d4.1 data collection tool and protocol · 3 syn eirmos ngo of social solidarity astiki etairia e el...

WP4: Mapping on Migrants’Health Security: PU 1/37

Author: REGIONE EMILIA-ROMAGNA- AGENZIA SANITARIA E SOCIALE REGIONALE

Version: 2.0 [Final]

Health Unit HP-PJ-2016-738091© Copyright 2017 MYHEALTH Consortium

Models to engage Vulnerable Migrants and Refugees in their health, through Community Empowerment and Learning

Alliance

D4.1 Data collection tool and protocol

WP4– Mapping on Migrants’ Health

V2.0 [Final]

This report is part of Project 738091/MyHealth, which has received funding from the European Union’s Health

Programme (2014-2020).

.





Document Information

Grant Agreement Number Health Unit- 738091 Acronym MYHEALTH

Project full title: Models to engage Vulnerable Migrants and Refugees in their health, through Community Empowerment and Learning Alliance

Project URL http://www.healthonthemove.net

EU Project officer Paola. D’ACAPITO, Paola.D'[email protected]

Deliverable Number D4.1 Title Data collection tool and protocol

Work package Number 4 Title Mapping on Health and VMR

Delivery date Contractual 31st December 2017 Actual 10th December 2018 (1st version)

06th May 2019 (2nd version)

Status Version 2.0 Final x Interim

Nature

Dissemination Level

Authors (Partner) RER and VHIR

Responsible Author

Giovanni Ragazzi

Núria Serre

Email [email protected]

[email protected]

Partner 10 - 1 Phone

Description of the deliverable

Report on the development of methodology and construction of tools for the collection of descriptive data on reference sites, projects and ICT for VMR.

Key words Mapping, migrant, resources, stakeholder, e-tools, local project

Disclaimer: The content of this plan represents the views of the author only and is his/her sole responsibility; it cannot

be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food

Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept

any responsibility for use that may be made of the information it contains

http://healthonthemove.net/

mailto:[email protected]

mailto:[email protected]





MYHEALTH CONSORTIUM

This document is an output of a project grant (Grant Agreement nº: 738091) co-funded under the

3rd Health Programme of the European Union by the Consumers, Health, Agriculture and Food

Executive Agency of the European Commission.

The partners in this project are:

Partcicipa

nt Nº Participant Legal Name Country

Partner's

Acronym

1 Fundacio Hospital Universitari Vall d’Hebron- Institut de

recerca ES VHIR

2 INSTITUT CATALA DE LA SALUT– Hospital Universitari Vall

d’Hebron ES ICS

3 SYN EIRMOS NGO OF SOCIAL SOLIDARITY ASTIKI ETAIRIA E EL SYN-EIRMO

4 Migrantas e.V. DE Migrantas

5 THE MIGRANTS' RESOURCE CENTRE UK MRC

6 EUROPEAN INSTITUTE OF WOMEN'S HEALTH, CLG IE EIWH

7 UNIVERSITY OF GREENWICH UK UoG

8 Asserta Global Healthcare Solutions ES Asserta

9 FAKULTNI NEMOCNICE U SV. ANNY V BRNE CZ FNUSA

10 Regione.Emilia-Romagna- Agenzia Sanitaria e Sociale

Regionale IT RER

11 Hospital Charité. UNIVERSITAETSMEDIZIN BERLIN

DE CHARITE





Abbreviations

ICT Information and Communications Technology

NGO Non-Governmental Organisation

RER Regione Emilia-Romagna - Agenzia Sanitaria e Sociale Regionale

VMR Vulnerable migrants and refuges

WP Work Package





MyHealth Glossary

Asylum seeker A person who seeks safety from persecution or serious harm in a country

other than his or her own and awaits a decision on the application for refugee

status under relevant international and national instruments. In case of a

negative decision, the person must leave the country and may be expelled, as

may any non-national in an irregular or unlawful situation, unless permission

to stay is provided on humanitarian or other related grounds.(1)

Chronic disease No uniform definition of chronic disease exists. Some sources use the term

interchangeably with non-communicable diseases whereas others include

chronic conditions of infectious origin such as HIV or mental illness such as

Alzheimer. (2)

Community The condition of sharing or having certain attitudes and interests in

common.(3)

Community activity For MyHealth project: A pursuit of civic responsibility and of wanting or

feeling to do something to support one another and/or the wider society.

Community Health

agent

Community health agents are those who work in communities to strengthen

the links between the community and health services, usually not certified

and outside of national healthcare services. This also includes non-health

agents who work on the social determinants of health such as housing,

inequalities, education, employment or the environment.(4)

Community

involvement

For MyHealth project: The process of engaging in discussion and collaboration

with community members.

Community

participation

For MyHealth project: a meaningful active involvement of community

members in the design, development, implementation, delivery, as well as

evaluation of health services”.

Country of origin The country that is a source of migratory flows (legal or illegal).(1)

Country of transit The country through which migratory flows (legal or illegal) move.(1)

Health Health is a state of complete physical, mental and social well-being and not

merely the absence of disease or infirmity.(5)

Health champions People who, with training and support, voluntarily bring in their ability to

relate to people and their own life experience to transform health and

wellbeing in their communities.(6)

Health education Health education is any combination of learning experiences designed to help

individuals and communities improve their health, by increasing their

knowledge or influencing their attitudes.(7)

Health promotion Health promotion is the process of enabling people to increase control over,

and to improve, their health. It moves beyond a focus on individual 5ehaviour

towards a wide range of social and environmental interventions. (8)

Host Country The EU Member State / country in which a third-country national / non-

national takes up residence.(9)

https://ec.europa.eu/home-affairs/content/third-country-national_en





Immigrant In the EU context, a person who establishes their usual residence in the

territory of an EU Member State for a period that is, or is expected to be, of

at least 12 months, having previously been usually resident in another EU

Member State or a third country.(9) Any 3rd country national without an

EU/EEA passport arriving in the EU.

Infectious, or

communicable

diseases

Defined as an illness caused by a specific infectious agent or its toxic product

that results from transmission of that agent or its products from an infected

person, animal, or reservoir to a susceptible host, either directly or indirectly

through an intermediate plant or animal host, vector or inanimate

environment.(10)

Integration As a state where an individual can maintain his or her own cultural identity

while at the same time becomes participant in the host culture.(11)

Irregular

(administrative)

migrant

Someone who, owing to illegal entry or the expiry of his or her visa, lacks legal

status in a transit or host country. The term applies to migrants who infringe

a country’s admission rules and any other person not authorized to remain in

the host country (also called clandestine/ illegal/undocumented migrant or

migrant in an irregular situation).(1)

Learning Alliance Innovative methodology seeking to re-think the utilisation, appropriation and

impact of research outcomes in the health services area in more integrated

ways. Formally defined, it is “a series of connected multi-stakeholder

platforms or networks (practitioner, researchers, policy-makers, service

users) at different institutional levels (local, national) involved in two basic

tasks: knowledge innovation and its scaling up.” (12)

Mediator A person who usually belongs to the immigrant community or is familiar with

the cultural aspects of that immigrant community, translate (if necessary,

adapt the information), and facilitate liaison between two entities, for

example a hospital/institution and a service user.

Mental health Mental health is defined by WHO as a state of well-being in which every

individual realizes his or her own potential, can cope with the normal stresses

of life, can work productively and fruitfully, and is able to make a contribution

to her or his community.(12)

Migrant At the international level, no universally accepted definition of migrant exists.

The term migrant is usually understood to cover all cases where the decision

to migrate is taken freely by the individual concerned for reasons of “personal

convenience” and without intervention of an external compelling factor. This

term therefore applies to persons, and family members, moving to another

country or region to better their material or social conditions and improve the

prospect for themselves or their family.(1)

Migrant worker A person who is to be engaged, is engaged or has been engaged in a

remunerated activity in a State of which he or she is not a national.(1)

Migration A process of moving, either across an international border, or within a State.

It is a population movement, encompassing any kind of movement of people,

https://ec.europa.eu/home-affairs/content/usual-residence_en





whatever its length, composition and causes; it includes migration of

refugees, displaced persons, uprooted people, and economic migrants.(1)

In the global context: movement of a person either across an international

border (international migration), or within a state (internal migration) for

more than one year irrespective of the causes, voluntary or involuntary, and

the means, regular or irregular, used to migrate.

In the EU context , the action by which a person either:

(i) establishes their usual residence in the territory of an EU Member State for

a period that is, or is expected to be, of at least 12 months, having previously

been usually resident in another EU Member State or a third country ; or

(ii) having previously been usually resident in the territory of an EU Member

State, ceases to have their usual residence in that EU Member State for a

period that is, or is expected to be, of at least 12 months. (18)

Minor In a legal context and in contrast to a child, a person who, according to the

law of their respective country, is under the age of majority, i.e. is not yet

entitled to exercise specific civil and political rights.(9)

MyHealth A transnational project co-funded by the health programme of the European

Union to develop and implement models of health network to reach out to

migrants and Ethnic minorities, in particular women and unaccompanied

minors.

Network A group or system of interconnected people or things.(3)

Non-communicable

diseases

Non-communicable diseases (NCDs), also known as chronic diseases, tend to

be of long duration and are the result of a combination of genetic,

physiological, environmental and 7behavioural factors. The major types

include cardiovascular diseases, cancer, chronic pulmonary disease, and

diabetes.(13)

Pictograms Pictograms are the visual language of Migrantas. Their simple, universally

understandable images stir emotions: people from different backgrounds

recognize themselves in the representations, while others gain new insights

or modify their own perspectives.

Pilot For MyHealth project: is a test of a tool before introducing it more widely.

Refugee A person who meets the eligibility criteria under the applicable refugee

definition, as provided for in international or regional refugee instruments,

under UNHCR’s mandate, and/or in national legislation.(14)

Social determinants

of heath

The social determinants of health are the conditions in which people are born,

grow, live, work and age.(15)

Screening Screening is defined as the presumptive identification of unrecognized

disease in an apparently healthy, asymptomatic population by means of tests,

examinations or other procedures that can be applied rapidly and easily to

the target population.(16)

https://ec.europa.eu/home-affairs/content/child_en





Stakeholder For MyHealth project: A person, group or organization that has interest or

concern in the project.

Third-country

national (TCN)

Any person who is not a citizen of the European Union within the meaning of

Art. 20(1) of TFEU and who is not a person enjoying the European Union right

to free movement, as defined in Art. 2(5) of the Regulation (EU) 2016/399

(Schengen Borders Code).(9)

Tool For MyHealth project: is an instrument (leaflet, training, game...) that aids in

accomplishing a particular objective or task.

Trafficking in persons The recruitment, transportation, transfer, harbouring or receipt of persons,

by means of the threat or use of force or other forms of coercion, of

abduction, of fraud, of deception, of the abuse of power or of a position of

vulnerability or of the giving or receiving of payments or benefits to achieve

the consent of a person having control over another person, for the purpose

of exploitation. (1)

Translator A person who provides translation services. Can be professional or informal

(such as family members).

Unaccompanied

minor

A minor who arrives on the territory of an EU Member unaccompanied by

the adult responsible for them by law or by the practice of the EU Member

State concerned, and for as long as they are not effectively taken into the care

of such a person; or who is left unaccompanied after they have entered the

territory of the EU Member State.(9)

Undocumented

migrant

See irregular migrant

Vulnerable migrants

(or migrants in

vulnerable situations)

There is no internationally recognized definition. IOM proposes a model that

defines vulnerability within a migration context as the diminished capacity of

an individual or group to resist, cope with, or recover from violence,

exploitation, abuse, and violation(s) of their rights. It is determined by the

presence, absence, and interaction of factors and circumstances that (a)

increase the risk of, and exposure to, or (b) protect against, violence,

exploitation, abuse, and rights violations .(17)

Glossary references

1. IOM. Key Migration Terms [Internet]. Grand-Saconnex: International Organization for Migration; 2018 [citado

28 de septiembre de 2017]. p. 2. Disponible en: https://www.iom.int/key-migration-terms

2. Bernell S, Howard SW. Use Your Words Carefully: What Is a Chronic Disease? Front Public Heal [Internet].

2016;4(August):2-4. Disponible en: http://journal.frontiersin.org/Article/10.3389/fpubh.2016.00159/abstract

3. English Dictionary, Thesaurus, & grammar help | Oxford Dictionaries [Internet]. [citado 27 de noviembre

de 2018]. Disponible en: https://en.oxforddictionaries.com/

4. Lewin S, Munabi-Babigumira S, Glenton C, Daniels K, Bosch-Capblanch X, van Wyk BE, et al. Lay health workers

in primary and community health care for maternal and child health and the management of infectious diseases.

Cochrane Database Syst Rev [Internet]. 17 de marzo de 2010 [citado 26 de noviembre de 2018];(3):CD004015.

Disponible en: http://www.ncbi.nlm.nih.gov/pubmed/20238326

5. CONSTITUTION OF THE WORLD HEALTH ORGANIZATION 1 [Internet]. [citado 26 de noviembre de 2018].

Disponible en: http://www.who.int/governance/eb/who_constitution_en.pdf

https://ec.europa.eu/home-affairs/content/right-free-movement_en

https://ec.europa.eu/home-affairs/content/right-free-movement_en

http://eur-lex.europa.eu/legal-content/EN/TXT/?uri=URISERV:l14514

http://eur-lex.europa.eu/legal-content/EN/TXT/?uri=URISERV:l14514

https://ec.europa.eu/home-affairs/content/adult_en





6. Health Champions - Altogether Better [Internet]. [citado 27 de noviembre de 2018]. Disponible en:

http://www.altogetherbetter.org.uk/health-champions

7. WHO | Health education. WHO [Internet]. 2013 [citado 26 de noviembre de 2018]; Disponible en:

http://www.who.int/topics/health_education/en/

8. WHO | Health promotion. WHO [Internet]. 2017 [citado 26 de noviembre de 2018]; Disponible en:

https://www.who.int/topics/health_promotion/en/

9. | Migration and Home Affairs [Internet]. [citado 26 de noviembre de 2018]. Disponible en:

https://ec.europa.eu/home-affairs/what-we-do/networks/european_migration_network/glossary_en

10. Last JM, International Epidemiological Association. A dictionary of epidemiology. Oxford University Press; 2001.

196 p.

11. Berry, J. W. (2001). a Psychology of Immigration | Prejudices | Immigration [Internet]. [citado 26 de noviembre

de 2018]. Disponible en: https://es.scribd.com/document/251351869/Berry-J-W-2001-a-Psychology-of-

Immigration

12. WHO | Mental health: a state of well-being. WHO [Internet]. 2014 [citado 26 de noviembre de 2018]; Disponible

en: http://www.who.int/features/factfiles/mental_health/en/

13. Noncommunicable diseases [Internet]. [citado 26 de noviembre de 2018]. Disponible en:

http://www.who.int/news-room/fact-sheets/detail/noncommunicable-diseases

14. Refworld | UNHCR Master Glossary of Terms [Internet]. [citado 26 de noviembre de 2018]. Disponible en:

https://www.refworld.org/docid/42ce7d444.html

15. WHO | About social determinants of health. WHO [Internet]. 2017 [citado 26 de noviembre de 2018]; Disponible

en: https://www.who.int/social_determinants/sdh_definition/en/

16. WHO | Screening. WHO [Internet]. 2017 [citado 26 de noviembre de 2018]; Disponible en:

https://www.who.int/cancer/prevention/diagnosis-screening/screening/en/

17. Principles and Guidelines migrants in vulnerable situations [Internet]. [citado 26 de noviembre de 2018].

Disponible en: https://www.ohchr.org/Documents/Issues/Migration/PrinciplesAndGuidelines.pdf

18. Recommendations on statistics of international migration

https://unstats.un.org/unsd/publication/SeriesM/SeriesM_58rev1e.pdf





Overview on the interlinkages between workpackages within Myhealth project

The project workload is distributed in 8 work packages (WPs): three transversal (WP1 Coordination

and Management, WP2 Evaluation and WP3 Communication and Dissemination) and four

technical WPs (WP4 Mapping, WP5 Needs Assessment, WP6 Tools development and WP7 Pilots).

This structure has been defined with the scope of gathering all envisaged activities with their logical

and temporal interconnections.

Finally, a participatory and social innovative

approach is used to ensure that Vulnerable

Migrants and Refugees (VMR) take a central role

in the project (WP8 Community involvement).

This participatory and social innovative approach

guarantees a meaningful active involvement of

community members in the design, development,

implementation, delivery and evaluation of

healthcare services (Figure 1).

Furthermore, project MyHealth is using a Learning

alliance (LA) as an innovative methodology (details described in WP2). LA is a series of connected

multi-stakeholder networks or communities (researchers, policy-makers, service providers and

service users) at different institutional levels (local, regional and international) with the aim of

improving the health conditions of VMR.

The following reports represent the outcomes of the tasks carried out under WP2 Evaluation:

D2.1 Evaluation plan

D2.2 Interim and Final Evaluation reports

In WP3, Communication and Dissemination tasks are carried out in order to communicate and

disseminate project results and activities for raising awareness among stakeholders and general

public. The following report summarized the outcomes of the tasks carried out under this WP:

D3.1 Dissemination package

The WP4 is devoted to Mapping the existing initiatives on Health for VMR. The tasks carried out

under this WP are included in these reports:

D4.1 Data collection tool and protocol

D4.2 Interactive map

The overall aim of WP5 Needs analysis is to collect information on physical and mental health status

of the VMR. The following reports are developed as the outcomes of the tasks carried out under this

WP:





D5.1 Methodological approach for needs assessment in Health access for Migrants and

refugees in Europe

D5.2 Needs and capacity assessment report

Tools development is the central part of WP6 and it is based on the needs assessment’s scientific

results carried out under WP5. In this WP tools able to improve the health care access of VMR are

identified or developed. The following reports summarized the outcomes of this WP:

D6.1 Report on defined models and consequent tools

D6.2 Web platform based tools

Pilots are carried out in WP7 where the preliminary versions of tools identified under WP6 are

tested in the clinical sites (Spain, Germany and Czech Republic). The following reports summarize

the tasks carried out under this WP:

D7.1 Report on Economic analysis of comparative models

D7.2 Evaluation report of the models

Lastly, the outcomes of the tasks carried out under WP8 Community Involvement are described in

the following reports:

D8.1 Model for Community Participation

D8.2 Final health-educative suitcase for the informative sessions

Where are we? The present report corresponds to WP4 Mapping.

Timeline and connections among WPs of MyHealth are outlined in the following chart:





Table of Contents

Abbreviations _________________________________________________ 4

MyHealth Glossary _____________________________________________ 5

Overview on the interlinkages between workpackages within Myhealth project 10

Executive Summary ____________________________________________ 13

1. Introduction _______________________________________________ 14

2. Data Collection Protocol ______________________________________ 14

2.1 Data Collection: Background and Aims _____________________________________ 14

2.2 Data collection Responsible ____________________________________________ 16

2.3 Data collection Plan: Methodology and tools ________________________________ 16

2.3.1 Definition of the map for MyHealth __________________________________________ 17

2.3.2 Definition of variables ____________________________________________________ 18

2.3.3 Design and construction of methodological tools for data collection and monitoring _______ 18

References ________________________________________________________________ 35

Index of tables

Table 1: The data collection plan. ........................................................................... 166

Table 2: Online questionnaires links ......................................................................... 19

Table 3: WP4: Invitation template ............................................................................ 20

Table 4: MyHealth Data Privacy Policy ..................................................................... 22

Table 5: Migrants resources mapping questionnaire................................................ 23

Table 6: Studies and project mapping questionnaire ........................................... 2729

Table 7: App/ETools mapping questionnaire .......................................................... 305





Executive Summary

This document presents data collection protocol and tools development aimed at creating a

database on information that facilitate access of vulnerable migrants and refugees (VMR) newly

arrived to Europe to the services they need to improve their health status. Data were collected

referring to:

access to health, social and support services needed by the VMR;

studies and project dedicated to VMR at international, national and subnational level;

the Information and Communications Technology (ICT) tools available.

All this information is conceptualized as a network within which the VMR move and orient

themselves. Collecting data and describing the network represents the first step in any network

analysis, and may well lay the foundation for subsequent, in-depth explorations of the network.

The following “Data collection tool and protocol to gather reference sites, projects and ICT tools

dealing with migrant population”, presents aim, targets, methodology and tools.





1. Introduction

MyHealth project (http://www.healthonthemove.net/) is composed by 8 work packages (WP) and

15 deliverable. This deliverable and its contents are strictly related to the following two other

documents:

Deliverable 3.1 ‘Dissemination Materials’ where categories of stakeholders of this projects

are described, that are: vulnerable migrants and refugees, patients’ and advocacy groups

(e.g. VMR, particularly women and unaccompanied minors (WUM); Patients’ and advocacy

groups (e.g. patients’ associations; immigrant associations; Health, social care and other

professionals and practitioners; Government agencies, Ministries, Local authorities,

Municipalities; International health and public health agencies; Non-Governmental

Organisations (NGOs) -- National, International and Charites; Researchers; Other Key

Stakeholders: Industry, including technology companies; Funding bodies; Media; general

public.

Data are collected about stakeholders using the same protocol and tools described in this

document and used to ensure a proper dissemination and future exploitation of project

results, forming the basis of a platform which will be informed and updated on the results

of the MyHealth project.

Deliverable 4.2 ‘Interactive map’ where mapping of the legal and organisational aspects of

Health systems in the participating countries along with the building methodology of the

interactive map are described.

In addition to this, MyHealth project integrates its mapping activity with another project grant

funded by the EU Health Programme, Mig-HealthCare (http://www.mighealthcare.eu/).

Under their respective WP4, both the projects foreseen the implementation of a mapping exercise

(interactive map) on healthcare facilities, projects and initiatives providing health related services

to VMR and legal aspects of existing health policies within the participating countries. Based on the

join mapping exercise, MyHealth and MigHealth care projects developed a common database.

2. Data Collection Protocol

2.1 Data Collection: Background and Aims

The theoretical background for the data collection intervention is provided by two reference frames,

namely: (a) studies on networks and in particular on social networks; and (b) Lewin-inspired action-

research which is also closely related to the LA paradigm.

According to the social networks theory, the social reality is seen and interpreted as being composed

of more or less large and structured networks of relations. The core element of such perspective is

that individuals (or any kind of actor or organisation) relate to each other, and this interaction

shapes and modifies the behaviour of all parties. The main purpose of the network analysis is

precisely to pinpoint (and possibly analyze) such ties (links) between individuals (nodes). Collecting

http://www.healthonthemove.net/

http://www.mighealthcare.eu/





data about nodes of a network does indeed represent the first step in any social network analysis,

and may well lay the foundation for subsequent, in-depth explorations of the network, e.g. with

regard to its relational qualities and integrated functioning.

The action-research paradigm provides with the most comprehensive framework, as it enables the

researchers to focus on the research process itself as a concurrent action over the same system that

is being analyzed. The main methodological assumptions adopted derive from the literature on

action-research introduced by Kurt Lewin (32-33):

research has a practical character, assumes as its object the problems of a community-group

and therefore, also has contextual nature;

research is aimed at change and in this context the analysis of the processes and the

definition of the solutions/results are focused on the group dimension rather than on the

individual one;

the design of research is multi-stadial and cyclical in the alternation of phases of knowledge

and action;

participation, in terms of cooperation and interdependence between researchers and group-

community in which the research takes place, is central;

research has an ethical foundation (derived from the participatory and democratic matrix

from which the concept of action-research arises).

In this perspective, the data collection process unfolded not so much as passive compiling of the

actors within the system, but rather as an active platform wherein individuals are already key

players in ongoing organisational activities. The various steps of the process thus became spaces for

reflecting upon, defining and refining concepts, variables and specific objectives; thus, contributing

to integrate the emerging network nodes through a process of reciprocal and constant learning and

knowledge acquisition.

Objectives of the data collection activity derive directly from MyHealth WP 4 main aim that is to

develop a complete interactive map with:

main reference sites (refugee camps, NGOs offices, community healthcare departments,

social care services, cultural support and social integration services, etc) where vulnerable

migrants and refugees can address to face health issues (like mental health problems,

chronic diseases, communicable and non communicable diseases) and social issues (like

inclusion, clothes, learn local language…) and other wellbeing issues;

studies and projects on migrants and refugees health at international, national and

subnational level;

the ICT tools available (e.g. websites, smartphone apps).





We focused our attention on those actions that are directly related to healthcare provision, but also

on those that modify the social determinants of health. The social determinants of health are the

conditions in which people are born, grow, live, work and age. These circumstances are mostly

responsible for health inequities - the unfair and avoidable differences in health status seen within

and between countries.5 They are shaped by the distribution of money, power and resources at

global, national and local levels and include employment conditions, social exclusion, gender equity,

education, and other variables that determine differences in health status that services mapped aim

to reduce.

The data collection protocol aimed to create new synergies reinvigorating the network awareness

of services around migration and eventually defined a model for mapping services/projects/e-tools

that refers to a specific target transferable to other areas of application.

2.2 Data collection Responsible

The team leading the coordination of data collection process was partner 10, Regione.Emilia-

Romagna- Agenzia Sanitaria e Sociale Regionale (RER, Italy), who was responsible, in close

collaboration with other project partners, for assessing methodology and tools for data collection,

monitoring the database under construction, performing data analysis and reporting when needed.

Each partner of MyHealth was responsible for the localization of the methodological tools

(translation and context adaptation) and for data collection in their respective country.

2.3 Data collection Plan: Methodology and tools

The data collection plan delineated the steps to be followed to perform the relative process (see

table 1) which eventually produced the databases that fed the interactive online map described in

Deliverable 4.2 ‘Interactive Map’.

Table 1: The data collection plan.

STEP ACTION

1 Definition of the ‘map’ for MyHealth (process, borders, targets, contents)

2 Definition of variables (i.e., key characteristics of the subjects to be mapped for

MyHealth)

3 Design and construction of methodological tools for data collection and monitoring





2.3.1 Definition of the map for MyHealth

The first step was the definition of the data collection process itself and the contents to be mapped.

Mapping a network is mainly a graphic presentation of a descriptive database of existent

services/projects/e-tools. However, it is also important to conceive it as a process that begin from

the data collection phase. The final output was a public database freely accessible (from both

MyHealth nad MigHealthCare project websites) on the internet by graphic interface (interactive

map); however, every MyHealth partners was able to benefit locally from the data collection process

and to use it to strengthen (or build) relations and awareness within each local network. Getting in

contact with other people and organizations that could know about other reference sites, services

or projects was important not only to collect information, but also to build relations and (re)organize

work.

The main target group of MyHealth is Vulnerable Migrants and Refugees (VMR), and in particular

women and unaccompanied minors (WUM). So those subjects were the first user target of the map.

Although the project is taking particular emphasis on putting the focus on WUM-VMR, in order to

not to narrow the findings and analysis only for this most vulnerable group, but make benefit for all

the refugees, professionals and stakeholders working with them were involved. Hence the

information found in this data collection exercise can serve not only WUM-VMR but professionals

and stakeholders interested in the project results.

From a geographical point of view we planned to collect data in the 28 EU countries (Austria,

Belgium, Bulgaria, Croatia, Republic of Cyprus, Czech Republic, Denmark, Estonia, Finland, France,

Germany, Greece, Hungary, Ireland, Italy, Latvia, Lithuania, Luxembourg, Malta, Netherlands,

Poland, Portugal, Romania, Slovakia, Slovenia, Spain, Sweden and the UK) as the data collection

tools were published on the project website and fully accessible. Since data collection required

coordinated dissemination actions, the initial focus was on MyHealth partner countries.

There are many ways to start data collection for mapping and we suggested to integrate different

approaches to ensure the appropriate resolution of the final map. As discussing tools devoted to a

specific target, a needs-based approach was deemed advisable to begin with; that is, starting from

the list of needs that typically characterize newcomer migrants, and possibly considering their

various and peculiar degrees of vulnerability. This approach allowed identifying the most needed

services and information for each specific target.

As mentioned above, all actions moved within the action-research paradigm, which simultaneously

entails knowledge and transformation of the reality; mutual collaboration between the subjects

involved in formulating the problem; identification of the methods to be used; and an outline of the

interventions to be implemented. This type of process held a very dynamic connotation, and put in

place mechanisms of continuous and recursive formation and transformation of ideas and actions

within an organized network. In more operational and organisational terms, the mapping activity

should start from what is better known because of closeness or because of previous knowledge





(bottom-up approach); or from what available at institutional level (top-down approach) by revising,

for example, laws and organizational protocols about migrants and identifying who is responsible

for which service. All of these approaches are useful and they should be used in an integrated way.

Some examples of organizations and services to map were those providing: healthcare, social care,

legal assistance, general living information, cultural support and social integration (e.g., mediation,

translation, advising/orientation, support groups, etc.), education, learning (e.g., language courses),

recreational/cultural/sport activities, employment and employment training services, housing,

shelter, essential goods (food, clothes...), etc.

2.3.2 Definition of variables

After having defined the data collection process, target and contents of mapping, variables of

interest were identified. The ultimate goal of the project is to improve VMR access to services, so

the dimensions that characterize the access to the services were identified such as:

type of services offered with brief description of the organisation,

geolocation,

access costs,

access requirements,

spoken languages,

opening hours,

contact data (phone, email, website).

These variables applied with a few adjustement to reference sites, studies and projects, available

ICT tools and stakeholders (see D3.1 ‘Dissemination Materials’).

The variable list were discussed and approved by the entire MyHealth consortium on the basis of

synthesis, practicality, clarity.

2.3.3 Design and construction of methodological tools for data collection and monitoring

In order to build the database it was decided with the consent of all partners of the MyHealth

consortium to create an online questionnaire (the same questionnaire has been used also by

MigHealth Care project). This tool represented a very simple way to collect data and was very easy

to disseminate through e-mail, web pages and social networks. MyHealth consortium chose

SurveyMonkey platform (www.surveymonkey.com). This choice was dictated by different criteria:

the possibility of fluidly managing multilingual questionnaires, the opportunity of an immediate

reporting, automatic or semi-automatic recall mechanism, and an adequate level of data protection

that other platforms do not guarantee.

Three online questionnaires were built targeting contents as described in paragraph 1.1 (see table

2 for web links and table 5,6,7 for the online forms):

http://www.surveymonkey.com/





1. main reference sites (refugee camps, NGOs offices, community healthcare departments,

social care services, cultural support and social integration services, etc);

2. studies and projects on migrants and refugees health;

3. ICT tools available (e.g. websites, smartphone apps).

Table 2: Online questionnaires links

● Migrant Resources Mapping https://it.surveymonkey.com/r/XL7T5KL

● Studies and Projects Mapping https://it.surveymonkey.com/r/H2RQ78D

● App/Website/E-tool Mapping https://it.surveymonkey.com/r/H23ZRQC

Within the joint work with Mig-HealthCare project, the questionnaires developed by MyHealth were

translated inEnglish (primary language), German, Greek, Spanish, Catalan, Czech, Italian, French,

Maltese, Swedish and Bulgarian (with the possibility of further translations if necessary) and

distributed in Spain, Italy, UK, Ireland, Greece, Germany, Czech Republic, Austria, Cyprus, Bulgaria,

Malta, Sweden and France.

The questionnaires were distributed following a dissemination strategy. This was built on key

informants identified among operators and stakeholders dealing with provision of care to migrants

in health, social and support service settings or working in other type of organisations

(governmental and non-governmental). They were contacted through networks identified at project

partner level or through online research). The data collection phase followed a solidly coordinated

and monitored approach which took into account different settings and contexts from a

professional and cultural perspective. An ‘invitation to compilation template’ was designed to be

adapted to different recipients (see table 3 ‘WP4: Invitation template’). The template was composed

with basic fields: introduction, aim of the project, compilation request, link, compilation instruction,

help contact.

https://it.surveymonkey.com/r/XL7T5KL

https://it.surveymonkey.com/r/H2RQ78D

https://it.surveymonkey.com/r/H23ZRQC





Table 3: WP4: Invitation template





To boost data collection we suggested some additional strategy since e-mail contact proved not

effective in certain cases:

apply the most personal approach (e.g. face to face or via phone calls) to ask the completion

of the form

gather information needed about the institution by online search, contact them asking their

written permission to fill the questionnaire in their name

disseminate the questionnaire widely through the MyHealth and Mig-HealthCare website

and social media platforms, newsletter, leaflet and posters with QR code, etc..

The three proposed questionnaires were addressed to anyone who was aware of reference sites,

studies and projects and ICT tools dedicated to migrants. At the end of each questionnaire, it was

asked the follow: if respondents were aware of other realities and, if so, to report these new contact

details.

Before starting compiling, recipients were asked to accept privacy policy (see table 4).





Table 4: MyHealth Data Privacy Policy

MYHEALTH DATA PRIVACY POLICY

In compliance with the new requirements set for thin the General Data Protection Regulations

("GDPR"), applicable as of May 25, 2018, we value and protect the confidentiality of your data.

We will only use your data for the purpose of MyHealth project

(http://www.healthonthemove.net/project/objectives/).

We have never and will never sell, rent, loan, trade, or lease any information collected by any

means either online or offline. All information will be kept as confidential unless given consent

to by the user.

MyHealth uses secure data networks that are protected by firewall and password protection

systems that are consistent with industry standards. The following questionnaire is hosted by

SurveyMonkey platform (SurveyMonkey privacy policy:

https://www.surveymonkey.com/mp/legal/privacy-policy/).

MyHealth security and privacy policies are periodically reviewed and enhanced as necessary.

Only authorised support staff have access to the information provided by our contacts.

If you wish to know what information we have about you then you have the right to ask for a

copy of the information we have about you. If you wish to stop receiving emails from the

MyHealth consortium, you can do this. You have the right, at any time, of access, modification,

correction and removal of your data collected in our databases. You can also contact us if you

have any questions about our privacy practices.

For every request concerning privacy contacting us at

http://www.healthonthemove.net/contact/

The resultant platform was constantly up-to-date by RER on a monthly basis to ensure the accuracy

of the available information.

From all of the data received throughout the questionnaires, an automated reminder email was sent

every 6 months to the contact person who registered the initiative. This email allowed the update

of the initiatives’ details.

http://www.healthonthemove.net/project/objectives/

https://www.surveymonkey.com/mp/legal/privacy-policy/

http://www.healthonthemove.net/contact/





Table 5: Migrants resources mapping questionnaire





Table 6: Studies and project mapping questionnaire





Table 7: App/ETools mapping questionnaire





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