panpha -- an association of pennsylvania nonprofit senior services long term care what you should...

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PANPHA -- An Assoc iation Of Pennsylv ania Nonprofit Sen ior Services Long Term Care What You Should Know About a Broken System and Why Fixing It Matters to You

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Page 1: PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services Long Term Care What You Should Know About a Broken System and Why Fixing It Matters

PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services

Long Term Care

What You Should Know About a Broken System and Why Fixing It Matters to You

Page 2: PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services Long Term Care What You Should Know About a Broken System and Why Fixing It Matters

PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services

What’s PANPHA? PANPHA is a statewide

organization representing more than 350 nonprofit providers of long-term and continuing care

Page 3: PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services Long Term Care What You Should Know About a Broken System and Why Fixing It Matters

PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services

What is long-term care?

More than traditional notion of ‘nursing home’

Continuum also includes adult day care, housing with supportive services; assisted living; continuing care retirement communities (CCRC’s); home and community-based services

Page 4: PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services Long Term Care What You Should Know About a Broken System and Why Fixing It Matters

PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services

Today’s Reality…

Largest generation of seniors ever will be requiring - and demanding -choices in long-term care

People living longer with assistance of expensive medical care

Want to “age in place” in the least restrictive setting they can call home

Page 5: PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services Long Term Care What You Should Know About a Broken System and Why Fixing It Matters

PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services

The Reality… The current system is

simply not sustainable

Critical shortage of workers

Regulatory system that gets in the way

Insufficient financial resources

Page 6: PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services Long Term Care What You Should Know About a Broken System and Why Fixing It Matters

PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services

Topics of Discussion

Money

Who will take care of us… even if we can figure out how to pay for it?

Regulatory system gets in the way… and actually make things worse

Page 7: PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services Long Term Care What You Should Know About a Broken System and Why Fixing It Matters

PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services

Money Most people ill-

informed or unaware of how long-term care is paid for

Baby boomers who have been financially secure for years may find themselves below the poverty line in months

Page 8: PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services Long Term Care What You Should Know About a Broken System and Why Fixing It Matters

PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services

Money… “Even people who think they

have a good sense of what the costs and payment options are often get it wrong”

– AARP

More than half mistakenly think Medicare covers nursing home stays; 4 in 10 think it pays for assisted living.

Only 15% estimated the cost of nursing home care within plus or minus 20% of the national average ($4,654/month); 25% estimated assisted living costs within +/- 20%

Medicaid requires spending down assets to poverty level; Many middle class seniors have exhausted virtually all life savings and assets to pay for care, most within one year of being admitted to a nursing home

Page 9: PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services Long Term Care What You Should Know About a Broken System and Why Fixing It Matters

PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services

Who’s Going to Take Care of Us, Anyway? PA, along with rest of

nation, is experiencing a severe shortage of health care workers

Long-Term Care hardest hit of all health care settings

Financial, workplace and regulatory constraints not found in other health care settings

Regulatory system contributes to “downward spiral”

Page 10: PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services Long Term Care What You Should Know About a Broken System and Why Fixing It Matters

PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services

Who’s Going to Take Care of Us, Anyway Unless more people

begin to enter the profession, the situation will become worse

High turnover rates and replacement costs

Recruitment challenges (work is difficult as well as physically and emotionally draining)

Demographic mismatch between growing need and lessening availability

Training regulations and enforcement Society’s perceptions of field Regulatory and reimbursement

policies

Page 11: PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services Long Term Care What You Should Know About a Broken System and Why Fixing It Matters

PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services

A Counterproductive Regulatory System

Current system is highly fragmented and unnecessarily complex, reflecting piecemeal development of overlapping federal and state structures

Duplication of effort by different agencies

Increased costs

Conflict/confusion between different regulators

Page 12: PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services Long Term Care What You Should Know About a Broken System and Why Fixing It Matters

PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services

A Counterproductive Regulatory System

“Cookie-cutter” approach to nursing home inspection does not reward good-quality care nor deal forcefully enough with poor-quality care

Regulators/surveyors have little scope to use discretion and judgment in applying rigidly-detailed minutiae

Difference in amount of potato chips led to deficiency on “inadequate nutrition” grounds

Actually forbidden to offer advice or technical assistance

Compliance Doesn’t Equal Quality

Page 13: PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services Long Term Care What You Should Know About a Broken System and Why Fixing It Matters

PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services

A Counterproductive Regulatory System

“Gotcha” mentality drives good, caring people out of profession already faced with staffing crisis

Inflexible, punitive environment is frustrating, overwhelming, and detracts from resident care

System “devolved” to finding deficiencies; has become end in itself instead of measuring real goal of quality of care and quality of life

Page 14: PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services Long Term Care What You Should Know About a Broken System and Why Fixing It Matters

PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services

A Counterproductive Regulatory System

Downward spiral

Cannot find staff

Cannot innovate or improve when straight-jacketed by regulatory system

High turnover rates and replacement costs

Morale and “stigma” issues from punitive regulatory system and public misperceptions exacerbate staffing crisis

Page 15: PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services Long Term Care What You Should Know About a Broken System and Why Fixing It Matters

PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services

Realities

Long term care is a predictable need for most of us

One in five will need services at some time

Most do not plan for it Current system is

unsustainable

Page 16: PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services Long Term Care What You Should Know About a Broken System and Why Fixing It Matters

PANPHA -- An Association Of Pennsylvania Nonprofit Senior Services

PANPHA’s Call to Action

Need to make long term care a high-priority public issue, as important as social security and prescription drugs

Please join us in the discussion and debate on these issues

Good news – there’s still time

Bad news – there isn’t much