unloneliness conference - 20th july 2015

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#unlonelyleeds Friday 17 th July Leeds Civic Hall

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# u n l o n e l y leed s

Friday 17th July

Leeds Civic Hall

DID YOU KNOW?

In 2011 to 2012 around 1 in 7 (15%)

people aged 45 to 54 reported feeling

lonely, the highest of all age groups .

This compares to 6% of younger

people aged 25 to 34.

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DID YOU KNOW?

There are 37 locally based schemes as part of the Leeds Neighbourhood Network. These are run by committees that are representative of the communities they serve, with the aim of enabling older people to feel included in their local community and to have choice and control over their lives.

In 2013/14 it is estimated that there were a total of 110,019 contacts between users and the Neighbourhood Networks, across a total estimated membership of 22,000 people.

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# u n l o n e l y leed s

Friday 17th July

Leeds Civic Hall

9.15-13.00

DID YOU KNOW?

Loneliness is potentially as harmful to

health as smoking 15 cigarettes a day

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DID YOU KNOW?

Reducing age-specific dependency

rates by 1% per year would reduce

public expenditure by £940m per year

by 2031

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Friday 17th July

Leeds Civic Hall

9.15-13.00

DID YOU KNOW?

The value of unpaid carers to the

Leeds economy has been estimated

to be valued at £1 billion a year.

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DID YOU KNOW?

Life expectancy for men is 10.8 years

lower for men and 8.5 years lower for

women in the most deprived areas of

Leeds than in the least deprived

areas.

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# u n l o n e l y leed s

Friday 17th July

Leeds Civic Hall

9.15-13.00

DID YOU KNOW?

Over 8 in 10 (83.4%) adults aged 16

and over in England engaged with, or

participated in, arts or cultural activity

at least three times in the year.

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DID YOU KNOW?

The number of people aged 80+ who

live in Leeds is expected to rise to

39,000 by 2021.

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# u n l o n e l y leed s

Friday 17th July

Leeds Civic Hall

9.15-13.00

DID YOU KNOW?

In 2011, adults aged 18 and over in

the UK scored their satisfaction with

family life as 8.2 out of 10

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DID YOU KNOW?

Nearly 1 in 4 disabled people feel

lonely on a typical day

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# u n l o n e l y leed s

Friday 17th July

Leeds Civic Hall

9.15-13.00

DID YOU KNOW?

There will be more than 1 million over

70s by 2020. One Third of these will

be living alone.

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DID YOU KNOW?

The ‘Community Life survey’ showed

that in 2013-14, 41% of people

volunteer formally at least once in the

previous year in England. 27% are

regular volunteers taking part at least

once a month.

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# u n l o n e l y leed s

Friday 17th July

Leeds Civic Hall

9.15-13.00

DID YOU KNOW?

4 million people in the UK say their

television is their main source of

company

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DID YOU KNOW?

Over half (58.2%) of adults aged 16

and over were somewhat, mostly or

completely satisfied with their

amount of leisure time in the financial

year ending 2013.

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Welcome

Welcome and Introductory

Remarks

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OPENING QUESTION:

HOW MANY PEOPLE HAVE YOU INTERACTED

WITH SINCE 6PM LAST NIGHT?Split into 2s or 3s and discuss this question. Think about:

Who were these interactions with?

Were they personal or professional?

Were they face-to-face or virtual?

Were they relational or transactional?

Were they one-way or two-way?

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Measuring Social Isolation

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Overview of presentation

Why?

How- research methods

Challenges

What Older people on Leeds said

What other partners said

Conclusions and recommendations

Can we measure social isolation ?

Why – local insight tells us this is an issue for older people in Leeds

- Time to Shine

- Target work at those most in need

Data used- Long term health condition

Dementia

Claimants of means test Pension Credit

Widowers

Non-white

At an MSOA level

Second index – taking out those in receipt off ASC; street level.

What Next?

Very different results

Data is data , we needed to be intelligent

Social isolation and loneliness – can they be separated?

High risk of analysis at street level

Sense check.

Types of social isolation measured

o Social contacts

o Community networks

o Leisure pursuits

o Self reported isolation

Research Methods

• Documentary analysis

• Interviews: 90

• Focus groups: 3

• Telephone interviews and questionnaires with

local organisations/stakeholders: 14

• Fieldwork observations

Challenges

Gaining access

Reluctance to participate if did not view self as

isolated

Frailer isolated older people

Refusal to answer door

Time pressures of stakeholders

What older people told us(1)

None isolated due to lack of social contact

56% involved in community networks

Two thirds reported at least one neighbour they could trust

86% involved in some form of leisure pursuit

11 reported not being involved in any outside activity in the last few months.

6 referred to themselves as being isolated ‘all’ or ‘most’ of the time

What older people told us (2)

Disability - only effective indicator

‘Place based’ (micro localities)

‘Community spirit’

Transport

Concerns around safety

Preferring own company

What stakeholders told us

• Area based factors:

o Local services and activities

o Housing accommodation type and locality

o Weakened community links

o Low levels of family support

o Fear of crime

What stakeholders told us (2)

• Individual level factors:

o Disability

o Substance misusers and prison leavers

o Younger old people

o Gender

o Personal choice

o Affordability

Tackling Social Isolation

• A coordinated/inclusive approach

• ‘Person centred’ services

• Improve community/intergenerational cohesion

• Engaging hard to reach older people

Conclusions

• Usefulness of a social isolation index

• Potential individual level factors: disability, gender, age, complex needs

• Future research

Thank you for listening

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EXERCISE:

MAPPING NEEDS AND ASSETS IN OUR COMMUNITIESPart One: Case study

a) As a group, choose one or two stories from the six

case studies

b) Discuss what’s strong and what’s wrong in this

individual’s life

Part Two: Asset-mapping

a) Consider the map of the area you have in front of

you to identify potential assets.

b) Use the colour code (as shown in the table on the

right) to mark assets on the A1 map on your table.

(It doesn’t matter if you don’t know the area – we

can guess what type of assets may be in places)

c) Add any other assets you can think of - these can

be specific to the area which you know of, or

general assets

Part Three: Connections

a) How could these assets be harnessed to increase

the social capital of the individual you chose?# u n l o n e l y leed s

Key

Asset Type Colour

Individuals Orange

Associations Pink

Organisations Purple

Physical Assets Yellow

Economic Assets Blue

Cultural Assets Green

Neighbourhood

Approaches to Loneliness

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Neighbourhood approaches to loneliness

The tale of two cities

• A mismatch of the relationships we have and those we want

• An internal trigger telling us to seek company as thirst tells

us to drink and hunger tells us to eat

• Loneliness describes the pain of being alone as solitude

describes the joy of being alone

• Isolation is often where there is no choice but to be alone

• Some people seek solitude, but few choose to be lonely,

primarily because it isn’t good for us

What exactly is loneliness?

Loneliness harms our mental and physical health

Lonely people:

• Are vulnerable to alcohol problems

• Eat less well – they are less likely to eat fruit and vegetables

• Are more likely to be smokers and more likely to be overweight

• Are less likely to engage in physical activity and exercise

• Place based approach to loneliness

• Asset based approach to community development

• Working with people in their neighbourhood to explore what

contributes to feelings of overwhelming/problematic loneliness

• Exploring factors like location, health and wellbeing, safety,

independence, life transitions

• Developing and putting into practice local ideas and activities to

reduce the effects of loneliness

• Making every contact and conversation count

A neighbourhood approach

The neighbourhoods – Bradford

Denholme

Rural

Older population

Poor public transport

Active town council

Local meeting places

Bradford Moor

Urban area

Ethnically diverse

Overcrowded housing

Economically deprived

High drug and unemployment rates

The neighbourhoods –York

Carr Estate

Young families

Mixed tenure housing

Debt problems

Few natural meeting places

Little community focus

New Earswick

Ageing population

High levels of unpaid carers

Plentiful meeting spaces

Rowntree model village

Programme fatigue?

• Recruited, trained and retained 32 community researchers in Participatory Learning and Action (PLA) in all four neighbourhoods

• Community researchers gathered information, undertook outreach and all fieldwork and analysis and spoke to over 100 stakeholders

• Talking to over 2000 people gathering almost 7667 individual comments

Local people leading the way

• Members of the neighbourhoods came up with over 1000 ideas to

reduce loneliness

• An average of 65 ideas were prioritised in each neighbourhood and

shared with community partners and local stakeholders

• Community researchers in the neighbourhoods have done planning,

negotiation and project management training

• Each neighbourhood has reduced (not easy!) these ideas to 5

priorities which they are now putting into practice

• Community researchers are now activists – sharing the key messages

From ideas to action

What is now happening

BRADFORD MOOR

Community Market

Confidence group

Get2 Gether

CARR CONNECTORS

Pop-up CaféWorking with local church &

children's centre

volunteering opps.

NELLI

Parents play group

Community allotmentsCafé Nelle

NELLI Vision

Community activists contributing to further work: Local meetingsPresentationsMedia

ONE DENHOLME

Walking groupFilm club

App/ face bookWebsite & newsletter makeover

Key messages from the programme

• Loneliness kills people and communities

• Regulation kills kindness and reduces action

• Lonely people are vulnerable, this is a safeguarding issue

• Building personal and community confidence builds community

resilience

• The stepping stones to engagement and education need to be put

back

• There is a real contradiction between society’s ideals and

individual experience

• You can take the ideas out of the process. You cannot take the

process away from the ideas

Key messages from the programme

• Our free resource pack is available online; This resource

pack brings together the lessons and experiences from the

programme.

http://www.jrf.org.uk

/publications/loneliness-

resource-pack

Free resources

Anyone can be lonely, even busy people.

Anyone can reduce loneliness – their own or

others

• How do we make every contact count?

• How do we look after the health and wellbeing of our

communities, congregations, colleagues and ourselves?

• How do we give the gift of time when we lead such busy

lives?

• How do we resource prevention in hard times?

• How do we ensure that our community assets are

community hubs used to their full potential and open to

all?

• Let’s see how we can all talk about loneliness

Wot…

no time ?

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BREAKTea and Coffee Served in

the Atrium

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Connecting People:

Asset-based approaches

to health and social care

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www.SharedLivesPlus.org.uk

www.communitycatalysts.co.uk

Connecting people

Alex Fox, CEO

Shared Lives Plus

www.SharedLivesPlus.org.uk

http://alexfoxblog.wordpress.com

http://vimeo.com/108993357

Karl and Clare with Shared Lives carers Blossom and Mike,

at their wedding, before moving to live independently

Kent Shared Lives

www.SharedLivesPlus.org.uk

www.communitycatalysts.co.uk

Personalisation of social care is about choice and control over services, plus more

inclusive communities.

But more success empowering individuals than communities:

• Money does not always equal power. Same old stuff to buy?

• Community is often mistaken for a location when it’s our connections to others.

A good / new service doesn’t guarantee a good life.

Beyond better services

www.SharedLivesPlus.org.uk

www.communitycatalysts.co.uk

The Care Act: social care’s primary purpose is wellbeing.

Achieving wellbeing is not in services’ gift. We need:

• Commissioning to build marketplace & community assets.

• Interventions to build individual capabilities & resilience.

So for system change we need:

• A new ‘front end’ which is built around community capacity

• Support interventions built around individuals & their networks

Beyond better services

www.SharedLivesPlus.org.uk

www.communitycatalysts.co.uk

Adult social care system can feel needs-based:

• Up-front eligibility: “Are you vulnerable & needy enough?”

• Up-front means-testing: “Are you poor enough?”

• Medicalised: “We have decided your needs and category.”

• Jargon, complexity: “You need a guide to our care pathway.”

• Maintained dependence: “We can help if you stay ‘critical’.”

A new ‘front end’

www.SharedLivesPlus.org.uk

www.communitycatalysts.co.uk

We need to move away from ‘pipelines’ and ‘funnels’:

• Informed

• Connected

• Confident

e.g.

• Local Area Coordination

• Care banks and time banks

• ABCD

• Co-production

A new ‘front end’

DanceSyndrome

www.SharedLivesPlus.org.uk

www.communitycatalysts.co.uk

(Re-)arranging individual support

interventions in support of

informal networks:

• Shared Lives

• Homeshare

• Circles of Support

• Micro-enterprise development

• KeyRing networks

Interventions which build

capabilities and resilience

Shared Lives South West

www.SharedLivesPlus.org.uk

www.communitycatalysts.co.uk

• The Shared Lives carer’s house feels

like a family home.

• Participants share home and family

life, either living together or through

the adult visiting their Shared Lives

carer regularly.

• Organised by 153 registered local

schemes who recruit, train, support

and monitor Shared Lives carers.

“You see people grow - they blossom.”

Shared Lives

www.SharedLivesPlus.org.uk

www.communitycatalysts.co.uk

Paul, 50, moved in with Shared Lives carer, Sheila and family

in Birmingham. He bought his first bicycle and enjoys bike

rides with Sheila and her husband, who have helped Paul

become a visible and popular member of the community. He

knows people like local shopkeepers by name and Sheila

encourages everyone to ‘look out for Paul’. Paul has learned

to use public transport and cross roads safely and he can now

walk unaided in his community for the first time. Paul doesn't

have a lot of speech, but when asked what 'independent'

means, he smiles and says 'walk'.

Other stories: the Parker family (the Telegraph): http://goo.gl/gM3Iq;

Nigel and Stephen (the Guardian) http://bit.ly/eqritE

Shared Lives example

www.SharedLivesPlus.org.uk

www.communitycatalysts.co.uk

‘Peter’, who I support several days a week, is a disabled

man in later life. I really enjoy being in his company and I

think he feels the same. I encourage Peter to decide what

he wants to do and get great satisfaction seeing him

making good sound decisions. Peter visits my home and

has got to know Moira, my boys and my sister and Mum. I

was impressed at how Peter engaged my youngest son

Aaron, bringing Aaron out of his shell.

Allan, retired police officer and Shared Lives carer.

Peter and Allan

www.SharedLivesPlus.org.uk

www.communitycatalysts.co.uk

• The scheme recruits, trains, approves, supports & monitors

local Shared Lives carers.

• The scheme ensures compliance with CQC care inspections

and housing and insurance regulations and requirements.

• The registered manager of the scheme is ultimately

responsible for quality and safety of care.

• The scheme matches participants and provides alternative

support where a match ends, ensuring continuity of care.

• Shared Lives carers are self-employed, working under

contract to the scheme (and doing much which is unpaid).

The role of the scheme.

www.SharedLivesPlus.org.uk

www.communitycatalysts.co.uk

Shared Lives outperforms all other forms of regulated care

across all five areas of inspection.

Inspection results

• Safe

• Effective

• Caring

• Responsive

• Well-led

www.SharedLivesPlus.org.uk

www.communitycatalysts.co.uk

Shared Lives in Leeds

• Shared Lives used by 10,500 people in England.

• 1500 older people, mainly as day support and short breaks.

• Growing by 14% p.a. and strong in the region.

• Higher outcome and lower cost (av £26k pp per year).

• St Anne’s Shared Lives has 70 live-in arrangements

• The council-run Short Breaks Shared Lives service supports

112 people: 1,845 overnights, 820 days.

• Shared Lives carers in the city are aged up to 80.

• Interest in developing a Homeshare schemes as well.

www.SharedLivesPlus.org.uk

www.communitycatalysts.co.uk

Homeshare

• Like Shared Lives Homeshare is based on matching

• Householder: needs a little help or companionship and has

a spare room. Often an older person.

• Homesharer: has a housing need and can provide a little

support. Often a younger person eg mature student.

• Homesharer pays no rent but helps out for c10 hours p.w.

• Unregulated service (no personal care). We support a

dozen UK schemes (many more in other countries).

• Scheme facilitates match & provides back up.

www.SharedLivesPlus.org.uk

www.communitycatalysts.co.uk

Interventions to build resilience

• You can’t assume volunteers will appear from nowhere.

• Voluntary action is not necessarily asset-based.

• People interested in helping someone (but not a service).

• More intensive support requires more resourcing/payment.

o Homeshare is low level & lighter touch

o Shared Lives carers combine paid and unpaid

• Provide enough back-up/ structure to enable, not smother.

• Enabling citizen leadership requires sharing power (and £!).

www.SharedLivesPlus.org.uk

www.communitycatalysts.co.uk

The Building Community Capacity workstrand

published:

A framework for Health and Wellbeing Boards

October 2014

Think Local, Act Personal

www.thinklocalactpersonal.org.uk

Think Local, Act Personal

www.SharedLivesPlus.org.uk

www.communitycatalysts.co.uk

Strong inclusive

communities

www.SharedLivesPlus.org.uk

www.communitycatalysts.co.uk

Alex Fox, CEO,

Shared Lives Plus,

[email protected]

www.SharedLivesPlus.org.uk

07738641897

http://alexfoxblog.wordpress.com

Twitter: @alexsharedlives

• Can we have a People Powered NHS? RSA: http://bit.ly/1psacBe

• The new social care, RSA: http://goo.gl/6NPnP

• The State of Shared Lives in England: www.SharedLivesPlus.org.uk

Contact details

West Wales Adult

Placement

EXERCISE:

OUTCOME FOR LEEDS – ‘PEOPLE OF DIFFERENT

AGES AND CULTURES HAVING MEANINGFUL

INTERACTION’

http://prezi.com/8ud7n4gwyprc/?utm_campaign=share&utm_medium=co

py&rc=ex0share

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EXERCISE:

MY ACTION TO MAKE LEEDS A MORE SOCIALLY

CONNECTED CITY

Fill in some details about yourself on one of the yellow strips.

On the other side write a pledge of some action you can take to make

Leeds a more socially connected city. This can be from your personal life,

related to an organisation that you are part of, or an action for the city as a

whole.

Once you have completed your slip make it into a link using one of the

paper clips provided. Then connect it up with the rest of your table to

make a chain.

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Close

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# u n l o n e l y leed s

Thank you for

coming