reminyl speaker training showfile
TRANSCRIPT
Dementia
Alistair Burns
• Diagnosis rates up to two thirds
• 600,000 NHS and social care staff
had training
• 1.46 m dementia friends
• 142 Dementia friendly
communities
• £60m in dementia research plus
£150m for a Dementia Research
Institute
• G8 summit on dementia
• Record numbers taking part in
research
Risk reduction and Health
Checks
Post diagnostic Support
Declaration
Comparisons made about
dementia care across CCGs
Dementia Friends
Personalised care plan
10% of people with dementia
to be involved in research
CQC to include dementia
ratings
Preventing Well Diagnosing Well Supporting Well
Living Well
Dying Well
“i” Statements
I was given information about reducing my personal risk of
dementia
I was diagnosed in a timely way and told about research
Those around me and looking after me are supported
I feel included and I am treated with dignity and respect
I am confident my end of life wishes will be respected
NICE Guideline Prevention Diagnosis and assessment Integration Promote independence Palliative care and pain
NICE Quality Standard 2010
(1)
Memory Assessment
Carers, Respite, Care Plan, Information
Choice BPSD(3) Liaison
Palliative Care
NICE Quality Standard 2013 (2)
Concerns Discussed Needs Advocates, Housing, Choice,
Relationships, Leisure, Community
Prime Minister’s Challenges (1) (5)
Prevention Diagnosis,
Treatment by 2025 Meaningful Care,
Continuity Dementia Friendly Settings,
Awareness End of Life Care
NICE risk reduction Guidance for prevention
NICE Pathway (1)
Services Investigation Information
Supporting Carers Intergrated Services
Choice, Independence Living, Hospitals
Treatments End of Life
OECD (4) Risk Reduction Diagnosis Supporting Carers Social Care
Co-ordinated Care
Safe Communities Environments Technology Health
Services Preferred Place of Death
Dementia Wellbeing: Crosswalks
(1) Training - common to all areas. (2) Includes wellbeing and choice evaluation (3) BPSD – Behavioural and Psychological Symptoms of dementia (4) Organisation for Economic Co-operation and Development (5) 2012, 2015
Preventing well
Delivers a positive message: real potential
Reaches other areas
Not just primary prevention
Diagnosing well
Recent focus
Vehicle for delivering post diagnostic
support
Importance of the clinical message
Why investigate/diagnose dementia?
• Physical/emotional illness identified
• Post diagnostic support
• (em)Powers patients and their carers
• Prevents crises
• Postpone further decline with interventions
Supporting well
Crucial component
Needs integration
Dementia advisors and care planning
Care planning
Did it happen?
Did it help?
Meaningful care
Timely
Bespoke
Unitary
www.gov.uk/government/publications/dementia-post-diagnostic-care-and-support
This declaration sets out:
our shared commitment to joint action across
government, health, social care, the third sector and all
other relevant partners
our ambition to deliver better quality post-diagnostic
care
the need to deliver integrated and effective services that
meet the needs of people with dementia and their
families and carers
Post and peri diagnostic support
Joint declaration on post-
diagnostic dementia care
and support
D Diagnosis review
E Effective support for carers review
M Medication review
E Evaluate risk
N New symptoms inquiry
T Treatment of medical conditions I Individual issues A Advance care planning
Care planning
Dementia
Alistair Burns
Living well
Tag line of the National Dementia Strategy
A societal response
Relevant everywhere including the NHS
eg dementia friendly practices
Dementia Friends
www.dementiafriends.org.uk
Dying well
Specific issues around dementia
• concerns about capacity
• not perceived as a terminal illness
• do you die of dementia?
More than Advance Care Planning
Need for measures
Further thoughts
Variations in diagnosis and care across the country
Prospects for prevention a reality
Genuine progress in basic research