9th patients' rights day: celia marin (europso)- the role of prevention and innovation in...
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Celia Marin Celia Marín, Europso Executive Board Member of The European Federation for Psoriasis and Psoriatic Arthritis Associations The role of prevention and innovation in sustainable healthcare systemsTRANSCRIPT
The role of prevention and innovation in sustainable healthcare systems
The role of prevention and innovation in sustainable healthcare systemsA point of view of the european psoriasis and psoriatic arthritis patients
www.europso.eu@europso@CMRancel#EPRD15
Europso: 26 years working for psoriasis patientswww.europso.eu@europso #EPRD15
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Psoriasis is an auto-immune related, chronic, inflammatory skin condition which currently has no cure
#EPRD15Lebwohl M, Bachelez H, Barker J, et al. Patient perspectives in the management of psoriasis: Results from the population-based Multinational Assessment of Psoriasis and Psoriatic Arthritis Survey. Journal of the American Academy of Dermatology. 2014, http://www.jaad.org/article/S0190-9622(14)00977-3/abstract MED/PSD/APR/2014-09/08 Psoriasis: more than skin
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Lebwohl M, Bachelez H, Barker J, et al. Patient perspectives in the management of psoriasis: Results from the population-based Multinational Assessment of Psoriasis and Psoriatic Arthritis Survey. Journal of the American Academy of Dermatology. 2014, http://www.jaad.org/article/S0190-9622(14)00977-3/abstract MED/PSD/APR/2014-09/08 Psoriasis WHO ResolutionRecognizing also that psoriasis is a chronic, noncommunicable, painful, disfiguring, and disabling disease for which there is no cureRecognizing further that in addition to the pain, itching and bleeding caused by psoriasis, many affected individuals around the world experience social and work-related stigma and discriminationUnderscoring that those with psoriasis are at an elevated risk for a number of co-morbid conditions, namely, cardiovascular diseases, diabetes, obesity, Crohn disease, heart attack, ulcerative colitis, metabolic syndrome, stroke and liver diseaseUnderscoring also that up to 42% of those with psoriasis also develop psoriatic arthritis, which causes pain, stiffness and swelling at the joints and can lead to permanent disfigurement and disabilityUnderscoring that too many people in the world suffer needlessly from psoriasis due to incorrect or delayed diagnosis, inadequate treatment options and insufficient access to care
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WHA67.9 Agenda item 13.5 24 May 2014 Juan LpezEscribir una cita aqu
Psoriasis Data Care
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Juan LpezEscribir una cita aqu Psoriasis Data Treatment
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Psoriasis/Psoriatic arthritis costs
Psoriasis costs US up to $135 billion a yeardirect costs, medical expenses as doctors appointments and treatments- indirect costs, which measure how psoriasis affects work productivity- intangible costs, analyzing the impact of psoriasis on quality of life- medical expenses related to psoriasis comorbidities
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7 ene. 2015 - JAMA Dermatology. Dr. April Armstrong, University of Colorado Denver, Member of the National Psoriasis Foundation Medical Board, co-authored the studyPsoriasis innovationNew treatmentsUnmet needsClinical trialsBetter access
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Faculty of Life Sciences & Medicine Kings College London
Psoriasis: to treat or to manage?Prevention: holistic approach of disease controlInformationNetworking
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Ulrich Mrowietz, Kirsten Steinz and Sascha Gerdes Psoriasis-Center, Department of Dermatology, University Medical Center Schleswig-Holstein, Campus Kiel, GermanyCorrespondence: Ulrich Mrowietz, MD, Psoriasis-Center, Department of Dermatology, University Medical Center
Patients organizations roleADVOCACY
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Patients organizations roleLEARNING
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Accin Psoriasis, Europso MemberPatients organizations roleLOBBY
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France Psoriasis, Europso MemberPatients organizations roleINVESTMENT IN FUTURE: II Psoriasis Youth Round Table Europso, Spain 2015
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ACCESS. HEALTH. LIFE19 MILLION psoriasis patients in EuropeEuropean Patients RightsPATIENT= RESOURCH
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The role of prevention and innovation in sustainable healthcare systemsThank you for listening psoriasis patients voice