ms connection newsletterohio buckeye chapter · 2019-01-08 · ms connection newsletter ohio...

SUMMER 2015 OHIO BUCKEYE CHAPTER

MS CONNECTION NEWSLETTER

INSIDE THIS ISSUE

4VOLUNTEER FOR A RESEARCH STUDY

6READ A PERSONAL STORY

14ATTEND AN EDUCATIONAL PROGRAM

WALK MS

8LEARN ABOUT ADVOCACY EFFORTS

2 MS CONNECTION: SUMMER 2015

SOLUTIONS FOR TODAYBY CINDI ZAGIEBOYLO, PRESIDENT & CEO, NATIONAL MS SOCIETY

I often hear from people affected by MS that they are grateful for the significant research progress the National MS Society is fueling through our continued investments. With 12 disease-modifying treatments on the market and several more in the pipeline, along with an international alliance focused on advancing treatments for progressive MS, people are hopeful about what breakthrough solutions the future may bring.

While we are optimistic about prospects for advances, the urgency for immediate solutions remains. People are wondering what they can do today to live their best lives as we invest in research for the future. Is there a specific diet for MS? What kind of exercise is best for my MS? How do I balance work, family and my health while keeping stress levels in check? How can I get motivated to take action when I just don’t feel well?

It is essential that the Society help people find the solutions they need. As a result of what we’ve heard from so many, we are making wellness a priority.

This wellness initiative will require that we adopt new ways of thinking about research and programming. We must be able to translate knowledge into action so that people can make informed lifestyle choices and are empowered to live their best lives.

During this final year of our historic NOW campaign for MS research, your continued support will be essential to ensuring we are able to respond to the urgent needs of people with MS and deliver solutions that will change lives today as we continue to seek solutions for the future. n

“WE ARE MAKING WELLNESS A PRIORITY.”

CONNECT WITH US ONLINE:Ohio Buckeye Chapter MSohiobuckeye.org [email protected]

Like us: facebook.com/msohiobuckeye

Follow us: instagram.com/nmssohiobuckeye

Follow us: twitter@nmssohiobuckeye

Watch us: youtube.com/nationalmssociety

On the Cover: Photos from Walk MS

CINDI ZAGIEBOYLO

3MSOHIOBUCKEYE.ORG | 1-800-344-4867

STOP DISEASE PROGRESSION RESTORE LOST FUNCTION END MS FOREVER



STOP

RESTORE

END

NATIONAL MULTIPLE SCLEROSIS SOCIETY

Board Chair: Dick Kulick President: Janet Kramer Executive Vice President Marketing & Outreach: Jennifer Hamilton Editor: Guyla Wehman

© 2015 National Multiple Sclerosis Society, Ohio Buckeye Chapter

Cleveland Office6155 Rockside Rd., Suite 202Independence, OH 44131Columbus Office651G Lakeview Plaza Blvd.Worthington, OH 43085Toledo Office401 Tomahawk DriveMaumee, OH 43537

Information provided by the National Multiple Sclerosis Society is based upon professional advice, published experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National Multiple Sclerosis Society recommends that all questions and information be discussed with a personal physician.

The National Multiple Sclerosis Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The National Multiple Sclerosis Society assumes no liability for the use or contents of any product or service mentioned. n

Ohio Buckeye Chapter 1-800-344-4867

NOW: AN MS RESEARCH REVOLUTION

SOCIETY COMMITS $28 MILLION FOR NEW RESEARCH PROJECTSThe National Multiple Sclerosis Society has committed $28 million to support an expected 84 new MS research projects and training awards. These are part of a comprehensive research strategy aimed at stopping MS, restoring function that has been lost and ending the disease forever for every single person with MS. Among the new leads being explored are diet, gut bacteria, myelin repair and patient-centered wellness programs.

This financial commitment is the latest in the Society’s relentless research effort to move closer to a world free of MS. It is part of a projected investment of over $52 million in 2015 alone to support 380 new and ongoing studies around the world. So that no opportunity is wasted, the Society pursues all promising paths, while focusing on priority areas including progressive MS, nervous system repair, gene risk factors, environmental risk factors, wellness and lifestyle. n


SIGN UP FOR RESEARCH STUDY Many people with MS describe fatigue as one of their most disabling symptoms. MS fatigue can be chronic, severe and it often interferes with the ability to maintain employment or engage in leisure activities. The reduced physical activity that results from MS fatigue can lower physical conditioning. This can lead to higher than normal levels of fatigue from normal activities of daily living, setting up a vicious cycle in which fatigue and physical inactivity enhance each other.

In a new research project, Matthew Plow, PhD, from Case Western Reserve University, is conducting a randomized controlled trial to see whether methods of fatigue management and increasing physical activity that are often provided by physical therapists and/or occupational therapists at medical rehabilitation centers can be distributed with a series of teleconferences

and phone interviews. The study is being funded by a research grant from the National MS Society.

Participants should be ages 18 to 65, with a diagnosis of MS and the ability to walk 25 feet with or without a cane. Among those excluded are people who exercise more than 90 minutes per week, are pregnant, have metabolic or cardiopulmonary disease that puts them at high risk for engaging in a home exercise program, or have had four or more falls in the past six months.

To learn more about the enrollment criteria for this study and to find out if you are eligible to participate, please email Arielle Tucker, MS, at [email protected] or call 216-368-0510. n

DR. MATTHEW PLOW

VOLUNTEER FOR RESEARCH PROJECTResearchers in the Departments of Psychological Sciences and Exercise Physiology at Kent State University would like to invite you to participate in a study examining how a one-week exercise program affects fitness and thinking skills. Past research shows that a single week of water aerobics can increase both physical and cognitive fitness. The goal of the current study is to see if this type of exercise program can help those with MS in the same way. The low impact and cooling nature of water exercise is likely to be especially helpful for those living with MS.

Individuals between the ages of 20-65 who have

MS and are physician-approved for exercise are eligible to participate. The study involves two physical and cognitive fitness testing sessions held on the Kent State campus. Those assigned to the exercise program will be asked to attend a seven-day program of daily water aerobics, 60 minutes per session, tailored to fit their individual needs. Individuals are compensated for their participation.

Email [email protected] or call and leave a confidential voice mail at 330-552-8277 for more information. A member of the research team will contact you to provide details and answer any questions you have about the project. n


BE INSPIRED, GET CONNECTED, WALK MSWalk MS is more than a fundraiser. Walk MS connects people living with MS and those who care about them. When you participate in this community event, the funds you raise give hope to everyone impacted by MS.

During April and May, more than 8,000 people came together to participate in the Walk MS event presented by Novartis. A total of 17 walks were held in 17 communities across the state.

The funds raised from Walk MS provide for quality programs and services for more than 15,000 Ohioans living with MS and their families in a 64-county area. Ninety percent of the programs are offered free of charge to those wishing to attend. The funds also provide for research efforts to find better treatments as well as the cause and a

cure for MS. The Society funds more MS research than any other organization in the world. The Ohio Buckeye Chapter is fortunate that many of the research dollars are being invested locally at Athersys, Inc., Case Western Reserve University, Cleveland Clinic, Kent State University and The Ohio State University.

The goal for the 2015 Walk MS is to raise $1.5 million and we need your help to reach that goal. Help us make an impact by supporting the Walk MS effort. Even if you did not walk you can still support Walk MS by collecting contributions and making donations to the event. Please visit MSohiowalk.org or call 216-503-4183 for more information.

A special thank you to all the Walk MS participants, volunteers, sponsors and supporters. Thank you for your contributions to make the 2015 Walk MS season a success. n


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MS WILL NOT WINBY TERESA SABO, MS AMBASSADOR AND SELF-HELP GROUP FACILITATOR

My journey began on New Year’s Eve 1990 with a numb stomach, followed by numbness that engulfed the entire right side of my body. My initial thought was a pinched nerve, but after a few questions from my family doctor, I was shocked when I heard, “I think you have MS.” The long walk to the car was full of tears and my next stop was the neurologist’s office for a MRI, evoked potential studies and a spinal tap. With my husband and mother by my side, MS was confirmed on Jan. 15, 1991.

At that time there were no treatments so I was told that I would need to learn how to deal with this nuisance. I was devastated and instantly gave my husband the option to leave, as it couldn’t have been what he signed up for when we got married. In my mind, if I was going to end up alone, it would be easier to start the journey that way. Fortunately, he took our wedding vows seriously and we just celebrated our 33rd anniversary.

I dealt with MS on my own, with help from my family, for 11 years. Then in 2002 I became numb and experienced tremendous pain in an arm, hand and both legs. So, my sister-in-law went in search of help and found the Mellen Center at the Cleveland Clinic. I met Dr. Mary Rensel and we started a new journey together. The journey with medications scared me but it also brought the hope that we could slow down the disease.

Over the course of the next 12 years, we tried

numerous medications. During the years of medication switches, I kept my MS a secret with the exception of my family, close friends and employers. That all changed when I started having trouble walking and keeping my balance. It forced me to open up to more people and to start leaning on others.

I started attending a self-help group about three years ago and felt so uplifted that I decided I wanted to help others. It inspired me to start a new self-help group in January 2014 at Elyria Memorial Hospital. Sometimes we have speakers and sometimes we just sit and chat about our lives. I try my best to keep the meetings positive as I want people to leave feeling encouraged.

A big result of our meetings was the introduction of exercise. I found Mary Ann Francis, a Zumba instructor who is trained to deal with the elderly and those with special needs. Our first class was held in January 2015 and we meet every Saturday at Anytime Fitness in Elyria. There is upbeat music and moves that we can handle. She watches us closely and if we struggle with something, she changes it up. The class is so much fun and leaves me feeling like the Energizer bunny. I’m also excited as it helps me with my leg strength, keeping me out of physical therapy.

Something else that brings me strength is my

TERESA SABO WILL NOT LET MS WIN.


FIND BALANCE THROUGH RESPITE CARERespite literally means a short rest or break period. If you are a caregiver, more often than not, you could use a rest. Caregiving tasks may include a shift in managing household chores such as laundry, cooking and cleaning. Other tasks may include assisting the person with MS with very personal needs such as transferring, dressing, bathing and eating.

Caregiving may be a rewarding and satisfying experience but all caregivers need to find balance in their lives. Respite care provides short-term breaks that can relieve stress, restore energy and promote balance in your life. There are many respite care options available to support you and your loved one.

First, it’s important to determine the services you need in the home. Would chore services be helpful during stressful times? What are the needs of your loved one? Would they benefit from a home health aide assisting with activities of daily living like eating, dressing and bathing? Could you use time to yourself? Another alternative is to plan an overnight stay at a local nursing facility, which is often called respite.

You’re probably wondering how to pay for these types of services. Insurance doesn’t typically cover chore services but may provide home health services for a short time after a hospital stay. If you qualify for Medicaid, you may also qualify for the Waiver Program if you need personal assistance. This program was designed

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to keep people living safely in their home and can assist with services like home health care. If you don’t qualify for the program and are unable to pay for services out-of-pocket, the National MS Society can help. The Ohio Buckeye Chapter can assist in paying for short-term chore services or a nurse’s aid within the home or for a short stay in a nursing facility.

If you are interested in how the chapter can help or if you have questions about respite care options, please call 1-800-344-4867 to request a financial assistance application. Someone from the chapter will contact you once this application is received. n


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FUELING IMPACT FOR CHANGEBY SAMANTHA VILLELLA, MS ADVOCATE AND MS AMBASSADOR

My journey of advocating for multiple sclerosis began in the summer of 2008 when my mom, Kathy, was diagnosed with primary-progressive MS after living with symptoms since 2000. After her diagnosis, a friend told us about the Mahoning Valley Walk MS and our family decided to participate. In 2012, to raise additional funds and awareness, my siblings and I created a non-profit 501(c)3 organization to support the National MS Society’s Ohio Buckeye Chapter. In March 2014, my sister Nikki, was diagnosed with relapsing-remitting MS. At that moment, I knew that being an MS advocate for those who live with this

debilitating disease was going to be one of my passions.

My latest and most impactful volunteer opportunity came when I was asked to participate in the 2015 Public Policy Conference in Washington, D.C. from March 9 to 11. I remember the day that I received the call to participate. As I listened to what would be involved as a participant, I was struck speechless. I was overwhelmed with emotion at being asked to be an MS advocate for

a cause so important and so near to my heart.

After weeks of preparation, it was time to head to Washington. Upon my arrival at the conference, I saw people of all ages and races supporting this cause. Everyone had a story to tell: some have MS themselves, some have loved ones with MS and some work for the National MS Society. But we were all there for one reason - to fuel impact for change.

Initially, we gathered as a group for our welcome and a reception. The next day we attended workshops, starting with a session about how to craft our stories that we would be sharing with our legislators. During this session, I was asked to share my story. Everyone attending the conference had a story behind their advocacy, but to be able to share my family’s story was truly an incredible moment. Throughout the day, we were educated on the policy priorities

THE VILLELLA FAMILY SHOW SUPPORT AT WALK MS.

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that we would be presenting on our Capitol Hill visit.

Finally, the day of advocacy arrived. MS activists came together and headed to Capitol Hill to meet with their senators and representatives to share their stories and request support for policy priorities.

My day started with a visit to Senator Rob Portman’s office and then on to the offices of Representatives Tim Ryan, Bob Gibbs and James Renacci. After leaving Representative Ryan’s office, I was overcome with emotion. Two of the MS employees with me each put a hand on my shoulder and reassured me that what I was doing was truly important.

It was at that instant that I realized I had the opportunity to make an impact on our leaders and their decisions. My commitment to my mom, my sister and all of those who have MS is that I will be their voice - I will be an MS activist. I plan to continue advocating so that one day MS will be a thing of the past. n

JENNIFER HAMILTON (LEFT) AND SAMANTHA VILLELLA VISITED WASHINGTON D.C. TO ADVOCATE FOR PEOPLE LIVING WITH MS.

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MS ACTION DAYMS advocates from across Ohio participated in MS Action Day on March 17, 2015. Advocates met with state representatives and senators to discuss the National MS Society’s position on the Ohio Budget (HB 64). In the meetings, advocates asked legislators to ensure Ohioans have access to public or private health coverage regardless of health or disability, economic status, employment status, age, claims history or risk. Advocates also asked legislators to remove language regarding access to coverage of independent providers. For more information on the issues or to learn about becoming an advocate, please email Tony Bernard at [email protected] or call 614-515-4608. n

PAM BENNETT (LEFT) AND DEB GREYTAK TAKE ACTION ON MS ACTION DAY.

participation in the Lorain County Walk MS event. Three years ago I started my own team, “Teresa’s Wobblers,” and we have raised thousands of dollars for local programs, services and MS research.

I won’t lie, I still have bad days but my motto is, “I’m a fighter, a survivor and MS will not win!” n

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MANAGING SYMPTOMS ON THE JOBCHRISTINA L. FORSTER, MA, CRC, EMPLOYMENT SERVICES MANAGER, GREATER DELAWARE VALLEY CHAPTER

Multiple sclerosis is a complex and unpredictable disease causing varying effects on a person’s ability to work. Experiencing new symptoms might make you question whether you can continue working and when those symptoms diminish, you might wonder why you were worried about work at all.

People living with MS often continue working long after their diagnosis. Other individuals with MS decide to leave their jobs when they are first diagnosed or experience their first major exacerbation, often at the suggestion of a loved one or their doctor. This decision is often made too hastily and at a time when symptoms can cloud their judgment. Disease-modifying therapies, new technologies, better symptom management, legal employment protections and community resources can help you make an informed decision about work and remain in the workforce longer.

Because MS presents itself differently from person to person, day to day, and even hour to hour, it can be a challenge for some individuals to perform optimally at their jobs. That is why it is critical to get to know yourself and your limits. Practical tips for helping with this include keeping a symptom journal or marking on your calendar each day how you felt. This

gives you the ability to go back and notice if there are any patterns, possibly identify triggers and make adaptions to help you perform better.

Symptoms of MS that may impact a person on the job can include fatigue, cognitive challenges, fine motor symptoms, vision problems, depression, balance issues, numbness and tingling, or heat sensitivity. Some general tips to help manage a variety of symptoms include knowing what is normal for you, learning how to adapt in different situations, controlling your environment to help conserve energy, rest and relaxation, exercising, keeping a positive attitude and proper nutrition. Learning to manage your symptoms both in and out of work will help you be more successful on the job. Check in with your doctor on any suggestions and specific programs to meet your individual needs.

Fatigue and cognitive problems, not physical disability, are the two most common symptoms that ultimately lead people with MS to leave the workforce. Fatigue is the most common symptom of MS occurring in about 90 percent of people. MS fatigue can greatly interfere with everyday activities including work. Fatigue can increase cognitive problems as well. It’s very important to learn ways to help manage your symptoms. In the workplace, this is done with accommodations.

Learning to manage fatigue in the workplace is an ongoing process. Each person has to uncover strategies that help him or her. It’s a good idea to work with your doctor and possibly an occupational therapist to learn ways to manage

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fatigue. Some common tips include:• prioritizing tasks• pacing yourself• planning ahead • scheduling breaks and rest times• delegating tasks• using assistive technology• evaluating your workspace

To optimize your treatment, work with your doctors to determine how your medications can impact fatigue or other symptoms.

Cognitive challenges can affect up to 60 percent of people with MS and stress can have a negative impact on cognitive function.

Cognitive challenges could include attention and concentration, short-term memory, information processing, executive function, decision making and ability to follow through on plans, perception and verbal fluency. As with fatigue there are some strategies that can help you adapt at work and perform better. Some tips include:• being more organized• using memory aids such as a PDA notebook

or calendar• reducing stress• allowing rest breaks• minimizing distractions• taking notes to help with memory

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DON’T JUST RIDE, BIKE MS The Ohio Buckeye Chapter is proud to host three extraordinary Bike MS rides presented by The Andersons, Inc. Charitable Foundation. All three rides offer a combination of beautiful scenery, outstanding people and of course, a great cause. Route options are available for new and experienced riders alike. Whichever ride you choose, it will be the most rewarding journey you’ll ever make.

Bike MS Reeves Northrup Memorial Bike to the Bay is a fully supported ride on June 20-21, 2015 that takes you through the Northwest Ohio countryside. You’ll start at Perrysburg High School and ride along the scenic back roads to Port Clinton. On Sunday, the ride returns to Perrysburg. Route options of 35, 50,

75 and 100 miles are available.

Bike MS Central Ohio Challenge is a fully supported one-day ride on July 11, 2015. The ride starts and finishes at Glacier Ridge Elementary School in Dublin. Route options of 30, 50 and 95 miles are available.

Bike MS Buckeye Breakaway (formerly Pedal to the Point) is a fully supported ride on August

1-2, 2015. The ride begins in Brunswick and travels to Ashland University in Ashland. On the second day, the ride returns to Brunswick. Route options of 30, 75, 100 and 150 miles are available.

Come be a part of Bike MS whether you’re new to Bike MS or ride every year. Together we will

raise money, have fun and make a difference in the lives of people living with MS. Register for the Bike MS rides at MSohiobike.org or 216-503-4183. n

FINISH MS Finish MS offers runners, cyclists, swimmers and distance athletes of all types the chance to create a world free of MS while pushing their own personal limits. Finish MS is a unique program that unites individuals with the common goal of raising funds for the National MS Society while completing athletic endurance events.

If you’re registered for any race event you can race on behalf of the Society. You will have access to powerful online fundraising tools to turn your participation in any third-party race event into a race for a good cause. Experience, location and race distance are flexible. You can participate at your own pace, at any race, anywhere. For more information about Finish MS, please contact Jennifer Hamilton at [email protected] or 216-503-4170. n


• asking for written descriptions of tasks whenever possible

• allowing for a self-paced workload

Again, it’s important to take care of yourself out of work as well by getting enough sleep, employing relaxation techniques, exercising and eating healthy. Always talk with your doctor about exercise and nutrition plans. Make sure to discuss your medications and any possible side effects that may impact your cognition.

There are many other symptoms individuals with MS may experience at work. For more

information, we highly encourage you to utilize the National MS Society’s resources, including publications on specific symptoms, online videos on symptom management, and the You CAN! Series. You can access this information by visiting nationalmssociety.org or calling 1-800-344-4867. Additionally, the Job Accommodation Network (JAN) is an excellent resource that provides information about job accommodations strategies for employers and employees. This is a free service sponsored by the U.S. Department of Labor. For more information, please visit www.askjan.org or call 1-800-526-7234. n


MS CONNECTION: SUMMER 201514

DATES TO REMEMBERGENDER DIFFERENCES IN MSMen and women are affected by MS differently. To learn how and why those differences are important, join Dr. Barbara Giesser and Dr. Rhonda Voskuhl of UCLA. To register, please visit www.nationalmssociety.org or call 1-800-344-4867.Date: Thursday, July 21, 2015Time: 7:00 p.m. - 8:00 p.m.Location: Telephone from Home Program

DINNER AND A MOVIEJoin the National MS Society for a free dinner and screening of the movie “When I Walk” by filmmaker Jason Da Silva. In 2006, 25-year-old Da Silva, was on vacation at the beach with his family when he suddenly fell down. He couldn’t get back up. His legs stopped working and his disease could no longer be ignored. Just a few months earlier, doctors had told him that he had MS. Jason picked up the camera, turned it on his declining body and set out on a worldwide journey in search of healing, self-discovery and love. An emotional documentary filled with unexpected moments of humor and joy, “When I Walk” is a life-affirming film driven by a young man’s determination to survive and to make sense of a devastating disease through the art of cinema. Dinner will be provided. Registration deadline is August 5. Date: Thursday, August 13, 2015Time: 6:00 p.m. - 9:00 p.m.Location: Hubbard Banquet Room, Serrick Campus Center, Defiance College, Defiance, OH 43512

TAKE CHARGEThis program incorporates MS education, experiential activities and interaction with Can Do MS staff of MS experts with participants and their support partners in a small group setting throughout a weekend. The program provides participants and their support partners with an educational model that promotes learning and experience. It is a weekend retreat that offers an opportunity to learn, feel and change through a guided way in a safe environment. There is a $100 registration fee per couple, which includes all group meals, hotel lodging, lectures and workshops for the weekend. Each participant will be required to complete a payment form after being accepted into the program. For an application or program inquiries, please contact Programs Manager Anne Lee Gilbert at [email protected] or 1-800-367-3101, ext. 1281.Date: August 14 -16, 2015Location: Embassy Suites, 5100 Upper Metro Place, Dublin, OH 43017

MOVING FORWARD: A PROGRAM FOR THE NEWLY DIAGNOSEDFinding answers and making decisions relies on having the right information at the right time. Moving Forward provides answers to your questions and access to information about all of the options available to help you make informed, thoughtful decisions about your health care. The program is geared toward people diagnosed with MS in the past three years and their family members. Dinner will be provided. Registration deadline is August 20.

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Date: Thursday, August 27, 2015Time: 6:00 p.m. - 8:00 p.m.Location: Gentry Health Services, 1090 Enterprise Dr., Medina, OH 44256

AKRON RUBBERDUCKS GAMECome have some end of the summer fun! We’re welcoming people with MS and their families to join us for lunch and one of the last baseball games of the season in the Fowl Terrace at Canal Park. An all you can eat picnic buffet will be available. The cost of the event is free to a person with MS. Each person with MS is able to bring up to three additional guests at $10 per person.Date: August 30, 2015Time: 12:30 p.m. – 3:00 p.m.Location: Canal Park, 300 S. Main St., Akron, OH 44308


PROGRAM REGISTRATION IS EASY1. Register online at MSohiobuckeye.org 2. Register by calling 1-800-344-4867Unless noted, all programs are offered free of charge but donations are accepted.

MAKE MEANINGFUL CONNECTIONS Multiple sclerosis disconnects the mind from the body and people from each other. But what if we could defy this disease with the very thing it seeks to destroy: connections.

What if everyone living with MS could connect with one another? With those who care for someone living with MS? Or with those who research ways to stop, restore or end the disease? Or those who provide medical care or treat the symptoms of MS? Or the people who raise awareness and funds to help create a world free of MS?

Now you can make meaningful connections, when, where and how you want, with easy access to the best content and resources the MS community can bring you. Learn about topics that are most important to you, connect with people you want to connect with and have expert MS information and opinions at your fingertips.

Join conversations with others who share your experiences, challenges and interests so you can move your life forward in the way that feels right for you. Visit MSConnection.org, the Society’s online community site, to share stories, gain insights and show support for one another. n

TRIBUTES AND MEMORIALS If you want to honor someone with MS or have lost a loved one, please consider naming the Ohio Buckeye Chapter of the National MS Society as the charity of your choice for donations. All contributions help to support local programs and services and fund MS-related research efforts. All tribute and memorial gifts are appreciated. n


10TH ANNUAL COLUMBUS DINNER OF CHAMPIONSHonoree: Cameron MitchellPresident and Founder, Cameron Mitchell RestaurantsThursday, September 17, 20156:00 p.m. at the The Ivory Room at Miranova

Individual reservations are $150 and table sponsorships begin at $2,500. For more information, please contact Michelle Wohlfeiler Bailin at [email protected] or 216-503-4184.

Cameron Mitchell, president and founder of Cameron Mitchell Restaurants and Kim Kaplan, president and COO of K-Limited Carriers, Inc. will receive the Norman Cohn Hope Award, the most prestigious National MS Society award. Mitchell and Kaplan are being recognized for their outstanding commitment to philanthropy and exceptional level of volunteer leadership. n

14TH ANNUAL TOLEDO DINNER OF CHAMPIONS Honoree: Kim KaplanPresident and COO, K-Limited Carriers, Inc.Thursday, September 24, 20156:00 p.m. at Inverness Club

Individual reservations are $125 and table sponsorships begin at $1,500. For more information, please contact Natalie Phillips at [email protected] or 419-482-1593.

CAMERON MITCHELL

KIM AND DEAN KAPLAN

EDUCATIONAL RESOURCES

KNOWLEDGE IS POWER The Knowledge Is Power program is a free, at-home educational series for people newly diagnosed with MS and their families. Knowledge is Power is written by highly regarded professionals who know about MS and the effects it can have on your life and the

lives of people who care about you.

Topics include dealing with your diagnosis, working with your doctor, maximizing your employment options, parenting and treatments.You can have Knowledge is Power delivered to either your email or postal address. To sign up, please call 1-800-344-4867. n

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MS CONNECTION: SUMMER 2015

Columbus Eastside Group2nd Tuesday 12:00 p.m.MCL Cafeteria Rachel 614-860-1968Regina 614-863-1911

HANCOCK COUNTYFindlay Group2nd Monday 6:30 p.m. First United Church of ChristDana 419-318-4102

LAKE COUNTYMentor’s Best2nd Thursday 11:30 a.m.Java Express3rd Wednesday 7:00 p.m.Denny’sKathy 440-479-8179Katie 440-974-8475

LORAIN COUNTYMS Support Group of Hope1st Monday 6:00 p.m.Elyria Memorial Hospital Teresa [email protected] Monday 6:00 p.m.Lorain Gathering Hope House Adrian 440-233-4332Last Wednesday 6:30 p.m.Wellington Elms/Sprenger Assisted Living Wanda 440-935-7048

LUCAS COUNTYGreater Toledo Group2nd Tuesday 6:30 p.m. Maumee Senior Center Davonna 419-705-0819

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MS OHIO ONLINE GROUPEvery Tuesday 11:00 a.m. and every Wednesday 7:00 p.m.Ohio chat room can be accessed through MSWorld. You will need to become a member of MSWorld in order to chat. Membership is free. Visit msworld.org.For Ohio Loop/Support Group E-mail Information: [email protected]

AUGLAIZE COUNTYWapakoneta Group3rd Thursday 6:30 p.m. VFW 25A South DixieBetty 419-738-8440

CARROLL COUNTYCarroll Group2nd Wednesday 6:30 p.m.Call for more informationLois 330-484-5382CUYAHOGA COUNTYBrunch Bunch2nd Monday 10:30 a.m.Denny’sEric 440-826-3742

Eastside But You Look So Good Group1st Monday 6:30 p.m.Shaker Heights Library Teresa 216-408-7855

SELF-HELP GROUPSFor exact times, locations, programs and other details, please call the National MS Society at 1-800-344-4867 or contact the person listed. You are encouraged to attend the group of your choice regardless of its location.

Eastside Newly DX/Minimally Affected3rd Wednesday 7:00 p.m.Good Shepherd ChurchCharlene 440-349-3936

Northwest Satellites2nd Wednesday 7:30 p.m.North Olmsted Senior CenterMarge 440-777-4156

Parma Posse of PossibilitiesLast Friday 12:00 p.m.Ridgewood YMCAPam 440-888-1469

Strongsville Group3rd Thursday 7:00 p.m.Strongsville Senior CenterDebbie [email protected]

FAIRFIELD COUNTYLancaster Movers & Shakers2nd Tuesday 6:00 p.m.Fairfield Center for disAbilities and Cerebral PalsyEd 740-653-5501Maria 740-243-4368

FRANKLIN COUNTYClintonville Group3rd Friday 6:30 p.m.Whetstone Community Center Tasia 614-268-9124

MSOHIOBUCKEYE.ORG | 1-800-344-4867 19Toledo Lunch Bunch2nd Thursday 11:30 a.m. Bob EvansSherrie 419-382-8821

SW Toledo GroupLast Tuesday 6:30 p.m. Heatherdowns Rehab Peggy 419-382-5050

MAHONING COUNTYMS Musketeers2nd Thursday 12:30 p.m.Jewish Community CenterDawn 330-782-1845Mike [email protected]

MARION COUNTYMarion Group1st Thursday 6:30 p.m. Emmanuel Lutheran ChurchAnita 740-751-9704 Julie 740-389-1670

MERCER COUNTYCelina Group1st Monday 7:00 p.m. Richardson Bretz Memorial CenterSue 419-586-9417

OTTAWA COUNTYPort Clinton MS in Motion Group1st Tuesday 6:30 p.m.Magruder Hospital Conference Center Karen 419-607-6021 Lori 419-707-9307

RICHLAND COUNTYMS Motivated Supporters and Awareness Group4th Thursday 6:30 p.m.Care Companions of OhioTerri 419-908-5857Dana 419-747-6195

STARK COUNTYBut You Look So GoodCall for more information1-800-344-4867

Massillon Group2nd Monday 10:00 a.m.Jackson Township Buehler’sKim [email protected]

SUMMIT COUNTYAkron Evening2nd Tuesday 6:00 p.m.Neurology & Neuroscience AssociatesHee-Byung 330-572-1011 x. 259Pam 330-572-1000 x. 137

Mighty Oaks Group1st Saturday 11:00 a.m.Green YMCA & Oak ClinicMicheala 330-861-5252

WASHINGTON COUNTYMarietta Group1st Monday 6:00 p.m.Marietta Memorial HospitalSherrie 740-350-9409

WAYNE/HOLMES COUNTIES Wooster Group2nd Monday 7:00 p.m.Wooster Community HospitalPixie 330-345-7374

WOOD COUNTYToledo/Oregon My Strength Group1st Wednesday 7:00 p.m. Northwood Community Center Mary 419-467-7000

ANNUAL REPORT AVAILABLE The newest annual report is available. If you would like a copy to learn more about programs, fundraising events and financial highlights of 2014 please call 1-800-344-4867. The report is also available online at MSohiobuckeye.org in the “About This Chapter” section under the “Financial” heading. n

NON-PROFITORGANIZATION

U.S. POSTAGEPAID

Cleveland, OhioPermit #3860

Ohio Buckeye Chapter6155 Rockside Rd., Suite 202Independence, OH 44131-2217

Address Service Requested

VOLUNTEERSELLEN CATHEY RECEIVES HONORS The Ohio Buckeye Chapter is pleased to announce that Ellen Cathey was recently honored on two occasions. Ellen was selected as a finalist for the Volunteer of the Year for Columbus CEO’s Health Care Achievement Award. She was also recognized by her employer, Nationwide, for being a finalist for their Volunteer of the Year. That honor included a $500 donation from Nationwide.

Ellen started volunteering in 2008 after her husband, Allen, was diagnosed with MS. She is a member of the Board of Trustees and

NationalMultiple SclerosisSocietyOhio BuckeyeChapter

serves on the Executive Committee and acts as Secretary for the Board. In addition, Ellen chairs the Volunteer Engagement Committee and leads the Al’s Pals Team for the Walk MS in Columbus.

Thanks go out to Ellen for her support and continued leadership to the National MS Society. n

ELLEN CATHEY (RIGHT) WITH HER DAUGHTER, CHELSIE, AND HUSBAND, ALLEN.

ms connection newsletterohio buckeye chapter · 2019-01-08 · ms connection newsletter ohio...

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