web e oncologia -...

WEB e Oncologia

Fabio Puglisi

Dipartimento di Oncologia Clinica, Centro di riferimento oncologico, Istituto Nazionale Tumori, Aviano

Dipartimento di Area Medica, Universit degli Studi di Udine

http://www.google.it/url?sa=i&source=images&cd=&cad=rja&uact=8&ved=0CAgQjRw&url=https://about.twitter.com/press/brand-assets&ei=Vpk-VLuNOISlygPGxYCQAQ&psig=AFQjCNHj4fZgrUHnikBn3cj00x13ge7qJg&ust=1413475031141815

The burden of cancer

A new cancer is diagnosed every 30 seconds in the United States

1000 new cases are diagnosed every day in Italy

https://training.seer.cancer.gov/disease/war/

Worldwide Internet users

http://www.itu.int/en/ITU-D/Statistics/Documents/facts/ICTFactsFigures2017

The origins of Internet: 1960 (ARPANET in US)Exponential growth: from the late 1980s onward

Worldwide Internet users

http://www.itu.int/en/ITU-D/Statistics/Documents/facts/ICTFactsFigures2017

Cancer Information on the Internet


Different points of view

1. The Oncologist. Keep up, stay sharp!

2. The Patient. Be informed to share decisions

2. The Patient. Looking for alternative medicine.

3. Two powerful lobbies

The supplement pill industry The media

...one of the most frustrating failings of human mind in its lilliputian capacity for storing and retriving important but infrequenty used informations....

Haynes B. Ann Int Med 1996

Is medical education continuing?

Medicine has a TL;DR problem (Too Long; Didnt Read)

It would take 20 hours of reading each day for the average physician to comb through everything published in their specialty.

Quanto spesso leggi un articolo scientifico, anche solo parzialmente?

Chart1

Categoria 1Categoria 1Categoria 1Categoria 1Categoria 1Categoria 1

Almeno una volta al giorno

Almeno una volta alla settimana

Almeno una volta al mese

Almeno una volta ogni 3 mesi

Almeno una volta all'anno

Mai

0.46

0.46

0.06

0.02

0.01

0

Foglio1

Almeno una volta al giornoAlmeno una volta alla settimanaAlmeno una volta al meseAlmeno una volta ogni 3 mesiAlmeno una volta all'annoMai

Categoria 146%46%6%2%1%0%

Per ridimensionare l'intervallo di dati del grafico, trascinare l'angolo inferiore destro dell'intervallo.

Quanto spesso leggi un articolo scientifico per intero?

Chart1

Categoria 1Categoria 1Categoria 1Categoria 1Categoria 1Categoria 1

Almeno una volta al giorno

Almeno una volta alla settimana

Almeno una volta al mese

Almeno una volta ogni 3 mesi

Almeno una volta all'anno

Mai

0.12

0.6

0.22

0.05

0.01

0.01

Foglio1

12Almeno una volta al giornoAlmeno una volta alla settimanaAlmeno una volta al meseAlmeno una volta ogni 3 mesiAlmeno una volta all'annoMai

Categoria 112%60%22%5%1%1%


Ritieni che i social media ti forniscano un aiuto nel tuo aggiornamento professionale?

Chart1

Completamente d'accordo

D'accordo

Neutrale

In disaccordo

Completamente in disaccordo

Non so

Colonna1

0.13

0.46

0.25

0.13

0.02

0.02

Foglio1

Colonna1

Completamente d'accordo13%

D'accordo46%

Neutrale25%

In disaccordo13%

Completamente in disaccordo2%

Non so2%

wwwhttp://http://www.oncotwitting.org/

Account Twitterhttps://twitter.com/ONcotwITting

Da marzo 2014ONcotwITting (ON.IT.)

http://http/www.oncotwitting.org/https://twitter.com/ONcotwITting


E-patients An e-patient is a health consumer who participates fully in

his/her medical care. E can stand for electronic, equipped, enabled, empowered,

engaged, and expert E-patients gather information using electronic communication

tools in coping with medical conditions.

The patients know more about their diseases than me. I must get faster modem, higher speed Internet access than them.

No game

Media misinformation

They undermine the publics

understanding of how we know if

something is good for us, or bad for us

Goldacre B. Lancet Oncol 2009

Wi-Fi

The Daily Mail Oncological Ontology Project

A blog following the Daily Mails ongoing mission to divide all the inanimate objects in the world

into those that cause or cure cancer

DivorceCoffee Toiletries

Red pepper

Liquorice

Coffee

Crusts

Resveratrol

Be careful with apparently contradictory claims

Side effects of contradictory claimsResults from a survey by WCRF

http://www.wcrf-uk.org

Chart1

Scientists always change their minds about healthy living advice

Because health advice seems to be changing, the best approach is to ignore it all and eat what you want

%

0.52

0.27

Foglio1

%

Scientists always change their minds about healthy living advice52%

Because health advice seems to be changing, the best approach is to ignore it all and eat what you want27%


How can I be sure that what I read on the web is true?

HONcodethe oldest and the most used ethical and trustworthy code for medical and health related information available on Internet.

Target audiences the general public the health

professionals the web publisher

http://www.airc.it/cancro/disinformazione/istruzioni-per-navigazione-sicura-internet/


Istruzioni per una navigazione sicura

Fidarsi soprattutto dei siti istituzionali (OMS, Ministero della Salute, Istituto superiore di Sanit, ecc.)

Accertarsi sempre che a rispondere sia un medico. (verificare sul sito della FNOMCeO)

Controllare la data a cui risale il documento. Verificare l'indipendenza del sito. Privilegiare chi fornisce riferimenti alla fonte originale

della notizia. Presenza dellHON-CODE

Mammograms bookings rose by 20% during

the 2-week peak

Impact of news of celebrity illness on breast cancer screening: Kylie Minogue's breast cancer diagnosis

Chapman S, et al. Med J Aust 2005; 183 (5): 247-250

Media coverage on the issue of breast cancer increased by

a factor of 20 Increase among

previously unscreened women was

101%

Media Coverage of Medical Journals

Top five newspapers by daily circulation The Wall Street Journal, USA Today, The New York Times, Los Angeles Times, San Jose Mercury Times

Top five clinical journals by impact factor (JCR 2011) The New England Journal of Medicine The Lancet JAMA, Annals of Internal Medicine, PLoS Medicine.

Do the best articles make the news?

Selvaraj E, et al. PLoS One 2014;9(1):e85355. doi: 10.1371/journal.pone.0085355

Newspapers preferentially cover medical research with weaker methodology

The media is more likely to cover observational studies and less likely to report RCTs than a reference of contemporary articles that appear in high impact journals. observational studies (75% vs. 47%, p

Different news coverage on scientific paper may encourage readers to draw dubious causal conclusions from observational data.

Statins cut mortality in cancer patients.

Statin-takers less likely to die from cancer.

Statins may lower risk of cancer death,

Regular statin use before and after a diagnosis of cancer could theoretically reduce cancer-related mortality.

The number of stories on T-DM1 were far fewer than the investigation of statins (77 and 311, respectively, per Google News Search on April 18, 2013).

The average reader may be eager to know

whether eating a diet heavy in red meat

increases cancer risk, no matter what methods

were employed.

The literature digest

Making order of several messages

Anche vivere cancerogeno.

Back up

The oncologist

Some advantages to be on facebook



Istruzioni per una navigazione sicura

Fidarsi soprattutto dei siti istituzionali di enti autorevoli (OMS, Ministero della Salute, Istituto superiore di Sanit, ecc.)

Accertarsi sempre che a rispondere sia un medico. In Italia c' la possibilit di verificare sul sito della FNOMCeO

Controllare la data a cui risale il documento. Verificare l'indipendenza del sito. Privilegiare chi fornisce almeno un riferimento alla fonte

originale della notizia. Presenza del codice HON-CODE, elaborato dalla Health on the

Net Foundation, che certifica l'adesione a una serie di linee guida di qualit dell'informazione medico scientifica online

WEB e OncologiaDiapositiva numero 2The burden of cancerWorldwide Internet usersWorldwide Internet usersCancer Information on the InternetDifferent points of viewDiapositiva numero 8Diapositiva numero 9Diapositiva numero 10Diapositiva numero 11Diapositiva numero 12Is medical education continuing?Diapositiva numero 14Diapositiva numero 15Diapositiva numero 16Diapositiva numero 17Diapositiva numero 18E-patientsDiapositiva numero 20No gameMedia misinformationThe Daily Mail Oncological Ontology ProjectResveratrolBe careful with apparently contradictory claimsSide effects of contradictory claimsResults from a survey by WCRFHow can I be sure that what I read on the web is true?Diapositiva numero 28Diapositiva numero 29Istruzioni per una navigazione sicuraImpact of news of celebrity illness on breast cancer screening: Kylie Minogue's breast cancer diagnosisMedia Coverage of Medical JournalsNewspapers preferentially cover medical research with weaker methodologyDiapositiva numero 34Diapositiva numero 35The literature digestMaking order of several messagesAnche vivere cancerogeno.Back upThe oncologistSome advantages to be on facebookDiapositiva numero 42Diapositiva numero 43Istruzioni per una navigazione sicura