• Creating Impact Through Advocacy,

Programs and Research

• Get Moving

for a Cure

Emily Fujita from Hawaii steps up for a cure!

Special iSSueFocus on

Juvenile arthritis

The mission of the Arthritis Foundation is to improve lives through leadership in the prevention, control and cure of arthritis and related diseases. Call 1.800.954.CURE (2873) or visit arthritis.org.

Spring/Summer 2013

SERVING ARIZONA, GREATER CALIFORNIA, HAWAII & NEVADA

arTHriTiS FOunDaTiOn

paciFic regiOnBoard of Directors

OFFicerS Peter Mainstain, C.P.A.

Chair

John A. Heydt, M.D.Chair-Elect

Stephen A. Schneider, Esq.Treasurer

Dennis M.P. EhlingSecretary

Manuel LoyaChief Executive Officer

E. Robert Harris, M.D.Past Chair

BOarD memBerSSusan Beat

Leroy Bobbitt, Esq.Robyn Browning, C.F.R.E.James Campbell Chow,

M.D., A.B.O.S.Art Gladstone, R.N.

Wesley Mizutani, M.D., M.B.A.Marcia W. Wasserman

liFe BOarD memBerST. Arthur Kvaas

Philip S. Magaram, Esq.Mark E. Meyerson, Esq.

Thomas R. MurphyStanford K. Rubin, Esq.

Leonard Unger, Esq.

aDViSOrY BOarD cHairS Kaleo Ede, M.D.

Arizona

VacantCoachella Valley

Art Gladstone, R.N.Hawaii

David HahnInland Empire

Dale SurowitzLos Angeles/Valley

Timothy Jones, C.S.P., R.E.H.S.Nevada

John A. Heydt, M.D.Orange County

Eric BurgerGreater Sacramento Valley

Susan BeatSan Diego

Maury Hayashida, D.P.T., O.S.C., C.S.C.S.

Santa Barbara

meSSage FrOm THe cHair

I am privileged and honored to serve as Chair of the Pacific Region Board of Directors in 2013-2014. During the past fifteen years as a volunteer, I have worked to address the prevalence and severity of arthritis, the leading cause of disability in the United States. Fifty million adults are diagnosed with arthritis nationally—more than the number of people with cancer, diabetes or heart disease. And there are the 300,000 children with arthritis in addition to the hundreds of thousands of young adults who are living with arthritis during the prime of their lives. Each person has a compelling story to share about the challenges of living with arthritis, a disease which affects the entire family, not just those with arthritis.

I have experienced how the Arthritis Foundation has changed people’s lives through advances in research, patient education, programs, and advocacy at all levels of government. I have also supported regionalization, which has helped us more efficiently deliver programs and vital services to the growing number of people with arthritis who urgently need our help.

I commit to dedicating 120 percent of my time and resources to support the Arthritis Foundation’s mission and to achieve a new level of mission delivery. Whether it be raising funds to provide needed services, building partnerships with other organizations, or collaborating with other national or local volunteers and staff, I stand ready to lead the charge.

I urge you to join with us. Thank you for rededicating yourself to our vital mission and for making a difference in the lives of the millions we serve. —Peter Mainstain

Peter Mainstain has served as a volunteer for the Arthritis Foundation for fifteen years. He was elected to the Board of Directors in 2001, and has served on the Executive, Board Development, Resource Develop-ment, Operations and Gala Leadership committees. meSSage FrOm THe c.e.O.

One of the most surprising and heartbreaking realities of arthritis is that “kids get arthritis too”. Yes, 300,000 kids nationally suffer from the debilitating impact of juvenile arthritis (JA) and related conditions—more than cerebral palsy, muscular dystrophy, juvenile diabetes and cystic fibrosis combined. This year, you can help the Arthritis Foundation dramatically change the lives of thousands of families of children with JA. In addition to our Region’s ongoing JA support (youth and family camps, research, provision of pediatric rheumatologist fellowships, and more), this July we are privileged to host the national Juvenile Arthritis Conference in Anaheim, the home of none other than Disneyland, where dreams come true.

More than 1,000 parents and their children from across the country will come together to learn about ju-venile arthritis from leading medical experts. They will quickly realize that they are members of a broader community of passionate JA advocates who are dedicated to fighting the pain and disability of JA. They will also learn that the Arthritis Foundation stands right beside them in their fight for education, resources, community, and advocacy for better treatments and a cure. We are excited about helping kids with JA and their families realize the JA Conference’s theme: “Dream, Believe, and Achieve.” Please join us in our urgent quest to bring hope and a cure for kids with arthritis. —Manuel Loya

leaDerSHip perSpecTiVeS leaDing THe waY FOr JuVenile arTHriTiS

page 2 page 3

calenDarmaY

National Arthritis Awareness Month

Arthritis Walks Arizona, Greater California, Hawaii

JuneArthritis Walks

Southern California

June 1-3Camp Cruz - Teen Leadership

Williams, Arizona

June 4-9Camp Cruz

Wiliams, Arizona

JulYJuly 2-7

Camp Esperanza at The Painted TurtleLake Hughes, CA

July 7-12 Joint Adventure CampJulian, CA (San Diego)

July 18-21Juvenile Arthritis Conference

Anaheim, CA

auguST Advocacy Month

August 1-4Camp Sol

Geater Las Vegas

August 11-15Camp Esperanza - Teen Leadership

San Bernardino Mtns., CA

August 30-September 1Camp Mana‘olana

Kapolei, Hawaii

SepTemBer September 8

Taste of the TownSanta Barbara, CA

September 13-14Camp ILA

Phoenix, AZ

September TBDMassage Envy

“Healing Hands for Arthritis”National

September 28-October 5California Coast Classic Bike Tour

OcTOBer October 12

World Arthritis Day

nOVemBer“Commitment to a Cure”

Awards GalaBeverly Hills, CA

DecemBerJingle Bell Run/Walks

Glendale, Orange County, Sacramento andSan Diego, CA

reacHing FOr THe STarS: emilY’S STOrY Optimistic. An expert in current affairs and trivia. A One Direction boy band fan. A budding astronomer.That’s how Hilo, Hawaii mom Sherri Fujita describes her adorable twelve-year-old daughter, Emily. Diag-nosed with systemic juvenile idiopathic arthritis before the age of two, Emily would cry from pain when she tried to walk. She would lie immobile in bed for days, and endured hospitalizations with steroid treatments that made her face and body swell.

Two years ago, however, things began to look up. Emily responded well to weekly shots of biologic medica-tion which helped to reduce the pain in her ankles and knees. Now she flies to Honolulu for doctor’s visits every two months instead of once a month, and has stepped up for an action-packed year of volunteer activities with her Arthritis Foundation “ohana” (family).

In February, Emily shared her story with members of Hawaii’s State Legislature and was thrilled to receive a proclamation commending her service to the Foundation. As youth honoree for the Hawaii Ar-thritis Walk, she will inspire others with her courage and then lead her “Team Awesome” to the finish line amid the cheers of her many supporters. Then in July, Emily, her brother James and her parents will join hundreds of other children with juvenile arthritis and their families at the life-changing Juvenile Arthritis Conference in Ana-heim. With your support, courageous heroes like Emily will someday gaze into the velvety, starlit sky of a world free of arthritis pain.

paciFic regiOn camps Youth Camps in Arizona, California, Hawaii and Nevada arthritis.org/California/summeryouthcamps/Family Weekend Camps in Arizona and California communitiesCamp Esperanza Facebook Page facebook.com/CampEsperanza eventsLocal educational symposia and family social events. Contact your local office for details.FellowshipsLocal pediatric rheumatologist fellowships are funded each year to ensure that there are more specialists to meet the growing need for professional care. physician lists for arizona, california and Hawaii Contact your local office for a list of pediatric rheumatologists in your state. programsSupporting Arthritis Kids (SAK) Backpack Program for newly-diagnosed children with JA. This backpack includes an excellent book (“Raising a Child with Arthritis”) for the caregivers and fun items for the child.

naTiOnal advocacyNational Advocacy and Kids Summit Washington, D.C. communitiesJuvenile Arthritis Alliance Leadership Group arthritis.org/resources/juvenile-arthritis- alliance-group/JIA Mom’s Blog jiamom.wordpress.com/ conferencesJuvenile Arthritis Conference 2013 Anaheim, California, July 18-21publications“Kids Get Arthritis Too” newsletterBooks and Brochures afstore.org/Products-By-Topic/ Juvenile-ArthritisresearchThe Arthritis Foundation funds critical pediatric research to support our efforts towards finding a cure for JA arthritis.org/research/research-focus/ja-research-initiative/websitesKids Get Arthritis Too website (arthritis.org/kgat/) for kids and teens arthritis.orgarthritistoday.org

arTHriTiS FOunDaTiOn reSOurceS FOr FamilieS OF cHilDren wiTH JuVenile arTHriTiS

*From arthritis.org

wHaT iS JuVenile arTHriTiS?*Arthritis is a complex family of musculoskeletal disorders consisting of more than 100 different dis-eases or conditions that destroy joints, bones, muscles, cartilage and other connective tissues, ham-pering or halting physical movement.

Juvenile arthritis (JA) is an umbrella term used to describe the many autoimmune and inflammatory conditions that can develop in children ages 16 and younger. JA can involve the eyes, skin and gastro-intestinal tract as well as the joints. There are several different types of juvenile arthritis; the most common type of JA is juvenile idiopathic arthritis (JIA). Currently, there is no known cause for most forms of juvenile arthritis.

Hawaii’s Executive Director Jennifer Hee, Senator Gil Kahele, Sherri Fujita and Representative Richard Onishi congratulate Emily. (l-r).

The Arthritis Foundation offers many resources for families of children with JA, nationally and here in the Pacific Region.

arTHriTiS FOunDaTiOn

paciFic regiOnBoard of Directors

OFFicerS Peter Mainstain, C.P.A.

Chair

John A. Heydt, M.D.Chair-Elect

Stephen A. Schneider, Esq.Treasurer

Dennis M.P. EhlingSecretary

Manuel LoyaChief Executive Officer

E. Robert Harris, M.D.Past Chair

BOarD memBerSSusan Beat

Leroy Bobbitt, Esq.Robyn Browning, C.F.R.E.James Campbell Chow,

M.D., A.B.O.S.Art Gladstone, R.N.

Wesley Mizutani, M.D., M.B.A.Marcia W. Wasserman

liFe BOarD memBerST. Arthur Kvaas

Philip S. Magaram, Esq.Mark E. Meyerson, Esq.

Thomas R. MurphyStanford K. Rubin, Esq.

Leonard Unger, Esq.

aDViSOrY BOarD cHairS Kaleo Ede, M.D.

Arizona

VacantCoachella Valley

Art Gladstone, R.N.Hawaii

David HahnInland Empire

Dale SurowitzLos Angeles/Valley

Timothy Jones, C.S.P., R.E.H.S.Nevada

John A. Heydt, M.D.Orange County

Eric BurgerGreater Sacramento Valley

Susan BeatSan Diego

Maury Hayashida, D.P.T., O.S.C., C.S.C.S.

Santa Barbara

meSSage FrOm THe cHair

I am privileged and honored to serve as Chair of the Pacific Region Board of Directors in 2013-2014. During the past fifteen years as a volunteer, I have worked to address the prevalence and severity of arthritis, the leading cause of disability in the United States. Fifty million adults are diagnosed with arthritis nationally—more than the number of people with cancer, diabetes or heart disease. And there are the 300,000 children with arthritis in addition to the hundreds of thousands of young adults who are living with arthritis during the prime of their lives. Each person has a compelling story to share about the challenges of living with arthritis, a disease which affects the entire family, not just those with arthritis.

I have experienced how the Arthritis Foundation has changed people’s lives through advances in research, patient education, programs, and advocacy at all levels of government. I have also supported regionalization, which has helped us more efficiently deliver programs and vital services to the growing number of people with arthritis who urgently need our help.

I commit to dedicating 120 percent of my time and resources to support the Arthritis Foundation’s mission and to achieve a new level of mission delivery. Whether it be raising funds to provide needed services, building partnerships with other organizations, or collaborating with other national or local volunteers and staff, I stand ready to lead the charge.

I urge you to join with us. Thank you for rededicating yourself to our vital mission and for making a difference in the lives of the millions we serve. —Peter Mainstain

Peter Mainstain has served as a volunteer for the Arthritis Foundation for fifteen years. He was elected to the Board of Directors in 2001, and has served on the Executive, Board Development, Resource Develop-ment, Operations and Gala Leadership committees. meSSage FrOm THe c.e.O.

One of the most surprising and heartbreaking realities of arthritis is that “kids get arthritis too”. Yes, 300,000 kids nationally suffer from the debilitating impact of juvenile arthritis (JA) and related conditions—more than cerebral palsy, muscular dystrophy, juvenile diabetes and cystic fibrosis combined. This year, you can help the Arthritis Foundation dramatically change the lives of thousands of families of children with JA. In addition to our Region’s ongoing JA support (youth and family camps, research, provision of pediatric rheumatologist fellowships, and more), this July we are privileged to host the national Juvenile Arthritis Conference in Anaheim, the home of none other than Disneyland, where dreams come true.

More than 1,000 parents and their children from across the country will come together to learn about ju-venile arthritis from leading medical experts. They will quickly realize that they are members of a broader community of passionate JA advocates who are dedicated to fighting the pain and disability of JA. They will also learn that the Arthritis Foundation stands right beside them in their fight for education, resources, community, and advocacy for better treatments and a cure. We are excited about helping kids with JA and their families realize the JA Conference’s theme: “Dream, Believe, and Achieve.” Please join us in our urgent quest to bring hope and a cure for kids with arthritis. —Manuel Loya

leaDerSHip perSpecTiVeS leaDing THe waY FOr JuVenile arTHriTiS

page 2 page 3

calenDarmaY

National Arthritis Awareness Month

Arthritis Walks Arizona, Greater California, Hawaii

JuneArthritis Walks

Southern California

June 1-3Camp Cruz - Teen Leadership

Williams, Arizona

June 4-9Camp Cruz

Wiliams, Arizona

JulYJuly 2-7

Camp Esperanza at The Painted TurtleLake Hughes, CA

July 7-12 Joint Adventure CampJulian, CA (San Diego)

July 18-21Juvenile Arthritis Conference

Anaheim, CA

auguST Advocacy Month

August 1-4Camp Sol

Geater Las Vegas

August 11-15Camp Esperanza - Teen Leadership

San Bernardino Mtns., CA

August 30-September 1Camp Mana‘olana

Kapolei, Hawaii

SepTemBer September 8

Taste of the TownSanta Barbara, CA

September 13-14Camp ILA

Phoenix, AZ

September TBDMassage Envy

“Healing Hands for Arthritis”National

September 28-October 5California Coast Classic Bike Tour

OcTOBer October 12

World Arthritis Day

nOVemBer“Commitment to a Cure”

Awards GalaBeverly Hills, CA

DecemBerJingle Bell Run/Walks

Glendale, Orange County, Sacramento andSan Diego, CA

reacHing FOr THe STarS: emilY’S STOrY Optimistic. An expert in current affairs and trivia. A One Direction boy band fan. A budding astronomer.That’s how Hilo, Hawaii mom Sherri Fujita describes her adorable twelve-year-old daughter, Emily. Diag-nosed with systemic juvenile idiopathic arthritis before the age of two, Emily would cry from pain when she tried to walk. She would lie immobile in bed for days, and endured hospitalizations with steroid treatments that made her face and body swell.

Two years ago, however, things began to look up. Emily responded well to weekly shots of biologic medica-tion which helped to reduce the pain in her ankles and knees. Now she flies to Honolulu for doctor’s visits every two months instead of once a month, and has stepped up for an action-packed year of volunteer activities with her Arthritis Foundation “ohana” (family).

In February, Emily shared her story with members of Hawaii’s State Legislature and was thrilled to receive a proclamation commending her service to the Foundation. As youth honoree for the Hawaii Ar-thritis Walk, she will inspire others with her courage and then lead her “Team Awesome” to the finish line amid the cheers of her many supporters. Then in July, Emily, her brother James and her parents will join hundreds of other children with juvenile arthritis and their families at the life-changing Juvenile Arthritis Conference in Ana-heim. With your support, courageous heroes like Emily will someday gaze into the velvety, starlit sky of a world free of arthritis pain.

paciFic regiOn camps Youth Camps in Arizona, California, Hawaii and Nevada arthritis.org/California/summeryouthcamps/Family Weekend Camps in Arizona and California communitiesCamp Esperanza Facebook Page facebook.com/CampEsperanza eventsLocal educational symposia and family social events. Contact your local office for details.FellowshipsLocal pediatric rheumatologist fellowships are funded each year to ensure that there are more specialists to meet the growing need for professional care. physician lists for arizona, california and Hawaii Contact your local office for a list of pediatric rheumatologists in your state. programsSupporting Arthritis Kids (SAK) Backpack Program for newly-diagnosed children with JA. This backpack includes an excellent book (“Raising a Child with Arthritis”) for the caregivers and fun items for the child.

naTiOnal advocacyNational Advocacy and Kids Summit Washington, D.C. communitiesJuvenile Arthritis Alliance Leadership Group arthritis.org/resources/juvenile-arthritis- alliance-group/JIA Mom’s Blog jiamom.wordpress.com/ conferencesJuvenile Arthritis Conference 2013 Anaheim, California, July 18-21publications“Kids Get Arthritis Too” newsletterBooks and Brochures afstore.org/Products-By-Topic/ Juvenile-ArthritisresearchThe Arthritis Foundation funds critical pediatric research to support our efforts towards finding a cure for JA arthritis.org/research/research-focus/ja-research-initiative/websitesKids Get Arthritis Too website (arthritis.org/kgat/) for kids and teens arthritis.orgarthritistoday.org

arTHriTiS FOunDaTiOn reSOurceS FOr FamilieS OF cHilDren wiTH JuVenile arTHriTiS

*From arthritis.org

wHaT iS JuVenile arTHriTiS?*Arthritis is a complex family of musculoskeletal disorders consisting of more than 100 different dis-eases or conditions that destroy joints, bones, muscles, cartilage and other connective tissues, ham-pering or halting physical movement.

Juvenile arthritis (JA) is an umbrella term used to describe the many autoimmune and inflammatory conditions that can develop in children ages 16 and younger. JA can involve the eyes, skin and gastro-intestinal tract as well as the joints. There are several different types of juvenile arthritis; the most common type of JA is juvenile idiopathic arthritis (JIA). Currently, there is no known cause for most forms of juvenile arthritis.

Hawaii’s Executive Director Jennifer Hee, Senator Gil Kahele, Sherri Fujita and Representative Richard Onishi congratulate Emily. (l-r).

The Arthritis Foundation offers many resources for families of children with JA, nationally and here in the Pacific Region.

cHanging liVeS aT THe JuVenile arTHriTiS cOnFerence FunDing reSearcH FOr a cure

a perSOnal perSpecTiVe: Dream, BelieVe anD acHieVe aT THe JuVenile arTHriTiS cOnFerence

Every year, the Arthritis Foundation presents an annual Juvenile Arthritis Conference, featuring three days of education, fun, advocacy, family activities, camaraderie and the opportunity to meet people from all over the country. This year, the JA Conference will be held in our own Pacific Region on July 18-21 in Anaheim, California. The event is designed for the entire family, including siblings, because everybody who attends is the “Face of Arthritis.” The disease affects parents, grandparents, aunts, uncles, and siblings of a child with arthritis in ways that are not often spoken. At Conference, those unspoken realities are acknowledged and shared with others who understand.

Over the three days, parents can participate in educational sessions covering a wealth of topics ranging from diet and nutrition to research and disease-specific sessions led by some of the top doctors and researchers in the country. Conference gives families tools to deal with insur-ance, school issues, making medical decisions, coping with stress, and finding a way to live well, in spite of juvenile arthritis. Meanwhile, the kids attend sessions with some education, doc talks, and mentoring from young adults with arthritis – but mostly they will tell you that they meet a lot of people their own age and have a blast!

Even after years of education, we still learn so many new things at every conference. After all, the progress in understanding the disease and finding successful treatments is ever-evolving. We certainly expect our caregivers to know what’s new and what is on the horizon. It only

follows that if we are an active part of the care team, we should be in the know as well. Beyond the education though, it’s what I learn and gain from being with so many people who “get us” that makes the whole experience incomparable. Like many others, my family leaves the conference with a full brain, a full tank, a full heart and engines revving with Hope. If that’s what it’s like for a veteran, it’s even harder to put into words what the experience means for a family of a child who has been newly diagnosed with JA. When you literally have never had the chance to speak with somebody else travelling the same road, you are dealing with a frightening new diagnosis, and your child is in pain – “dark” doesn’t even begin to describe what that is like. Add “lonely, overwhelming, demoralizing, intimidating and harrowing”, and you start to come closer to describing the situation. For those families, conference is literally a game changer. It makes all the difference in how they feel about the future – and they too leave feeling Hope, where there was once only Fear. The conference gives families tools to deal with insurance, school issues, making medical decisions, coping with stress and finding a way to live well, in spite of juvenile arthritis.

The theme for this year’s JA Conference is Dream, Believe, achieve! The words are intended to inspire our 1,000 attendees while depicting our ongoing mission and the Hope which the conference brings. We Dream of a day that our kids won’t be limited by the pain of arthritis. We Believe that one day, we will find a CURE. And together, we will achieve this Dream! Come Dream, Believe and achieve with us this summer in Anaheim!

—Colleen Ryan, Caitlin’s mom and Chair, Juvenile Arthritis Alliance and the Juvenile Arthritis Conference

page 4 page 5

THe arTHriTiS FOunDaTiOn parTnerS wiTH carra TO aDVance peDiaTric reSearcH iniTiaTiVeS

The Arthritis Foundation research program in juvenile arthritis seeks to provide a universal stan-dard of care accessible by all medical professionals who treat children with JA. Our Flagship Initia-tive in juvenile arthritis is our partnership with the Childhood Arthritis and Rheumatology Research Alliance (CARRA). Through the partnership with CARRA, the Foundation is working to create a network of pediatric rheumatologists and a registry of children with JA — allowing researchers to identify and analyze differences and similarities between patients and their responses to treatment. Ultimately, the registry will help researchers develop personalized medicine, the ultimate weapon in battling JA.

Already launched at 60 clinical research sites, the CARRA registry currently has 8,000 patients enrolled. Within the next five years, the registry will assist medical professionals in the following ways: • Developing a better understanding of the effective use of existing drugs in children; • Identifying newer drugs that are safer and more effective in children; • Finding key predictors of who is at risk for developing JA, based on genetics or environment; • Improving access to medications and other treatments; and • Developing therapies to slow or halt the progression of JA.

To help achieve these goals, the Arthritis Foundation has invested more than $1 million in JA-specific research grants and CARRA support in 2012. Since CARRA’s creation, the Foundation has invested $2.3 Million in the CARRA network and registry.

Through this initiative, the Arthritis Foundation and CARRA will establish a solid database of infor-mation to guide researchers to newer and safer drug therapies for JA patients and help physicians determine the best course of personalized care for every JA patient from the outset of their treat-ment.1

Deborah McCurdy, M.D., Clinical Professor of Pediatrics and Director of Pediatric Rheumatology at the David Geffen School of Medicine at the University of California, Los Angeles, encourages parents of children with JA to enroll them in the CARRA registry. “It is important that as many patients be enrolled as is possible to capture the picture of juvenile idiopathic arthritis in all of its presentations and manifestations. Most importantly, the CARRA registry will optimize therapies for the treatment of rheumatic diseases in children.” For more information, please visit arthritis.org/research/.

make THeir DreamS cOme True - 2013 naTiOnal JuVenile arTHriTiS cOnFerenceFamilies, children and young adults affected by arthritis and related rheumatic diseases are invited to participate in this fun,

educational and life-changing experience. Thursday, July 18 – Sunday, July 21

Hyatt regency Orange county11999 Harbor Boulevard garden grove, california 92840

(2 miles from Disneyland) Hotel Telephone number: 714.750.1234

For information and JA Conference registration, visit arthritis.org/jaconfRegistration period: Now – June 20th for Early Bird Rates!!

To support the Juvenile Arthritis Conference, please contact: Jennifer Ziegler, jziegler@arthritis.org or 323.954.5760 Ext. 243.

OSTeOarTHriTiS ru Bryan, phDVeterans Medical Research FoundationInnovative Research Grant

grayson Duraine, phDUniversity of California, DavisPostdoctoral Fellowship

Dominik Haudenschild, phDUniversity of California, DavisInnovative Research Grant

lick pui lai, phDUniversity of Southern CaliforniaPostdoctoral Fellowship

rHeumaTOiD arTHriTiS michael e. Selsted, mD, phDUniversity of Southern CaliforniaInnovative Research Grant

primarY DiSeaSe FOcuS: OTHer Suzanne kafaja, mDUniversity of California, Los AngelesClinical to Research Transition AwardScleroderma

Jennifer king, mDUniversity of California, Los AngelesPostdoctoral FellowshipLupus

Sin-ae lee, phDUniversity of California, San DiegoPostdoctoral FellowshipPsoriatic Arthritis

John c. Scatizzi, phDScripps Research InstitutePostdoctoral FellowshipLupus

Zejin Zhu, mDUniversity of California, Los AngelesInnovative Research GrantSjögren’s Syndrome

Colleen and the Ryan family: Dave, Jack, Nick and Caitlin (l-r).

1. Arthritis.org

“Developments in research and

technological advances in treatments

have changed Emily’s life. Every year

that passes brings more hope. If

research continues on this path, in a

year or two there will be something

even better–a cure.”

–Sherri Fujita

2012-2013 arTHriTiS FOunDaTiOn reSearcH awarD recipienTS

Congratulations to the following research award recipients from the Pacific Region for their outstanding work in enhancing the lives of those with arthritis and moving us ever closer to a cure:

cHanging liVeS aT THe JuVenile arTHriTiS cOnFerence FunDing reSearcH FOr a cure

a perSOnal perSpecTiVe: Dream, BelieVe anD acHieVe aT THe JuVenile arTHriTiS cOnFerence

Every year, the Arthritis Foundation presents an annual Juvenile Arthritis Conference, featuring three days of education, fun, advocacy, family activities, camaraderie and the opportunity to meet people from all over the country. This year, the JA Conference will be held in our own Pacific Region on July 18-21 in Anaheim, California. The event is designed for the entire family, including siblings, because everybody who attends is the “Face of Arthritis.” The disease affects parents, grandparents, aunts, uncles, and siblings of a child with arthritis in ways that are not often spoken. At Conference, those unspoken realities are acknowledged and shared with others who understand.

Over the three days, parents can participate in educational sessions covering a wealth of topics ranging from diet and nutrition to research and disease-specific sessions led by some of the top doctors and researchers in the country. Conference gives families tools to deal with insur-ance, school issues, making medical decisions, coping with stress, and finding a way to live well, in spite of juvenile arthritis. Meanwhile, the kids attend sessions with some education, doc talks, and mentoring from young adults with arthritis – but mostly they will tell you that they meet a lot of people their own age and have a blast!

Even after years of education, we still learn so many new things at every conference. After all, the progress in understanding the disease and finding successful treatments is ever-evolving. We certainly expect our caregivers to know what’s new and what is on the horizon. It only

follows that if we are an active part of the care team, we should be in the know as well. Beyond the education though, it’s what I learn and gain from being with so many people who “get us” that makes the whole experience incomparable. Like many others, my family leaves the conference with a full brain, a full tank, a full heart and engines revving with Hope. If that’s what it’s like for a veteran, it’s even harder to put into words what the experience means for a family of a child who has been newly diagnosed with JA. When you literally have never had the chance to speak with somebody else travelling the same road, you are dealing with a frightening new diagnosis, and your child is in pain – “dark” doesn’t even begin to describe what that is like. Add “lonely, overwhelming, demoralizing, intimidating and harrowing”, and you start to come closer to describing the situation. For those families, conference is literally a game changer. It makes all the difference in how they feel about the future – and they too leave feeling Hope, where there was once only Fear. The conference gives families tools to deal with insurance, school issues, making medical decisions, coping with stress and finding a way to live well, in spite of juvenile arthritis.

The theme for this year’s JA Conference is Dream, Believe, achieve! The words are intended to inspire our 1,000 attendees while depicting our ongoing mission and the Hope which the conference brings. We Dream of a day that our kids won’t be limited by the pain of arthritis. We Believe that one day, we will find a CURE. And together, we will achieve this Dream! Come Dream, Believe and achieve with us this summer in Anaheim!

—Colleen Ryan, Caitlin’s mom and Chair, Juvenile Arthritis Alliance and the Juvenile Arthritis Conference

page 4 page 5

THe arTHriTiS FOunDaTiOn parTnerS wiTH carra TO aDVance peDiaTric reSearcH iniTiaTiVeS

The Arthritis Foundation research program in juvenile arthritis seeks to provide a universal stan-dard of care accessible by all medical professionals who treat children with JA. Our Flagship Initia-tive in juvenile arthritis is our partnership with the Childhood Arthritis and Rheumatology Research Alliance (CARRA). Through the partnership with CARRA, the Foundation is working to create a network of pediatric rheumatologists and a registry of children with JA — allowing researchers to identify and analyze differences and similarities between patients and their responses to treatment. Ultimately, the registry will help researchers develop personalized medicine, the ultimate weapon in battling JA.

Already launched at 60 clinical research sites, the CARRA registry currently has 8,000 patients enrolled. Within the next five years, the registry will assist medical professionals in the following ways: • Developing a better understanding of the effective use of existing drugs in children; • Identifying newer drugs that are safer and more effective in children; • Finding key predictors of who is at risk for developing JA, based on genetics or environment; • Improving access to medications and other treatments; and • Developing therapies to slow or halt the progression of JA.

To help achieve these goals, the Arthritis Foundation has invested more than $1 million in JA-specific research grants and CARRA support in 2012. Since CARRA’s creation, the Foundation has invested $2.3 Million in the CARRA network and registry.

Through this initiative, the Arthritis Foundation and CARRA will establish a solid database of infor-mation to guide researchers to newer and safer drug therapies for JA patients and help physicians determine the best course of personalized care for every JA patient from the outset of their treat-ment.1

Deborah McCurdy, M.D., Clinical Professor of Pediatrics and Director of Pediatric Rheumatology at the David Geffen School of Medicine at the University of California, Los Angeles, encourages parents of children with JA to enroll them in the CARRA registry. “It is important that as many patients be enrolled as is possible to capture the picture of juvenile idiopathic arthritis in all of its presentations and manifestations. Most importantly, the CARRA registry will optimize therapies for the treatment of rheumatic diseases in children.” For more information, please visit arthritis.org/research/.

make THeir DreamS cOme True - 2013 naTiOnal JuVenile arTHriTiS cOnFerenceFamilies, children and young adults affected by arthritis and related rheumatic diseases are invited to participate in this fun,

educational and life-changing experience. Thursday, July 18 – Sunday, July 21

Hyatt regency Orange county11999 Harbor Boulevard garden grove, california 92840

(2 miles from Disneyland) Hotel Telephone number: 714.750.1234

For information and JA Conference registration, visit arthritis.org/jaconfRegistration period: Now – June 20th for Early Bird Rates!!

To support the Juvenile Arthritis Conference, please contact: Jennifer Ziegler, jziegler@arthritis.org or 323.954.5760 Ext. 243.

OSTeOarTHriTiS ru Bryan, phDVeterans Medical Research FoundationInnovative Research Grant

grayson Duraine, phDUniversity of California, DavisPostdoctoral Fellowship

Dominik Haudenschild, phDUniversity of California, DavisInnovative Research Grant

lick pui lai, phDUniversity of Southern CaliforniaPostdoctoral Fellowship

rHeumaTOiD arTHriTiS michael e. Selsted, mD, phDUniversity of Southern CaliforniaInnovative Research Grant

primarY DiSeaSe FOcuS: OTHer Suzanne kafaja, mDUniversity of California, Los AngelesClinical to Research Transition AwardScleroderma

Jennifer king, mDUniversity of California, Los AngelesPostdoctoral FellowshipLupus

Sin-ae lee, phDUniversity of California, San DiegoPostdoctoral FellowshipPsoriatic Arthritis

John c. Scatizzi, phDScripps Research InstitutePostdoctoral FellowshipLupus

Zejin Zhu, mDUniversity of California, Los AngelesInnovative Research GrantSjögren’s Syndrome

Colleen and the Ryan family: Dave, Jack, Nick and Caitlin (l-r).

1. Arthritis.org

“Developments in research and

technological advances in treatments

have changed Emily’s life. Every year

that passes brings more hope. If

research continues on this path, in a

year or two there will be something

even better–a cure.”

–Sherri Fujita

2012-2013 arTHriTiS FOunDaTiOn reSearcH awarD recipienTS

Congratulations to the following research award recipients from the Pacific Region for their outstanding work in enhancing the lives of those with arthritis and moving us ever closer to a cure:

aDVOcacY: making Our VOiceS HearD FOr THOSe wiTH arTHriTiS washington, D.c.More than 350 dedicated Arthritis Foundation advocates braved snowy weather to meet face-to-face with members of Congress in Washington, D.C. on March 4-5. Their goals? To proclaim that “Ignoring Arthritis is Unacceptable” and to request that legislators address the needs of those with arthritis by providing more affordable medications, paving the way for more pediatric rheumatologists through funding of a pediatric subspecialty loan repayment program, and including post traumatic osteoar-thritis and rheumatoid arthritis in the Department of Defense (DOD) research pro-gram. Virtual summit meetings allowed many more advocates to participate in the Capitol Hill events, while testimonials from Washington, D.C. were featured in radio broadcasts across the country. You too can make your voice heard on Capitol Hill! Sign up as an e-advocate by visiting arthritis.org/advocacy/inside-advocacy/.

Sacramento, californiaThe California Arthritis Foundation Council hosted the California Advocacy Summit in Sacramento on April 30 – May 1. Forty participants learned about California State advocacy priorities and met with State legislators to educate them about the unacceptable impact of arthritis for the 5.4 million Californians living with arthritis. For more information about the Arthritis Foundation’s advocacy initiatives, please contact Krystin Herr, Director of Advocacy for the Pacific Region, at kherr@arthritis.org.

new parTnerSHipS eXpanD arTHriTiS FOunDaTiOn prOgramS TO THOuSanDS The Arthritis Foundation is partnering with nearly sixty new organizations to change the lives of tens of thousands of people with arthritis. Organizations include hospitals, county and city depart-ments, senior living/retirement communities, YMCA’s, school districts, healthcare organizations, fitness centers, retailers, health insurance carriers and other corporate partners throughout the Region. The new partners host worksite wellness programs featuring evidence-based Arthritis Foundation exercise classes including the highly popular “Walk with Ease” individual and group walking programs. Chief Program Officer Vickie Fung speaks to the importance of the new partnerships: “Fifty per-cent of adults diagnosed with arthritis are under the age of 65 years. By promoting wellness programs to employees, we take an important step in fighting against the potentially debilitating effects of arthritis through physical activity and self-management.”

For more information on Arthritis Foundation partnerships, please contact Vickie Fung at vfung@arthritis.org.

new reSOurceS FrOm THe arTHriTiS FOunDaTiOn Now it’s easier than ever for you to find life-enhancing Arthritis Foundation resources on-line! The newly redesigned arthritis.org includes a “Resources section” which features all of the great tools and programs that you need to help you live better with arthritis. Visit the new resources page at arthritis.org/resources/. One of the new products available from the Arthritis Foundation is “Arthritis Friendly Yoga”, a 60-minute DVD created especially for people who are seeking a natural, gentle way to ease pain, increase strength and flexibility, and improve overall well-being. Find out more at arthritis.org/YogaDVD.

miSSiOn DeliVereD: aDVOcacY anD prOgramS mOVing TOgeTHer TOwarD a cure

riDe HigHwaY One FOr a pain-Free wOrlDExperience the beauty of the scenic California coastline while raising awareness and funds to help those with arthritis! Sign up now at to ride on the 8-day, 525-mile California Coast Classic Bike Tour sponsored by Amgen.

The tour begins on September 28 at Fort Mason in San Francisco. As you wind your way down the coastline to the finish line in Los Angeles on October 5, you will meet youth honorees with arthritis who will inspire you with their personal stories of courage and hope.

Among this year’s cyclists you will meet riders with arthritis, like CCC Bike Tour veteran Pete Staylor. Pete is team captain of the CP Tribe Riders. This year marks Pete’s tenth year as a Tour participant—three years as a volunteer, and seven years as a rider. Pete is powering through his arthritis pain to help find a cure for family members with arthritis, and will serve as a role model and champion for a pain-free world on this year’s tour.

Join Pete and many other heroes on the California Coast Classic Bike Tour—the ride of a lifetime. Registration is limited to 300 participants, so register today! For more information, visit AFCABikeClassic.org or contact Amy Robertson or Jill Canova at the Pacific Region office.

page 6 page 7

Saturday, april 27Central Coast WalkSan Luis Obispoccarthritiswalk.org

Saturday, may 4Arizona WalkPhoenix azarthritiswalk.org

Sunday, may 5Hawaii WalkHonoluluHIarthritisWalk.org

Saturday, may 18Sacramento Valley WalkSacramentosacarthritiswalk.org

Saturday, may 18Central Coast Walk Santa Barbaraccarthritiswalk.org

Sunday, may 19Magic Mountain WalkValenciammarthritiswalk.org

Sunday, may 19Orange County WalkIrvineocarthritiswalk.org

Saturday, June 1Inland Empire Walk Corona iearthritiswalk.org

Saturday, June 1San Diego WalkSan Diegosdarthritiswalk.org

Sunday, June 2 Los Angeles Walk Santa Monicalosangelesarthritiswalk.org

Saturday, October 19Coachella Valley WalkPalm Desert cvarthritiswalk.org

leT’S mOVe TOgeTHer aT THe arTHriTiS walk in YOur cOmmuniTY

Arizona - Camp CruzWilliams/Northern AZJune 1-3 Teen Leadership SessionJune 4-9 General SessionAllie Avishaiaavishai@arthritis.org

California - Camp Esperanzaat The Painted TurtleLake HughesJuly 2-7

California - Camp Esperanza,Teen LeadershipSan Bernardino Mtns./Big BearAugust 11-15Jennifer Zieglerjziegler@arthritis.org

California - Joint AdventureJulian (N. San Diego)July 7-12Sandra Hayhurstshayhurst@arthritis.org

Hawaii - Camp Mana‘olanaKapolei, HIAugust 30 – September 1Jenny Sungjsung@arthritis.org

M a r c h 4 - 6 , 2 0 1 3 • Wa s h i n g t o n , D . C .2013 Advocacy Summit

Face to FaceTALK ABOUT ARTHRITIS

Learn about our priority advocacy issues, receive training for con gressional meetings, and meet face-to-face with your Member of Congress and their staff.

Early Bird Registration - November 14, 2012 - January 25, 2013: $175 per person with a maximum of $400 per family. Regular Registration - January 26, 2013 - February 1, 2013: $225 per person with a maximum of $500 per family.

No late registrations will be accepted!

A special rate of $249/night at Crystal Gateway Marriott in Arlington, VA is available for Summit participants.

Please visit www.arthritis.org/advocacy for more information, call Laura Keivel at 202-887-2913 or email lkeivel@arthritis.org

S A V E T H E D A T E

Bike Tour veteran Pete Staylor celebrates the magnificent view of the California coastline.

Mikayla Minnig from the Pacific Region is this year’s National Arthritis Walk Youth Honoree.

Many thanks to Francis Tesmer and Rolf Lohse of Rolfs Salon, Anita Helt of ABC15 and JoAnn Holland of Wells Fargo for making this year’s event a huge success! (l-r)

2013 arTHriTiS walkS: leT’S STep up FOr a cure! Join thousands of enthusiastic walkers from Honolulu to Phoenix who are stepping up for a cure at this year’s Arthritis Walks, the Arthritis Foundation’s signature awareness and fund rais-ing events.

Honor friends or family members with arthritis by sporting a colorful team T-shirt or walking as an individual along the one- or three-mile scenic course. Be inspired by the camaraderie and commitment of fellow walkers as you cross the finish line to a festival area featuring lively enter-tainment, a kid’s zone, educational resources and delicious food and beverages.

Help the Pacific Region maintain its #1national Arthritis Walk status by moving with us again this year! To register online or to make a donation, visit your local Walk website or contact the Arthritis Foundation office in your community. Let’s “walk on” for a cure!

Hundreds of kids and teens with arthritis and related diseases will enjoy a variety of fun and educational activities while making lifetime friendships at this summer’s medically-supervised youth camps in Arizona, California, Hawaii and Nevada.

PACIFIC REGION SUMMER CAMPS FOR YOUTH WITH ARTHRITIS PACIFIC REGION SUMMER CAMPS FOR YOUTH WITH ARTHRITIS

Nevada - Camp SolGreater Las VegasAugust 1-4Crystal Schulzcschulz@arthritis.org

GLITZGLAMGIVE aT OScar® eXperience: pHOeniX The Oscar® Experience: Phoenix was truly the GlitzGlamGive event of the year! 350 glamorously-attired guests experienced Hollywood’s 85th Academy Award® ceremo-nies by telecast while enjoying exciting onsite Oscar® night festivities. Participants snapped up the very popular Mystery Boxes, stopped by Rolfs Glamour Lounge for a make-up touch-up, captured their memories at the photo booth, bid on live auction items and enjoyed their amazing gold swag bags full of souvenirs of a magnificent eve-ning. Thank you to our stars of the evening, Chair JoAnn Holland and honorees Anthony K. Hedley, MD; Krista Hom and Rowan Balma. We also thank key sponsors ABC15, Gila River Casinos, Rolfs and Wells Fargo for supporting Phoenix’s premier social event which raised almost $240,000 for the 1.2 million Arizonans with arthritis.

aDVOcacY: making Our VOiceS HearD FOr THOSe wiTH arTHriTiS washington, D.c.More than 350 dedicated Arthritis Foundation advocates braved snowy weather to meet face-to-face with members of Congress in Washington, D.C. on March 4-5. Their goals? To proclaim that “Ignoring Arthritis is Unacceptable” and to request that legislators address the needs of those with arthritis by providing more affordable medications, paving the way for more pediatric rheumatologists through funding of a pediatric subspecialty loan repayment program, and including post traumatic osteoar-thritis and rheumatoid arthritis in the Department of Defense (DOD) research pro-gram. Virtual summit meetings allowed many more advocates to participate in the Capitol Hill events, while testimonials from Washington, D.C. were featured in radio broadcasts across the country. You too can make your voice heard on Capitol Hill! Sign up as an e-advocate by visiting arthritis.org/advocacy/inside-advocacy/.

Sacramento, californiaThe California Arthritis Foundation Council hosted the California Advocacy Summit in Sacramento on April 30 – May 1. Forty participants learned about California State advocacy priorities and met with State legislators to educate them about the unacceptable impact of arthritis for the 5.4 million Californians living with arthritis. For more information about the Arthritis Foundation’s advocacy initiatives, please contact Krystin Herr, Director of Advocacy for the Pacific Region, at kherr@arthritis.org.

new parTnerSHipS eXpanD arTHriTiS FOunDaTiOn prOgramS TO THOuSanDS The Arthritis Foundation is partnering with nearly sixty new organizations to change the lives of tens of thousands of people with arthritis. Organizations include hospitals, county and city depart-ments, senior living/retirement communities, YMCA’s, school districts, healthcare organizations, fitness centers, retailers, health insurance carriers and other corporate partners throughout the Region. The new partners host worksite wellness programs featuring evidence-based Arthritis Foundation exercise classes including the highly popular “Walk with Ease” individual and group walking programs. Chief Program Officer Vickie Fung speaks to the importance of the new partnerships: “Fifty per-cent of adults diagnosed with arthritis are under the age of 65 years. By promoting wellness programs to employees, we take an important step in fighting against the potentially debilitating effects of arthritis through physical activity and self-management.”

For more information on Arthritis Foundation partnerships, please contact Vickie Fung at vfung@arthritis.org.

new reSOurceS FrOm THe arTHriTiS FOunDaTiOn Now it’s easier than ever for you to find life-enhancing Arthritis Foundation resources on-line! The newly redesigned arthritis.org includes a “Resources section” which features all of the great tools and programs that you need to help you live better with arthritis. Visit the new resources page at arthritis.org/resources/. One of the new products available from the Arthritis Foundation is “Arthritis Friendly Yoga”, a 60-minute DVD created especially for people who are seeking a natural, gentle way to ease pain, increase strength and flexibility, and improve overall well-being. Find out more at arthritis.org/YogaDVD.

miSSiOn DeliVereD: aDVOcacY anD prOgramS mOVing TOgeTHer TOwarD a cure

riDe HigHwaY One FOr a pain-Free wOrlDExperience the beauty of the scenic California coastline while raising awareness and funds to help those with arthritis! Sign up now at to ride on the 8-day, 525-mile California Coast Classic Bike Tour sponsored by Amgen.

The tour begins on September 28 at Fort Mason in San Francisco. As you wind your way down the coastline to the finish line in Los Angeles on October 5, you will meet youth honorees with arthritis who will inspire you with their personal stories of courage and hope.

Among this year’s cyclists you will meet riders with arthritis, like CCC Bike Tour veteran Pete Staylor. Pete is team captain of the CP Tribe Riders. This year marks Pete’s tenth year as a Tour participant—three years as a volunteer, and seven years as a rider. Pete is powering through his arthritis pain to help find a cure for family members with arthritis, and will serve as a role model and champion for a pain-free world on this year’s tour.

Join Pete and many other heroes on the California Coast Classic Bike Tour—the ride of a lifetime. Registration is limited to 300 participants, so register today! For more information, visit AFCABikeClassic.org or contact Amy Robertson or Jill Canova at the Pacific Region office.

page 6 page 7

Saturday, april 27Central Coast WalkSan Luis Obispoccarthritiswalk.org

Saturday, may 4Arizona WalkPhoenix azarthritiswalk.org

Sunday, may 5Hawaii WalkHonoluluHIarthritisWalk.org

Saturday, may 18Sacramento Valley WalkSacramentosacarthritiswalk.org

Saturday, may 18Central Coast Walk Santa Barbaraccarthritiswalk.org

Sunday, may 19Magic Mountain WalkValenciammarthritiswalk.org

Sunday, may 19Orange County WalkIrvineocarthritiswalk.org

Saturday, June 1Inland Empire Walk Corona iearthritiswalk.org

Saturday, June 1San Diego WalkSan Diegosdarthritiswalk.org

Sunday, June 2 Los Angeles Walk Santa Monicalosangelesarthritiswalk.org

Saturday, October 19Coachella Valley WalkPalm Desert cvarthritiswalk.org

leT’S mOVe TOgeTHer aT THe arTHriTiS walk in YOur cOmmuniTY

Arizona - Camp CruzWilliams/Northern AZJune 1-3 Teen Leadership SessionJune 4-9 General SessionAllie Avishaiaavishai@arthritis.org

California - Camp Esperanzaat The Painted TurtleLake HughesJuly 2-7

California - Camp Esperanza,Teen LeadershipSan Bernardino Mtns./Big BearAugust 11-15Jennifer Zieglerjziegler@arthritis.org

California - Joint AdventureJulian (N. San Diego)July 7-12Sandra Hayhurstshayhurst@arthritis.org

Hawaii - Camp Mana‘olanaKapolei, HIAugust 30 – September 1Jenny Sungjsung@arthritis.org

M a r c h 4 - 6 , 2 0 1 3 • Wa s h i n g t o n , D . C .2013 Advocacy Summit

Face to FaceTALK ABOUT ARTHRITIS

Learn about our priority advocacy issues, receive training for con gressional meetings, and meet face-to-face with your Member of Congress and their staff.

Early Bird Registration - November 14, 2012 - January 25, 2013: $175 per person with a maximum of $400 per family. Regular Registration - January 26, 2013 - February 1, 2013: $225 per person with a maximum of $500 per family.

No late registrations will be accepted!

A special rate of $249/night at Crystal Gateway Marriott in Arlington, VA is available for Summit participants.

Please visit www.arthritis.org/advocacy for more information, call Laura Keivel at 202-887-2913 or email lkeivel@arthritis.org

S A V E T H E D A T E

Bike Tour veteran Pete Staylor celebrates the magnificent view of the California coastline.

Mikayla Minnig from the Pacific Region is this year’s National Arthritis Walk Youth Honoree.

Many thanks to Francis Tesmer and Rolf Lohse of Rolfs Salon, Anita Helt of ABC15 and JoAnn Holland of Wells Fargo for making this year’s event a huge success! (l-r)

2013 arTHriTiS walkS: leT’S STep up FOr a cure! Join thousands of enthusiastic walkers from Honolulu to Phoenix who are stepping up for a cure at this year’s Arthritis Walks, the Arthritis Foundation’s signature awareness and fund rais-ing events.

Honor friends or family members with arthritis by sporting a colorful team T-shirt or walking as an individual along the one- or three-mile scenic course. Be inspired by the camaraderie and commitment of fellow walkers as you cross the finish line to a festival area featuring lively enter-tainment, a kid’s zone, educational resources and delicious food and beverages.

Help the Pacific Region maintain its #1national Arthritis Walk status by moving with us again this year! To register online or to make a donation, visit your local Walk website or contact the Arthritis Foundation office in your community. Let’s “walk on” for a cure!

Hundreds of kids and teens with arthritis and related diseases will enjoy a variety of fun and educational activities while making lifetime friendships at this summer’s medically-supervised youth camps in Arizona, California, Hawaii and Nevada.

PACIFIC REGION SUMMER CAMPS FOR YOUTH WITH ARTHRITIS PACIFIC REGION SUMMER CAMPS FOR YOUTH WITH ARTHRITIS

Nevada - Camp SolGreater Las VegasAugust 1-4Crystal Schulzcschulz@arthritis.org

GLITZGLAMGIVE aT OScar® eXperience: pHOeniX The Oscar® Experience: Phoenix was truly the GlitzGlamGive event of the year! 350 glamorously-attired guests experienced Hollywood’s 85th Academy Award® ceremo-nies by telecast while enjoying exciting onsite Oscar® night festivities. Participants snapped up the very popular Mystery Boxes, stopped by Rolfs Glamour Lounge for a make-up touch-up, captured their memories at the photo booth, bid on live auction items and enjoyed their amazing gold swag bags full of souvenirs of a magnificent eve-ning. Thank you to our stars of the evening, Chair JoAnn Holland and honorees Anthony K. Hedley, MD; Krista Hom and Rowan Balma. We also thank key sponsors ABC15, Gila River Casinos, Rolfs and Wells Fargo for supporting Phoenix’s premier social event which raised almost $240,000 for the 1.2 million Arizonans with arthritis.

17 in FOLD11

in

Client: Arthritis Foundation, Los AngelesProject: Spring/Summer Headlines 2011 PAGE8 PAGE1

PACIFIC REGION800 WEST SIXTH ST., SUITE 1250LOS ANGELES, CA 90017

NON-PROFIT ORGU.S. Postage

PAIDARTHRITIS

FOUNDATION

Community Connections

CALIFORNIA

Pacific Region / Los Angeles Office800 W. Sixth Street, Ste. 1250Los Angeles, CA 90017Ph. 323.954.5750

Coachella Valley Office73-710 Fred Waring Drive, Ste. 104Palm Desert, CA 92260Ph. 760.773.3076

Greater Sacramento Valley Office3040 Explorer Drive, Suite 1Sacramento, CA 95827Ph. 916.368.5599

Inland Empire Office9 TechnologyIrvine, CA 92618Ph. 949.585.0201

HAWAII

Hawaii Office615 Piikoi Street, Ste. 1109Honolulu, HI 96814Ph. 808.596.2900

NEVADA

Nevada Office1368 Paseo Verde Pkwy., Ste. 200BHenderson, NV 89012 Ph. 702.367.1626

Orange County Office9 TechnologyIrvine, CA 92618Ph. 949.585.0201

San Diego Office9089 Clairemont Mesa Blvd., Suite 104San Diego, CA 92123-1288Ph. 858.492.1090Toll-free: 800.422.8885

Santa Barbara Office2253 Las Positas Rd., Ste. ASanta Barbara, CA 93105Ph. 805.563.4685

Valley Office800 W. Sixth Street, Ste. 1250Los Angeles, CA 90017Ph. 323.954.5750

HEADLINES is a publication of the Pacific Region of the Arthritis Foundation. © 2011 All rights reserved. Editor: Teri S. Lim Contributors: Pacific Region Staff and Volunteers

Headlines Design & Layout: Rob Onekea for www.wayoutwestmultimedia.com

For more information, visit us online at arthritis.org!

SPRING / SUMMER 2011

The mission of the Arthritis Foundation is to improve lives through leadership in the prevention, control and cure of arthritis and related diseases. Call 1.800.954.CURE (2873) or visit www.arthritis.org.

Pacific Region HEADLINESSERVING GREATER CALIFORNIA, HAWAII & NEVADA

• Get Ready to Move! Walk or Ride With Us! • New Research Grants Awarded to Find a Cure!• We’re Making Our Voices Heard!

Volunteers Garrett, Beth and Taylor McLaughlin are committed to a cure!

arizona1221 E. Osborn Road, Suite 201Phoenix, AZ 85014602.212.9900

CaLiForniaPACIFIC REGION/LOS ANGELES800 West Sixth Street, Suite 1250Los Angeles, CA 90017323.954.5750800.954.CURE (2873)

COACHELLA VALLEYP.O. Box 1395Rancho Mirage, CA 92270760.773.3076

GREATER SACRAMENTO VALLEY1851 Heritage Lane, #183Sacramento, CA 95815916.368.5599

INLAND EMPIRE9140 Haven Ave., Suite 109ARancho Cucamonga, CA 91730

Mailing AddressP.O. Box 130 Rancho Cucamonga, CA 91729951.320.1540

ORANGE COUNTYP.O. Box 53490Irvine, CA 92619949.585.0201

SAN DIEGO8555 Aero Dr., Suite 200San Diego, CA 92123858.492.1090

HEADLINES is a publication of the Pacific Region of the Arthritis Foundation. © 2013 All rights reserved.Editor: Teri S. Lim Contributors: Pacific Region staff and volunteers.

HEADLINES Design: red rocket LA

Community Connections

For more information, visit us online at arthritis.org! “Like Us” on Facebook by visiting facebook.com/arthritisfoundationpacificregion

Enjoy videos on YouTube at youtube.com/afpacificregionFollow us on Twitter at twitter.com/arthritispac

SANTA BARBARA2261 Las Positas Road Santa Barbara, CA 93105805.563.4685

Hawaii760 Halekauwila Street, Suite 201Honolulu, HI 96813808.596.2900800.462.0743

nEVaDaP.O. Box 778213Henderson, NV 89077702.367.1626