t the 2012 InternationalConference on Stillbirth,SIDS & Infant Survival,

The National Institute of Child Health and HumanDevelopment promoted its newSafe to Sleep initiative whichbuilds on the successes of the Back to Sleep Programand supports the 2011 recommendations of theAmerican Academy of Pediatrics (AAP) which providedguidance to parents and others who care for infants toassist them in assuring a safe sleep environment.Placement of babies on their backs had a significantrole in reducing the number of SIDS cases, but as theinfant deaths were studied, a safe sleep environment

was found to have a critical role in a baby’s survival andsignificant room for improvement was established.

Their campaign encourages us to expand our focus onsleep related deaths due to causes in addition to SuddenInfant Death Syndrome such as suffocation, entrapmentand asphyxia, which have increased. The Safe to Sleepcampaign does this by describing actions that parentsand caregivers can take to reduce the risk of SIDS andsleep-related causes of infant death, such as suffocation,based on the AAP Task Force’s 2011 recommendations.

The AAP Task Force recommendations stated thatbreastfeeding is recommended as it is associated with areduced risk of SIDS. Infants should be immunized asevidence suggests that immunization reduces the risk ofSIDS by 50%. Bumper pads should not be used in cribsas there is no evidence that bumper pads prevent injuriesand there is a potential risk of suffocation, strangulation

F A L L 2 0 1 2V O L U M E 1 9 / N O . 4

Director’s Desk

Continued on Page 2

Continued on Page 6

DEPARTMENT OF PEDIATRICS

What a spectacular day it was togolf at the 22nd Annual AT&TSIDS Golf Invitational!

The sun greeted friends of the Centeras they prepared to golf and enjoy theday. Morning volunteers and staffwelcomed many familiar and newfaces. The buzz of excitement to hitthe green was in the air. Theshotgun call sounded and golferswent on their way, cheered on byvolunteers, to the beautiful fairwaysat Turf Valley Resort - the beginningof a phenomenal event.

The day could not have been such asuccess without the help and supportof our corporate sponsors, golfers anddonors. Your generous contributionshelped the Center raise $88,800.00!Our 22nd year was a challenging one,

but proved tobe every bit a success as we embarked on NewBeginnings…with our newtitle sponsorAT&T - withtheir supportwe willcontinue toachieve Infinite Possibilities.

The AT&T SIDS Golf Invitationalenables the Center to provide griefcounseling services, communityeducation, training, outreach andresearch to benefit Maryland families.One-third of the Center’s annualoperating budget is raised at this

event. Simply put, without our annualgolf invitational there would not be aCenter for Infant & Child Loss, thusour gratitude for our many supporters.

Please mark your calendar for the 23rdAnnual AT&T SIDS Golf Invitational –October 7, 2013 at Turf Valley Resortin Ellicott City, MD.

New Beginnings...Infinite Possibilities

Eighty Six Thousand Eight Hundred Eighty One

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Proceedings of a symposium in honor of Dr. Henry F.Krous were presented at the InternationalConference on Stillbirth, SIDS and Infant Survival

on October 5, 2012 in Baltimore MD. Eight colleaguesdiscussed forensic issues related to SIDS, tissue banking,animal models in SIDS, brainstem and genetic studies inSIDS, establishment of a SUDC registry, neuropathologicresearch in SUDC, and potential shared mechanismsunderlying sudden and unexpected death in early life. Dr Krous is retiring as Clinical Professor of Pathologyand Pediatrics at the University of California Schools ofMedicine and as Director of the San Diego SIDS/SUDCResearch Project after 37 years of dedicated service.

The proceedings are published in a Forensic ScienceMedicine and Pathology article titled Sudden andUnexpected Death in Early Life: proceedings of asymposium in honor of Dr. Henry F. Krous (authors:Kinney HC, Rognum TO, Nattie EE, Haddad GG, HymaB, McEntire B, Paterson DS, Crandall L, Byard RW).

Dr. Krous became interested in the field of suddenunexplained infant death (SUID) when a fellow intern’sdaughter died suddenly and unexpectedly and ultimatelylead him to the work of Dr. J Bruce Beckwith, worldrenowned pediatric pathologist. The two wereinstrumental in suggesting the need for a new definitionof sudden death in infants and small children and thestandardization of autopsy protocols. This definitionultimately benefited families whose children had died andfaced scrutiny that they had some responsibility for theirchild’s death.

Dr. Krous established the SUDC Program (SuddenUnexpected Death in Childhood ) with Laura Crandall ofthe CJ Foundation for SIDS and the San Diego SUDCresearch project. This partnership has increased publicawareness of SUDC, created a worldwide network ofsupport, information, advocacy and conducted researchinto the causes of SUDC. The project maintains adatabase of deaths in children over 1 year of age. SUDCoccurs in 1 out of every 100,000 toddlers.

The San Diego SUID Program began a tissue consortiumfor researchers. Four medical examiner districts inFlorida are participating in the consortium. Consentassistance is being conducted by the University of MiamiTissue Bank’s Donor Services. Note that medicalexaminer’s need for evidence take precedence. Followingthe de-indentification of the tissues, they are banked atthe National Institute for Child Health and DevelopmentBrain and Tissue Bank at the University of Maryland(Baltimore). The Center for Infant & Child Loss provideda grant to the Brain and Tissue Bank from fundraisingproceeds for the purchase of equipment for housingtissue samples.

Thanks to tissue samples, researchers have been able tomake discoveries into brainstem abnormalities,neurotransmitter function, gene mutations, laryngealchemoreflexes and other potential areas of concern thatmake infants vulnerable to SUID. Using results fromresearch in the early 1990s, the federal Back to Sleepcampaign was created and recommended back sleepingwhich, along with the reduction of other risk factors, is credited with a 50% reduction in SIDS.

We congratulate Dr. Krous on a distinguished career andwish him many years of joy and relaxation in the future.

or entrapment. As emphasized by infant mortalityprograms across the country, too many infant deathsinvolve unsafe sleep environments and locations.

In an effort to maintain consistency relating tothe message of Safe Sleep, the Center has revisedits brochures distributed throughout the State ofMaryland. The Keep Your Baby Safe AndHealthy brochures as well as the Share YourRoom Not Your Bed brochures both emphasizethe recommendations of the AAP and theAssociation of SIDS Programs. They have beenwell received by community health nurses,physicians, child care and all health care providers.

To review the 2011 AAP Recommendationsregarding Risk Reduction please go to:http://pediatrics.aappublications.org/content/128/5/1030

For more information on the Safe to Sleepcampaign please go to:http://www.nichd.nih.gov/news/resources/spotlight/101811-safe-sleep-for-all-babies.cfm

Director’s Desk From Page 1

In Honor of Dr. Henry F. Krous

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If being a bereaved parent is something you havenever been before, you may have to do somethingdifferent to get you through the holidays. You are

walking in unfamiliar territory. Because it’s anemotional issue, you might not think to approach theholidays in the same way you would approach otherproblems. Stephen R Covey, author of The 7 Habits ofHighly Effective People, has being proactive as hisfirst habit. To be proactive means to act inanticipation of future problems, needs, or changes.The holidays are coming and even before you were abereaved parent, they had to be ‘managed.’ Theproblem now is that you may not feel likeparticipating to the level you may have in the past. Asense of dread can wash over you. With a littleplanning and decision making, you might be able tominimize some of the problems you anticipate.

� Attending a memorial service, where you canremember your child, in a safe atmosphere, will bea comfortable place to allow you to express yourfeelings, even though it might be difficult. Here aresome things to consider:

� Lighting a candle can have special significanceand is a beautiful way to remember your child.

� To hear their name called in public lets everyoneknow they are not forgotten.

� Being around other bereaved parents knowingthat you are not alone, may give you hope.

� Give yourself permission to say no to traditions thatyou know will cause you discomfort or you just don’tthink you can handle. Telling your family what youwant and don’t want is very important.Communicating is the most important thing anddoing it ahead of time is even better. This might be agood time to rid yourself of obligations/traditions

that you no longer suit your current situation. You can always resume them later on. (Dinner atsomeone else’s house.)

� Do something for others, whether it would bevolunteer service or making a donation to a charity that has meaning to you in memory of yourchild. This could be a tradition you start to honoryour child.

� If you never travel during the holiday season,consider a trip. While you do take your thoughts withyou, a change of scenery could be beneficial. Spendsome time every day, thinking about your child.While it’s hard to come to grips with what you havelost, in time, the memories that you have will sustainyou and will forever be in your heart.

� Planting a tree in memory of your child is a physicalsymbol that will continue to grow and stand as areminder of their life. Sometimes we need to ‘see’things to help us along our journey. You coulddecorate it for the seasons, or sit under it on a specialbench as a place to remember.

� Seek comfort from those who may have traveledthis journey. Just hearing that others haveexperienced what you are going through is helpful.The Compassionate Friends tells us ~ you need notwalk alone. Grief can be so isolating.

Take some time to think about the coming holidayseason and find ways to minimize the stress it mightcause. Maybe shopping from catalogs or the Internet soyou don’t have to be in the stores could be helpful. Takeadvantage of the people who said to let them know howthey might help you. Remembering your child withlove is a wonderful way to honor them.

Peace to you this season.

Handling the Holidays

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SafeArrivalCongratulations to:

Audrey Eleanor StuartBorn August 19, 2012

6 lbs. 5 ozs.20 inches longProud ParentsEllen Bastio andSteven Stuart

� ��

As we look forward to celebrating Audrey's firstHoliday season it also brings the sadness that

Colin isn't with us. However, our five-year old Avareminded us that he is with us and we need to hangfive stockings since Audrey is with us, too. We shouldalso buy Colin a present so he can see it from Heaven.She is even happy to help pick out "his" present - she is sure he will like a pink castle set! We alwaysmiss Colin no matter the season but Ava's candor andthe joy of celebrating Audrey's first holiday seasondoes fill us with hope for the New Year.

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CICL is pleased to have formed such an amazing alliance with Wireless Zone. Headquarteredin Middletown, Connecticut, Wireless Zone is the largest independent cellular agent in thecountry, with over 500 locations from Maine to Virginia, the Midwest States, and Florida.Wireless Zone stores sell a total cellular solution, specializing in the sale of Verizon

Wireless Voice and Data Services. Presently Wireless Zone has over 3 million customers nationwide. Wireless ZoneFoundation for Giving has committed to donating a percentage of every activation and upgrade done at a Wireless Zonestore in the Washington/Baltimore/Virginia market with specific funding matched by Automotive Technologies, Inc.,parent company of the franchise system.

If your needs include a Verizon cellular product, we encourage you to think about Wireless Zone. Your business with aWireless Zone store within the Washington/Baltimore/Virginia market translates into additional funding for the Centerfor Infant & Child Loss.

Wireless Zone Partnership

Outreach and Training EffortsSeptember – October 2012

TRAINING Day Care Providers . . . . . . . . . . . . . . . . . . . . . . . . . 36 Professional Staff . . . . . . . . . . . . . . . . . . . . . . . . . . 18 Pregnant / Parents . . . . . . . . . . . . . . . . . . . . . . . . . 96 Students . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .22 OUTREACH Risk reduction materials . . . . . . . . . . . . . . . . .* 3,053 Light switch covers . . . . . . . . . . . . . . . . . . . **14,365 * includes Spanish materials

** includes light switch covers provided to all birth hospitals

Anne CookeIn loving memory ofCurt David Farnsworth

Roberta FlynnIn loving memory ofMichael P. Flynn

Julius and Mary BodnarEdward DonovanDaisy FaligantCynthia PurnellKaren SmithIn loving memory ofLandon James Puglise

Ellen MotleyIn loving memory ofMichael Waller

The Green TurtleIn Memory of All theChildren That Have Died

Wireless ZoneIn Memory of All theChildren That Have Died

Donations

Maryland Charities CampaignIf you are a State employee and would like to contributeto the Center through payroll deductions, be sure toinclude Book 5384, UMB Foundation, for the MCCaccount code. There is a listing of accounts under theSchool of Medicine for SIDS (26309) which will designateyour donation to the Center. Check the box and fill in theamount. Thank you so much for considering the Centeras the recipient of your donation.

Center for Infant & Child Loss Memory QuiltMany of you have seen the beautiful quilts displayed atthe annual memorial services and events each year.These quilts have individual squares created by familiesof loved ones to remember their child. If you would like to add a quilt square please followthese guidelines:• Size 8x8• Material – cotton or cotton/poly blend• Design – individual taste and creativityMail to the Center for Infant & Child Loss at theaddress on this newsletter.

September – October 2012In Memory...In Honor of…

Gutberlet Scholarship

The Center would like to remind interested parties of the Ronald L.Gutberlet, M.D. Parent Conference Scholarship Award that providesparents/grandparents the means to attend conferences regarding SIDS and

other child deaths. Conferences are always announced on our website at:www.infantandchildloss.org and most are held annually. Examples oforganizations having annual conferences are California SIDS Program, CJ Foundation, First Candle/SIDS Alliance, and The Compassionate Friends.

For more information please contact:LaToya Bates at 410-706-5089 / 800-808-7437 or lbates@peds.umaryland.edu

Dr. Gutberlet died peacefully on February 29, 2012,with his lovely wife Shirley, sons and close friends byhis side. As Chairman of the Department of Pediatricsat Mercy Medical Center, Dr G. was so many things,but to us at the Center for Infant & Child Loss he wasinspiration. He was an active member of the Center’sAdvisory Board always challenging us to think beyondthe parameters of our program. During the eveningreception, the Center honored Dr. Gutberlet bypresenting his wife Shirley with a Crystal Award thatsimply read: “In loving memory of Dr. RonaldGutberlet for 38 years of dedication, service andsupport to the Center for Infant & Child Loss,1974 until 2012.” In addition to the Crystal Award,the Gutberlet family (particularly the grandchildren) was presented with the original copy of the grant co written by Dr. Gutberlet in 1974. It is a beautifultribute to Dr. Gutberlet and an example to hisgrandchildren of how ideas on paper could formulateinto a Center that touches and heals the lives of somany. The Gutberlet legacy will continue at theCenter as Shirley and her daughter in law, Michelle(Mitchie) will now serve as active members of theAdvisory Board. The blessings continue…

In Memory of Dr. Ronald Gutberlet

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Hold the Dates

Saturday, December 1, 2012Kaitlyn's 4th Birthday Dinner Dance for SIDS

6 - 11 p.m. Circle D Farm, Woodbine, MDFor more info or tickets kaitlynsdance@gmail.com

January 27, 2013Andrew’s Pins for a Purpose

6 - 11 p.m. Glen Burnie Bowl, Glen Burnie, MDFor more info andrewspinsforapurpose@gmail.com

March 2013Bryan Thomas Palmer Bull & Oyster Roast

Columbus Gardens, Nottingham, MDFor more info or tickets bryanpalmerfund@comcast.net

May 2013Walk/Run For Sids & Child Loss

Quiet Waters Park, Annapolis, MDFor more info www.infantandchildloss.org

July 2013Dakota in the Park

Quiet Waters Park, Annapolis, MDFor more info www.infantandchildloss.org

Remembering Our ChildrenThe program will commemorate the lives of our children.All persons interested in preparing a reading or music forthe programs are welcome and encouraged to participate.A reception will be held following each program.

We will include the names of our children in theprogram and service, even if you cannot attend. Pleasecomplete the form below and return it to the CENTER.The programs will be held in the following areas:

Baltimore Area: Sunday, December 9, 2012Brown Memorial Church6200 N. Charles Street, Towson, Maryland – 7:00 p.m.Directions: Baltimore beltway (I-695) to Exit #25 CharlesStreet; South on Charles St. approximately 2 miles to churchon right directly across from 7-11

Prince Georges’ County: Sunday, December 9, 2012St. Philips Episcopal Church – 2:00 p.m.6th & Main Streets, Laurel, Maryland 20705

Directions: From I -95 take Exit 35A East, Scaggsville Road,toward Laurel (1.7 miles). Bear left on Main Street

Eastern ShoreTuesday, December 4, 2012 - 7:00 p.m.St. John United Methodist Church, Fruitland, MDFor information call Gail Jablonski at 410-543-7039

Refreshments will be served following each service.Please bring a ‘finger food’. Please bring a photographor other memento of your child for the memory table.Be sure to put your name on the back.

To register online visit www.infantandchildloss.org.Click on right navigation bar, scroll to bottom.

Please RSVP by December 1

April 2013Annual Bull & Oyster RoastLevel Fire Hall, Havre de Grace, MD

For more info or tickets Donna Hawley GDHMN@aol.com

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2012 GolfGolfers enjoyed the day on and off the courses at Turf Valley Resort.Temperatures topped in the mid 70’s on this perfect day to support the Center at the 22nd Annual AT&T SIDS Golf Invitational.

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2012 Golf

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2012 Golf

Special Thank You to the 2012 Golf Invitational Committee

n event of this magnitude couldnot have come togetherwithout the minds, hands and

hearts of our 2012 Golf Committee.The Golf Committee workedtirelessly to make this year a success.The work that you do for the Centeris unwavering and does not gounnoticed. 2012 Golf Committeewe salute you! We would like toespecially thank Brian Felch, AndyLaPointe, John Happel, and PhyllisWest for going the extra mile forauction and raffle items – Thank you!

Corporate Liaison: Lauri Moore (AT&T)

Chairperson: Brian Felch (SIDS Parent)

Title Sponsor: Rob Forsyth, Vice President & General ManagerAT&T Washington/Baltimore

Chair Emeriti: Chuck Dohrman, Rhea Lucas,Liz & Bill Waller

Committee Members:William Connor, Anne Cooke, Scott Fava,John Happel, Bill Jones, Andy LaPointe, Jason Los, Luis Maldonado, Terry McClung,Ellen Motley, Katherine O’Hara, Steve Snider,Carolyn Thompson, Phyllis West

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Rob Forsyth, Vice President &General Manager AT&TWashington/Baltimore

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2012 Golf

Thank you to this year’s phenomenal team of volunteers:Anthony Aranas • Roweena Arasah • Debbie Basile • Paul Beck • Michelle Bell • Rodney Black

Eric Byrge • Ellen Board • Veronique Cabulong • John & Cindy Carrico • Lauren Conner • Andrew DaigleDenise Dixon • Mable Dixon • Colleen Driscoll • Tanya Doggett • Jenny Fales • Cassie Felch

Margaret Frost • Bob Frazier • Kayti Gamer • Jared Gill • Connie Grossart • Lisa Hallinger • Atusa HaynesJohn Hoban • Dolapo Junaid • Greg Keyes • Xina Kojzar • Howard & Sonya Lane • Linda & Drew LaPointeTina Lolley • Stephanie McClung • Keysha McGee • Mauricio Menendez • Regina Minor • David Mullinix

Andrea Murphy • Aus Musa • Karen Parks • Rodger Pulley • Robin Reich • Stacey RossMike & Jeanne Shoemaker • Tanisha Smith • Mark & Jennifer Storch • Kevin Thalheimer

Carolyn Thompson • Judy Treuth • Wesley Waters • Justin Wells • Ciara Willis

VolunteersThe Center and Golf Committee would like tothank all of the volunteers who came out tolend a helping hand this year. Your dedicationand commitment is greatly appreciated. A special thank you to Anne Cooke andCamilla Hyman for coordinating thevolunteer schedule. The camaraderie of thevolunteers helped the day run flawlessly.

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Evening ReceptionSponsored Evening Reception

Thank you Geico for continuously sponsoringour Evening Reception! Our eveningreception would not have been lead and

executed with such professionalism without; Mindy Basasra, WBAL Channel 11 News, ourMaster of Ceremonies, Bill and Lauren Connorprovided music entertainment, Bob Frazier and Scott Fava our video and sound specialists, Anne McConnell, America’s Mrs. Maryland 2012,served as Honorary Chair, and David Hartmanour live auctioneer. Mindy Basasra

WBAL Channel 11David HartmanAnne McConnell

The 2012 GolfCommittee and Centerstaff are thankful for thetremendous supportfrom all of our corporatesponsors. Your loyaltyenables us to helpfamilies in their time ofneed. THANK YOU!

Corporate Sponsors 2012

TITANIUMTelegent Engineering Inc.

PLATINUMCCI Printing & Graphic Solutions • Radio One • Smartlink

GOLDAllegheny Industries, Inc. • American Tower CorporationBechtel • Communication Technology Services • Force 3Freedom Telecom Services • House of Printing • Pro-Tel

University of Maryland Dept. of PediatricsSILVER

System IntegratorsFAIRWAY RECOGNITION

Bechtel • Praxis Engineering • Team SydneyBRONZE

CMBC • D&H Builders • Mid Atlantic ContractingFRIENDS OF THE CENTER

LG • Country Pride Food Service, in honor of Adam LaPointe

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Evening Reception

Over 200 golfers participated in golfing and concluded theday at our evening reception in the Grand Ball Room atTurf Valley Resort. During the reception, live and silent

auction packages were enthusiastically bid on, delicious food andcocktails were relished, and the golfers who competed to win 1st, 2nd and 3rd place were announced.

ORIGINAL COURSE1st Place Team 7-A – (63) Carl Coney, Dwight Fletcher, Tony Gay, Brian Fletcher2nd Place Team 15-A – (64) Brian Felch, Josiah Mueller, Darren Parker3rd Place Team 3-A – (64) Rocky Cintron, Joe Leitner, Josh McCloskey, Les TrachtmanLongest Drive #18 – Walt Hiltabidle50/50 Original – Bob Macmillan

HIALEAH COURSE1st Place Team 18-A – (58) Howard Abramson, Eric Francis, Louis Kovalsky, Jerry Roma (Best score of the day)2nd Place Team 1-A – (59) Rob Forsyth, Joan Forsyth, Glenn Cassell, Roger Cassell3rd Place Team 6-A – (61) Jeffrey Bucher, John Bayley, Kenney Reed, Joe McDonaldLongest Drive #17 – David Abramson50/50 Hialeah – Oscar Jennings

Putting Low – Glenn CassellPutting Not So Low – Darren Parker

The evening program continued andconcluded with special thanks to ourwonderful sponsors and friends, and aheart felt word from our beloved Director,LaToya Bates, who is so passionate aboutthe Center’s mission.

The echoing report was that everyone hada delightful time, for an amazing cause.

Until next year…

RETURNSERVICEREQUESTED

Center for Infant & Child Loss Staff :LaToya Bates, MSSA, LCSW-C, Program DirectorJean Edwards, Program CoordinatorPier Butler, Events CoordinatorTavion Robinson, Administrative AssistantAffiliation Statement: The CENTER FOR INFANT & CHILD LOSSis within the Division of Neonatology, Department ofPediatrics, University of Maryland School of Medicine.The CENTER works closely with the Maryland State Office of the Chief Medical Examiner and local healthdepartments.

Funding Statement: The Maryland State Department ofHealth and Mental Hygiene, Center for Maternal and Child Health provides grant funds for a portion of theCenter’s services.

410/706-5062 or 800/808-7437Visit our web site: www.infantandchildloss.orgfacebook.com/CenterforInfantandChildLoss

The Center’s goal is to assist families as they learn to livewith the loss of their child and to have hope for the future.Our programs reach out to bereaved families and the

community. Center programs foster hope by offering publiceducation, health care provider training, and instruction foremergency responders and others who may provide support.Each of our four programs is designed to meet individual,family, and community needs. For those families who doexperience the sudden death of an infant or child, the Centermakes immediate contact to give them available informationabout the cause of death and support in their grief.

CICL Advisory Board MembersBrian Felch, Advisory Board Chairman, Parent, Angela Burden,MA, RN, HealthCare Access Maryland, Ami & Bruce Brown,Parents, George Carroll, CCI Printing & Graphic Solutions, Anne Cooke, Parent, Dr. Colleen Driscol, Div. of Neonatology, Dr. Alison Falck, Div. of Neonatology, David Fowler, M.D., Officeof the Chief Medical Examiner, Sherry Goldman, M.D., Parent,Shirley Gutberlet, Michelle Gutberlet, Yaneri Hodgson, LSWA,HealthCare Access Maryland, Ling Li, M.D., Office of the ChiefMedical Examiner, Tonya Logan, Parent, Terry & StephanieMcClung, Parents, Jonathan Melnick, Melnick Auctioneers,Sandra Mooney, Div. of Neonatology, Lauri Moore, AT&T, Robert & Rosemarie Palmer, Parents, Carolyn Thompson,AT&T, Dr. David Woo, Div. of Neonatology

Non-ProfitU.S. Postage

PaidPermit #1608Baltimore, MD

In partnership with

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Center for Infant & Child Loss737 W. Lombard St., Rm 233, Baltimore, MD 21201

www.infantandchildloss.org

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