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Dementia Alistair Burns

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Page 1: Reminyl Speaker Training Showfile

Dementia

Alistair Burns

Page 2: Reminyl Speaker Training Showfile

• Diagnosis rates up to two thirds

• 600,000 NHS and social care staff

had training

• 1.46 m dementia friends

• 142 Dementia friendly

communities

• £60m in dementia research plus

£150m for a Dementia Research

Institute

• G8 summit on dementia

• Record numbers taking part in

research

Page 3: Reminyl Speaker Training Showfile
Page 4: Reminyl Speaker Training Showfile
Page 5: Reminyl Speaker Training Showfile

Risk reduction and Health

Checks

Post diagnostic Support

Declaration

Comparisons made about

dementia care across CCGs

Dementia Friends

Personalised care plan

10% of people with dementia

to be involved in research

CQC to include dementia

ratings

Page 6: Reminyl Speaker Training Showfile

Preventing Well Diagnosing Well Supporting Well

Living Well

Dying Well

“i” Statements

I was given information about reducing my personal risk of

dementia

I was diagnosed in a timely way and told about research

Those around me and looking after me are supported

I feel included and I am treated with dignity and respect

I am confident my end of life wishes will be respected

NICE Guideline Prevention Diagnosis and assessment Integration Promote independence Palliative care and pain

NICE Quality Standard 2010

(1)

Memory Assessment

Carers, Respite, Care Plan, Information

Choice BPSD(3) Liaison

Palliative Care

NICE Quality Standard 2013 (2)

Concerns Discussed Needs Advocates, Housing, Choice,

Relationships, Leisure, Community

Prime Minister’s Challenges (1) (5)

Prevention Diagnosis,

Treatment by 2025 Meaningful Care,

Continuity Dementia Friendly Settings,

Awareness End of Life Care

NICE risk reduction Guidance for prevention

NICE Pathway (1)

Services Investigation Information

Supporting Carers Intergrated Services

Choice, Independence Living, Hospitals

Treatments End of Life

OECD (4) Risk Reduction Diagnosis Supporting Carers Social Care

Co-ordinated Care

Safe Communities Environments Technology Health

Services Preferred Place of Death

Dementia Wellbeing: Crosswalks

(1) Training - common to all areas. (2) Includes wellbeing and choice evaluation (3) BPSD – Behavioural and Psychological Symptoms of dementia (4) Organisation for Economic Co-operation and Development (5) 2012, 2015

Page 7: Reminyl Speaker Training Showfile

Preventing well

Delivers a positive message: real potential

Reaches other areas

Not just primary prevention

Page 8: Reminyl Speaker Training Showfile

Diagnosing well

Recent focus

Vehicle for delivering post diagnostic

support

Importance of the clinical message

Page 9: Reminyl Speaker Training Showfile

Why investigate/diagnose dementia?

• Physical/emotional illness identified

• Post diagnostic support

• (em)Powers patients and their carers

• Prevents crises

• Postpone further decline with interventions

Page 10: Reminyl Speaker Training Showfile
Page 11: Reminyl Speaker Training Showfile

Supporting well

Crucial component

Needs integration

Dementia advisors and care planning

Page 12: Reminyl Speaker Training Showfile

Care planning

Did it happen?

Did it help?

Meaningful care

Timely

Bespoke

Unitary

www.gov.uk/government/publications/dementia-post-diagnostic-care-and-support

This declaration sets out:

our shared commitment to joint action across

government, health, social care, the third sector and all

other relevant partners

our ambition to deliver better quality post-diagnostic

care

the need to deliver integrated and effective services that

meet the needs of people with dementia and their

families and carers

Post and peri diagnostic support

Joint declaration on post-

diagnostic dementia care

and support

Page 13: Reminyl Speaker Training Showfile

D Diagnosis review

E Effective support for carers review

M Medication review

E Evaluate risk

N New symptoms inquiry

T Treatment of medical conditions I Individual issues A Advance care planning

Care planning

Page 14: Reminyl Speaker Training Showfile

Dementia

Alistair Burns

Page 15: Reminyl Speaker Training Showfile

Living well

Tag line of the National Dementia Strategy

A societal response

Relevant everywhere including the NHS

eg dementia friendly practices

Page 16: Reminyl Speaker Training Showfile

Dementia Friends

www.dementiafriends.org.uk

Page 17: Reminyl Speaker Training Showfile

Dying well

Specific issues around dementia

• concerns about capacity

• not perceived as a terminal illness

• do you die of dementia?

More than Advance Care Planning

Need for measures

Page 18: Reminyl Speaker Training Showfile

Further thoughts

Variations in diagnosis and care across the country

Prospects for prevention a reality

Genuine progress in basic research

Page 19: Reminyl Speaker Training Showfile