introducing the global spinal cord injury consumer network jane horsewell president escif iscos,...
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INTRODUCING THEGLOBAL SPINAL CORD
INJURY CONSUMERNETWORK
Jane HorsewellPresident ESCIF
ISCoS, Istanbul, 2013
WWW.GLOBALSCI.NET
o To establish an active global network of consumer groups and organisations of people living with spinal cord injury
o To learn from each other, sharing experience and knowledge
o To impact the SCI agenda worldwide
Why this initiative?
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o “Developed world”: people living with SCI have formed national self-advocacy organisations, but with limited inter- group collaboration
o “Developing world”: national groups are less common, although there are many small group initiatives often led by charity organisations or NGOs
Current global situation
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o To promote the development of SCI consumer groups and organisations in countries where resources are limited
o To promote collaborations between organisations in resource-strong countries
Challenges … and there are many
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o To encourage cross-national / world regional collaborations by providing
opportunities to meet and discuss
Challenges cont.
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o To encourage cross-national / world regional collaborations by providing
opportunities to meet and discuss
o To encourage cross-national / world regional collaborations by providing
opportunities to meet and discuss
The journey so far …
WWW.GLOBALSCI.NET
The journey so far …
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In 2012 we held the official launch of theGlobal SCI Consumer Network at the ISCoSmeeting in London, UK.
We have formed three working groups
o Future organisation of the networko Fundraising and sponsorshipo Development of the website
Since the launch ...
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At the ASCoN meeting in November 2012Shivjeet Singh Raghaw was appointedChairman of the Consumer Committee.
Federico Montero has worked to establish contacts in Latin America.
Since the launch ...
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o The working groups must present concrete proposals regarding their areas of responsibility by mid-2014
o The Ambassadors in Asia, North America and Latin America should draw up key points for the SCI agenda in their region by mid-2014
o All Ambassadors should start to plan for the meetings in The Netherlands 2014, Canada 2015 and Brazil 2016
Proposals for next steps ...
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o To further collaboration between SCI consumer groups worldwide
o To collaborate with SCI professionals on SCI issues including management, research, prevention, education
o To work with all stakeholders in the SCI community to improve quality of life of people living with a spinal cord injury
We must not forget collaboration
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