user group 2015 cross network querying. agenda the cross network query challenge a registry solution...
TRANSCRIPT
User Group 2015
Cross NetworkQuerying
Agenda
• The Cross Network Query Challenge
• A Registry Solution
• Moving Towards Big Healthcare Data
Slide - 1
Slide - 2
The Cross Network Query Challenge
Network #1
DataMart #2
DataMart #3
Investigator
Portal #1 Portal #2
DataMart #1
DataMart #4
DataMart #5
Network #2
Network #1 Credentials Network #2 Credentials
Shared DataMart
• The only way an investigator can do so today is to: Issue multiple queries On multiple networks With multiple credentials And recognize duplicate DataMarts
• And the more networks involved the more complicated this gets
One Investigator – Multiple Networks
12 Node Networks
# Portals #Credentials # Queries
1 1 1 1
2 2 2 2
3 3 3 3
Slide - 3
The Cross Network Query Challenge – Possible Solutions
• Stand alone network – too complicated for the investigator
• One massive network – social problem, could never establish governance
• Overlapping networks – administratively unmanageable
# 12 Node Networks
# Potential Connections
1 12
2 48
3 180
Slide - 6
The Registry Solution
Inter-Network Services
Registry
• Central “registry”, that knows every network and every network endpoint
• Centralized set of services that lets networks and endpoints discover one another, publish data, ask questions, and answer them
• Very similar to the way the Internet works today
Network #1
Network #2
Network #3
• And allows for the creation of Virtual Private Research Networks: A secure cross network collaborator “view” That is independent of the physical configuration Much like Internet VPNs
Investigator
Virtual Private Research Network
Slide - 7
The Registry Solution
Inter-Network Services
Registry
• Central “registry”, that knows every network and every network endpoint
• Centralized set of services that lets networks and endpoints discover one another, publish data, ask questions, and answer them
• Very similar to the way the Internet works today
Network #1
Network #2
Network #3
Investigator
Virtual Private Research Network
Slide - 7
The Registry Solution
Inter-Network Services
Registry
• Organizations register their presence
• Registrants can be nodes (organizations) or networks
• Registration is open to anyone, public or private
• Once registered, members can participate in any Virtual Private Research Network
• Virtual Private Research Networks behave just like PMN physical networks; same level of access control, project based requests, workflows, notifications
• Governance/policy enablement can be established by member within across VPNs
Network #1
Network #2
Network #3
Moving Towards Big Healthcare Data
Slide - 8
The Next Challenge
Once I can build my own Virtual Private Research Network across many networks, how do I…
• Find the right data?
• Develop collaborations once I find the data?
• Harmonize
• Insure data freshness and accuracy?
• Develop registries from cohorts?
source formats
schemas
data models
concepts
code values
return values
across models
User Group 2015
Cross NetworkQuerying