9th european patients' rights day in brussels:celia marin (europso)

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The role of prevention and innovation in sustainable healthcare systems A point of view of the european psoriasis and psoriatic arthritis patients www.europso.eu @europso @CMRancel #EPRD15

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The role of prevention and

innovation in sustainable

healthcare systems

A point of view of the european psoriasis and

psoriatic arthritis patients

www.europso.eu

@europso

@CMRancel

#EPRD15

Texto

Europso: 26 years working for psoriasis

patients

www.europso.eu

@europso

#EPRD15

Psoriasis is an auto-immune related, chronic,

inflammatory skin condition which currently has no

cure

#EPRD15

Lebwohl M, Bachelez H, Barker J, et al. Patient perspectives in the management of psoriasis: Results from the population-based Multinational Assessment of Psoriasis and Psoriatic Arthritis Survey. Journal of the

American Academy of Dermatology. 2014, http://www.jaad.org/article/S0190-9622(14)00977-3/abstract MED/PSD/APR/2014-09/08

Psoriasis: more than skin

#EPRD15

Lebwohl M, Bachelez H, Barker J, et al. Patient perspectives in the management of psoriasis: Results from the population-based Multinational Assessment of Psoriasis and Psoriatic Arthritis Survey. Journal of the American

Academy of Dermatology. 2014, http://www.jaad.org/article/S0190-9622(14)00977-3/abstract MED/PSD/APR/2014-09/08

Psoriasis WHO Resolution

Recognizing also that psoriasis is a chronic, noncommunicable, painful, disfiguring, and

disabling disease for which there is no cure

Recognizing further that in addition to the pain, itching and bleeding caused by psoriasis, many

affected individuals around the world experience social and work-related stigma and

discrimination

Underscoring that those with psoriasis are at an elevated risk for a number of co-morbid conditions, namely,

cardiovascular diseases, diabetes, obesity, Crohn disease, heart

attack, ulcerative colitis, metabolic syndrome, stroke and liver disease

Underscoring also that up to 42% of those with psoriasis also develop psoriatic arthritis, which causes pain, stiffness

and swelling at the joints and can lead to permanent disfigurement and disability

Underscoring that too many people in the world suffer needlessly from psoriasis due to incorrect or delayed

diagnosis, inadequate treatment options and insufficient access to care

#EPRD15

WHA67.9 Agenda item 13.5 24 May 2014

– Juan López

“Escribir una cita aquí”

Psoriasis Data Care

#EPRD15

– Juan López

“Escribir una cita aquí”

Psoriasis Data Treatment

#EPRD15

Psoriasis/Psoriatic arthritis costs

Psoriasis costs US up to $135 billion a

year

direct costs, medical expenses as doctor’s appointments and treatments

- indirect costs, which measure how psoriasis affects work productivity

- intangible costs, analyzing the impact of psoriasis on quality of life

- medical expenses related to psoriasis comorbidities

#EPRD15

7 ene. 2015 - JAMA Dermatology. Dr. April Armstrong, University of Colorado Denver,

Member of the National Psoriasis Foundation Medical Board, co-authored the study

Psoriasis innovation

New treatments

Unmet needs

Clinical trials

Better access

#EPRD15

Faculty of Life Sciences & Medicine Kings College London

Psoriasis: to treat or to

manage?

Prevention: holistic

approach of

disease control

Information

Networking

#EPRD15

Ulrich Mrowietz, Kirsten Steinz and Sascha Gerdes Psoriasis-Center, Department of Dermatology, University Medical

Center Schleswig-Holstein, Campus Kiel, Germany

Correspondence: Ulrich Mrowietz, MD, Psoriasis-Center, Department of Dermatology, University Medical Center

Patients organizations role

ADVOCACY

#EPRD15

Patients organizations role

LEARNING

#EPRD15

Acción Psoriasis, Europso Member

Patients organizations role

LOBBY

#EPRD15

France Psoriasis, Europso Member

Patients organizations roleINVESTMENT IN FUTURE:

II Psoriasis Youth Round Table

Europso, Spain 2015

#EPRD15

ACCESS. HEALTH. LIFE

19 MILLION psoriasis

patients in Europe

European Patient’s Rights

PATIENT= RESOURCH

#EPRD15

The role of prevention and

innovation in sustainable

healthcare systems

Thank you for listening psoriasis patient’s

voice