creativity, innovation and resilience of people with an ...creativity, innovation and resilience of...

Creativity, innovation and resilience of people with an intellectual disability in responding to COVID-19

Professor Mary McCarronDr Cathy Payne Eileen Leonard Frances DonnellyIna Harte Mei Lin YapNatalya JacksonSarah ReganStephen Hogan

www.tcd.ie/tcaid @ageingwithID#ageingwithID

7 May 2020

Trinity College Dublin, The University of Dublin

COVID-19: Creativity, Innovation & Resilience

@ageingwithID #ageingwithID

COVID-19 will highlight the creativity, innovation and

resilience of people with an intellectual disability, their

carers and family members.

- Prof Mary McCarron3 April 2020


Policy Documents


Establish Accountability

Measures

Ensure Active Involvement & Consultation

Provide Accessible Information &

Services


The IDS-TILDA Story: 2007 – Present

First nationally-representative longitudinal study on ageing with an intellectual disability comparable to the general population


Health, Well-being and Quality of Life


Celebrating 10 Years of IDS-TILDA“Nothing about us, without us”


Celebrate Diversity and

Inclusion

Provide Meaningful

Opportunities

Involve the Entire ID

Community


Inclusion

Promotion of Best Practices

Person Centred

EmpowermentContribution to

the Lives of People

Choice

Promotion of People with ID


IDS-TILDA: Values Framework“Nothing about us, without us”


96.4% said that the day

activity they described was what they had wanted to do

What IDS-TILDA Teaches Us

Social Participation

Before COVID-19:

• Half of respondents reported they had not spent any full days at home in the previous week

• A further 17% spent just one full day at home

COVID-19: • Most are spending the majority of time at home


Before COVID-19: What IDS-TILDA Teaches Us

Social Participation

Activity Wave 3 %

Go out for coffee 95

Eat out 94.8

Go shopping 93.1

Go to the hairdresser 90.7

Go to church/place of worship 85.8

Engage in hobbies/creative activities 82.1

Visit family and friends in their home 80

Go to the cinema 72.3

Go to a theatre, concert or opera 69.5

Go to the pub for a drink 66.6

Talk to family or friends on the phone 64.9

Participate in sports activities/events 51.3


Before COVID-19: What IDS-TILDA Teaches UsPhysical Activity

86% of participants were sedentary or underactive

(RAPA)



Technology Use & Culture Change


Trinity College Dublin, The University of Dublin @ageingwithID #ageingwithID

After COVID-19Technology Use


• 92.4% had friends

• 57.3% having a friend outside their home

• 52.3% reported having a best friend

For those with friends outside the home:77.5% reported weekly contact

10.9% reported monthly contact

Before COVID-19: What IDS-TILDA Teaches UsSocial Connectedness



Call for Submissions: Creativity, Innovation & Resilience

What’s happening in Ireland?


CREATIVITY INNOVATION

RESILIENCE

Call for Submissions: Creativity, Innovation & Resilience Ireland’s Intellectual Disability Community


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WHAT SHOULD WE KEEP DOING?

WHAT SHOULD WE START

DOING?

WHAT SHOULD WE STOP DOING?

Pause & Reflect on How We’re LivingNow is the Time



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Poetry & ArtworkRemembering Those Who Inspired Us – Bobbi (1996)


Poetry & Artwork

‘Don’t give up’By Lisa Acheson

Find your inner balance,In these difficult strange times we are presented with.

Be humble and kind...Be kind towards people,You see and you don’t see everyday.

Normalise your day to day life With familiarity that you do everyday,Even though it’s indoors at the moment.

Be safe...

Don’t be insecure,About the future,Because we are in this this together,Even though you don’t think so.

Find your inner strengthBecause We can be heroes.

From this moment on,To make people smile or laugh, Who are vulnerable to this sickening virus.

Be humble and kind,Be safe and sound,Please know that we are all in this together...

So Much Talent to Celebrate



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COVID-19: Creativity & Innovation on Website

https://www.tcd.ie/tcaid/about/callforcreativity.php


Get Wise To Your HealthOngoing “Get Connected, Stay Connected” Campaign

@GetHealthWiseID



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AcknowledgementsThank you

Ability West

Athru

Ballaghaderreen

Brothers of Charity

Brothers of Charity Castlerea

Brothers of Charity Ennis

Brothers of Charity Galway

Brothers of Charity Kidron

Brothers of Charity Lurgan Park

Brothers of Charity Midwest

Brothers of Charity Roscommon

Brothers of Charity The Crucible

Brothers of Charity The Willows

Coaction

COPE Foundation

COPE Foundation Clonakilty

Cumas

Daughters of Charity

Down syndrome Ireland

Ennis Advocacy

Gheel Autism

IDRS

Kerry Parents and Friends

KPFA

Muiriosa Foundation Moore Abbey

Peamount

Prosper Fingal

St Christopher’s Longford

St Cronan's Birr

St Michael’s House

St Patrick's Kilkenny

St. Cronan’s Services

St. Hilda’s

Stewarts Care

Sunbeam House Services

Swinford Mayo



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Abbie Mannion

Adam Howard

Ailbhe Fransson

Alan Tarpey

Albert Mc Sheera

Alfred Marks

Alice Casey

Amber Lee King

Amy O Brien

Andrew Ryan

Andy

Anita Berman

Ann Comerford

Ann Dillon

Ann Egan

Ann Fahy

Annie Conway

Anonymous

Anthony Tynan

Barry Ryan

Becky Martin

Bernadette Keogh

Bernadette Mc Geary

Bernard O' Leary

Bernie

Bernie Bourke

Betty O' Connor

Bridget Synnott O' Reilly

Bridget Woods

Brigid Doolin

Brigid Kearns

Cadhla Fransson

Caitlin Hassan

Carmel Tucker

Carol Nairn

Carol Sparrow

Catherine Kealy

Chan Ching

Charlie Scully

Christina Hargreaves

Christopher Rochford

Ciara Butler

Claire

Claire Butler

Claire Finn

Clement

Clodagh Dempsey

Colleen Costello

Colm

Danielle Coyne

Daphne O' Callaghan

Daragh Losty

Darragh Bennett

David Griffin

David Malone

David O' Brien

David Power

David Radcliffe

David Sheehan

Deborah

Declan

Declan Colohan

Des McDonagh

Donna

Dylan Ledden

Eamon Foley

Eanna Owens

Ed Byrne

Eddie Whelan

Edmund

Edward Coonan

Eileen Kiely

Eileen Leonard

Eileen McIniry

Eileen Nugent

Eileen Sharkey

Eilish Flynn

Elaine Nolan

Elaine Rooney

Elizabeth Mannix

Elizabeth Palles

Elizabeth McAnaney

Erika Flynn

Esther Johnson

Etain Fransson

Eve Kirwan

Fidelma Korcell

Finbarr O Driscoll

Flan Meehan

Francis

Francis Coady

Gary

Gary Freyne

Gary Henshaw

GB

Gela Goche

George Fitzgerald

Geraldine

Geraldine Considine

Geraldine McKenna

Gerry Connolly

Grace Howley

Gregg McCann

Helen Keegan

Helen Moran

Helen Murtagh

Helen O’Regan

Henrik Fransson

Hilary Smith

Hilda

Hillary Nash

Holly Glover

Ina Harte

Jade Forristal

James

James Duffy

James Kelly

James Lanigan

James Moran

James Nevin

James Quilligan

James Shaugnessy

James Upton

Jamie O Donnell

Jean Bradley

Jean Freeburne

Jean Wright

Jerry

Jimmy

Joan O Flaherty

Joanie Healy

Joanna Stopyra

Joe

Joe Kane

Joey Creighton

John

John Coonan

John Gillespie

John Hallihan

John Leydon

John Nash

John O’ Connell

John Sweeney

Johnny Hennessy

Jose Fleming

Josephine

Josh Keating

Julia

Julie Moloney

June Stanley

Kathleen Gaffney

Kathleen McMeel

Kathleen Shanahan

Kellie O Donnell

Kevin

Kim Clarke

Laura Madden

Lauren Dunphy

Lazarian Walsh

Leiza Allman

Leona Synad

Lily O' Donoghue

Linda McGee

Lisa Acheson

Lizzy O’ Donnell

Louise Wynne

Luke

Madeleine Traynor

Maeve Bowdran

Maeve Moran

Maeve Phillips

Mairead Brady

Mairead Conry

Margaret Kelly

Margaret O' Neill

Maria

Maria Manning

Marian Horan

Marie O' Sullivan

Marion Kelly

Mark Boucher

Mark Boucher

Mark Sadler

Martin

Martin Carroll

Martin Davis

Martin Keane

Martin Nolan

Martina O Donovan

Mary

Mary Brennan

Mary Byrnes

Mary Doherty

Mary Goldrick

Mary Kelly

Mary King

Mary Lambe

Mary Monaghan

Mary Morris

Mary Reynolds

Mary Walsh

Mathew Clifford

Matthew Davis

Maura Mc Garry

Maureen Long

Mei Lin Yap

Michael

Michael Egan

Michael Igoe

Michael Moloney

Michael Smyth

Michelle O' Leary

Miriam Doyle

Miriam Ryan

Nan Daly

Natasha Moloney

Niamh Harte

Nicola Hayes

Noreen Frawley

Pat

Patricia Ronayne

Patricia Ryan

Patrick Stokes

Patsy Hanley

Paul Corcoran

Paul Heffernan

Pauline Thompson

Peter Dolan

Philip Crosbie

Philip Malone

Philomena

Raymond Allen

Rebecca McGonagle

Richard

Rita McGuire

Ronan

Ronnie Jacob

Rory Byrne

Rosemary

Sandra Edge

Sarah Matchett

Sarah Faughnan

Seamus Dwyer

Seamus Giles

Seamus Gray

Seamus Quinn

Sean Monaghan

Sean O Meara

Sean Ryan

Sean Toolin

Sheila Behan

Sheila Daly

Siobhan O Connor

Stephen Browne

Stephen Gunning

Suzanne Burchills

Sylvia O' Doherty

Teresa Conroy

Teresa Jennings

Terese

Theresa Murphy

Thomas Troy

Tiernan O' Brien

Timmy O' Leary

TK Fransson

Tom Mullane

Tommie Heaney

Tony Cannon

Triona Moloney

Trish Doyle

Una Blackweir

Vincent Monaghan

Wayne Pepper

Wayne Pepper

Willie Kelly

Willie Kelly

Winnie Donlon

Yvonne

Zoe Mc Auliffe



Sarah Bowman

Gavin Dann

Holly Dennehy

Michael Foley

Dr Eimear McGlinchey

All Ireland Institute of Hospice and Palliative Care Team

Trinity Centre for Ageing and Intellectual Disability Team



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Questions & AnswersToday’s Moderators & Panel

• Professor Mary McCarron

• Dr Cathy Payne

• Eileen Leonard

• Frances Donnelly

• Ina Harte

• Mei Lin Yap

• Natalya Jackson

• Sarah Regan

• Stephen Hogan

Thank You

www.tcd.ie/tcaid @ageingwithID#ageingwithID