all sections to appear here 5/13/20151robin mcwilliam
TRANSCRIPT
Robin McWilliam 1
All sections to appear here
5/13/2015
Measuring Family Quality of Life for Evaluation and Support
Robin [email protected]
www.ramgroup.info
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Outline
• Definition of FQoL• How to assess it• What to do about it• Why we should care
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Definitions From the Field
When you hear family quality of life, what do you assume this means?
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Definitions From the Field
If you think your family quality of life is good, how is it good?
If you think it’s bad, how is it bad?Is family quality of life malleable?
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Definitions From Experts
• Original Beach Center definition:• “conditions where the family’s needs are met,
and family members enjoy their life together as a family and have the chance to do things which are important to them” (p. 368; Park, Turnbull and Turnbull, 2002).
• Later amended to include the interaction of context, system, policies, and programs with both individual- and family-level needs.
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Assessment
• Figure out definition from what’s assessed• International Family Quality of Life Survey
(FQOLS-2006; Brown et al., 2006; Isaacs et al., 2007)
1. Health2. Financial well-being3. Family relationships4. Support from other
people5. Disability-related
services
6. Influence of values7. Careers and
preparing for careers
8. Leisure and recreation
9. Community interaction5/13/2015
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Beach Center Family Quality of Life Scale (FQOL)
• Hoffman et al., 20061. Physical/material well-being2. Family interaction3. Parenting4. Disability-related supports5. Emotional well-being• Rating satisfaction and importance
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Early-Intervention-Specific Scale
• Families of children birth to 6 with special needs
• Family perception of child functioning
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Family Quality of Life (FaQoL; McWilliam & Casey, 2013)
• Original developed in 2006 for study of families of children with hearing impairments
• Another in 2007 for families of children with ASD
• Current version for families of all children 0-6• Translated into Spanish, Portuguese, and
Chinese
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Factor Structure
• Initial factor analysis done in U.S. • Confirmed in Spain (N = 777; García &
McWilliam, 2015)• Factor 1 - Family Relationships. Problem
solving, communication, parenting, relationships with extended family, and family participation in social activities.
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• Factor 2 - Access to Information and Services. Knowledge of their child's disability, child development, managing challenging behaviors and resources such as support services, medical assistance, and organizations in their community
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• Factor 3 – Child Functioning. Child's engagement, independence, and social relationships within family daily routines.
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• Factor 4 – Overall Life Situation: Fulfillment of family needs in health, financial resources, and employment.
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Support to Promote It
• Needs based• General well-being– Parenting
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Needs-Based Support
Needs From RBI
Needs From FaQoL
Support-Based Home Visits
New Needs
Improved FQoL
Child Functioning
Family Needs Assess-ment
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General Well-Being: Parenting
Talk
Read
PlayTeach
Manage Behavior
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The 8 Bailey et al. Family Outcome Questions
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Alignment With Federal Family Outcomes
Federal• Family
– Part C• Know their rights• Effectively communicate their
children’s needs• Help their children develop and learn
– 619• Schools facilitated parent
involvement
• Child– Positive social-emotional skills– Acquisition and use of knowledge &
skilsl– Use of appropriate behaviors to meet
their needs
FaQoL1. Family Relationships2. Access to Information &
Services3. Child Functioning4. Overall Life Situation
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Transactional Nature of Family Systems
Child Functioning
Family Well-Being
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Parents can fill their child’s bucket only to the extent that their own bucket is full
Crossco.com
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Take-Home Messages
What important message will you carry away?
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Take-Home Messages
1. Consider adding FQoL to your program evaluation, using the FaQoL
2. Don’t assume federal outcomes measure how well you’re doing with families
3. Ensure you’re assessing and meeting all 3 types of family needs
4. Child functioning is a part of a family’s quality of life
5. Remember the bucket principle5/13/2015