1 from cause to movement shaping a world without alzheimer’s through advocacy, volunteerism,...
TRANSCRIPT
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From Cause to Movement
Shaping a World Without Alzheimer’s Through Advocacy, Volunteerism, Referral and Science
Ian Kremer, Esq.Advocacy & Outreach DirectorAlzheimer’s Association® National Capital Area Chapter
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Learning Objectives
Our nation no longer has the option to accept Alzheimer’s and related disorders
Health care professionals, consumers and the Alzheimer’s Association must collaborate to advance diagnosis, care and research
Our actions will accelerate science and change the trajectory of the Alzheimer epidemic
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From Cause to Movement
Necessity & Opportunity National Priority Transformative Change
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Alzheimer’s: the Silent Epidemic
5.4 million Americans have Alzheimer’s (including 200,000 with young onset)
14.9 million unpaid family caregivers Alzheimer’s is the only top-10 cause of death
without a known way to prevent, slow or cure Unless we change the trajectory,13-16 million
Americans will have Alzheimer’s by mid-century
5 Source: Hebert et al. (2001). Alzheimer Disease
Associated Disorders, 15(4), 169-173.
377 411454
491615
820
959
0
200
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1995 2000 2010 2020 2030 2040 2050
Year
New
Cas
es in
Th
ousa
nd
sEstimated Number of New Alzheimer’s Cases
(In Thousands)
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Alzheimer’s Disease Impact on Baby Boomers
One in six women and one in ten men age 55 and older can expect to develop Alzheimer’s disease.
One in eight people over age 65 have Alzheimer’s
One in two people over age 85 have Alzheimer’s
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News You Can (and Must) Use
Early Detection, Proper Diagnosis & Documentation Sharing the News with Patient/Family Referral to Community Resources Participation in Clinical Trials Collaboration with Alzheimer’s Association Advocacy
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Alzheimer’s Disease:Course, Prevention, Treatment Strategies
Disease ProgressionDisease Progression
No DiseaseNo DiseaseNo SymptomsNo Symptoms
Early BrainEarly BrainChangesChangesNo No SymptomsSymptoms
AD Brain AD Brain ChangesChangesMild Mild SymptomsSymptoms
Mild,Mild,Moderate, orModerate, orSevere Severe ImpairmentImpairment
NormalNormal ADADPre-Pre-
symptomatic symptomatic ADAD
Mild Mild Cognitive Cognitive
ImpairmentImpairment
SecondarySecondaryPreventionPrevention TreatmentTreatmentPrimaryPrimary
PreventionPrevention
Clinical Clinical StateState
BrainBrainPathologic Pathologic StateState
Clinical Clinical StateState
InterventionIntervention
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Treatment Outcomes in Alzheimer’s Disease
Time
Fu
nc
tio
nal
ab
ility
Slowing of diseaseprogressionTreatment
Symptomaticbenefit
Maintenance of function
Cure
Natural Progression
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Alzheimer’s Association TrialMatch™
Free, easy to use service Preview over 100 studies related to MCI,
Alzheimer’s and related disorders Match specific profiles of patient diagnosis,
clinical history and location with study criteria
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Medical Community Collaboration
Purple Envelope Project Physician Outreach Project [email protected] or 703-766-9018
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Advocacy Goals
Alzheimer’s Breakthrough Act HOPE for Alzheimer’s Act
(Health Outcomes, Planning & Education) National Alzheimer’s Project Act
(implementation input napa.alz.org)
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Our Vision:A World Without
Alzheimer’s
www.alz.org/nca
1.800.272.3900