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At the urging of the Alzheimer’s Association and its more than 600,000 advocates, President Obama signed into law an unprecedented $122 million increase for Alzheimer’s research, education, outreach and caregiver support in January. This increase in Alzheimer’s funding in the President’s Fiscal Year 2014 budget will enable the continued, effective implementation of the National Plan to Address Alzheimer’s Disease. Both the Administration and Congress have recognized the unfolding Alzheimer’s crisis and worked in a bipartisan manner to strengthen Alzheimer’s care and support while accelerating research toward therapies that can slow, stop and ultimately prevent this disease. “The increase in the FY14 budget represents about a 20% increase in Alzheimer’s research funding at the National Institutes of Health to a total of nearly $600 million/year. This is a tremendous boon for the Alzheimer’s research community, which was buckling under the cuts in research budgets imposed by the sequester, while at the same time, facing the tightest funding climate in decades,” said Bruce Lamb, PhD, Chair of the Cleveland Area Chapter’s Professional Advisory Board. “This will allow for numerous young investigators to remain in the field and also for established labs to investigate the biological underpinnings of Alzheimer’s disease, develop new therapeutic targets, and test these targets in clinical trials. While this is a tremendous achievement for advocates and supporters of the Alzheimer’s Association, this also can only be viewed as the first step in increases towards the $2 billion/year recommended by What will always be “a celebration of hope,” is turning into a Night of a Thousand Lights, the Chapter’s annual benefit dinner. The newly themed event is Thursday, May 1, at Landerhaven in Mayfield Heights. “The name ‘Night of a Thousand Lights’ seeks to embrace the themes of light and hope, as so often Alzheimer’s caregivers and diagnosed individuals feel alone and in the dark,” said Leslie Levine, Event Chair. “This special evening will give attendees the opportunity to ‘come out of the dark’ and celebrate those people making a difference in the fight against Alzheimer’s.” Formerly held downtown, the dinner is being planned with the pro bono help of marketing communications agency, Marcus Thomas. The firm donated its talent in creating the event’s theme, print and digital materials. The benefit will also be more high tech, as its highly popular silent auction will operate with Qtego’s mobile auction technology, allowing guests to place bids with their cellular devices from anywhere in the room. Text messages alert guests when others have bid on an item they are watching. Qtego will supply devices to assist guests who may not have, or choose not to use their own mobile device. Guests will also enjoy complimentary valet, free parking, hors d’oeuvres, dinner and an exciting raffle. One raffle features tickets to the 2015 Master’s Tournament in Augusta, Georgia, including airfare, hotel and transportation. For more information about tickets and/or sponsorships, please contact Events Coordinator Sara Thomas at 216.342.5581 or [email protected]. 1 Cleveland Area Chapter Newsletter Spring 2014 IN THIS ISSUE OF updates Travel safety and tips for going out page 4 Discount tickets at Cleveland Play House page 7 Why these YPALZ tackle ALZ page 11 Support Group Meeting Schedule page 13 Thank you to our more than 600,000 advocates across the country who have been relentless in their efforts to reach legislators and make this funding increase a reality. Join the movement at alz.org/advocacy. continued on page 12 Unveiling new annual dinner theme Record $122 million increase for Alzheimer’s disease

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At the urging of the Alzheimer’s Association and its more than 600,000 advocates, President Obama signed into law an unprecedented $122 million increase for Alzheimer’s research, education, outreach and caregiver support in January.

This increase in Alzheimer’s funding in the President’s Fiscal Year 2014 budget will enable the continued, effective implementation of the National Plan to Address Alzheimer’s Disease. Both the Administration and Congress have recognized the unfolding Alzheimer’s crisis and worked in a bipartisan manner to strengthen Alzheimer’s care and support while accelerating research toward therapies that can slow, stop and ultimately prevent this disease.

“The increase in the FY14 budget represents about a 20% increase in Alzheimer’s research funding at the National Institutes of Health to a total of nearly $600 million/year. This

is a tremendous boon for the Alzheimer’s research community, which was buckling under the cuts in research budgets imposed by the sequester, while at the same time, facing the tightest funding climate in decades,” said Bruce Lamb, PhD, Chair of the Cleveland Area Chapter’s Professional Advisory Board.

“This will allow for numerous young investigators to remain in the field and also for established labs to investigate the biological underpinnings of Alzheimer’s disease, develop new therapeutic targets, and test these targets in clinical trials. While this is a tremendous

achievement for advocates and supporters of the Alzheimer’s Association, this also can only be viewed as the first step in increases towards the $2 billion/year recommended by

What will always be “a celebration of hope,” is turning into a Night of a Thousand Lights, the Chapter’s annual benefit dinner. The newly themed event is Thursday, May 1, at Landerhaven in Mayfield Heights.

“The name ‘Night of a Thousand Lights’ seeks to embrace the themes of light and hope, as so often Alzheimer’s caregivers and diagnosed individuals feel alone and in the dark,” said Leslie Levine, Event Chair. “This special evening will give attendees the opportunity to ‘come out of the dark’ and celebrate those people making a difference in the fight against Alzheimer’s.”

Formerly held downtown, the dinner is being planned with the pro bono help of marketing communications agency, Marcus Thomas. The firm donated its talent in creating the event’s theme, print and digital materials.

The benefit will also be more high tech, as its highly popular silent auction will operate with Qtego’s mobile auction technology, allowing

guests to place bids with their cellular devices from anywhere in the room. Text messages alert guests when others have bid on an item they are watching. Qtego will supply devices to assist guests who may not have, or choose not to use their own mobile device.

Guests will also enjoy complimentary valet, free parking, hors d’oeuvres, dinner and an exciting raffle. One raffle features tickets to the 2015 Master’s Tournament in Augusta, Georgia, including airfare, hotel and transportation.

For more information about tickets and/or sponsorships, please contact Events Coordinator Sara Thomas at 216.342.5581 or [email protected].

1

Cleveland

Area Chapter

Newsletter

Spring 2014

IN THISISSUE OF

updates

Travel safety and tips

for going out

page 4

Discount tickets at

Cleveland Play House

page 7

Why these YPALZ

tackle ALZ

page 11

Support Group Meeting

Schedule

page 13

Thank you to our more than 600,000 advocates across the country who have been relentless in their efforts to reach legislators and make this funding increase a reality. Join the movement at alz.org/advocacy.

continued on page 12

Unveiling new annual dinner theme

Record $122 million increase for Alzheimer’s disease

Be a part of Ohio’s Memory Day and join chapters of the Alzheimer’s Association from across the state as we meet with Ohio legislators.

• Free luncheon from 11:30 am to 12:30 pm• Legislative meetings scheduled before and after lunch• Free transportation provided to the Statehouse Atrium

in Columbus• Ohio Department of Aging Director Bonnie Kantor-

Burman to speak

For more information or to register, call 800.272.3900. Register by March 14.

2

Board of DirectorsSteven G. Osgood, ChairCollette AppolitoLewis M. Baum, CPARobert L. Bazzarelli, CPAAntony BonavitaPablo A. Castro, IIIBonnie N. DickRobert A. DurhamKeith A. FeicksJon E. FowlerRussell H. Grindon, CPABetsy JohnsonBruce T. Lamb, PhDJames E. LaRueBonnie H. MarcusDavid G. MorlDanielle M. MorrisJim NashPatrick G. PaolettaJeffery K. PattersonKim M. PessesEsther PotashBrian J. RichardsonGail L. SandsMary Ann H. ShamisMarsha K. SpitzRonald C. StansburyJill WhelanRobert White, MDChristine Fears Branche, Emeritus Professional Advisory BoardBruce T. Lamb, PhD, Chair Brian S. Appleby, MDDavid M. Bass, PhDStephen A. Baum, MDMargaret Calkins, PhDJames W. Campbell, MDPeter A. DeGolia, MD, CMDPaul H. Ford, PhDDavid Fox, MDDaniel R. Kendis, MDGary E. Landreth, PhDAlan Jay Lerner, MDChristine F. Nelson, APRN, BCSanjay W. Pimplikar, PhDStephen M. Rao, PhDLori Stevic-Rust, PhDGemma Casadesus Smith, PhDBabak Tousi, MD, CMD, FACPMatthew S. Wayne, MD

President & CEO Nancy B. Udelson

Raise your voice!by Steve Osgood, Board Chair

I am always shocked at how few people that I approach about the Alzheimer’s Association have ever heard of its existence. Certainly the awareness level of the Association is dramatically better today than it has ever been. If anyone approaches me, or I should happen to learn has been impacted by the disease, I have always inquired as to whether they had contacted the Alzheimer’s Association. The answer for 20 straight years was that they did not know of the Association’s existence. Thank goodness that streak ended a couple of years ago, but the lack of awareness is still surprisingly high.

I believe that those of us impacted by this dreadful disease are apt to be more alert to the ever increasing media coverage of all aspects of Alzheimer’s. That is certainly understandable because we are the most knowledgeable of the huge personal and financial costs of the disease. The Alzheimer’s Association has done a wonderful job of making sure that the Association is front and center with almost any news as it is released. But in order to move our cause forward we need to educate those around us about not only the impact of the disease itself but of the incredible resource that is truly the Alzheimer’s Association.

You may ask “Why should I have this responsibility of promoting the Alzheimer’s Association?” This is a fair and personal question so I can only give you my own answer. When my mother was diagnosed in the 1980’s with the disease, a friend guided my brother and me to the Association. And although the services were not as broad as they have evolved to today, the staff and volunteers were as committed to helping as everyone is today. The support and guidance were invaluable, yet there was not a single charge for any of the services provided. Or to put it another way, as a wise man stated recently, “If I, as someone deeply impacted by this disease does not speak up, who will?”

So, if I may ask of each of you this year: Make your voice heard! The Cleveland Area Chapter of the Alzheimer’s Association is one of the strongest in the country. Let us, as volunteers and beneficiaries of the Chapter’s wonderful services, spread the word to those in need.

Be heard in Ohio

Become an advocate online!

Go to the Advocate tab at

www.alz.org/cleveland or contact Sarah Sobel,

800.272.3900 [email protected]

join us for memory day wednesday, april 2, 2014

advocacy

A group from Olivet at the Walk to End Alzheimer’s at Tower City

Seated: Beverly Charles, John Ryan. Back row: Steve Osgood, Gail Sands, Semanthie

Brooks, Ken Bravo, Debbie Neale, Sarah Sobel.

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Sometimes, the first place people turn to when they are concerned about memory loss is not a doctor, but a member of the clergy. Two of our biggest local supporters understand that and make every effort to make sure their fellow parishioners know that the Alzheimer’s Association is there to help.

Deborah Cloud and Gwen Ellis have been extremely active volunteers with the Cleveland Area Chapter since 2000 and 2007, respectively. Together, they co-facilitate the Olivet Caregivers Support Group at the Olivet Institutional Baptist Church in Cleveland.

Both women have endured the pain and trials of caring for a loved one with Alzheimer’s and know firsthand that sometimes you need to reach out for help. Both participated in support groups and education courses prior to taking on volunteer roles.

“Stopping Alzheimer’s has been my mission,” Deborah said.

In addition to leading the Olivet Support Group monthly for the last 14 years, Deborah’s involvement blossomed into presenting educational programs, working health fairs, advocating to state legislators through Memory Day and serving as Chair of the Chapter’s African American Advisory Council, to heighten the awareness of the disease within the African American community. In 2012, she received the Chapter’s Arlene L. Ellis Volunteer of the Year award.

Deborah recommends that others talk with their religious and community groups about the Alzheimer’s Association and the services it provides. “People need the information,” she said.

Deborah makes sure that information about Association support groups, classes and fundraisers are included in printed materials at her church and sometimes projected onto screens for the congregation to see.

To help clergy in serving their members, Deborah said “some church communities may feel relieved and embrace the idea of sponsoring an informational meeting on

On January 21, 2014, the Board of Directors hosted key staff from our Northeast Ohio Congressional delegation at the monthly board meeting.

John Ryan, State Director for Senator Sherrod Brown, and Beverly Charles, Congressional liaison for Congresswoman Marcia Fudge, attended the meeting; a representative from Congressman David Joyce’s office was unable to attend. Chapter Ambassadors Ken Bravo, Semanthie Brooks, and Debbie Neale introduced John and Beverly to the board.

John and Beverly shared strategies for working with their offices on advocacy issues, suggested using creative approaches to Alzheimer’s awareness, and offered thoughts on how to advocate for the goals of the National Plan to Address Alzheimer’s disease.

We appreciate John and Beverly’s support and leadership in the district. We look forward to more opportunities to work with all of our legislators on future policy issues.

For more information on our advocacy work, please contact Sarah Sobel, Advocacy and Outreach Specialist, at [email protected].

Board meets with key congressional staff on the issues

Spreading the word on Sunday

Alzheimer’s or distributing fliers.”

Gwen Ellis agrees that having Alzheimer’s Association fliers at church is helpful.

“There are people that do not know help is available for them. Some people do not want others to know they are in need of help. If the information is available, they can just take it to read later. Get the information out any way you can.” Gwen said.

Gwen calls herself “a living billboard for caregiving.”

“I pass on as much information as possible in the support group and in my church. I talk to so many people at the group and on the telephone. Sometimes people need to talk about what is going on and it will get them through the day,” Gwen said.

We are thankful for Gwen and Deborah’s efforts to let their church communities know we are here!

If you would like to help spread the word in your religious or other community group, please let us know. We’d be happy to provide you with fliers, brochures or short articles for the weekly bulletin.

Our Education Team is available to give presentations to your group as well.

Call us at 800.272.3900 to get started. You never know when a simple flier may help someone in your community struggling with memory loss and Alzheimer’s.

how we help

4

Travel safety tips when memory problems are a part of the journeyHaving memory problems or dementia does not mean that it’s necessary to stop participating in meaningful activities such as travel; it just requires planning to ensure safety, comfort and enjoyment for everyone. Whether taking a short trip to see friends and family or traveling a far distance for vacation, it’s important to weigh the costs and benefits of travel for a person with dementia, based on needs, abilities and preferences.

When planning a visit with family or friends, be sure to prepare them by explaining the memory problems and the changes it may have caused. Go over any special needs, and explain that the visit may be short or that you may need to change activities on short notice.

General travel guidelines

• Keep travel simple and manageable: Plan a short trip and avoid multiple stops. Avoid elaborate sightseeing or complicated tours.

• Stick with the familiar. Try to visit places that were familiar before the onset of dementia that involve as few changes in daily routine as possible.

• Be realistic about abilities and limitations. Allow for extra time for activities and plenty of time for rest. Don’t over-schedule.

• Avoid planning a trip where emergency health services and pharmacies to refill prescriptions are not easily accessible.

• If you will be staying in a hotel, inform the staff ahead of time of your specific needs so they can be prepared to assist you.

• Have a backup plan in case your trip needs to change unexpectedly.

• Create an itinerary that includes details about each destination. Give copies to family members or friends you will be visiting and emergency contacts at home. Keep a copy with you at all times.

• Changes in environment can trigger wandering. Be sure to enroll in MedicAlert® + Safe Return®, a 24-hour nationwide emergency response service for individuals with dementia that wander or who have a medical emergency. To enroll, call

888.572.8566. Those already enrolled should notify MedicAlert + Safe Return of travel plans.

• Travel during the time of day that is best for you. For example, if the late afternoon increases agitation, avoid traveling then.

• Have a bag of essentials with you at all times that includes medications, your itinerary, a change of clothes, water, snacks, a list of emergency contacts and photocopies of important legal documents.

• Learn if there are services available at your destination by contacting your local Alzheimer’s Association. If traveling involves too many risks for the person with dementia, call the Alzheimer’s Association to help you find an alternative plan that allows the person to remain at home.

• Stay as close to normal routine as possible. For example, bathing and eating times should be on a similar schedule to what they are at home. Eating in familiar settings, such as a dining room table, may be less confusing than a crowded restaurant.

Tips for going out in publicPeople with Alzheimer’s disease slowly become less self-aware and are unable to remember how they are expected to behave in certain public situations. Or they may not have the mental reserve to cope with stress in a socially appropriate fashion. Unable to express their needs, they may become agitated and irritable.

Difficult or unusual behaviors can be hard to explain to strangers. Sadly, embarrassment and stigma prevent many from going out and enjoying the activities they used to. But there are little things you can do to increase understanding and enable yourselves to enjoy getting out of the house.

The Cleveland Area Chapter provides small cards for caregivers that can help in awkward situations. If a person with dementia is displaying unusual behavior at a restaurant, for example, their caregiver hands them this small card that says “My companion has memory loss. Thank you for your patience.” Often, that is all that is needed to avoid an uncomfortable situation for all.

The card has also helped individuals in airport situations. “One family was having difficulty getting the person with the disease to take off their shoes, belt, etc.,” said Doreen Kearney,

a Care Consultant with the Alzheimer’s Association. “The card was very helpful in getting through the security line.”

Other tips for handling behaviors include: • Distraction. Change the activity or redirect their attention.

• Ignore minor behaviors when possible. It may be more upsetting for all to confront it.

• Control the environment. Avoid certain places or things that trigger behaviors.

• Understand that they are coping with diminishing communications skills and may not have the ability to express themselves. Try to get to the root of their present need and decipher the behavior.

• Do not try to correct or convince the person that their behavior is unacceptable. They may no longer be able to follow the logic or reasoning behind social nuances.

If you would like us to send you these “Companion Cards,” please call us at 800.272.3900.

We hear from families all the time that they didn’t know about the Alzheimer’s Association and all of the programs and services that are available FREE of charge. We also know that many doctors don’t know about us either, but we are working hard to change that!

You can HELP! At your next doctor appointment, let them know about the Alzheimer’s Association and how we have helped. Your feedback will help your doctor to learn about our organization and be able to share that knowledge with their other patients who could benefit from our support. One at a time, we can help to reduce the number of people who don’t know that HELP is available!

If you would like to take a basic packet of information to your doctor about the Alzheimer’s Association, we would be happy to send it to you.

Please call 800-272-3900 to request a packet.

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Working together with the Ohio Department on Aging

The Ohio Council of the Alzheimer’s Association is comprised of seven chapters in Ohio presenting and advancing public policy initiatives related to Alzheimer’s disease and other related dementias at both state and federal levels. As a state, the Alzheimer’s Association works on a variety of projects and programs throughout the year, the most notable being Memory Day, which will be held on April 2, 2014. We especially support any collaboration or initiative with the Ohio Department on Aging that supports our families. One such initiative is the launch and implementation of Steady U – a program geared to preventing falls.

This is important to share because many people do not realize that those with Alzheimer’s and other types of dementia tend to be at a high risk of falling. They are more than three times more likely to fracture their hip when they fall, which leads to surgery and immobility. The rate of death following a hip fracture for those with Alzheimer’s is also increased. Thus, fall prevention for people with dementia is critical.

Falling is not a natural side-effect of aging, and most falls can be prevented. By knowing and managing your risk factors, you can live a full and active life free of the fear of falling. Think about involving your family as you work to make your home, and that of your loved ones, fall free.

Around the House Falls prevention begins at home. As we age, our bodies change and things that were once appropriate for us may no longer be. Look around your home, or the home of a loved one, for some of these common items or habits that could actually cause a fall: • Throw rugs beautify our living space, but they can also cause

slips, trips and falls. Some people use rugs to cover cords, which is not only a fall risk, but also a fire hazard.

• Lighting is another way to make our homes look good, but lighting that is too dim can make it hard to see fall hazards. Likewise, lighting that is too bright can cause glare on walking surfaces or cast shadows that can hide hazards.

• Your home most likely has stairs - from a few steps at the entrances to a staircase to the basement or other floors. Storing items in stairwells, as well as hanging items on hand rails, can lead to falls.

If you are a Medicaid or Medicare recipient, talk with your doctor about the potential benefits of an environmental fall assessment and if you may qualify for one to be conducted by a physical or occupational therapist. By taking a few simple, inexpensive precautions, you can make your home immediately more fall-proof: • Arrange furniture so you have a clear pathway between rooms. • Place a lamp, telephone, or flashlight near your bed. • Install a night light along the route between your bedroom and

the bathroom. • Keep electric, appliance and telephone cords out of walkways,

but do not put cords under a rug.

• Secure loose area rugs with double-faced tape, tacks, or slip-resistant backing.

• Store food, dishes, and cooking equipment within easy reach.

• Repair loose stairway carpeting or wooden boards immediately.

• Put a bright-colored stripe of durable tape on the front edge of each stair so that you can see them better.

• Place a slip-resistant rug adjacent to the bathtub for safe exit and entry.

• Use a rubber mat or place nonskid adhesive textured strips inside the tub.

Please go to www.steadyu.ohio.gov for more information and tips.

Ohio Council continues to work with the Ohio Department on Aging to support the 230,000 Ohioans living with dementia and the 585,000 family members who provide the care. Look for more details of our work together on our website and in future issues of this newsletter.

Does your doctor know about us?

by Pam Schuellerman, Executive Director, East Ohio Chapter

The Cleveland Area Chapter is extremely grateful for the generous donation of $442,919 from the estate of Angelo LoPresti, who lived in Lorain. Angelo dedicated a percentage of his estate to the Alzheimer’s Association in honor of his wife, Frances, who had Alzheimer’s disease.

Angelo started working in a barber shop at age 13, learned the trade and continued to cut hair until he died at age 102. He was even inducted into the Guinness Book of World Records as being the oldest working barber. Angelo was quoted as saying “I never worked for money. The most I got was $6.00, but I did well.”

Ending his career as something of a “millionaire next door,” Angelo owned and managed several barber shops in Pennsylvania and Michigan before settling in Lorain. He served as caregiver for Frances as she struggled with Alzheimer’s and first reached out to the Association at that time. He cared for her at home for 15 years until she died in 2002. For the last 12 years of his life, Angelo cut hair at the Golden Acres Nursing Home in Amherst.

“All that we do and achieve as an organization, and as a cause, is made possible by very giving people like Angelo LoPresti,” said Nancy Udelson, President and CEO, Cleveland Area Chapter.

what kind of a legacy will you leave?

A bequest is a gift made through your will or trust. There

are several ways to make a bequest:

• Specificdollaramount

• Percentageofyourestate

• Specificasset

• Residueofyourestate

For more information on how to create a lasting legacy

through a bequest, please contact us at 1.866.233.5148 or

visit our website at alz.org.

Welookforwardtohelpingyou!

Frances and Angelo LoPresti

6

102-year old Lorain barber leaves $442,919 to Cleveland Chapterchapter news

Melissa Zapanta Shelton has joined the Alzheimer’s Association Cleveland Area Chapter as Vice President of Fund Development. She brings a vast array of fund raising experience and a successful track record of securing gifts for the non-profit sector. As the organization embarks on a bold, 10-year vision, she will be responsible for developing strategies to double revenue in five years.

A native of the Cleveland area, Melissa lived in Charlotte, North Carolina, for eight and a half years. During that time she served as Director of Development at the United Way of Central Carolinas and at the Belk College of Business at the University of North Carolina at Charlotte. At both of those organizations she was responsible for cultivating and securing major gifts from corporations, individuals and foundations. She has extensive experience working with volunteer leadership boards.

Prior to moving to Charlotte, Melissa worked at the Cleveland Indians for more than 12 years in the areas of Community Relations and Charitable Programs. She was instrumental in raising significant funds for Cleveland Indians Charities in support of youth recreation and education programs, and developed many community outreach programs.

Impacted by Alzheimer’s disease in her and her husband’s families, Melissa and her family–husband, Doug, and their two children, Mirabella and Doug Jr.– returned to Cleveland to be closer to family and friends.

“Working for the Alzheimer’s Association is more than a profession. It’s personal for me. My family has been impacted by the disease on various levels, and I feel very blessed to be part of the organization working to eradicate the disease.”

To inquire about making a gift to the Alzheimer’s Association, Melissa can be reached at [email protected] or (216) 342-5567.

Melissa Zapanta Shelton Now Leading Fund Development

This past August, father-son team Marc Silverstein, Zach Silverstein, Marc’s girlfriend Lisa Meek and Marc’s college roommate, Stu Himmelfarb, decided to take a trip of a lifetime. In celebration of Zach’s recent graduation from Brown University and Marc’s 60th birthday, they would travel to Tanzania and climb Mt. Kilimanjaro, the highest peak on the African continent and the tallest free-standing mountain in the world, standing at 5,895 meters (19,341 feet).

In addition to the celebratory nature of the trip, the four dedicated their trek to two very special women who battled Alzheimer’s disease: Marilyn Silverstein, Marc’s mother/Zach’s grandmother, who died in August 2012; and Belle Himmelfarb, Stu’s mother who passed away six years ago.

Marc, of Shaker Heights, said reaching the top of Kilimanjaro was not the only goal this ambitious group had in their sights. They also wanted to raise at least $5,895: one dollar for every meter climbed.

These funds would be donated to the Alzheimer’s Association to help enhance care and support and advance research. Not only did the group reach their fundraising

Fighting Alzheimer’s from the top of the world father-son team takes trip of a lifetime, raise funds to fight alzheimer’s

goal, they surpassed it with their total reaching an impressive $6,752.

On behalf of the Cleveland Area Chapter, the more than five million Americans living

with the disease and their caregivers, thank you for sharing our vision of a world without Alzheimer’s—from the top of the world!

Zach and Marc look across towards Kilimanjaro Lisa and Marc at the top of the mountain

Zach’s panoramic view from the top of Mt. Kilimanjaro

Discount Tickets! “informed consent” sheds light on medical ethics

7

Worldwide, the Alzheimer’s and dementia populations are hidden away and growing exponentially. ALIVE INSIDE follows Dan Cohen, who on a whim, brings iPods to a nursing home. To everyone’s surprise, residents with memory loss ‘awaken’ when they hear music from their past.

The film raises difficult questions about how we see aging and life itself. We all deserve the right to remain ALIVE INSIDE. A clip from the film recently went viral, world wide and is changing the world for these residents already.

ALIVE INSIDE will be shown at The Cleveland International

CIFF film to show the huge difference music can make

Film Festival at Tower City Cinemas March 19-30.

For show times, go to www.clevelandfilm.org

How much do we want to know — and who gets to decide how that information is used?

The Chapter is excited to work with the Cleveland Play House to raise awareness of Alzheimer’s disease and other dementias. Based on a true story, Informed Consent takes us into the personal and national debate about science vs. belief and whether our DNA is our destiny. The production runs April 23-May 18.Cleveland Play House is offering a $10 discount on regular price tickets as a thank you for your commitment to the Alzheimer’s Association. Make sure to use the promo code 10corp at www.clevelandplayhouse.com.

Please note this offer is not valid with any other discount, promotion, or on prior sales. Students under age 24 are only $15 each with ID. Under 35? Just $25, sponsored by Scene. For information about Informed Consent, please visit www.clevelandplayhouse.com

8

OUR WALK IS TOPS!Cleveland Area Chapter Earns National Star Status!

The Cleveland Area Chapter received the prestigious national Star Status for the 2013 Walk Season in recognition of its growth in individuals walking

by more than 35% and dollars raised by more than 25% over the 2012 Walk Season.

AM 1330 WELWBruegger’s Bagels

Golden Living KirtlandThe Holden Arboretum

Kabb Elder Law and Care Firm

Kindred Transitional Care and Rehabilitation

• LakeMed• Stratford• The Greens

Lake Erie CrushersThe News-Herald

Physicians Medical Transport Team

University Hospitals Parma Medical Center

Anthony Allega Cement Contractor, Inc.

Arden Courts Memory Care Community

Daniel P. Seink Co. - Elder Law Attorneys

EnviroserveFalls Communications

John D. Stanton & Assoc., Inc.

Joyce Buick GMCLife Care Center of

Westlake ManorCare Heath Services

RAM PlasticsThe Diplomat Healthcare,

Saber Healthcare Group Williamsburg Cleaners

Embassy HealthcareJudson at University Circle

Kemper HouseKeystone Pointe Health

and RehabilitationLorain National Bank

Lubrizol MetroHealth

Middlefield Plastics Inc.North Coast Lift Truck, Inc.Schraff & King Co., L.P.A.

Gold Sponsors Silver Sponsors

Bronze Sponsors

Patron Sponsors

Presenting Sponsors

local walk stars help chapter shine on national stage!2013 Walk Sponsors Donate $122,576!

2013 stats:total walkers: 4,005 (goal: 3,700) total teams: 468 (goal: 400)

dollars raised: $596,807 (goal:$551,000)

we are grateful to our walkers for their time, dedication and hard work!

The Cleveland area’s Walks to End Alzheimer’s surpassed our goals by every measure and grew in revenue

by more than 20% for the 4th year in a row!

big thanks

9

why we fight2013 Walk supporters share why they fight Alzheimer’s

The Arboretum, the Zoo and a Ballpark – Oh, the places we’ll go in the 2014 Walk season!

sunday september 14

Holden Arboretum Kirtland

sunday september 21

Cleveland Metroparks Zoo Cleveland

sunday september 28

All Pro Freight Stadium Avon

FREE TICKETS! • All walkers registered for the walks at

Holden Arboretum and/or the Zoo will receive free admission on event day.

• Free admission is only for the walk(s) where you are registered.

REGISTER TODAY FOR THE 2014 WALKS

www.alz.org/cleveland

2014 walk season coming soon!

NEW LOCATION!

The Griswold Home Care Team was proud to be a sponsor of the Walk and of our 3rd place finish in team fundraising with $3,075 raised. We’ve been inspired for many years by our courageous clients who have dementia and the dedicated family members who support them. We also felt a need to draw attention to the lack of federal funding to support research to find a cure. We are also proud of our Director, Brian Rice, who chaired this event which far surpassed its team recruitment and fundraising goals.

For the past two years, Quicken Loans has been proud to serve as a presenting sponsor of the Walk to End Alzheimer’s. Our team members are dedicated to raising funds to help support research and the free programs and services for the more than 56,000 people in Northeast Ohio affected by this devastating disease.

In addition to participating in the Walk, our team members generously donated to internal fundraisers, and purchased Alzheimer’s Association purple piggy banks and footballs. In just a few weeks, they were able to collect $5,099 and recruit 89 team members!

Making a difference in the lives of our clients, team members and communities is an integral part of our culture at Quicken Loans. We value our partnership with the Alzheimer’s Association and support them in their vision of a world without Alzheimer’s.

Team: Quicken Loans

Rollie’s Army participates in tribute to Roland Bonacci, the family’s patriarch who passed away from Alzheimer’s in 2010. From conducting a large silent auction fundraiser in Tony Maloney’s Pub & Pizza to placing Walk stickers on Antonio’s pizza boxes and donating a percentage of pizza sales, the family generously supports the cause. Since 2011, Rollie’s Army has raised more than $15,000. They promise to provide stiff competition for 1st place fundraising team in 2014!

Team: Rollie’s Army

At Arden Courts of Westlake, memory care is all we do, and it’s also our motivation to raise money for the Alzheimer’s Association. On a daily basis we see first-hand how this disease affects both the individuals with memory loss and their families. Our staff and past and present families all have the common goal of hoping to find a cure for this disease. Until then, we will strive to be the best at caring for the individuals with memory loss and raising money for the cause. We were very honored to be First Place in the healthcare division, especially since we are not a large facility. Our 26-member team raised $8,073. The rain did not–and will never–dampen our spirits and our drive.

Team: Arden Courts

Team: Griswold Home Care

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get involved

got plans june 21? Spend the longest day of the year doing an activity you love - in support of the Alzheimer’s Association!

The Longest Day® is a sunrise-to-sunset team event to raise funds to fuel the care, support and research efforts of the Alzheimer’s Association, held in June on the longest day of the year.

On Saturday, June 21, 2014, participants will challenge themselves with approximately 16 hours of an activity of their choosing, limited only by their imagination.

Past participants have organized and completed activities including a half-marathon, fishing tournament, an all-day kayaking experience on the lake, hikes, a sewing circle, planting a new garden, cooking favorite recipes, duplicate bridge tournaments and bike rides, among hundreds of others.

To register, please visit www.alz.org/longestday.

Running for ALZ at the CLE Marathon

The Alzheimer’s Association Cleveland Area Chapter is once again a proud Charity Partner with the 2014 Rite Aid Cleveland Marathon. The partnership is run in conjunction with the Alzheimer’s Association ALZ Stars program, a marathon fundraising program to benefit the care, support and research efforts of the Cleveland Area Chapter.

As an ALZ Star, participants challenge themselves to become an inspiration for those affected by Alzheimer’s disease and commit to raising a minimum of $250 for the Cleveland Area Chapter. This commitment also allows runners to receive a registration discount for the full or half marathon races ($10 off the full marathon, $5 off the half marathon).

This year’s race will be held on Sunday, May 18, 2014. To register as an ALZ Star, please call 216.342.5581.

Since the inaugural game two years ago, Blondes vs. Brunettes Cleveland (BvBCLE) has raised more than $81,000 for the Alzheimer’s Association! Visit us online at bvbcle.org.

The Young ProfesssionALZ (YPalz) group has expanded to offer a full range of opportunities for Clevelanders in their 20s, 30s and early 40s to make a difference:

• Advocacy & Education Committee• Community Outreach Committee • Committee for the Longest Day and Walk

to End Alzheimer’s YPalz teams• Blondes vs. Brunettes Flag Football

game: Only ladies play but anyone can coach and/or join a committee.

All committee meetings take place monthly and BvBCLE team practices start in April. For more info and to get involved, contact Sheryl Berman at [email protected] or 216-342-5566.

young professionalz (ypalz) is more than

just blondes & brunettes!

Blondes will battle Brunettes in a competitive flag football game on

Saturday, June 7, 2014 at Cleveland State University’s Krenzler Field.

What are you doing this summer?

Members of the American Contract Bridge League met in Westlake last summer for a Longest Day Event

Young ProfessionALZ (YPalz) is more than just Blondes & Brunettes!

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Meet our Young ProfessionALZ Co-Chairs & Blondes vs. Brunettes Co-Chairs and Head Coaches

Position: YPalz Co-chairHometown: Grew up in Madison, Wisconsin and currently lives in Shaker HeightsOccupation: Attorney, Cleveland Clinic

Why I’m Tackling Alzheimer’s:My father was diagnosed with early onset Alzheimer’s when I was in high school and my mother has been his primary caregiver since then. I am fighting Alzheimer’s for my family and others like us who are fighting this disease every day.

I hope that we can advance care for those living with Alzheimer’s like my father, improve respite care offered to caregivers like my mother, and support research to develop effective treatment options, and hopefully find a cure, for the disease.

taylor pierce

stephanie harris

Position: BvBCLE Event Co-chair / ReceiverHometown: ClevelandOccupation: Assistant Professor, Case Western Reserve University

Why I’m Tackling Alzheimer’s:A diagnosis of Alzheimer’s disease changes everything for the person diagnosed and their family and friends. It changes the time that we have with them, as well as the quality of the time we can share with them.

I am taking the field for my grandma, who suffered from AD, and to cherish all of the wonderful memories we shared together. I want to be a part of the cure, and I hope that my efforts will benefit other families in the future –perhaps allowing another to have more time with their grandmother later in life.

stacy suhayPosition: YPalz Co-ChairHometown: Independence Occupation: Executive Assistant at Dynasplint

Why I’m Tackling Alzheimer’s:I am fighting Alzheimer’s because there are more than five million Americans living with the disease. I have not personally been affected by the disease but I have been a caregiver for patients suffering. I want to do my part to better our future and one day live in a world where there is a cure for Alzheimer’s disease.

mike lamarca

Position: Head Coach for Team Brunettes Hometown: Brunswick Occupation: Vice President of Sales and Marketing, Always Best Care home care

Why I’m Tackling Alzheimer’s:Through my work, I see the struggle people go through with having Alzheimer’s disease. It is a terrible disease and I believe that the Alzheimer’s Association provides a valuable service for these people and their loved ones.

taylor marcus laurerPosition: BvBCLE Event Co-chair /Defensive BackHometown: Cleveland Occupation: Director of Annual Giving at Hathaway Brown School

Why I’m Tackling Alzheimer’s:I was able to experience first-hand the effects of this disease through my grandmother. Although I was very young, I still vividly remember the toll it took on her physically and mentally. I also was able to see the effects it had on her caregiver, my grandfather. It may have had more of an impact on him than anyone else.

Through my mother’s involvement on the local level and also serving on the National Board, I have witnessed the great things the Alzheimer’s Association has done to advance research and raise funds for those families coping with the effects of this disease.

brendan ward

Position: Head Coach for Team BlondesHometown: ClevelandOccupation: Equipment Specialist, TriMark SS Kemp

Why I’m Tackling Alzheimer’s:I am taking the field to support friends’ family members that have been diagnosed with Alzheimer’s. Hearing from players and coaches about how the disease affects their families makes being a part of finding a cure very rewarding.

Young ProfessionALZ (YPalz) is more than just Blondes & Brunettes!

unite with us in the present to reclaim our future

from alzheimer’s!

the National Alzheimer’s Project Act Advisory Council to achieve the goal of preventing or effectively treating Alzheimer’s disease by the year 2025,” Lamb said. “Only through continued advocacy and awareness building will these goals in defeating this disease ultimately be realized.”

A further $3.3 million has been provided to support Alzheimer’s caregivers, $4 million to train health professionals on issues related to Alzheimer’s disease, $10.5 million to expand the home and community based caregiver services and $4.2 million for outreach activities to raise awareness. Additionally, the National Institutes of Health’s BRAIN Initiative will receive $30 million to support brain research that could impact several diseases, including Alzheimer’s.

There are currently more than 5 million Americans living with Alzheimer’s disease, and that number is poised to grow to as many as 16 million by 2050, according to the Alzheimer’s Association 2013 Alzheimer’s Disease Facts & Figures report.

In addition to the human toll of the disease, care for Alzheimer’s is the country’s most expensive condition, costs the nation $203 billion annually with projections to reach $1.2 trillion by 2050. Yet for every $27,000 Medicare and Medicaid spend on caring for individuals with Alzheimer’s, the National Institutes of Health (NIH) spends only $100 on Alzheimer’s research.

“Advocacy is one of our top priorities,” said Nancy Udelson, President and CEO of the Cleveland Area Chapter. “We will continue to recruit individuals who are dealing with an Alzheimer’s diagnosis to tell their stories to legislators in an effort to put a face to this disease. We hope to fill a bus to Columbus on April 2 for Memory Day, when advocates from all over the state will gather at the Capitol to keep Alzheimer’s in the forefront at the state level. Additionally, we need volunteers to join us in Washington D.C. April 7-9 for the annual Advocacy Forum. We must keep the momentum going.”

For information, please visit www.alz.org or call 800-272-3900.

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Federal Funding, continued from page 1

Not just Alzheimer’s diseaseChapter offers Support Groups for CJD and FTDDid you know the Cleveland Area Chapter provides support groups for those struggling with memory problems outside of Alzheimer’s disease? Through close collaboration with area physicians, the Chapter offers support groups that focus exclusively on FTD (Frontotemporal Dementia) and CJD (Creutzfeldt-Jakob Disease).

The FTD group meets from 1:30-3:30 pm on the second Saturday of each month, and the CJD group meets the first Wednesday of the month from 6:00 - 8:00 pm. Both meet in our main office in Beachwood.

The FTD group is supported and guided by Alan J. Lerner, MD, a neurologist at the University Hospitals Foley ElderHealth Center. Dr. Lerner assisted the formation of the group in 2009 after identifying a need for support services for FTD caregivers. The group is led by Lauren Brasse, LISW, MSSA, Support Services Coordinator with the Alzheimer’s Association Cleveland Area Chapter, and Marianne Sanders, RN, University Hospitals Neurological Institute, Brain Health and Memory Center. It has been recognized by the Association for Frontotemporal Dementias.

FTD is a degenerative brain disorder that affects an estimated 250,000 adults across America. Characterized by a wide range of behavioral, motor and language-related symptoms, this condition (which is actually a group of related conditions, including Pick’s disease, corticobasal degeneration, progressive aphasia, semantic dementia,

and FTD with motor neuron disease) poses a tremendous challenge for families and caregivers. Even more devastating, these individuals are usually diagnosed in their 50s and 60s.

As one group member said, “I finally feel as though I found my group! My husband was diagnosed six years ago and I have spent years attending various Alzheimer’s and research groups where I was the age of the children of the person with dementia.”

The CJD group was formed in 2013 under the leadership of Brian Appleby, MD, a University Hospitals neurologist who works with most CJD families in the area. Dr. Appleby co-facilitates the group every month along with Marianne Prentice, volunteer facilitator. The group is also recognized by the CJD Foundation.

CJD is a rare, degenerative, invariably fatal brain disorder. It affects about one person in every one million people per year worldwide; in the United States there are about 200 cases per year. Typically, onset of symptoms occurs about age 60, and the disease runs a rapid course. In the early stages of the disease, people may have failing memory, behavioral changes, lack of coordination and visual disturbances. As the illness progresses, mental deterioration becomes pronounced and involuntary movements, blindness, weakness of extremities and coma may occur.

Win a ticket to see the Masters! Get ready for an exciting raffle offering up a travel package for two to see the 2015 Masters Golf Tournament at the Augusta National Golf Club! The winner will be announced at Night of a Thousand Lights May 1. You do not need to attend the event to buy a ticket.

A limited number (325) raffle tickets will be sold for the chance to attend the tournament with access badges to any two rounds The prize includes airfare, deluxe hotel accommodations and full hospitality at the Magnolia Manor in April 2015.

Raffle tickets will be sold for $100 per ticket, but the estimated value of this gift is priceless! We will send out an email announcing the start of ticket sales with links to purchase soon.

www.facebook.com/alzclevelandwww.twitter.com/alzcleveland alzcleveland.blogspot.com

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We encourage you to take part in our free support group gatherings of caregivers, family and friends. It is a great opportunity to meet for mutual emotional support, to exchange ideas and information, and to develop coping skills. Dates are subject to change. Contact us at 800-272-3900 for more information about support groups and other programs.*Denotes locations providing care for loved ones

S U P P O R T G R O U P M E E T I N G S C H E D U L E S

follow us onlineKeep up with us on Facebook and Twitter! Get the latest news, tips and event info from the Cleveland Area Chapter. You can also follow our blog at www.alzcleveland.blogspot.com. Interested in writing a guest blog? Contact Thomas Prevett at [email protected].

Ashtabula CountyAshtabula 2nd Tuesday 5:30 pm Senior Center, 4632 Main Ave.Jefferson 3rd Thursday 7:00 pm Jefferson United Methodist, 125 E. Jefferson St.

Cuyahoga CountyBeachwood 2nd Thursday 6:30 pm Church of the Good Shepherd, 23599 Cedar Rd.Broadview Hts. 1st Thursday 7:00 pm Broadview Hts. Recreational Center, 9543 Broadview Rd.Chagrin Falls 4th Thursday 6:30 pm Arden Courts of Chagrin Falls, 8100 E. Washington St. Cleveland 4th Thursday 7:00 pm Olivet Institutional Baptist Church, 8712-14 Quincy Ave., Rm. 8Cleveland Daytime 2nd Tuesday 12:00 pm Cleveland Clinic Main Campus, 2045 E. 90th, Building TT Room TT 1-100Hough/Glenville 4th Thursday 6:00 pm Eliza Bryant Senior Center, 7201 Wade Park Ave.Lyndhurst 2nd Thursday 7:15 pm Lyndhurst Community Presbyterian Church, 5312 Mayfield Rd.Mayfield 2nd Wednesday 2:00 pm Mayfield Public Library, 500 SOM Center Rd.North Olmsted 1st Monday 2:00 pm North Olmsted Senior Center, 28114 Lorain Rd.Olmsted Twp. 3rd Wednesday 6:30 pm The Links Golf Course, 26111 John Rd.Parma 1st Tuesday 7:00 pm Health Education Center, 7300 State Rd.Parma* 2nd Friday 1:30 pm Health Education Center, 7300 State Rd.Rocky River 4th Thursday 1:30 pm The Wellness Center, 3035 Wooster Rd.Solon 2nd Wednesday 1:00 pm Solon Senior Center, 35000 Portz ParkwayWestlake 2nd Thursday 7:00 pm West Bay Care & Rehab Center, 27601 Westchester Pkwy

Geauga CountyChardon 3rd Wednesday 7:00 pm The Church of St. Mary, 401 North Street

Lake CountyKirtland 3rd Tuesday 6:30 pm Golden Living Center, 9685 Chillicothe Rd.Mentor 2nd & Last Thursdays 1:00 pm Mentor Senior Center, 8484 Munson Rd.Mentor 3rd Thursday 2:30 pm Alzheimer’s Association Eastern Office, 8522 East Ave. Mentor* 4th Monday 6:30 pm Emeritus at Mentor, 5700 Emerald Ct.Painesville 4th Tuesday 10:00 am United Methodist Church, 71 North Park PlaceWilloughby 3rd Wednesday 1:30 pm Osborne Center 36855 Ridge Road

Lorain CountyAmherst 3rd Wednesday 7:00 pm Amherst Public Library, 221 Spring St.Avon 1st Wednesday 7:00 pm Alzheimer’s Association Western Office, 38440 Chester Rd.Elyria 2nd Thursday 6:00 pm Cornerstone United Methodist Church, 2949 W. River Rd.Grafton 3rd Monday 6:30 pm Grafton United Methodist Church, 973 Mechanic St.Wellington 1st Tuesday 7:00 pm LCCC Wellington, 151 Commerce Dr., #102

Specialty Support GroupsFrontotemporal Disease Support Group 2nd Saturday of the month 1:30 - 3:30 pm Alzheimer’s Association, 23215 Commerce Park Drive, #300, Beachwood, OH 44122. Call 800.272.3900.

Creutzfeldt-Jakob & Other Prion Diseases Support Group 2nd Saturday of the month 1:30 - 3:30 pm Alzheimer’s Association, 23215 Commerce Park Drive, #300, Beachwood, OH 44122. Call 800.272.3900.

Online Support A social network for people with memory loss, caregivers and professionals which is available 24/7 at www.alzconnected.org.

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A

E D U C A T I O N A L P R O G R A M S

There is no charge for community and family education programs, but registration is requested. The education programs listed are confirmed as of printing. Please visit alz.org/cleveland to see a current listing of our education programs.

Know the 10 Signs: Early Detection MattersThis workshop stresses the importance of early detection for Alzheimer’s disease and other dementias. As 10 million baby boomers risk developing Alzheimer’s, early detection of the disease becomes critical to future planning. Knowing the warning signs of Alzheimer’s and getting diagnosed early is vital to receiving the best help and care possible.

The Basics: Memory Loss, Dementia & Alzheimer’s diseaseThis program is designed to provide you with the basic information that everyone needs to know about memory loss issues and what they mean for all of us. It incorporates video interviews with professionals, patients with dementia and caregivers discussing real-life issues.

Communication and Behavior Changes in People with DementiaThis program is designed for caregivers of those with Alzheimer’s disease or a related dementia. Includes tips and techniques to improve successful communication, as well as information about common behavioral changes and how to intervene. Participants will have the opportunity to get their questions answered by an expert.

Now What Was I Saying? Understanding and Enhancing MemoryThis interactive workshop will explain the basics of how the brain works, the primary principles of memory, some techniques to improve memory and things you can do for improving overall brain health.

April 10, 5:30 dinner, 6:00-7:00 pm program Kemper House Mentor, 8155 Mentor Hills Dr., Mentor, OH Register: 440-235-5500April 23, 11:00 am Mandel JCC, 1500 Warrensville Center Rd. Cleveland Heights Register: 800.272.3900May 8, 5:30 dinner, 6:00-7:00 pm program Kemper House Strongsville, 10890 Prospect Rd., Strongsville, OH Register: 440-235-5500May 15, 1:30 pm The Elms Retirement Community, 136 S. Main Street Wellington Register: 800.272.3900

May 20, 1:30 pm to 3:00 pmThe Heights, 2801 E. Royalton Rd. Broadview Hts.

Register: 440.584.9433The Heights staff will provide care for person(s) with

memory loss.

Partnering with your DoctorThis workshop addresses the importance of partnering with the physician, assessing one’s behavior when visiting the physician, and challenges in caregiver/physician interactions. Attendees will receive tools and handouts to assist with preparing for doctor’s visits.

April 15, 11:00 am Cleveland Heights Senior Center, One Monticello Cleveland Heights. Register: 800.272.3900 May 14, 11:00 am Lakewood Senior Center, 16024 Madison Ave., Lakewood Register: 216.529.5000June 20, 11:00 am Mandel JCC, 1500 Warrensville Center Rd. Cleveland Heights. Register: 800.272.3900

March 26, 7:00 pm Westlake Village, 28550 Westlake Village Drive Westlake. Register: 440.892.4200

April 25, 10:00 am Ehrnfelt Senior Center, 18100 Royalton Rd. Strongsville. Register: 440-580-3275

Caring for the CaregiverProviding care for someone with dementia can be overwhelming, and it can be easy to neglect your own well-being. Maintaining your own good health is important to your success as a caregiver. Join us for tips on how to care for yourself and your loved one.

April 03, 2014 6:00 pm Ehrnfelt Senior Center

18100 Royalton Rd. StrongsvilleRegister: 440-580-3275

April 10, 10:00 am Avon Lake Senior Center, 100 Avon Belden Rd. Avon Lake. Register: 440.930.4135

This program will be interpreted for the hearing impaired.

April 10, 10:00 am Broadview Heights Senior Center, 9543 Broadview Rd. Broadview Hts. Register: 800.272.3900April 21, 10:45 am Elyria Parks and Recreation Dept., 1101 Prospect Street Elyria. Register: 800.272.3900

Research & Alzheimer’s disease: The Road to Better Treatments and a CureAs the number of Americans with Alzheimer’s disease is rapidly increasing, research plays a crucial role in understanding more about this disease. Come learn about how clinical trials work, what scientists already know about Alzheimer’s disease, and where efforts are focused moving forward in the search for a cure.

March 13, 5:30 pm Kemper House Olmsted Falls, 25880 Elm Street Olmsted Falls, OH 44138April 17, 5:30 pm Kemper House Mentor, 8155 Mentor Hills Drive Mentor, OH 44060May 15, 5:30 pm Kemper House Strongsville, 10890 Prospect Road Strongsville, OH 44149

All classes above include dinner at 5:30. Program runs 6-7:00 pm. Register: 440-235-5500

Caring for the Caregiver PanelThis program will feature a panel of experts that will provide answers to your questions about: Alzheimer’s disease and related dementias, legal and financial issues when diagnosed with some form of dementia, and where to go for information and support..

March 18, 2014 6:00 pmNormandy Manor

22709 Lake Rd. Rocky RiverRegister: 440.333.5400

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E D U C A T I O N A L P R O G R A M S

Dementia Care Training is a program for both family and professional caregivers who provide care to those with dementia-related diseases. This program provides an overview of Alzheimer’s disease and related disorders, teaches effective communication techniques, gives ideas on how to engage those with cognitive problems, and provides strategies for managing challenging behavior. The program is FREE for family caregivers. The cost for professional caregivers is $50. Four social work CEUs are available

Register: 800.272.3900

All classes below are held 9:00 am - 3:00 pm March 12 Lorain County Office on Aging 320 North Gateway Blvd., ElyriaApril 17 Lake County Council on Aging 8520 East Ave., MentorMay 07 Ashtabula County Medical Center 2420 Lake Ave., AshtabulaJune 12 Alzheimer’s Association 23215 Commerce Park, Suite 300, Beachwood

Enrichment program

The Art in the Afternoon program offers tours for individuals with memory loss and their care partners.

These free monthly tours are given at the renowned art collections of the Cleveland Museum of Art and the Cleveland Clinic. Registration required. For Cleveland Clinic tours, call 216.448.0232. For the Museum of Art tours, call 216.231.1482.

Designed for individuals with memory loss to lift spirits, engage the mind and provide an enjoyable social experience.

Funeral Preplanning at the Geauga YMCAMichelle Thompson of DeJohn Funeral Homes will be discussing funeral preplanning. DeJohn Funeral Homes is the lunch sponsor.

April 01, 11:30 am to 1:00 pm12460 Bass Lake Rd., Chardon

Register: 440.285.7543

Dementia Care Training for family and professional caregivers

Making Connections for Caregivers with an Art FocusThis program describes social needs, and provides tools and techniques to assist with having meaningful interactions with a person with Alzheimer’s disease or a related dementia. Participants will also learn about Art in the Afternoon Tours for individuals with memory loss that are hosted at Cleveland Clinic in partnership with the Cleveland Museum of Art.

April 23, 2014 6:00 pm to 7:30 pmCleveland Clinic, 9500 Euclid Avenue Cleveland

Register: 800.272.3900

We will discuss communication challenges faced by people with dementia, as well as review tips and techniques for communicating with someone who has dementia.

1.0 CEU for social workers

May 14, 7:30 am to 9:00 amThe Welsh Home

22199 Center Ridge Rd. Rocky River

Register: 877.597.6348

Improving Communication

Professional CoursesThere is no charge, but registration is requested.

This program describes ways to reduce and prevent injurious falls by promoting mobility, identifying and removing fall hazards, and monitoring risk factors.

1.0 CEU for social workers

April 17, 7:30 am to 8:00 amBrighton Gardens27819 Center Ridge Rd. Westlake

Register: 440.808.0074

Reducing the Risk of FallsFREE WEBINARS Enjoy our education courses in your home or office!

Monthly Webinar Series

All webinars take place Noon-12:30 pm

Classes Include: • March 28 - Know the 10 Signs• April 25 - The Basics of Alzheimer’s• May 30 - Planning Ahead: Summer Travel Tips• June 27 - Improving Communication

For class details & registration info, go to www.alz.org/cleveland

Call us for a list of topics! To request a speaker, call 800.272.3900

Need a speaker for a meeting or event?

Open to the public, and FREE to attendees not receiving CEU’s

Two contact hours available for counselors and social workers for a $20 administrative fee. For more information contact the JCU Department of Sociology and Criminology, 216-397-4381.

www.jcu.edu/sociology

24th Annual Alzheimer’s Disease Educational Event“Creative Expression and Alzheimer’s disease”

Wednesday, April 23, 20147:00 - 9:00 pm

Dolan Science Center AuditoriumJohn Carroll University

Speaker: Holly Queen, MA, ART-BC, Art Therapist, Hospice of the Western Reserve

Topic: Creative expression using a person centered approach for those with dementia.

Presentation followed by the 2nd annual performance of the Intergenerational Choir

mark your calendarSUNDAY, MAY 18

RITE AID CLEVELAND MARATHON

Downtown Cleveland at 7 am

SATURDAY, JUNE 7BLONDES vs. BRUNETTES

Cleveland State University’s Krenzler Field, Downtown Cleveland. Gates open at 1 pm.

SATURDAY, JUNE 21THE LONGEST DAY

Sun up to sun down

Participants across the country will challenge themselves individually or as part of a team with approximately 16 hours of an activity of their choosing.

For more information on all of our events, visit alz.org/cleveland

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23215 Commerce Park Drive, Suite 300

Beachwood, OH 44122

Central Office23215 Commerce Park Dr., Suite 300Beachwood, Ohio 44122216-342-5556Fax: 216-831-8585 M-F 8:30 am - 4:30 pm

Ashtabula Office4632 Main AvenueAshtabula, Ohio 44004440-998-6750Fax: 440-974-5199 1st Wed. of the month9 am - 4 pm

Avon Office38440 Chester Road Avon, Ohio 44011440-934-7750Fax: 440-934-7751 M-F 8:30 am - 4:30 pm

Chardon Office12555 Ravenwood DriveChardon, Ohio 44024440-285-2222Fax: 440-974-5199 1st Thurs. of the month9 am - 4 pm

Mentor Office8522 East AvenueMentor, Ohio 44060440-974-7785Fax: 440-974-5199 M-F 8:30 am - 4:30 pm

Call Helpline24/7, toll free

Please consider a donation with the envelope inside. Donations also accepted online at www.alz.org/cleveland

Non-Profit Org. U.S. Postage

PAIDCleveland, OH

Permit No. 2253

The Alzheimer’s Association Cleveland Area Chapter serves the Northeast Ohio counties of Ashtabula, Cuyahoga, Geauga, Lake and Lorain, with offices in Ashtabula, Avon, Beachwood, Chardon and Mentor.

o o o o ooooo o

To eliminate Alzheimer’s disease through the advancement of research

To provide and enhance care and support for all affected

To reduce the risk of dementia through the promotion of brain health

o o o o oooo o

A world withoutAlzheimer’s disease®

800-272-3900 Walk-in visits are welcome!

sign up to walk today!Registration is open online now

at alz.org/walk september 14, 2014

Holden Arboretum in Kirtland

september 21, 2014 Cleveland Metroparks Zoo

in Cleveland

september 28, 2014 All Pro Freight Stadium

in Avon