development of a parental report questionnaire for restless legs syndrome (rls) in children: the...

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ORAL PRESENTATION Open Access Development of a parental report questionnaire for restless legs syndrome (RLS) in children: the RLSQ Angela Evans 1* , Sarah Blunden 2 From Australasian Podiatry Council Conference 2011 Melbourne, Australia. 26-29 April 2011 Background Restless legs syndrome (RLS) in children is commonly reported, yet frequently undiagnosed. RLS can cause sig- nificant sleep disturbance and its associated deficits may have cardiovascular and neurocognitive consequences. Growing pains (GP) is often confused or synonymous with RLS, yet has been better researched and can be identified by parental questionnaire. RLS has not been able to be so distinguished, which renders an outstand- ing need. Therefore this study aimed to develop and validate a questionnaire to identify RLS, in children. The significance of this project is that RLS in children will be better identified in children for the first time. Methods A process of triangulation was undertaken to develop the RLS questionnaire. The literature, parent interviews and a childrens focus group were the sources of initial data. Themes were extracted by independent review of the transcripts and the questionnaire was subsequently constructed and validated. The reliability of the ques- tionnaire was examined using a same subject, repeated measures study. Results The interviews covered the parents accounts of RLS in six children (two girls, four boys) all aged between eight and 10 years. The focus group obtained the experience of children suffering RLS. A questionnaire of 11 ques- tions was developed and validated from a small convenience sample ( n= 11). Internal consistency yielded 65% and repeat measures reliability rho = 0.58. Conclusions The questionnaire developed enables RLS to be identi- fied in children specifically and for the first time. Such instrumentation may be used to establish prevalence, discriminate RLS from GP, to evaluate management programs and to assist treating clinicians. Author details 1 School of Health Science, University of South Australia, Adelaide, SA, 5000, Australia. 2 Centre for Sleep Research, University of South Australia, Adelaide, SA, 5000, Australia. Published: 20 May 2011 doi:10.1186/1757-1146-4-S1-O15 Cite this article as: Evans and Blunden: Development of a parental report questionnaire for restless legs syndrome (RLS) in children: the RLSQ. Journal of Foot and Ankle Research 2011 4(Suppl 1):O15. Submit your next manuscript to BioMed Central and take full advantage of: Convenient online submission Thorough peer review No space constraints or color figure charges Immediate publication on acceptance Inclusion in PubMed, CAS, Scopus and Google Scholar Research which is freely available for redistribution Submit your manuscript at www.biomedcentral.com/submit * Correspondence: [email protected] 1 School of Health Science, University of South Australia, Adelaide, SA, 5000, Australia Full list of author information is available at the end of the article Evans and Blunden Journal of Foot and Ankle Research 2011, 4(Suppl 1):O15 http://www.jfootankleres.com/content/4/S1/O15 JOURNAL OF FOOT AND ANKLE RESEARCH © 2011 Evans and Blunden; licensee BioMed Central Ltd. This is an open access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

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ORAL PRESENTATION Open Access

Development of a parental report questionnairefor restless legs syndrome (RLS) in children: theRLSQAngela Evans1*, Sarah Blunden2

From Australasian Podiatry Council Conference 2011Melbourne, Australia. 26-29 April 2011

BackgroundRestless legs syndrome (RLS) in children is commonlyreported, yet frequently undiagnosed. RLS can cause sig-nificant sleep disturbance and its associated deficits mayhave cardiovascular and neurocognitive consequences.Growing pains (GP) is often confused or synonymouswith RLS, yet has been better researched and can beidentified by parental questionnaire. RLS has not beenable to be so distinguished, which renders an outstand-ing need. Therefore this study aimed to develop andvalidate a questionnaire to identify RLS, in children. Thesignificance of this project is that RLS in children willbe better identified in children for the first time.

MethodsA process of triangulation was undertaken to developthe RLS questionnaire. The literature, parent interviewsand a children’s focus group were the sources of initialdata. Themes were extracted by independent review ofthe transcripts and the questionnaire was subsequentlyconstructed and validated. The reliability of the ques-tionnaire was examined using a same subject, repeatedmeasures study.

ResultsThe interviews covered the parent’s accounts of RLS insix children (two girls, four boys) all aged between eightand 10 years. The focus group obtained the experienceof children suffering RLS. A questionnaire of 11 ques-tions was developed and validated from a small

convenience sample (n= 11). Internal consistencyyielded 65% and repeat measures reliability rho = 0.58.

ConclusionsThe questionnaire developed enables RLS to be identi-fied in children specifically and for the first time. Suchinstrumentation may be used to establish prevalence,discriminate RLS from GP, to evaluate managementprograms and to assist treating clinicians.

Author details1School of Health Science, University of South Australia, Adelaide, SA, 5000,Australia. 2Centre for Sleep Research, University of South Australia, Adelaide,SA, 5000, Australia.

Published: 20 May 2011

doi:10.1186/1757-1146-4-S1-O15Cite this article as: Evans and Blunden: Development of a parentalreport questionnaire for restless legs syndrome (RLS) in children: theRLSQ. Journal of Foot and Ankle Research 2011 4(Suppl 1):O15.

Submit your next manuscript to BioMed Centraland take full advantage of:

• Convenient online submission

• Thorough peer review

• No space constraints or color figure charges

• Immediate publication on acceptance

• Inclusion in PubMed, CAS, Scopus and Google Scholar

• Research which is freely available for redistribution

Submit your manuscript at www.biomedcentral.com/submit

* Correspondence: [email protected] of Health Science, University of South Australia, Adelaide, SA, 5000,AustraliaFull list of author information is available at the end of the article

Evans and Blunden Journal of Foot and Ankle Research 2011, 4(Suppl 1):O15http://www.jfootankleres.com/content/4/S1/O15

JOURNAL OF FOOTAND ANKLE RESEARCH

© 2011 Evans and Blunden; licensee BioMed Central Ltd. This is an open access article distributed under the terms of the CreativeCommons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, andreproduction in any medium, provided the original work is properly cited.