicine and the Big DataChallenge'

Brussels

Personalised Medicine

EPF speaker Kaisa Immonen

20/03/2018 |PATHWAYS Project Final Conference

Brussels

Par�cipa�on To Healthy Workplaces And inclusiveStrategies in the Work Sector

EPF a�endance Lyudmil Ninov

11-12/04/2018 |SCIE - self care ini�a�ve summit

Copenhagen

Self-care, health literacy collabora�on

EPF a�endance Kaisa Immonen

14-15/04/2018 |AGM and Leadership Mee�ng

Brussels

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EUROPEAN PATIENTS' FORUM Chaussée d’E�erbeek 180, 1040 Brussels BELGIUM

Phone : +32 (0)2 280 23 34 Email : info@eu-pa�ent.eu www.eu-pa�ent.eu | eu-pa�ent.org/blog

OUR NEW CAPACITY BUILDINGPROGRAMME ON EMPOWERINGLEADERSHIP AND POSITIVEGOVERNANCE

SUPPORTING THE GROWINGNETWORK OF EUPATI NATIONALPLATFORMS

Pa�ent organisa�ons and pa�entorganisa�ons' leaders are becoming moreand more visible actors in the healthcarearena. In 2018 we are launching a newcapacity building module on EmpoweringLeadership and Posi�ve Governance.

One of the core ac�vi�es for EUPATI in 2018 isthe con�nued support for growing network ofEUPATI Na�onal Pla�orms (ENPs).

READ MORE » READ MORE »

BLOG: ALZHEIMER EUROPE: TWONEW PUBLICATIONS, INVOLVINGPEOPLE WITH DEMENTIA

Alzheimer Europe is delighted to present itstwo new publica�ons: "A compara�ve reporton "Standards for residen�al care facili�es inEurope” and a discussion paper called"Demen�a as a disability? Implica�ons forethics, policy and prac�ce".

READ MORE »

This e-newsle�er arises from the 2018 Health programme, which has received funding from the European Union, in the framework of the Health Programme. Disclaimer: The content of this e-newsle�er reflects only the author's views and the Execu�ve Agency is not responsible for any use that may be made of the informa�on containedtherein.

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