europso patient survey
DESCRIPTION
EUROPSO patient survey. First top-line results September 19th 2002. Survey Demographics. Survey response rate. Response rate by age group. Vlaanderen. Race and gender. 99% caucasian. Vlaanderen. Weight of respondents. Vlaanderen. Psoriasis. Respondents with psoriasis. - PowerPoint PPT PresentationTRANSCRIPT
![Page 1: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/1.jpg)
EUROPSO patient survey
First top-line results
September 19th 2002
![Page 2: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/2.jpg)
Survey Demographics
![Page 3: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/3.jpg)
Survey response rate
Country Mailed Replies Response rate (%)
Belgium 2000 864 43,2
Czech Rep 1000 437 43,7
Finland 14000 5594 40
France 7500 2551 34
Germany 9000 3753 41,7
Italy 11000 2605 23,7
Netherlands 6000 2582 43
Total 50500 18386 36,4%
![Page 4: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/4.jpg)
1.7
7
17.821.5
25.2
17.7
8.4
0
10
20
30
40
10--19 20--30 31--40 41--50 51--60 61--70 70+
Age ranges
Per
cen
tag
e re
spo
nse
(%
)Response rate by age group
Vlaanderen
![Page 5: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/5.jpg)
56
44
0
20
40
60
80
100
Male Female
Per
cen
tag
e re
spo
nse
(%
)Race and gender
99% caucasian
Vlaanderen
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2
13
26
1317
84
2
0
10
20
30
40
31-50 51-60 61-70 71-80 81-90 91-100 101-120
121+
Weight (kg)
Per
cen
tag
e re
spo
nse
(%
)Weight of respondents
Vlaanderen
![Page 7: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/7.jpg)
Psoriasis
![Page 8: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/8.jpg)
97
3
0
20
40
60
80
100
Yes No
Per
cen
tag
e re
spo
nse
(%
)Respondents with psoriasis
556 respondents had psoriasis
Vlaanderen
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10
33
25
1310
52 1
0
10
20
30
40
0--9 10--19 20--30 31--40 41--50 51--60 61--70 70+
Leeftijd
Per
cen
tag
e re
spo
ns
(%)
Leeftijd van Diagnose
Op welke leeftijd werd voor de eerste maal psoriasis waargenomen?
Gemiddelde leeftijd Europa 30.5 jaren (n=17990)
![Page 10: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/10.jpg)
15
2825
1512
41 0
0
10
20
30
40
0--9 10--19 20--30 31--40 41--50 51--60 61--70 70+
Aantal jaren met psoriasis
Per
cen
tag
e re
spo
ns
(%)
Duur van Psoriasis
Hoeveel jaren duurt de psoriasis op dit moment?
![Page 11: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/11.jpg)
90
11 10 11 6 5
0
20
40
60
80
100
Plaque
Gut
tate
Inve
rse
Local
ised
pust
ular
Eryth
roder
mic
Gen
eral
ised
pust
ularP
erce
nta
ge
resp
on
se (
%)
Type of psoriasis
cf: US study,Krueger et al 2001: 88% psoriasis vulgarisVlaanderen
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95
77
64
24
1220 18
6
0
20
40
60
80
100
Scalin
g
Itchin
g
Eryth
ema
Fatig
ue
Swel
ling
Burnin
g
Bleed
ing
Oth
er
Per
cen
tag
e re
spo
nse
(%
)Psoriasis symptoms
cf: US study,Krueger et al 2001: 94% scaling, 79% itching, erythema 71%, burning 21%, bleeding 29%, fatigue 19% Vlaanderen
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8176
6658
5343 43 45
3932
1928
23 2317
0
20
40
60
80
100
Scalp
Elbow
sLeg
s
Knees
Arms
Nails
Back
Lower
bac
k
Torso
Hands
Feet
Face
Anal a
rea
Gen
itals
Arm p
its
Per
cen
tag
e re
spo
nse
(%
)Sites affected
Vlaanderen
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9
34
41
14
0
10
20
30
40
50
60
<1% Mild (1-2%) Moderate (3-10%)
Severe (>10%)
Per
cen
tag
e re
spo
nse
(%
)Severity
Body surface covered
cf: US study,Krueger et al 2001: 39% severeVlaanderen
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6 7 83 1 1 1 1 4
71
0
20
40
60
80
Depre
ssio
n
Obe
sity
CVD
Diabet
es
Shingle
s
Uveiti
s
Fibro
mya
lgia
Crohn's
Oth
er a
utoim
mune
None
Per
cen
tag
e re
spo
nse
(%
)Co-morbidities
Have you been diagnosed with any of the following?
Most co-morbidities appear age-related: obesity, diabetes, CVD.Those not obviously appearing to be age-related are autoimmune, Crohn’s, lupus Vlaanderen
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917 14
1 3 3 1 3
62
0
20
40
60
80
Depre
ssio
n
Obesi
tyCVD
Diabet
es
Shingle
s
Fibro
mya
lgia
Crohn's
Other
auto
imm
une
None
Per
cen
tag
e re
spo
nse
(%
)Co-morbidities
Severe Patients
Vlaanderen
![Page 17: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/17.jpg)
Psoriatic arthritis
![Page 18: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/18.jpg)
4652
0
20
40
60
80
100
Yes No
Per
cen
tag
e re
spo
nse
(%
)Joint pain/stiffness
Have you developed persistent joint pain or stiffness lasting more than 3 months?
Vlaanderen
![Page 19: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/19.jpg)
5949 46 46
33
0
20
40
60
80
100K
nee
s,sh
ou
lder
s o
rh
ips
Join
ts o
ffi
ng
ers
Join
ts o
fw
rist
s/el
bo
ws/
ankl
es
Nec
k o
r b
ack
Join
ts o
f to
es
Per
cen
tag
e re
spo
nse
(%
)Joint pain/stiffness
If yes, where?
Vlaanderen
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29
66
4
0
20
40
60
80
100
Yes No No answer
Per
cen
tag
e re
spo
nse
(%
)Psoriatic arthritis
Have you been diagnosed with psoriatic arthritis by a physician?
cf: US study,Krueger et al 2001: 31% diagnosed with PsAVlaanderen
![Page 21: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/21.jpg)
Impact of psoriasis
![Page 22: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/22.jpg)
5.3
1.2 1.32.6
0.40369
121518
Daily
act
iviti
es
Wor
k/sc
hool act
iviti
es
Perso
nal r
elat
ionsh
ips
Leisu
re
Treat
men
t
Mea
n P
DI
sco
rePsoriasis Disability Index (PDI)
Total mean PDI = 10.8 (max score 48)
Vlaanderen
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10,814,3
11,1 12,8
18,4
8,811,4
0
6
12
18
24
30
36
42
48
B Cz Fi D I NL F
Mea
n P
DI
sco
rePDI per country:Mean PDI score
Max score = 48
![Page 24: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/24.jpg)
5.79.9
11.8 11.6 10.4 11.9
7.1
0
6
12
18
24
30
36
42
48
16--19 20--30 31--40 41--50 51--60 61--70 70+
Mea
n P
DI
sco
rePDI per age group:
Mean PDI scoreMax score = 48
Vlaanderen
![Page 25: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/25.jpg)
4,5
1,1 1 1,90,4
0369
121518
Daily
act
iviti
es
Wor
k/sc
hool act
iviti
es
Perso
nal r
elat
ionsh
ips
Leisu
re
Treat
men
t
Mea
n P
DI
sco
re
Total mean PDI = 8.9
Psoriasis Disability Index (PDI):Mild psoriasis
PDI max score per category = 18 + 9 + 6 + 12 + 3
![Page 26: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/26.jpg)
24,8
11,817,2 15,5 12,7
010203040506070
Daily
act
iviti
es
Wor
k/sc
hool act
iviti
es
Perso
nal r
elat
ionsh
ips
Leisu
re
Treat
men
tPer
ecen
tag
e P
DI
sco
re
Overall PDI % score in mild psoriasis = 18.5%
Psoriasis Disability Index (PDI):Mild psoriasis
![Page 27: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/27.jpg)
6,6
1,9 1,63,2
0,70369
121518
Daily
act
iviti
es
Wor
k/sc
hool act
iviti
es
Perso
nal r
elat
ionsh
ips
Leisu
re
Treat
men
t
Mea
n P
DI
sco
re
Total mean PDI = 14
Psoriasis Disability Index (PDI):Moderate psoriasis
PDI max score per category = 18 + 9 + 6 + 12 + 3
![Page 28: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/28.jpg)
36,9
2126,8 26,8 23,7
010203040506070
Daily
act
iviti
es
Wor
k/sc
hool act
iviti
es
Perso
nal r
elat
ionsh
ips
Leisu
re
Treat
men
tPer
ecen
tag
e P
DI
sco
rePsoriasis Disability Index (PDI):
Moderate psoriasisOverall PDI % score in moderate psoriasis = 29.2%
![Page 29: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/29.jpg)
9,4
3,1 2,35,1
1,1
0369
121518
Daily
act
iviti
es
Wor
k/sc
hool act
iviti
es
Perso
nal r
elat
ionsh
ips
Leisu
re
Treat
men
t
Mea
n P
DI
sco
re
Total mean PDI = 21
Psoriasis Disability Index (PDI):Severe psoriasis
PDI max score per category = 18 + 9 + 6 + 12 + 3
![Page 30: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/30.jpg)
52,3
34,4 38 42,335,3
010203040506070
Daily
act
iviti
es
Wor
k/sc
hool act
iviti
es
Perso
nal r
elat
ionsh
ips
Leisu
re
Treat
men
tPer
ecen
tag
e P
DI
sco
rePsoriasis Disability Index (PDI):
Severe psoriasisOverall PDI % score in severe psoriasis = 43.8%
![Page 31: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/31.jpg)
Impact of psoriasis
PDI – individual questions
![Page 32: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/32.jpg)
126
13
24
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)How much have you neglected your home’s outdoor and indoor work due to your psoriasis?Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
![Page 33: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/33.jpg)
41
25
50
71
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)Has your psoriasis affected your choice of clothes (e.g. colour or type)? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
![Page 34: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/34.jpg)
22
10
27
53
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)Have you had to change or wash your clothes more often due to psoriasis? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
![Page 35: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/35.jpg)
1310
1610
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)Has your psoriasis caused you problems at the hairdressers or barbers? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
![Page 36: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/36.jpg)
26
19
32
43
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)Has your psoriasis resulted in you having to take more baths than usual? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
![Page 37: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/37.jpg)
52
5
15
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)How much has your psoriasis made you take time off work or school or from carrying on your daily activities? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
![Page 38: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/38.jpg)
17
6
21
37
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)How much has your psoriasis prevented you from doing things at work or school or altered the way you carry out your daily activities? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
![Page 39: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/39.jpg)
41
4
14
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)
Has your career been affected by your psoriasis? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
![Page 40: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/40.jpg)
19
8
24
36
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)
Has your psoriasis resulted in sexual difficulties? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
![Page 41: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/41.jpg)
105
12
21
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)Has your psoriasis created problems with your partners or any of your close friends or relatives? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
![Page 42: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/42.jpg)
20
12
23
41
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)Has your psoriasis stopped you from going out socially or to any special events? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
![Page 43: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/43.jpg)
38
26
48
61
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)Has your psoriasis had a negative effect on exercising or going in for sports events, competing? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
![Page 44: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/44.jpg)
41
410
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)Have you been unable to use or stopped from using the gym, locker room, swimming pool or dressing room in a store due to your psoriasis Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
![Page 45: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/45.jpg)
106
1319
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)Has your psoriasis resulted in you smoking or drinking alcohol more than you would do normally? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
![Page 46: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/46.jpg)
83
11
20
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)To what extent has your psoriasis or its treatment made your home messy or untidy? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
![Page 47: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/47.jpg)
34
16
29
43
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)How much did any physical discomfort due to psoriasis cause you to lose sleep or sleep badly? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
![Page 48: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/48.jpg)
Overall impact (scale 1 to 10)
![Page 49: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/49.jpg)
8
11
15
1211
910 10
3
6
0
5
10
15
20
25
1 2 3 4 5 6 7 8 9 10
Per
cen
tag
e re
spo
nse
(%
)Overall impact
How much of a problem is your psoriasis/psoriatic arthritis on a scale of 1 to 10 (1=no problem, 10=large problem)?
Mean score = 4.86 Vlaanderen
![Page 50: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/50.jpg)
11
1920
13
10
75
6
1
4
0
5
10
15
20
25
1 2 3 4 5 6 7 8 9 10
Per
cen
tag
e re
spo
nse
(%
)Overall impact:
Mild psoriasisHow much of a problem is your psoriasis/psoriatic arthritis on a scale of 1 to 10 (1=no problem, 10=large problem)?
Mean score = 3.99 Vlaanderen
![Page 51: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/51.jpg)
67
1213 13
9
14
11
45
0
5
10
15
20
25
1 2 3 4 5 6 7 8 9 10
Per
cen
tag
e re
spo
nse
(%
)Overall impact:
Moderate psoriasisHow much of a problem is your psoriasis/psoriatic arthritis on a scale of 1 to 10 (1=no problem, 10=large problem)?
Mean score = 5.31 Vlaanderen
![Page 52: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/52.jpg)
31
6 6
10
17
10
19
4
17
0
5
10
15
20
25
1 2 3 4 5 6 7 8 9 10
Per
cen
tag
e re
spo
nse
(%
)Overall impact:Severe psoriasis
How much of a problem is your psoriasis/psoriatic arthritis on a scale of 1 to 10 (1=no problem, 10=large problem)?
Mean score = 6.71 Vlaanderen
![Page 53: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/53.jpg)
29
43
24
0
10
20
30
40
50
60
70
Not too much (1-3) A problem (4-7) Significant problem(8-10)
Per
cen
tag
e re
spo
nse
(%
)Overall impact
How much of a problem is your psoriasis/psoriatic arthritis on a scale of 1 to 10 (1=no problem, 10=large problem)?
![Page 54: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/54.jpg)
41 40
1521
53
23
10
36
51
0
10
20
30
40
50
60
70
Niet veel (1-3) Een probleem (4-7) Significant probleem(8-10)
Per
cen
tag
e re
spo
ns
(%)
Milde PSO Matige PSO Ernstige PSO
Impact van PsoriasisHoeveel vormt psoriasis/psoriatic arthritis een probleem op een schaal van 1 tot 10 (1=geen problem, 10=zeer groot problem)?
![Page 55: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/55.jpg)
Psoriasis treatment
![Page 56: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/56.jpg)
70
99
16
33
56
76
53
0
20
40
60
80
100C
on
sult
edG
P
Co
nsu
lted
Der
m
Co
nsu
lted
Rh
eum
Inte
rnet
Info
rmat
ion
fro
m o
rgs
Rea
d i
nfo
in
bo
oks
/mag
s
Sp
oke
n w
ith
frie
nd
s,fa
mil
y,
Per
cen
tag
e re
spo
nse
(%
)Action as a result of psoriasis
Which of the following have you done concerning your psoriasis/psoriatic arthritis?
Vlaanderen
![Page 57: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/57.jpg)
10
37
32
13
4 5
0
10
20
30
40
50
None 1 2 3 4 5+
Per
cen
tag
e re
spo
nse
(%
)Consultations
How many doctors have you seen about your psoriasis/psoriatic arthritis in the last 2 years?
Mean score = 1.8 Vlaanderen
![Page 58: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/58.jpg)
35
53
5 8
22
0
20
40
60
80
100
GP
Derm
atol
ogist
Rheum
atol
ogist
Oth
er
No-one
Per
cen
tag
e re
spo
nse
(%
)Current healthcare professional
Who are you currently seeing for your psoriasis/psoriatic arthritis?
Vlaanderen
![Page 59: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/59.jpg)
32
18
3341
0
20
40
60
80
100
GP
Derm
atol
ogist
Rheum
atol
ogist
No-one
??
Per
cen
tag
e re
spo
nse
(%
)Current healthcare professional:
Psoriatic arthritisWho are you currently seeing for your psoriatic arthritis?
Vlaanderen
![Page 60: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/60.jpg)
4451
73
1626
81
0
20
40
60
80
100
Inte
rnet
Family
doc
tor
Derm
atol
ogist
Rheum
atol
ogist
Libra
ry
Org
new
slet
ter
Per
cen
tag
e re
spo
nse
(%
)Information sources:
psoriasisWhere would you prefer to get information on your condition?
Vlaanderen
![Page 61: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/61.jpg)
11 14 1119
7
74
0
20
40
60
80
100
Inte
rnet
Family
doc
tor
Derm
atol
ogist
Rheum
atol
ogist
Libra
ry
Org
new
slet
ter
Per
cen
tag
e re
spo
nse
(%
)Information sources:
Psoriatic arthritisWhere would you prefer to get information on your condition?
Vlaanderen
![Page 62: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/62.jpg)
Psoriasis Treatments
![Page 63: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/63.jpg)
93 91 89
70
85 88
66
2733
50
10 10
0
20
40
60
80
100
Alternativetherapy
Prescriptiontreatment
Phototherapy Climato
Per
cen
tag
e re
spo
nse
(%
)
Heard of Tried Using
Psoriasis treatments
Vlaanderen
![Page 64: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/64.jpg)
30
1322
13
28
4252
61
0
20
40
60
80
100
OTC
Acupunc
ture
Dieta
ry
Relax
atio
n
Herbs
Baths
Tanni
ng bed
Sunlig
ht
Per
cen
tag
e re
spo
nse
(%
)Psoriasis treatment: Ever tried
Alternative therapies
Vlaanderen
![Page 65: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/65.jpg)
58
3
24
10
20
40
60
80
100
PUVA Re-PUVA UVB Re-UVB
Per
cen
tag
e re
spo
nse
(%
)Psoriasis treatment: Ever tried
Photo therapies: all patients
Vlaanderen
![Page 66: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/66.jpg)
6863
39
189 9 9
4 2 2 5 10
20
40
60
80
Calci
potrien
e
Topic
al s
tero
ids
Coal ta
r
Acitre
tin
Fumar
ates
MTX
CsAG
old
Antimal
aria
ls
Sulfasa
lazin
e
Etretin
ate
Infli
xim
ab
Per
cen
tag
e re
spo
nse
(%
)Psoriasis treatment: Ever triedPrescription medicines: all patients
Vlaanderen
![Page 67: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/67.jpg)
7 5 3
17
0
20
40
60
80
Dead S
ea
Balneo
phototh
erap
y
Balneo
-PUVA
other
sPer
cen
tag
e re
spo
nse
(%
)Psoriasis treatment: Ever tried
Others: all patients
Vlaanderen
![Page 68: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/68.jpg)
Psoriasis Treatment:
Satisfaction:
![Page 69: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/69.jpg)
45
63
50
3331
2529
36
17
6
17
22
0
10
20
30
40
50
60
Overall Mild Moderate Severe
Pe
rce
nta
ge
re
sp
on
se
(%
)
Low Moderate High
Acitretin: satisfaction
(n = 98 ) Vlaanderen
![Page 70: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/70.jpg)
1519
32
27
49
55
44 44
21 21 21 22
0
10
20
30
40
50
60
Overall Mild Moderate Severe
Pe
rce
nta
ge
re
sp
on
se
(%
)
Low Moderate High
Calcipotriene: satisfaction
(n = 374) Vlaanderen
![Page 71: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/71.jpg)
37 3640
24
4947 47
63
9 9 9 10
0
10
20
30
40
50
60
Overall Mild Moderate Severe
Pe
rce
nta
ge
re
sp
on
se
(%
)
Low Moderate High
Coal tar: satisfaction
(n = 216) Vlaanderen
![Page 72: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/72.jpg)
34
13
47
35
24
38
16
25
3638 37
35
0
10
20
30
40
50
60
Overall Mild Moderate Severe
Pe
rce
nta
ge
re
sp
on
se
(%
)
Low Moderate High
Ciclosporine: satisfaction
(n = 50) Vlaanderen
![Page 73: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/73.jpg)
35
27
46
40
22
36
21 20
3336
21
30
0
10
20
30
40
50
60
Overall Mild Moderate Severe
Pe
rce
nta
ge
re
sp
on
se
(%
)
Low Moderate High
Fumarates: satisfaction
(n = 51) Vlaanderen
![Page 74: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/74.jpg)
64 71 69
14
29
8
3 2
100
0
10
20
30
40
50
60
Overall Mild Moderate Severe
Pe
rce
nta
ge
re
sp
on
se
(%
)
Low Moderate High
Gold: satisfaction
(n = 22) Vlaanderen
![Page 75: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/75.jpg)
3538
30
50
35
23
30
42
29
3840
8
0
10
20
30
40
50
60
Overall Mild Moderate Severe
Pe
rce
nta
ge
re
sp
on
se
(%
)
Low Moderate High
Methotrexate: satisfaction
(n = 49) Vlaanderen
![Page 76: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/76.jpg)
2022
2024
53
48
5559
22 23 22
14
0
10
20
30
40
50
60
Overall Mild Moderate Severe
Pe
rce
nta
ge
re
sp
on
se
(%
)
Low Moderate High
Topical steroids: satisfaction
(n = 351) Vlaanderen
![Page 77: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/77.jpg)
1719
12
2324
29
3840
4648 48
33
0
10
20
30
40
50
60
Overall Mild Moderate Severe
Pe
rce
nta
ge
re
sp
on
se
(%
)
Low Moderate High
PUVA: satisfaction
(n = 324) Vlaanderen
![Page 78: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/78.jpg)
15
6
15
20
47
39
5153
32
42
30
23
0
10
20
30
40
50
60
Overall Mild Moderate Severe
Pe
rce
nta
ge
re
sp
on
se
(%
)
Low Moderate High
UVB: satisfaction
(n = 131) Vlaanderen
![Page 79: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/79.jpg)
Psoriasis Treatment:
Patient satisfaction
![Page 80: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/80.jpg)
12
40 43
0
20
40
60
80
100
Low Moderate High
Per
cen
tag
e re
spo
nse
(%
)Patient satisfaction
How satisfied are you with how your doctor listens to your needs and concerns?
(n=529) Vlaanderen
![Page 81: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/81.jpg)
18
4233
0
20
40
60
80
100
Low Moderate High
Per
cen
tag
e re
spo
nse
(%
)Patient satisfaction
How satisfied are you with the information your doctor gives you on the disease?
(n=522) Vlaanderen
![Page 82: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/82.jpg)
9
36
47
0
20
40
60
80
100
Low Moderate High
Per
cen
tag
e re
spo
nse
(%
)Patient satisfaction
How satisfied are you with your doctor overall?
(n=516) Vlaanderen
![Page 83: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/83.jpg)
18
51
23
0
20
40
60
80
100
Low Moderate High
Per
cen
tag
e re
spo
nse
(%
)Patient satisfaction
How satisfied have you been concerning the treatment for your psoriasis?
(n=507) Vlaanderen
![Page 84: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/84.jpg)
15
49
25
0
20
40
60
80
100
Low Moderate High
Per
cen
tag
e re
spo
nse
(%
)Patient satisfaction: mild
How satisfied have you been concerning the treatment for your psoriasis?
(n=191) Vlaanderen
![Page 85: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/85.jpg)
20
54
21
0
20
40
60
80
100
Low Moderate High
Per
cen
tag
e re
spo
nse
(%
)Patient satisfaction: moderate
How satisfied have you been concerning the treatment for your psoriasis?
(n=228) Vlaanderen
![Page 86: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/86.jpg)
23
53
17
0
20
40
60
80
100
Low Moderate High
Per
cen
tag
e re
spo
nse
(%
)Patient satisfaction: severe
How satisfied have you been concerning the treatment for your psoriasis?
(n=78) Vlaanderen
![Page 87: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/87.jpg)
29
46
25
0
20
40
60
80
100
Low Moderate High
Per
cen
tag
e re
spo
nse
(%
)Patient satisfaction
How satisfied have you been concerning the treatment for your psoriatic arthritis?
(n=157) Vlaanderen
![Page 88: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/88.jpg)
28 2719 16
0
20
40
60
80
100
Timeconsuming
Ineffective Side effects Expensive
Per
cen
tag
e re
spo
nse
(%
)Patient satisfaction
What bothers you most about psoriasis treatment?
(n=497) Vlaanderen
![Page 89: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/89.jpg)
3223
18 14
0
20
40
60
80
100
Timeconsuming
Ineffective Side effects Expensive
Per
cen
tag
e re
spo
nse
(%
)Patient satisfaction: mild
What bothers you most about psoriasis treatment?
(n=167) Vlaanderen
![Page 90: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/90.jpg)
30 29
14 17
0
20
40
60
80
100
Timeconsuming
Ineffective Side effects Expensive
Per
cen
tag
e re
spo
nse
(%
)Patient satisfaction: moderate
What bothers you most about psoriasis treatment?
(n=207) Vlaanderen
![Page 91: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/91.jpg)
15
32 28
17
0
20
40
60
80
100
Timeconsuming
Ineffective Side effects Expensive
Per
cen
tag
e re
spo
nse
(%
)Patient satisfaction: severe
What bothers you most about psoriasis treatment?
(n=72) Vlaanderen
![Page 92: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/92.jpg)
Patient Associations
![Page 93: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/93.jpg)
12
40
18
611 14
0
20
40
60
80
Doctor
Med
ia
Friends
/rela
tives
Inte
rnet
Oth
er
Don't re
mem
ber
Per
cen
tag
e re
spo
nse
(%
)Patient associations
How did you become aware of your patient association?
(n=572) Vlaanderen
![Page 94: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/94.jpg)
13
27
40
23
15
24
14
0
10
20
30
40
50
60
B Cz Fi D I NL F
Per
cen
tag
e re
spo
nse
(%
)
How did you become aware of your patient association?
Doctor
![Page 95: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/95.jpg)
43
14 15
3025 23
34
0
10
20
30
40
50
60
B Cz Fi D I NL F
Per
cen
tag
e re
spo
nse
(%
)
How did you become aware of your patient association?
Media
![Page 96: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/96.jpg)
18
32
22
15
24
13 12
0
10
20
30
40
50
60
B Cz Fi D I NL F
Per
cen
tag
e re
spo
nse
(%
)
How did you become aware of your patient association?
Friends/relatives
![Page 97: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/97.jpg)
52 2 3
23
7 7
0
10
20
30
40
50
60
B Cz Fi D I NL F
Per
cen
tag
e re
spo
nse
(%
)
How did you become aware of your patient association?
Internet
![Page 98: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/98.jpg)
59
14 12 11
0
20
40
60
80
Educate andoffer programs
Provide apolitical voice
Raise moneyfor research
Educate thegeneral public
Per
cen
tag
e re
spo
nse
(%
)Patient associations
Which of the following is most important?
(n=551) Vlaanderen
![Page 99: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/99.jpg)
43 44
4 1
9
0
20
40
60
80
Very Somewhat Not toomuch
Not at all Don't know
Per
cen
tag
e re
spo
nse
(%
)How important are the following services?
Newsletters
(n=572) Vlaanderen
![Page 100: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/100.jpg)
18
33
115
32
0
20
40
60
80
Very Somewhat Not toomuch
Not at all Don't know
Per
cen
tag
e re
spo
nse
(%
)
Website
(n=572)
How important are the following services?
Vlaanderen
![Page 101: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/101.jpg)
19
41
18
4
19
0
20
40
60
80
Very Somewhat Not toomuch
Not at all Don't know
Per
cen
tag
e re
spo
nse
(%
)
Local/regional meetings
(n=572)
How important are the following services?
Vlaanderen
![Page 102: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/102.jpg)
38
46
71
9
0
20
40
60
80
Very Somewhat Not toomuch
Not at all Don't know
Per
cen
tag
e re
spo
nse
(%
)
Booklets
(n=572)
How important are the following services?
Vlaanderen
![Page 103: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/103.jpg)
27
35
15
4
19
0
20
40
60
80
Very Somewhat Not toomuch
Not at all Don't know
Per
cen
tag
e re
spo
nse
(%
)
Support groups
(n=572)
How important are the following services?
Vlaanderen
![Page 104: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/104.jpg)
34 36
93
19
0
20
40
60
80
Very Somewhat Not toomuch
Not at all Don't know
Per
cen
tag
e re
spo
nse
(%
)
Support of psoriasis research towards a cure
(n=572)
How important are the following services?
Vlaanderen
![Page 105: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/105.jpg)
76
15
18
0
20
40
60
80
Very Somewhat Not toomuch
Not at all Don't know
Per
cen
tag
e re
spo
nse
(%
)
Availability of national staff to assist with issues
(n=572)
How important are the following services?
Vlaanderen
![Page 106: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/106.jpg)
67
20
2 1
11
0
20
40
60
80
Very Somewhat Not toomuch
Not at all Don't know
Per
cen
tag
e re
spo
nse
(%
)
Advocacy with govt, health authorities, insurance co, pharmaceutical industry
(n=572)
How important are the following services?
Vlaanderen
![Page 107: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/107.jpg)
50
33
81
8
0
20
40
60
80
Very Somewhat Not toomuch
Not at all Don't know
Per
cen
tag
e re
spo
nse
(%
)
Increasing general public awareness of the disease
(n=572)
How important are the following services?
Vlaanderen
![Page 108: EUROPSO patient survey](https://reader035.vdocument.in/reader035/viewer/2022062803/568146b4550346895db3d197/html5/thumbnails/108.jpg)
3826 30
9
2416
0
20
40
60
80E
du
cati
on
alp
rog
ram
s ab
ou
tp
sori
asis
Pu
bli
caw
aren
ess
acti
viti
es
Reg
ion
al s
elf-
hel
p g
rou
ps
Fu
nd
-rai
sin
gev
ents
Tel
eph
on
eco
nta
cts
wit
ho
ther
su
ffer
ers
Tel
eco
nfe
ren
cesPer
cen
tag
e re
spo
nse
(%
)Patient associations
If offered, which of the following would you be most likely to participate in or attend?
(n=424)