msc mi vol 5 iss 2

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Thank You to Our Volunteers!Volunteers play a critical role or theNational Multiple Sclerosis Society,

Michigan Chapter. Last year alone, we utilizedover 1,800 volunteers! Volunteers help us inall areas o the Chapter including serving onour Board o Trustees and various committees,working at events, serving as sel-help groupleaders, research advocates, physical health

and wellness volunteers, in advocacy, in-ochelp, and manning our mission tablesjustto name a ew. Our organization could notreach the goals we set out to accomplishwithout the commitment and dedication o

each o these volunteers. We want to tip ourhats to you or donating your time, hands,and hearts to the National MS Society andhope you will continue to support us as wemove closer to a worldree o MS!

Join the MoveMenttoday!as m ws s MS cc prs blg ss, r r qul umbr ws g bck s lur.Volunteers are integralpartners in the ght against multiplesclerosis. Across the country, National

Volume 5 Issue 2 Michigan Chapter

M O V I N G T OW A R D A W O R L D F R E E O F M S

National Volunteer WeekApril 27 - May 3, 2008

Its Time for SomeFun Page 10 Direct FinancialAssistance Page15 Event Season is inFull-Swing Page 18Progress in RepairingMS Damage Page 5

INSIDETHISISSUE:

Spring/2008

Moving Forwa

Film Festiva

See pg. 6 for de

Continued on page 2

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A publication o the National MultipleSclerosis Society, Michigan Chapter21311 Civic Center Dr.Southeld, MI 48076-3911

Ph: 800-344-4867Fax: 248-350-0029E-mail: ino@mig.nmss.org

Cpr CrPeter Burton

Cpr PrsElana Sullivan

nwslr er

Chris Collins

The Michigan Chapter o the NationalMultiple Sclerosis Society is proudto be a source o inormation aboutmultiple sclerosis. Our comments arebased on proessional advice, publishedexperience and expert opinion,but do not represent therapeuticrecommendations or prescriptions. For

specic inormation and advice, consult aqualied physician.

The Michigan Chapter o the NationalMultiple Sclerosis Society doesnot endorse products, services ormanuacturers. Such names appear (inthis publication) solely because they areconsidered valuable inormation. Thechapter assumes no liability whatsoever

or the contents or use o any product orservice mentioned.

The mission o the National MS Society isto create a world ree o MS.

Copyright 2008 National MS Society,

Michigan Chapter

Multiple Sclerosis Society volunteerscontribute resources, time, knowledge, skills,and leadership that inuse the organizationwith energy and passion that will move uscloser to a world ree o MS.

At the Michigan Chapter we have volunteeopportunities that range rom one-timeevents and service projects to year-longcommitments in our oce or on a planningcommittee. This means that nearly everyonecan nd somewhere to volunteer in a way

that ts their availability, interests, and talentHowever, the most important thing is to ndthe best t or you.

Some Opportunities Include:

ne vlurs Our Walk MS and BikeMS events owe a great deal o their successto the strength o the volunteers who makthem possible. Volunteers are needed torun registration, work rest stops, serve luncand cheer on participants as they cross thenish line, etc.

nMS ambssr vlurs I youare interested in speaking out in yourcommunity about MS and what the NationMS Society, Michigan Chapter has to oer,consider becoming an MS Ambassador! In2008, the Michigan Chapter will be holdingan intensive training or this new program.

2 JOIN THE MOVEMENT: nationalMSsociety.org

National Volunteer Week

The Target Retirees lending a hand.

Continued from page 1

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nRsrc acc vlurs Research Advocacy Volunteers are localchampions or the National MS SocietysResearch Mission. These volunteers shareinormation about advances in biomedicalresearch and promote the Societysresearch programs.

nPrgrms vlurs Help move uscloser to our mission by becoming a Sel-help Group Leader, Friendly Listener orGateway Facilitator.

nofc Suppr vlurs Come intoour oce in Southeld and help support

various projects including data entry,mailings, special event preparation, phonecalling, and web research.

nPrssl vlurs Contributeresources to ght MS - time, knowledge,skills, and leadership. Graphic design,communications & public relations, sales &marketing, accounting, human resources,law, and event planning are just some o

the areas o expertise that can enhancethe Chapters eorts to create a world reeo MS.

nPlg Cmms Lrspvlurs Programs and undraisingevents are made possible because o thecommitment o volunteers who workwith Chapter sta to plan, recruit, andundraise.

nor Ws t G il

lCmmu es Individuals ororganizations interested in hostingevents in support o the mission othe National MS Society. These Do ItYoursel events are planned and runindependently rom the National MSSociety sta.

lCr tm Walk MS, Bike MS,and the MS Longest Day o Gol areour three major events, and 80% o ourparticipants rom these events are parto a team. Teams represent companies,amily and riends, clubs, organizations,

religious groups, or schools. All youneed is one person to step up to be theteam captain and you are on your way!

lB Spsr Corporations andbusinesses can join the movementto create a world ree o MS throughevent sponsorship, product donations,point-o-purchase donation programs,or by supporting teams o employeesparticipating in our undraising events.

If you are interested in any of theseopportunities or you would like tospeak to someone about volunteering,

please check out our Web site atwww.nationalMSsociety.org/mig,email volunteer@mig.nmss.org or call248-351-2190 ext. 210.

National Volunteer Week (Continued)

Volunteers helping out at the 2007 Walk MS -Lansing site.

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Dear Friends

Happy Spring! I think we are all eeling ready or some sun and warmth aterthis cold, snowy and long Michigan winter.

With this new season comes many opportunities to renew our commitmentand passion to creating a world ree o MS. We are doing so with newprograms, new opportunities to help people with MS in need through ourDirect Assistance program, and new ways to raise money to help us nd a cure

Our Chapter development sta came to me recently with an unusualPresidents Challenge which I wanted to share with you. This is a vibrant, enthusiastic group oproessionals who many o you know i you participate in one o our undraising events.

Their challenge to me was this: I will have to dye my hair bright orange (MS orange we callit) and maintain that MS orange hue or one entire month, provided they reach their stretch goal

o raising $3.8 million by October 1st

in our Walk MS, Bike MS and MS Longest Day o Gol events.This dollar amount is nearly $500,000 over our mass market event goal or the year, making it atremendous challenge. It will also be a tremendous help to the MS community here in Michiganto achieve this level o undraising success.

Anyone who knows me well knows that my hair is not something I take lightly. That said, Icannot tell you how excited I will be to ollow through on my end o the deal in the all!

I invite you to join in on the un and help make this happen. Please visit us on the web atwww.nationalmssociety.org/mig to learn more and to register or one o our events this springand summer.

MS is a serious disease, and we take our jobs very seriously. We also realize that its good and

healthy to have un along the way, and that as a team, we are always more successul. We trulyare dedicated to one day creating a world ree o MS, and with your help, we will achieve it.

I hope to see many o you in the coming weeks as I embark on my MS Road Show. In themeantime, please call or email me with anything on your mind.

All the best,

4 JOIN THE MOVEMENT: nationalMSsociety.org

A Letter from your Chapter President

Thank You for Participating in MS Awareness Week 2008!

During MS Awareness Week (March 10 17) 2008,many individuals, amilies and places o businessJoined the Movement. A sincere thanks goes out

to those who participated. We challenge you to continue awareness eorts year round.For support and ideas about impacting and educating your community, please call1-800-344-4867 or visit www.nationalmssociety.org/mig.

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Progress made in repairing MS damage

With aggressive unding rom the

National MS Society and many

other sponsors, researchers arepursuing ways to reverse the damage done

by MS to nerve bers andthe protective myelin

coating that surrounds

them.

Encouraging results

have emerged romtwo recent laboratory

studies.

Mayo Clinic zeroesin on an antibodyIt may not have the most

memorable name, but

rhigM22 recently made

news when Dr. Moses

Rodriguez and his Mayo

Clinic team reported

success in repairing

myelin when theyinjected a single dose o this monoclonal

antibody into mice with an MS-like disease.

The results were presented at the

132nd Annual Meeting o the American

Neurological Association in October 2007.

Although these ndings will need to beconrmed by urther animal and human

studies, the results take us one step urther

to stimulate myelin repair in people with MS.

Block that LINGOResearchers unded by Biogen Idec, Inc.,

which makes the MS disease-modiying

drug Avonex, recently reported successin repairing myelin in mice by blocking a

myelin molecule called LINGO-1. Dr. Sha Mi

and colleagues wrote about their ndings in

the September 30, 2007 online edition

onur Mc.

LINGO-1 is part o a complex o molecules

within myelin called the Nogo receptor

complex that has beenshown to inhibit theregeneration o nerve

bers. In an earlier study

published in the March,

2004 issue onur

nurscc, Dr. Misteam reported that

remyelination occurred

and the health o nervebers improved when

LINGO-1 was disabled.

In the current study,

the Biogen team rst

induced EAE, an MS-like

disease, in mice with

and without LINGO-1.

Both groups developed

EAE symptoms, but theywere signicantly milder in mice without the

molecule. Studies o tissue samples showed

signicant myelin repair in these mice as

well.

The team then administered a LINGO-1

antibody capable o blocking LINGO-1

activity to mice that already had symptoms

o EAE. The treatment stabilized diseaseprogression ater two weeks. Tissue analysisshowed that treatment reduced nerve ber

damage and enhanced myelin repair in the

spinal cord, compared with untreated mice.

According to a recent Biogen press release,

the company plans to continue researchingthis possible new approach to MS treatment

5TOLL FREE NUMBER 1 800 344 4867

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these drugs also delay disabilitysignii-

cantly. Visit lmssc.rg/

bulls.

t MS tclg Cllbr sur

rsuls

People with MS may not take advantage o

eatures that could make their computers

and electronic devices easier to use.Even so, technology plays a vital and

increasingly important role in their lives.

These are some o the key acts that

suraced in an important survey this spring.

Read the results at mmsmw.cm/

sur.ml.

tk prsl c spsGet a quick pic o solutions to problems,

such as reading text on the screen or using

a mouse. Visit

mmsmw.

cm and answer

a ew simple

questions onthe Snapshot

quiz. Youll getcustomized

inormation

detailing

solutions

including many that are low cost.

irl MS mg rprs

w rpsLast October, the European Committee or

Treatment and Research in MS (ECTRIMS)

met in Prague and reported on studiesin MS development that are building a

better picture o the dierences between

progressive and relapsing orms o MS.

The meeting also reported on new drugs

NEWS Flash Succss!

The President signed the Deense

Appropriations Funding Bill (H.R. 3222)

on November 13, 2007, in response to

the voices o more than 100,000 MS

activists urging Congress to increase

ederal unding or MS research. MSresearch is now eligible or unding under

the Department o Deense (DoD) or

the irst time ever. Get the ull story at

lMSSc.rg/cc .

MS lms lbl yutubView ive short ilms by and about people

living with MS shown in the irst annualMoving Forward Film Festival sponsored

by the Society. Go to uub.cm and

search or Moving Forward Film Festival.

Pr MS rugs l sblTheres been ample proo that Avonex,

Betaseron, Rebi, and Copaxone decrease

both the number o active MS attacks andsilent damage in the brain or spinal cord

as seen on MRI or people with relapsing

orms o MS. Now, a team o Canadian

researchers has published a review o

clinical experience over more than 20years, beore and since DM drugs came

into use. According to their estimates,

6 JOIN THE MOVEMENT: nationalMSsociety.org

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just beginning their trip through the long

process o testing. Among them are MS

vaccines, monoclonal antibody treatments,blood or bone marrow transplantation,

and a drug composed o a syntheticragment o myelin protein, the material

that insulates healthy nerve ibers.

To learn more about the indings, visit

lmssc.rg/bulls and

look or Rsrc Prgrss Rpr

irl eCtRiMS Mg, or ask us

or a copy.

In September 2008, ECTRIMSalong with its counterparts in North

America (ACTRIMS) and Latin America

(LACTRIMS)will meet in Montral or

the World Congress on Treatment and

Research in MS. As the organizing body or

ACTRIMS, the Society is pleased to providelogistical support or this important

meeting o MS researchers and clinicians.

Mmum s w isMSThe Societys national magazine is now

Mmum, an80-page quarterly.

I you have MS,

Mmum is a

Society beneit.

Others may

request it with theircontributions. Call us

or inormation.

Some back issues o

isMS (which began publication in

1983) are available at

lmssc.rg/mgz .

7TOLL FREE NUMBER 1 800 344 4867

Internship Opportunitiesat the Michigan Chapter!

The National MS Society, MichiganChapter is looking or college students

to ll several exciting intern positions atour Southeld location.

With an emphasis

on community

involvement, these

positions give theintern the opportunity

to network and learn

valuable marketing

skills. Flexible hours and

a riendly atmosphereare just a couple o the

eatures these positions oer. We oer intern

positions in the ollowing areas:

Accounting

Advocacy

Community Resource Investigator

Direct Assistance

Public Relations

Special Events

Technology

Volunteer Development

For additional inormation or job specicrequirements, please see our website atlmssc.rg/mg.To be consideredor one o the intern positions, please sendyour resume to r@mg.mss.rg withthe subject line reerencing Intern Position.

8/6/2019 MSC MI Vol 5 Iss 2

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Handling an MS attack

An exacerbation (also called anattack, a relapse, or a fare) is causedby infammation in the central

nervous system, which leads to a suddenworsening o a MS symptom or symptoms,

or the appearance o new symptoms. Anexacerbation usually lasts several days toseveral weeks.

While you may not be able to change the

act o an exacerbation, you can work on

changing how you respond to it. Here are

some tips:

So you missed your workout, had a ight

with your spouse, and ate a giant piece ochocolate cakenone o those cus

your exacerbation. An exacerbation

doesnt mean you did something wrong,so dont stress trying to igure out why it

happened.

Most exacerbations resolve on their own,or your doctor may prescribe a course o

steroids i your symptoms interere with

work or lie at home. Its important to getthe rest you need and talk to your doctor

about the best way to manage whateversymptoms you are having.

An exacerbation doesnt mean your

disease-modiying medication isntworking. In act, none o the available

medications stops the disease

completely. Work with your doctor to

decide i your current medication needs

to be changed.

Pseudoexacerbationstemporary

aggravations o MS symptomscan

happen i you get overheated, overtired,or run a ever. The symptoms will

gradually disappear as your body

temperature returns to normal. But i

youre worriedor the symptoms dont

get betterdont hesitate to call your

doctor.

Adapted rom The Emotional and

Psychological Impact o Multiple Sclerosis

Relapses, by Rosalind Kalb, published in the

2007Journal of the Neurological Sciences,Volume 256, Pages S29-S33.

New on our Web siteNew Video: The Clues ofEpidemiology

Are you more likely to have MS i

youre a man or a woman? Over 30

or under 30? I you live at the beach

or in the mountains? What do clusters, orhigh concentrations o people with MS in

specic geographical areas, tell us about the

disease?

Discover the answersand the relevance o

these questions or people living with MS

in the Societys new MS Learn Online videoseries, t Clus epmlg.

Emmy Award-winning broadcast newsanchor Anne Trujillo explores epidemiology,

or the study o disease patterns, in this two-

part documentary, eaturing internationally

renowned epidemiologists.

To view the two 15-minute segments, go to

lmssc.rg/mslrl .

Focus on Employment: How to Stayin the Game

This PDF-only Web publication is a reprint,

with updates, o a special section oInsideMSrom 2006. Read about:

When to discloseand why you may ormay not want to

8 JOIN THE MOVEMENT: nationalMSsociety.org

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2007 Annual Report

Now AvailableThe Michigan Chapters 2007 Annual

Report is now available online at ourweb site (www.lMSsc.

rg/mg) or a hard copy can be mailed

to you upon your request. Contact our

oce at (248) 351-2190.

The Americans with Disabilities Act

Managing atigue and cognitive issues at

work

Working rom home on the phone.

To download a ree copy, go to

lmssc.rg and visit the

Brochures section o the Library. No Webaccess? Call us and well send you a copy.

Research Directions in MultipleSclerosis

This brand-new publicationwritten by

Drs. John Richert and Diana M. Schneider

explores recent advances in MS research:what we know now,

and where research willbe headed or the next

decade. Dr. Richert is the

executive vice presidento Research and Clinical

Programs at the Society

and Dr. Schneider is

president and CEO o

DiaMed, LLC/DiaMedica Publications.

To download a ree copy, go tolmssc.rg and visit the

Brochures section o the Library. Or call us to

have a ree copy sent to you.

Bike MS Honors2007 Participant

Bike MS 2008 isdedicated to RobertBacon, a cyclist who

passed away suddenlywhile participating in lastyears mountain bike ride.Bob died doing something he loved, orsomeone he loved, or a cause he truly

believed in, said his wie Beki.Bob had been training andlooking orward to the eventor some time so that he couldshow his support and love

or his wie, who has MS. Wehonor the lie o Robert Bacon

and we thank his wie Beki or her supportand courageous spirit as we move orwardtogether, even more determined to create aworld ree o MS.

National MS Society Day with

the Grand Rapids Rampage

For the rst time ever the National MSSociety, Michigan Chapter partneredwith the Grand Rapids Rampage

Arena Football Team to make NationalMS Society Day with the Grand RapidsRampage! On March 30th the Los Angeles

Avengers battled itout with the Rampageat Van Andel Arena.

There were also threeauthentic autographed

jerseys that wereauctioned o. Net proceeds rom thethree jerseys sold were donated back tothe National MS Society. By coming out toshow your support on this day you helpedus move closer to a world ree o MS.

Thank you or your support! Go Rampage!

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Its Time for Some FunSue Chapman, MA, MSW

S

pring is here with summer not ar behind. Thinking o taking a vacation?Or have you designated vacations to the pile o things youve given up

now that youre dealing with MS? Heres some inormation, thanks, again,

to one o you out there who keeps their eyes, ears and hence their options openor staying in this game o lie. I you really would like to plan a getaway but

are concerned about the accessibility o your destination, 101 Accessible

Vacations: Travel Ideas or Wheelers and Slow Walkers may be a

guide or you. Written by Candy B. Harrington (a renowned speaker on

accessible travel), Demos Medical Publishing, 2007, this book may be a

valuable resource.

At the end o this article are a ew Web sites I ound while surng thenet. There are m so do your homework. As with any undertaking,

you will want to deal with qualied/ethical organizations that havebeen around or a while. Talk with your riends who have done some

traveling, ollow their suggestions. Check with the Better Business

Bureau or any complaints rom unhappy consumers. Ive heardrom two reliable sources that, nowadays, there are many cruise

ships that are very user riendly to those needing accommodations.

Disney World is another spot that caters to those with challenges.

Planning is a big part o the un so start early. Visit a travel agent,

watch travelogues, call places o interest, theyll happily send

inormation to you. The possibilities are, literally, endless.I a bit overwhelmed at rst, try starting small; a night in

the city, a ve star hotel, an accessible room. See a show, or

just treat yoursel to a lovely dinner beore relaxing by

the indoor pool. Call ahead or possible package rates.

Sounds great already doesnt it? Youll come home a newperson or at least youll eel like one. The ollowing sites

are not recommended one over the others, they are

simply to help get you startedENJOY!

www.sblrl.cmwww.mclrl.rg

www.mrggrzs.cm

10 JOIN THE MOVEMENT: nationalMSsociety.org

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I an employee has his/her hours

reduced and is no longer considered a ull

time employee or group health insurance

purposes or is terminated rom his/her

position, that employee has the right tocontinued coverage at his/her own expense

or an additional 18 months. This provides a

period o time to nd new coverage.

COBRA also provides or continuing

coverage in the event o a divorce betweena covered employee and the employees

spouse. The non-employee is entitled

to continue the group health insurance

coverage. In this circumstance, and in the

case o death o the employee, the lawprovides or an extension o up to 36 months

(three years).The employer can only charge what it

costs the employer plus a limited admini-

strative ee and must accept monthlypayments (as opposed to requiring larger

quarterly payments). There are very

strict notice requirements o 30 days or

terminated or reduced hour employees

and 60 days or divorced spouses. I you

nd yoursel in the position o possiblylosing health insurance coverage rom an

employer, you should contact the person

or department that handles the employee

benets at the earliest possible time to makecertain that you do not lose your right to

elect coverage.

There are many legal issues

that have particular impact on

the lives of those diagnosed

with MS. While the localchapter cannot provide

legal services, it does try to

provide general information

and referrals to resources. Ina C. Cohen is an

attorney and member of the Board of Trustees,

National Multiple Sclerosis Society, Michigan

Chapter.

Ive been writing columns or MSConnection since the summer o 1998. Ivecovered most o the topics o concern to

individuals with disabilities over the years.

For the next ew issues, I am going to repeat

prior articles. In the near uture, it is my goal

to have all o the previous columns availableonline at our Web site.

W u k w u r

CoBRa? t Fr Musg Cbr? t

sk? I think o the Consolidated OmnibusBudget Reconciliation Act o 1985, a ederal

statute that attorneys, employee benets

departments and others reer to as COBRA.

This law provides or transition group health

insurance coverage in certain circumstances.It is only applicable to employers o 20 or

more employees.

Generally, COBRA provides that

employees, their spouses and dependents

are entitled to continuing coverage underexisting group health policies when a

triggering event occurs. A triggering event

can be a termination, layo, reduced hours,

divorce or death o the employed spouse.

Legal BriefsBy Ina Cohen

11TOLL FREE NUMBER 1 800 344 4867

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aprl 5 - M 24,Aquatics at the

Traverse City Civic Center Pool

Classes are a guided water exercise rom

10:20 a.m. - 11:10 a.m. and are open to all

chapter members with MS. t rgsr,pls cll Lur 231-386-7579.

Gateway to Wellness

Gateway to Wellness is a program to help

you achieve a sense o well-being in spite o

MS. During this six week program, you will

learn how to make inormed choices aboutliestyle and medical care.

Ms, aprl 14 M 19, 2008 Bl Crk 5:00 p.m. 7:00 p.m. Battle

Creek Area Math and Science Center, 765

Upton Ave., Battle Creek, MI 49015

Wss, aprl 30 Ju 4, 2008

Sul 6:30 p.m. 8:30 p.m. NMSSMichigan Chapter, Education Center

21311 Civic Center Dr. Southeld, MI 48076

Registration is necessary or this program.

Fr mr rm, cc Suz

800-344-4867, op. 2, x. 234.

aprl 26, Insurance Symposium in

Farmington Hills

Keynote speaker and seminars will explore

how to get the most rom your health

insurance and appeal insurance coveragedenials, places to nd health insurance that

arent employment related, plus cautionsand limitation in disability insurance.

Program runs rom 9:30 am 2:30 pm and

preregistration is required. Holiday Inn Hotel,Farmington Hills/Novi, 37529 Grand River

Ave. Farmington Hills, MI

Fr rm cc

Ru.Lm@mg.mss.rg

aprl 26, Upper Peninsula Spring

Conerence in Marquette, Marquette

General Hospital, Education Center

Agenda: AM Research Nervous System

Protection and Repair with Dr. DebraMorley, MD, Ph.D.. Lunch with Michigan

Chapter President Elana Sullivan. PM

Emergency Preparedness with the Red

Cross and the Salvation Army presenting.

Fr mr rm, cc Srr

906-228-5739.

M 10, Perspectives on Living with MS

in Grand RapidsWe have buddies or working out, dietingand studying, but what about a person to

remind you to go to lie? Join us to listen to

speakers in various elds, as well as a panel

o people with MS talk about techniques to

live boldly. Lunch, learning, socialization, andun will be included. Fr mr rm,

pls cll am 616-942-5505.

M 17, Northern Spring Conerence

in Gaylord

Topics to include: Strengthening the Doctor/

Patient Relationship, Making Sense o Social

Security/Disability, Research-The Hope on

the Horizon, Whats new in Medicare. Join

us at the Free Evangelical Church. Fr mr

rm cc Brb 231-348-7992

r brb.mckz@mg.mss.rg.

ogg, Yoga or Health Chair Yoga in

Ypsilanti, St. Joseph Mercy Health System

Michigan Heart & Vascular Institute

This program is appropriate or anyone who

wishes to gain the benets o yoga, but does

not want to get on the foor. Poses can be

perormed rom a chair or wheelchair. Those

Michigan Chapter Program Calendar

12 JOIN THE MOVEMENT: nationalMSsociety.org

8/6/2019 MSC MI Vol 5 Iss 2

13/20 1TOLL FREE NUMBER 1 800 344 4867

who are more mobile may perorm some

poses standing using a chair or assistance.

Six-week sessions are oered on Thursdays

rom 5:30 to 6:30 p.m. and are $60*. Fr mre

irmai, please cac diae Mrse,

Ryt, a 734-712-3546.

ogig, Gentle Moves or PersevereExercise in Pontiac, Village of Oakland Woods

This program, given by ACE and ACSM certied

personal trainer, Julie Richmond, is geared

toward the needs o people with MS and is

designed to improve stamina, endurance,

balance, coordination, and fexibility. Classes

are oered on Tuesdays and Thursdays rom

11:00 to 11:45 a.m. and are $20*/month. Fr

mre irmai, please cac Julie a248-334-4379.

* Partial scholarships orYoga for Health Chair

Yoga Gentle Moves or Persevere Exercise

are available through the Michigan Chapter by

contacting Sue Arnot at 800-344-4867, option

2, ext. 232

Ma 1 - Jue 10,2008 North American

Education Program (NAEP) - ResearchNervous System Protection and Repair

This video program created by the National

MS Society, oers exciting insights into the

world o nervous system protection and

repairs and will ocus on the progress being

made. Ater the video presentation, National

MS Society research advocates will eld

questions. Participants will also receive a 50-

page program booklet that reviews the videoinormation. The program will be held at the

ollowing sel-help group meetings. Register

by calling the group leader.

thursa, Ma 1 i Mila (Visiting Nurses

Association Oces) at 5:30 p.m. Call Gee

Wwar a 989-631-2804.

Weesa, Ma 14 in Traverse City (Munson

Community Health Center, Room B) at 6:30

p.m. Call Kare Baile a 231-947-0244.

Weesa, Ma 21 in Brighton (St. Joseph

Woodland Mercy Hospital) at 7:00 p.m. Call

We Suer a 248-466-9592.

Sua, Jue 1 in Plymouth (St. Kenneth

Catholic Church) at 2:00 p.m. Call Mar

Remer a 734-455-1944.thursa, Jul 10 in Watervliet (Lawrence

Conerence Center) at 7:00 p.m. Call diae

Camferma a 269-463-5620.

Ma 1 - Jue 10, Hold that Thought!

Cognition and MS, the 2008 North American

Education Program (NAEP)

In the video program created by the National

MS Society, experts in the eld o cognitionand MS will discuss ways MS aects cognition

and how you can manage cognitive symptoms

A question and answer session with a local

health care proessional will ollow the

video. Participants will also receive a 50-page

program booklet that provides inormation

about cognitive problems in MS, cognitive

rehabilitation, and current research. The

program will be held at the ollowing sel-help

group meetings. Register by May 5

by calling the group leader.

Weesa, Ma 14 in Calumet (Keweenaw

Home Nursing) at 6:30 p.m. with Dr. Julie

Markham, Neuro-psychologist. Call Rachel

Laur a 906-281-3673.

Ma, Ma 19 in Wyandotte (Henry Ford

Wyandotte Hospital, Multipurpose Room B) at

7:00 p.m. Call nac Parker a 734-676-6320.tuesa, Ma 27 in Scottville (Westshore

Community College) at 7:00 p.m. Call Mar

Peers a 231-757-3271.

Jul 12,Aquatics, Kalkaska Kaliseum Pool.

Fr mre irmai cac di a

231-258-5337.

8/6/2019 MSC MI Vol 5 Iss 2

14/20

Are you in your 20s or 30sand have MS?Plans are in the works or social gatherings

in Lansing, Grand Rapids, and Metro Detroitor the summer. i ur rs

prcpg r sssg w pls,

cll am 616-942-5505.

nmbr 18, Caregiver/Carepartner

Program in Southfeld

I you are a caregiver/carepartner o a person

with MS who would like to meet with other

caregivers/carepartners, mark your calendar

now. A program will be held rom 6:00 9:00p.m. at the Society Oce. The nights events

will eature not only a speaker, but also timeor socializing with other caregivers and

a light dinner. Pls cll 800-344-4867,

p 2, x. 232 b pu mlg

ls r s uur prgrms r

crgrs.

OPPORTUNITIES

tw w Sl-hlp Grups r rmg nrr Rg:

1) Cbg - (covering the Tip o the Mitt)Contact Jessica or more inormation989-734-8069 or jswick@lhi.net

2) Cllc - Contact Barb or moreinormation 231-348-7992 orbarb.mackenzie@mig.nmss.org

Sl-hlp Grup C-Lr s

Cl Cu sr w grup. Thisvolunteer position requires a minimum oa one-year commitment to help organize,plan, and acilitate a monthly sel-help groupor people with MS in the Bay City area. Thetime commitment is approximately 3-4hours per month and training will be pro-vided. Pls cll Crs Bmb

989-249-1184 u r rs.

New Book in NationalMS Society Library emplm issus Mulpl

Sclrss- Second Edition by Phillip D.Rumrill, Jr., Mary L. Hennessey and Steven

W. Nissen, Demos Medical Publishing, 246pages, 2008. (2 copies)

An essential reading or any person with MSwho has questions regarding employmentand disability. Chapters cover everythingrom vocational rehab to job placement tothe laws.

Mulpl Sclrss yur Lgl Rgs-Third Edition by Lanny Perkins and Sara

Perkins, Demos Medical Publishing, 153pages, 2008. (2 copies)

This is a practical guide or navigating U.S.laws and benets rom existing programs.It is an indispensable reerence or all thoseliving with MS who need to be aware o thelegal options available to them.

The National MS Society, MichiganChapter, would like to extend aspecial thanks to program sponsors:

The Michigan Chapter received a $4,000grant rom Biogen Idec to host theprogram Making Moves with Your MSthat will be held on April 5, 2008, inSterling Heights. Dr. Hinderer will speakon rehabilitation and MS and Diana Hohn,

Research Advocate, will speak on researchupdates.

The Michigan Chapter received a $1,500grant rom the Greater Traverse Rotaryto und our sessions o aquatics in theNorthern Region or 2008.

For more inormation on these programs,please call 1-800-344-4867, option 1.

14 JOIN THE MOVEMENT: nationalMSsociety.org

8/6/2019 MSC MI Vol 5 Iss 2

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T

he Michigan Chapter continues tolisten and respond to the needs o theMS community. Additional nancial

assistance services are now available toaddress the changing needs o the MScommunity. Participants throughout the statewho have received services rom the Chapterhave said:

I am speechless regarding the helprom your organization in getting, frst,a bedroom air conditioner and, as o lastThursday, you blessed me with a cooling

vest. I use both in my daily lie now.I am very satisfed with the programbecause it helps me to maintain myindependence.

The Michigan Chapter is here to assist youwith your nancial needs. By contacting theNational MS Society, those living with MS canapply or assistance in the areas o:

n Medical Equipment

n Home & Bathroom Modications

n Rehabilitation Therapyn Respite Assistance

n Home Care Services

n Transportation

n Short Term Counseling

n Auto Modications

n Cooling Devices

n Incontinence Supplies

n Assistive Technologies and more.

Completion o an application is necessaryto determine your eligibility, along with averication o diagnosis.

Fr mre irmai his serviceplease call, 1-800-344-4867, pi 1.

Keeping You Independent Direct Financial Assistance

NEW SERVICES ADDED!

The National Multiple Sclerosis Society, MichiganChapter had a unique presence at this years NorthAmerican International Auto Show, thanks to the

generosity o a major supporter, General Motors.In an eort to raise awareness o their drive to create

a world ree o multiple sclerosis, the Michigan Chapter o

the National MS Society occupied a corner o the Cadillacdisplay on the main foor o Cobo Hall, throughout the autoshow rom the Press Preview opening, January 13th throughthe last o the show, January 27th.

This was an unprecedented opportunity or us to promote our eorts, programs,initiatives and progress to more than 750,000 auto show attendees, as we battle MS,commented Elana Sullivan, National MS Society, Michigan Chapter President. Thisopportunity came upon us rather suddenly and were excited to have had this tremendousexposure. Were so grateul or GMs generosity, Sullivan added.

Michigan Chapter gets great exposure at the 2008 Auto Show

15TOLL FREE NUMBER 1 800 344 4867

8/6/2019 MSC MI Vol 5 Iss 2

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B

y no means is the idea o preparednessa new one, and although we donthave much o a historical account,

were sure our oldest oreathers, back tocaveman times, knew to take shelter, havea re going and have a stockpile o ood toeat when they saw a storm blowing towardsthem. Perhaps Shakespeare had the idea onhis mind where in Hamlet he says, I it benot to come, it will be now; i it be not now,yet it will come; preparedness is all. Mightthere have been a severe storm occurring

while he was writing the play?People with special needs havechallenges with day-to-day activities - nowadd an emergency. How do we keep themessage in mind and encourage action tobe taken beore the emergency happens?Its true that in this part o the country wedont see disaster oten, and when we do,the impact is typically short-term with littleeect on our overall well-being. This does

not mean a disaster plan is not needed.Like insurance, our hope is you will neveruse it, but in an emergency you will havesome comort that you and your amily areprepared. We all know disaster can strikewithout warning at any time. The time tosort out what needs to be done is not whilethe disaster is occurring.

Being prepared is everyonesresponsibility, particularly when there areadded needs, and is vital in every aspect

o our lie, at home, school and work. Takesome time to put a plan together, do it oneweek at a time so you do not overburdenyoursel. Remember that when a disasterhappens, you and your amily may be onyour own and spending a little time willbenet yoursel and those you care about.

It is easy to rely on the act that we live incommunities that have excellent emergencyservices. But, i the event is a power outage,widespread severe weather, or a chemicalrelease rom a nearby acility or truck, publicsaety will be overwhelmed. How long mightwe have to take care o ourselves?

Those with specialized needs must alsomake their own preparations. Talk withyour amily about what you will do in anemergency, put a amily plan together thatincludes how you will communicate with one

another i youre not in the same place, andget an emergency kit together that will helpyou get by i you are orced to stay in yourhome or a couple days.

Watch the Chapter web-site atwww.nationalmssociety.org/mig or tips andinormation on being prepared.

Personal Emergency Preparedness:The Challenge

16 JOIN THE MOVEMENT: nationalMSsociety.org

8/6/2019 MSC MI Vol 5 Iss 2

17/2017TOLL FREE NUMBER 1 800 344 4867

New for Walk MS & Bike MS in 2008!

Signs of Hope

Name ________________________________________ Team ___________________________Address _______________________________________ City____________________________

State ________________________ Zip ________ Phone ________________________________

E-mail Address ___________________________________________________________________

Method of Payment: qCheck qVisa qAMEX qMaster Card Total $____________

Card #_______________________________________ Expiration Date_____________________

Please return this form with your payment (checks made out) to:National Multiple Sclerosis Society,

21311 Civic Center Dr., Southeld, MI 48076, Attn: Kim Streich.

2008SIGNSO

FHOPE

ORDERFORM

Which event and location do you want to display your sign(s)?

Walk MSqAnnArbor

qDowntownDetroit

qFrankenmuth

qWestMichigan

(GrandRapids)

qLansing

qMetroDetroit(Troy)

qDownriver/

MonroeCounty

qMidland

qTraverseCity

Bike MSqWestMichigan(GrandRapids)

qMid-Michigan(Lansing)

New for this year! Signs of Hope gives you the opportu-nity to tell everyone why you are involved with the NationalMS Society. Share your thoughts, your Power Partnersstory, your Teams story or share why someone inspires you!Signs will be 18x24 in size and will be displayed at thestart / nish at all Walk MS and Bike MS locations. All signs$150 with $130 going toward your team total.

Cant think of anything? Maybe the following will give yousome ideas.

*Due to IRS regulations, the cost of the sign ($20) will be deducted from the total amount. The remaining amount will be creditedto your team total, or individual account.

Either ll out the form below and mail it in with payment or call Kim at 248.351.2190 ext. 204for more information.

Anniversary Birthday Cheers for Team Im walking for Im riding for

r L k

lk

nationalMSsociety.org/mig1-800-344-4867

six hundred walks.one destination.a world free of MS.

Im walking for myUncle John - Joe Smith

nationalMSsociety.org/mig1-800-344-4867

an unforgettable ride.

an unbeatable destination.a world free of MS.

Im riding in memory of mysister Betty - Clare Murphy

In Memory of... Power Partner spotlight Team Captain kudos Team spotlight

8/6/2019 MSC MI Vol 5 Iss 2

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Walk MS Celebrates 20 Years ofMoving Toward a World Free of MS!

2008 marks the 20th Anniversary

o Walk MS in Michigan! Walkseason is in ull swing and our

goals are bigger than ever!

The Michigan Chapter oers

programs and services to 18,000people living with MS and their amilies as

well as supporting national research.

Walk MS is an excellent way or us to raise

the much-needed dollars that help support

our ongoing programs and services. Ourgoal this year is to raise more than we ever

have beore, $1.65 million!

Walk MS attracts 200,000 participants

and 45,000 volunteers at 600 sites across the

nation.You can make a dierence and be a part

o Walk MS! Your participation is critical to

the success o this event and we need your

help. There are many ways to support the

2008 Walk MS:

nRgsr wlk! Better yet, invite all oyour riends and amily to join you. It only

takes a minimum o our people to orm ateam. You can register by visiting our Web

site at www.nationalmssociety.org/mig or

by calling 1-248-351-2190 ext. 218.

nvlur! We cant provide the best

event possible without your help. Jobs

range rom pre- and post-event oce

support to day o registration/check-in,route support and cheerleading. There

is something or everyone. You can

register by visiting our Web site at www.

nationalmssociety.org/mig, or by calling1-248-351-2190 ext. 210.

nRs m! Ask riends, amily, co-

workers, businesseseveryone you come

18 JOIN THE MOVEMENT: nationalMSsociety.org

Event Season is inFull-Swing.Team Up and Join theMovement to end MS now!

We are moving ull steam ahead withthe 2008 event season and invite youto team up with us to do something

about MS now. Form a team - its easy and unto participate. Sign up today or Walk MS, BikeMS, and the MS Longest Day o Gol events.

All it takes is one individual to serve as teamcaptain and inspire others to join the team.

8/6/2019 MSC MI Vol 5 Iss 2

19/20

in contact with to support you by making

a donation. Volunteers can raise unds

too! With our online undraising tools,

undraising has never been easier.

More Route Options for Cyclists inBike MS 2008

Bike MS 2008 is moving orwardwith some very excitingchanges. We will be providingrides with more route optionsto accommodate everyone romthe beginning cyclist to themost experienced rider.

The West Michigan Ride on May 31and June 1st will oer both one and two

day events and the new route will directcyclists on a dierent picturesque 30, 75,or 100 mile route each day incorporatingthe shoreline o Lake Michigan. The ridewill start and nish in Holland and two dayriders will be provided meals and overnightaccommodations at Hope College.

On July 12 and 13th, we will hold theMid Michigan Ride that starts and nishesat Lake Fenton High School. For those o

you who may be less experienced or cannotcommit to two days, we will be oering aone day 30 miles road ride on Sunday only.

The two day event allows riders to chooserom 50, 75 or 100 mile routes with mealsand overnight accommodations at MichiganState University in East Lansing.

Saturday, September 13th, will wrapup our cycling events or the year with ourmountain bike ride. Our steering council

is currently working on the location or thisand it will be published soon.

New Presenting Sponsor of the MSLongest Day of Golf

The National MS Society,Michigan Chapter is proud towelcome Ford Motor Companyas the new presenting sponsoro the 2008 MS Longest Dayo Gol event. Ford Motor

Company has a long historyo supporting o the Michigan Chapter. Formore than a decade, Ford employees haveparticipated as part o Team Ford in theWalk, Bike, and Gol events, and have raisedover $500,000 to support the movement toend MS. Ford Motor Company has also been agenerous supporter o the Chapters da VinciAwards event.

Working with the National MS Society

ts the Ford model which is one team, oneplan, one goal, said Marsha Winegarden,Director o New Model Programs or FordMotor Company. Across Ford we are unitedthrough supporting National MS Societyevents to help create a world ree o MS.

19TOLL FREE NUMBER 1 800 344 4867

A DOUBLE DESTINATION

With nearly 600 Walks and 100 Ridesall over the country and over 40 golcourses in Michigan, many people areplanning a double destinationraisingmoney to ght MS and having a reunionwith amily or ar-fung riends. Forinormation on events where and when,visit mapmyride.com.

8/6/2019 MSC MI Vol 5 Iss 2

20/20

21311 Civic Center Drive

Southeld, MI 48076-3911

Mlg Lbl CgsPlease check the appropriate box

below, correct the label then return to

National MS Society, MI Chapter

qName change or misspelledqAddress changeqRemove rom mailing listqReceived more than one copyqPlease send me my MS Connection

via e-mail. My e-mail address is:

icr Pwr Wlcr. 18 mos. old,

adjustable armrests, fat ree ties, semi-

recline seat, batteries. Exl. cond. Asking

$3,500. 1996 dg v. Ram 2500, elect.

wheelchair lit, 84,000 miles, runs and looks

great. Mechanically sound. Asking $5,700.Call Mike at (517) 783-2424.

2002 v Fr e-150 ex Cb.

Equipped or handicap access wheelchairs

Anti-lock. Back seating. 21,000 miles.

Automatic start-up Call Jerry at (586)

779-5087.

1999 Fr ecl. Fully equippedchairlit. Hand controls. New motor and tires.

Asking $6,500. Call Tom at (989) 835-1631.

Wlcr. Oxygen E-Tank holder. Tote

bag on back. Amigo Cart. Asking $120.

amg Cr. Asking $400. icr

Pr MXy. Asking $800. hr Ru

Wl Cr. Brand new. Has joystick or

maneuvering. Asking $2,500. tw SzMrsss or adjustable hospital bed.

Brand new. Asking $20 each. tw e-tk

(oxg) Crs. t Full e-tks. Asking

$200. Call Charles at (517) 262-1816.

Rll-i Swr Cr. Brand new. Locking

wheels. Made o PVC material (White). Back

made o shower netting/mesh (Grey). Seat

looks like toilet. Same height as a toilet. Hasswing arms to get in and out. Asking $200.

Call Mary Jane at (586) 978-8840.