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Page 1: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

2015 Pacific South Coast Chapter Annual Report

Page 2: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

ANOTHER BANNER YEAR

Page 3: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

WELCOME!Dear Friends,

On behalf of the National Multiple Sclerosis

Soicety, Pacific South Coast Chapter, we

are proud to present our 2015 Annual

Report. Achievements of last year reflect

the steadfast commitment of a collective of

passionate individuals and organizations

that are working together and building

connections – connections that raise

awareness of MS and the crucial support

needed to stop MS, restore lost function and

end MS forever.

The women and men who face the

challenges of living with MS with humor,

determination and hope continually

inspire us. We are equally inspired by the

generosity of our donors, whose gifts support

the chapter’s programs and services that

improve lives today and the promising

research that will one day lead to a cure.

Thank you to every donor, volunteer and

champion of this cause. U.S. Olympic gold

medalist and civil rights activist Wilma

Rudolph said, “Never underestimate the

power of dreams and the influence of the

human spirit.” Your influence has made

a significant impact – let’s continue our

momentum by taking advantage of every

opportunity to connect and making every

connection count. Together our dream of a

world free of MS will become a reality.

With appreciation,

Richard V. Israel

President

Cynthia Perazzo

Board Chair

Page 4: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

iv | 2015 SOCIETY LEADERSHIP CONFERENCE

ONLINE & MOBILEGET CONNECTED

GET SOCIALJoin our social family! We can be found in a number of places:

• youtube.com/MSpacific

• facebook.com/MSpacific

• instagram.com/pacsouthcoastMS

Share your story with your friends, family and colleagues. Use the hashtag #MSpacific on Facebook, Twitter, Instagram and Pinterest to share your experience.

GET ONLINEConnect with others affected by MS at MSconnection.org or visit the chapter’s website to learn about upcoming programs and events at MSpacific.org or nationalMSsociety.org.

Page 5: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

#MSleadership | v

WHAT’S INSIDEPrograms & Services ...................................................................................................................................2

Volunteer Engagement ...............................................................................................................................4

Fundrasing Events ......................................................................................................................................6

Advocate for Change ..................................................................................................................................8

Research Progress .................................................................................................................................... 10

2014-2015 Financials ................................................................................................................................ 14

Board of Trustees .................................................................................................................................... 15

Calendar of Events ................................................................................................................................... 16

Volunteers of the Year .............................................................................................................................. 18

Mission Possible ....................................................................................................................................... 22

Foundation Support ................................................................................................................................. 24

Lawry Circle ............................................................................................................................................. 25

Golden Circle ............................................................................................................................................ 26

Thank You to Our Sponsors ...................................................................................................................... 28

2 0 1 5 A N N U A L R E P O R T | 1

Page 6: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

2 | 2015 SOCIETY LEADERSHIP CONFERENCE

WE DEVELOP, DELIVER AND LEVERAGE RESOURCES TO ENHANCE CARE FOR PEOPLE WITH MS AND QUALITY OF LIFE FOR ALL THOSE AFFECTED BY THE DISEASE.

PROGRAMS & SERVICES

2 | 2 0 1 5 A N N U A L R E P O R T

Page 7: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

#MSleadership | 3

This year, we provided in-person or virtual education to 7,300 people living with MS in Orange, San Diego, and Imperial counties and the Hawaiian Islands. Over 2,300 members participated in one of our programs, self-help support groups or physical wellness classes, or received our services.

2015 HIGHLIGHTS

• We fielded over 2,650 local requests for information and/or referrals.

• Four issues of the MSConnection, our quarterly magazine, were sent to 68,000 total recipients and more than 200,000 email recipients.

• Over $169,000 in direct financial assistance was provided to over 200 people for grants for independence, modifications for homes, hand controls for cars, utility relief during the hot summer months, emergency assistance to avoid homelessness, transportation assistance, equipment assistance, and respite care.

• Ten healthcare providers started Walk MS teams, recruiting a total of 380 walkers and raising over $78,000 for the 6th Annual Healthcare Partner’s Challenge.

• The chapter received a pilot grant allowing people with MS to access flights for medical care on Oahu from the neighbor islands.

2 0 1 5 A N N U A L R E P O R T | 3

Page 8: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

4 | 2015 SOCIETY LEADERSHIP CONFERENCE

WE ARE LEADERS IN A WORLDWIDE MS MOVEMENT MOBILIZING MILLIONS OF PEOPLE TO DO SOMETHING ABOUT MS

VOLUNTEER ENGAGEMENT

4 | 2 0 1 5 A N N U A L R E P O R T

Page 9: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

#MSleadership | 5

None of the accomplishments this year could have happened as they did without the engagement of talented, hardworking, generous volunteers. The National MS Society embraces, values, and recognizes every contribution. With the help of volunteers, we stretch our donor dollar and build a stronger organization. We partner with volunteers every day, at every level, and with every project. In 2015 alone, we had over $1.1 million in donated volunteer time.

2015 HIGHLIGHTS

• 350 people served as leadership volunteers, leading over 3,894 individuals serving as volunteers.

• 482 volunteers supported the MS movement through other events like the Chapter’s Volunteer Days, the Rock ‘n’ Roll Marathon, the Farmer’s Insurance Golf Tournament, and more!

• People with MS received support by attending one of our 30 self-help groups (led by over 40 volunteers).

• The local MS Action Alert Network was activated this year, reaching out to more than 1,700 volunteers who are telling their stories to public officials. 552 people took action on six Action Alerts this year.

• We engaged nearly 12,300 walkers, cyclists, or other event participants, who advanced MS awareness and raised vital funds.

VOLUNTEER ENGAGEMENT

2 0 1 5 A N N U A L R E P O R T | 5

Page 10: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

6 | 2015 SOCIETY LEADERSHIP CONFERENCE

WE DEVELOP AND ALIGN BUSINESS AND FINANCIAL RESOURCES TO ACHIEVE BREAKTHROUGH RESULTS.

FUNDRAISING EVENTS

6 2 0 1 5 A N N U A L R E P O R T

Page 11: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

#MSleadership | 7

The Society met its goal to raise $250 million by the end of 2015 to create a world free of MS. Economic challenges or not, the Society’s donors and fundraisers gave generously to support Society programs and services, and research to find the cause and cure for MS.

2015 HIGHLIGHTS

• 2,041 people cycled and raised over $2 million at the Bike MS Bay to Bay Tour. Participants enjoyed riding 25, 100 or 150 miles over 1 or 2 days from Irvine to San Diego. The Tour was also voted the “Best Cycling Event” by readers of Competitor magazine for the eighth year. Bike MS: Go Big or Go Home in Hawaii raised over $53,000 with 92 participants.

• 680 guests helped raise $523,000 at the 29th Annual MS Dinner Auction sponsored by Pacific Wealth Management held at the Loews Coronado Bay Resort. The Hawaii MS Dinner Auction raised nearly $40,000 with 100 guests this year.

• At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and 550 teams raised over $1.4 million for San Diego County Credit Union Walk MS and Walk MS Irvine, presented by Fish & Tsang. Over 680 participants and 51 teams also joined together to raise more than $89,000 at Walk MS events in Hawaii.

• At the La Jolla Country Club, $210,000 was raised by 128 players at the Golf MS Invitational.

• In it’s second year, Bubbles & Brunch to End MS was held at the Balboa Bay Resort with 250 attendees raising $101,000.

• Challenge Walk MS raised over $441,000 with 262 walkers.

• Do It Yourself (DIY) Fundraising brought 20 community-supported events to the chapter, raising nearly $84,000. The events, created & implemented by community members, included the Hit an Ace for MS Tennis Tournament, Softchoice Cares Golf Tournament, and Zippy’s point of sale promotion.

2 0 1 5 A N N U A L R E P O R T | 7

Page 12: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

8 | 2015 SOCIETY LEADERSHIP CONFERENCE

WE ARE ACTIVISTS.

ADVOCATE FOR CHANGE

8 | 2 0 1 5 A N N U A L R E P O R T

Page 13: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

#MSleadership | 9

The 24th Annual Public Policy Conference took place in Washington D.C. March 9 - 11. Over 300 MS Activists conducted nearly 400 legislative visits with U.S. Senators, Representatives and their staff members to discuss the following important issues:

• Advancing Research for Neurological Diseases Act (S. 849/H.R. 292)/ 21st Century Cures Initiative

• Ensuring Access to Quality Complex Rehabilitation Technology Act (H.R.1516)

• Funding for MS Research through the Congressionally Directed Medical Research Program (CDMRP) and the National Institutes of Health (NIH).

MS researchers joined Society leaders and activists on key visits to provide the scientific perspective and the value and promise of their research, illustrating the need to support significant issues.

At the state level, 27 State Action Days were scheduled in 2015 and MS activists’ impact was felt across the country. Progress was made on

legislative priorities, bills were signed into law by Governors, and important personal connections to MS were identified.

In California, on the 5th Anniversary of the Affordable Care Act, 32 MS Activists advocated for greater healthcare reimbursement cost, transparency and network adequacy-- including controlling out of pocket costs for prescription drugs. Additionally, over 550 digital advocacy volunteers took action through advocacy alerts sent throughout the year.

We also held the Advocacy 101 webinar in the month of May to engage more people in advocacy and teach them how they can spark direct action and influence their elected officials to make real policy change.

ADVOCATE FOR CHANGE

2 0 1 5 A N N U A L R E P O R T | 9

Page 14: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

10 | 2015 SOCIETY LEADERSHIP CONFERENCE

WE ARE A DRIVING FORCE OF MS RESEARCH & TREATMENT TO STOP DISEASE PROGRESSION, RESTORE FUNCTION, AND END MS

RESEARCH PROGRESS

1 0 | 2 0 1 5 A N N U A L R E P O R T

Page 15: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

#MSleadership | 11

Important research progress occurred in 2015, offering new leads toward our vision of a world free of MS. We continue to pursue all promising paths to uncover solutions, wherever those opportunities exist, with special focus on progressive MS, nervous system repair, lifestyle/wellness and genes/environment.

The results of previous Society investments continue to mount, and we are committed to growing our research funding even further. In 2015 the Society invested over $53 million in 380 new and ongoing research projects and initiatives. Here is a brief summary of significant 2015 research progress:

STOPPING MS

• Positive results were reported from three phase 3 trials of an experimental therapy called ocrelizumab (Genentech, a member of the Roche Group), showing positive impacts in relapsing MS and, for the first time in a large-scale trial, a modest impact in primary progressive MS.

• The Society collaborated to convene a scientific workshop to set research priorities for understanding how co-morbidities (other medical conditions) impact MS severity and clinical trial outcomes, and to explore implications for program development.

• A new study uncovered a gene variation linked to response to MS therapy, which may open new treatment approaches with further research toward the important goal of personalized medicine in MS.

• The first generic version of daily Copaxone® (glatiramer acetate), branded “Glatopa” (by Sandoz, a Novartis company, developed in collaboration with Momenta Pharmaceuticals), was approved by the FDA and distribution began by Sandoz in June. Additional generics of this therapy are expected soon.

• Scientists at the University of Virginia uncovered evidence of a previously unrecognized network of vessels that facilitate immune system activity in the brain. The team showed evidence of this network of “lymphatic vessels,” in both mice and people. Further research is

needed to understand how and whether

lymphatic vessels play a role in MS, and

whether they present new opportunities

for stopping MS disease activity.

• Results were published from a Phase 3 Trial of daclizumab high-yield process (Zinbryta™) in relapsing MS, showing it could significantly reduce relapse rates and disease activity observed on MRI scans over the course of 2 to 3 years. (Biogen and AbbVie have applied to regulatory agencies in the U.S. and Europe to obtain marketing approval to treat people with MS.)

• The 2015 John Dystel Prize for MS Research went to Prof. Alastair Compston (University of Cambridge) for driving breakthroughs in therapeutic immunology and genetics.

2 0 1 5 A N N U A L R E P O R T | 1 1

Page 16: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

12 | 2015 SOCIETY LEADERSHIP CONFERENCE

RESTORE AND REPAIR

• Promising results were reported from a phase 2 clinical trial of the leading myelin repair strategy called anti-LINGO (Biogen). The agent was given by monthly IV infusion for 20 weeks to 82 people who had a first episode of optic neuritis (which often precedes a confirmed diagnosis of MS). Those given anti-LINGO had faster nerve signals – thought to be an indicator of myelin repair – along the optic nerve compared to those on placebo.

• The Society collaborated to convene the International Conference on Cell-Based Therapies for Multiple Sclerosis in Lisbon in November 2015, gathering more than 70 experts to discuss the state of cell therapy and possible next steps to drive comprehensive research and collaborations, and to develop clinical trial designs to provide timely answers to the question of which cells and approaches show most promise for treating people with MS.

• Researchers funded by the Society discovered novel stem cells residing in the brain, and found a way to stimulate the cells to repair myelin in mice with an MS-like disease. The Society, through Fast Forward, has partnered with the team to develop a potential therapy for MS based on these findings.

• Results were reported from a series of individuals with MS treated experimentally with immune-suppressing therapy followed by transplantation of blood stem cells (also known as HSCT),

aiming to “reboot” the immune system. Improvements were reported in disability scores and reduced disease activity in some with relapsing MS with disease durations of 10 or fewer years, but not in those with secondary progressive MS or people with greater disease duration. Controlled trials are needed to understand the full benefits and risks, and at least one is underway. Read more about stem cells and MS

• Canbex Therapeutics leveraged Society seed funds (through Fast Forward) to attract financing for a phase 2 clinical trial of a potential therapy for MS-associated spasticity.

• Drs. Laura Balcer, Peter Calabresi and Elliot Frohman won the 2015 Barancik Prize for Innovation in MS Research for producing ground-breaking research focused on the anatomy and biology of the retina and other structures of the eye in people with MS, and applying optical coherence tomography (OCT), a common and easy-to-use eye scanning technique, to study

MS and to potentially speed clinical trials.

ENDING MS FOREVER

• Researchers at McGill University reported that people with gene variations linked to low vitamin D had double the chance of getting MS, confirming previous links between vitamin D and the risk of MS. Trials are underway to determine whether taking vitamin D supplements can help treat MS in people who already have the disease.

1 2 | 2 0 1 5 A N N U A L R E P O R T

Page 17: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

#MSleadership | 13

• The Society-funded expansion of the Pediatric MS Network to 12 centers with the addition of 3 new sites to enhance research capacity. Leveraging Society support, the Network is engaged in research to better understand the cause(s) of MS, how best to treat children with MS, and clues for preventing the disease for everyone at risk.

• Australian researchers reported that previous infection with Helicobacter pylori (which has been linked to stomach ulcers) was associated with a lower risk of developing MS in women, and less severe disability among those women who developed the disease. More research is needed to determine if this association means that H. pylori itself can trigger MS.

• Researchers co-funded by the Society reported that higher levels of the internal-clock hormone melatonin were linked with lower relapse rates in people living with MS. While there is still not enough evidence to recommend supplementation with melatonin, this observation helps to explain some of the seasonal variation in MS symptoms and could lead to new strategies for treatment.

• The MS Microbiome Consortium reported early findings from an analysis of blood and stool samples from people with MS treated with glatiramer acetate, untreated individuals, and people without MS. Results showed differences in gut bacteria between these groups. The team has a new Society Collaborative MS Research Center Award to pursue this and other promising research.

• A team from Germany reported that short-chain fatty acids in the diet promote the development of immune cells that can regulate the attack on the brain and spinal cord in an MS-like disease in mice, but only in the presence of gut bacteria. These findings lend evidence to the potential importance of diet in MS and opens new possibilities for developing diet-based

treatments to help manage MS.

• Society-supported researchers found that MS-like disease in mice responded differently to a high salt diet, depending on their genetic makeup and gender, offering a clue to understanding whether reducing salt can inhibit MS immune attacks.

• Results from two lab studies in the U.S. and Europe suggested that high levels of salt shift the balance of the immune system toward inflammation, and that salt alters the function of several types of immune cells pertinent to MS. The U.S. team is conducting a pilot clinical trial to explore the impact of high- and low-salt diets on MS disease activity.

2 0 1 5 A N N U A L R E P O R T | 1 3

Page 18: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

14 | 2015 SOCIETY LEADERSHIP CONFERENCE

2014-2015 FINANCIALS

REVENUE : $5,748,736 Special Events: $4,483,943

Legacies & Bequests: $327,215

Contributions: $940,502

Other Revenues: ($2,924)

EXPENSES: $6,405,499 Member & Professional Services: $3,383,549

Research & National Programs: $1,576,794

Fundraising & Management + General: $1,445,156

1 4 | 2 0 1 5 A N N U A L R E P O R T

Page 19: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

#MSleadership | 15

Texas Ballroom I

Texas Ballroom H

Texas Ballroom G

2 0 1 5 A N N U A L R E P O R T | 1 5

EMERITUS

Dawn Beattie

Pat Brown

Patrick Connors

Richard Hausman

Robert Melucci

Michael Smoger

TRUSTEES

Phil Bresnick

Barry Clarkson

Jody Corey-Bloom, MD PhD

Paul Dechary

Cecelia Garr

Rick Hausman

Charlotte Hayes

BOARD CHAIRCynthia Perazzo

EXECUTIVE BOARD

Tim Holl

Jim Kesaris

Mark Malbon

Justin Reckers

Chris Serocke

Rick Herschberg

Selina Hudgins

Greg Joumas

Jim Kesaris

Nick Locke

Nan Luke

Mark Mahigian

Penny Martin

Barbara Katz

Jay McCabe

Ally McGrory

Samir Mehta

John G. Most

Lizbeth Najm

Troy Parish

Jim Ponder

Kimberly Roush

Jerry Sanders

Suzanne Schulman

Karen Sedgwick-Tyler

Ari Segal

Norv Turner

Annaliese Train

Diana Twadell

Diane Ward

ADVISORY BOARD

Ellie Barnard

Bill Bisch

James Brown

Gina Cunningham Daley

Pam Fair

Lewis Finkelstein

Ronald Fowler

Francie Mortenson

Thomas Page

Beth Philion

Nancy Rossi

Jerry Sweeney

Blake Von Sprecken

Alice Zamboni

BOARD OF TRUSTEES

Page 20: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

16 | 2015 SOCIETY LEADERSHIP CONFERENCE

CALENDAR OF EVENTSOCTOBER 2014

4 Moving Forward: Programs for the Newly

Diagnosed

8 Scripps Lecture Series: Managing Cognitive

Challenges

11 Knott’s Berry Farm Family Fun Day

16 The Zombie Run, Keopuolani Park, Maui

18-19 Bike MS: Bay to Bay presented by Hansen’s

Beverage Company

25 Muckfest MS

November 2014

1 Kaiser MS Symposium

12 Orange County Office Open House

18 Teleconference: Tips for People with MS &

Their Partners “Planning for the Future”

19 UCI Lunch & Learn

20 Teleconference: Tips for People with MS &

Their Partners “Planning for the Future”

21 MS Dinner Auction, sponsored by Pacific

Wealth Management

December 2014

13 Annual Sycuan Family Holiday Party

January 2015

20 Telelearning: MS Research

22 Telelearning: MS Research

31 Annual Meeting of Members

February 2015

7 Moving Forward: Program for the Newly

Diagnosed

12 Telelearning: MS Employment Part 1

26 Telelearning: MS Employment Part 2

March 2015

2-8 MS Awareness Week

12 Telelearning: MS Employment Part 3

17 Telelearning: Managing MS Bladder & Bowel

Symptoms

19 Telelearning: Managing MS Bladder & Bowel

Symptoms

19 MS Symposium

26 Telelearning: MS Employment Part 4

1 6 | 2 0 1 5 A N N U A L R E P O R T

Page 21: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

#MSleadership | 17

April 2015

4 Walk MS: Kauai

10 Water Walk MS: Orange County

11 Walk MS: Irvine sponsored by Fish & Tsang LLP

18 Walk MS Maui

19 Walk MS: Carlsbad sponsored by San Diego County

Credit Union

24 Water Walk MS: San Diego

25 Walk MS: San Diego sponsored by San Diego

County Credit Union

25 Walk MS Honolulu

29 Boys’ Night Out

May 2015

2 Walk MS: Hilo

4 MS Golf Invitational sponsored by Torrey Pines

Bank

9 Moving Forward: Program for the Newly Diagnosed

16 Day at the Bay, Mission Bay

27 World MS Day

June 2015

6 Symptom Management: Kona

Symptom Management: Hilo

7 Walk MS: Kona

July 2015

11 Orange County MS Symposium

21-23 Gender Differences in MS Telelearning

FUELING IMPACT 17

August 2015

1-2 Bike MS: Go Big or Go Home!

12 Scripps Lecture Series - Exercise & Nutrition

15 Moving Forward: Programs for the Newly

Diagnosed

29 Bubbles & Brunch to End MS, sponsored by Biogen

SEPTEMBER 2015

15 & 17 Preparing for MS Doctor Visits Telelearning

25-27 Challenge Walk MS

26 MS Dinner Auction Hawaii

30 Boys’ Night Out

2 0 1 5 A N N U A L R E P O R T | 1 7

2014-2015ACTIVITIES

Page 22: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

18 | 2015 SOCIETY LEADERSHIP CONFERENCE

Heidi Parish has participated in the

Challenge Walk for nine years, with her

husband, Troy who has participated for five

years and their daughter, Maclaine for two

years. Troy Parish has been a leader for the

MS Golf Invitational for seven years. This

year, Maclaine served as an Intern at the

San Diego office during summer 2015.

“My favorite memory from this year”, says

Heidi “was when Maclaine gave a speech

at the Challenge Walk MS evening program

dinner. Tears were brought to my eyes as

she spoke on why she walks in the three day

event. Because we are personally impacted

by the disease, we want to eliminate it for

all of those affected by MS.”

“The Challenge Walk MS is a perfect example

of how together, we are stronger”, says Troy.

“Participating in Challenge Walk MS was

the turning point of our involvement with

the Society. Before Heidi’s first Challenge

Walk MS, she was very nervous and hesitant

to discuss her disease with others. Being

together with others impacted by MS,

sharing stories throughout the three day

event has made her more comfortable and

stronger in her ongoing fight against MS.”

VOLUNTEERS OF THE YEARChapter Star Volunteers of the

Year

The Parish Family

Troy, Heidi, Maclaine and Delany

1 8 | 2 0 1 5 A N N U A L R E P O R T

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2 0 1 5 A N N U A L R E P O R T | 1 9

2015 Pacific South Coast Chapter Volunteers of the Year

Wellness Partner of the YearYogaworks

Media Partner of the YearSan Diego Business Journal

Corporate Champion of the Year

Softchoice Cares

Outstanding Partnership Award

Merrill Lynch Wealth Management

Outstanding Corporate Partner

Melissa’s Produce

Student Organization of the Year

Alpha Phi Omega San Diego State University

Medical Support Volunteers of the Year

Renee and Scott Limpus

Bubbles & Brunch to End MS Volunteer of the Year

Annaliese Train

Service Provider of the YearLee Sachtschale

Activist of the Year Phil Arcara

Office Volunteer of the YearLizbeth Najm

Event Volunteer of the YearKathi Nardozza

Student Volunteer of the Year

Sam Gherrity

State Legislator of the YearAssemblymember

Toni G. Atkins

Connection Group Leader of the Year

Van Reeder

Passion for the Mission Volunteers of the YearKelly & Andrew Ezzard

Media Volunteer of the YearMitch Murphy

Page 24: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

20 | 2015 SOCIETY LEADERSHIP CONFERENCE 2 2 | 2 0 1 5 A N N U A L R E P O R T

MISSION POSSIBLE

The Mission Possible Club is committed to the cause, care, and cure for MS.

They have given or raised $10,000 or more to impact the lives of people living with MS.

Dr. Jody Corey-Bloom

$10,000

Glenn Arnold $10,000

Harry Cheshire $10,000

Kristyn Evan $10,000

Don & Nancy Swearingen $10,000

Marcia Tilker $10,000

Sempra Energy Giving Network $10,000

Beckman Coulter Foundation $10,000

Pro Players Foundation $10,000

A Little Help Foundation Fund $10,000

Datron World Communications Inc c/o Fidelity Charitable Gift Fund

$10,000

HMSA Foundation $10,000

Darren Williams $10,000

Faheem Hasnain

$10,000

Kevin, Hilderman $10,015

Tim & Leah Salmon $10,090

Lizbeth Najm $10,100

Steve Malloy $10,106

Tim & Kristin Zandbergen $10,150

Marty Taylor $10,195

Angela Genin $10,340

Suzanne Shepela $10,490

Mike Wolff $10,525

Tim Bockhold $10,550

Christopher Steiger $10,675

Douglas Loreman $10,915

Joyce Savage

$10,970

Mark, Neilson $11,061

Christian & Lina Waage $11,090

Ken Tudhope $11,201

Mark Fischer $11,205

Colleen Brown & Erin Stonestreet $11,295

Peter & Diane Albini $11,301

James & Ellen Beshears $11,556

Vincent Harden & Alice Diaz $11,615

David Brooks $11,667

Bob Ott $11,861

Doug & Denise Regnier $11,885

Keith & Kristi Sherwood $11,965

Natalie Eansor $11,995

2015MEMBERSMISSION POSSIBLE

Page 25: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

#MSleadership | 21 2 0 1 5 A N N U A L R E P O R T | 2 3

2015MEMBERS

Dan Fischer $12,000

Jas & Lisa Arnold $12,000

Bob Moore $12,100

Kimberly Roush $12,100

Glenn & Rory Egger $12,312

Bart Evans $12,495

Ron & Guadalupe Cohn $12,528

Mark Malbon $12,540

Nick & Ruth Tsoulos $12,740

Tricia Bothmer $13,200

Matthew & Tiffany Birkett $13,277

Brian Grey $13,283

Barbara Katz $13,391

Phil & Arlene Bresnick

$13,589

Escondido Sunrise Rotary Club $14,400

Daniel Abrams $14,656

Change a Life Foundation $14,875

Michael Newton $15,000

Grossmont Healthcare District $15,000

Don & Ellen Goodwin $15,030

Diana Twadell $15,625

Ed & Ruth Evans $15,645

Jim Ponder $16,060

Pam Fair & Glen Sullivan $17,025

Jeff & Sheila Parker $17,055

John G. & Jodi Most $18,816

Mylan Inc. $19,435

Softchoice Cares $19,956

Alan & Mildred Peterson $20,000

Sunwest Bank Charitable Fund $20,000

Bob & Jeanne Woodard $20,400

Dawn Beattie $20,816

Cindy Roper $21,265

Jay & Tina McCabe $21,427

Troy & Heidi & Maclaine Parish $21,475

Ed Clark $21,745

Jeffrey Walsworth $23,435

Chris & Joyce Serocke $25,333

Anne Allen $25,646

Rona Kay $25,981

Jack & Terry Babbitt $29,766

Bill & Kristi Bisch $36,770

Doug & Nancy Barnhart $38,100

Paul & Amy Dechary $39,750

Zippy’s $41,300

Douglas Peterson $42,663

McGrory Family Fund $48,192

Victor J. & Dorothy J. Hawthorne Survivor’s Trust

$50,000

Anonymous $50,000

Al & Casey Basso $55,107

Judy Zankel Fund $60,000

Dick & Lynn Gordon $70,373

Anonymous $100,000

Edward S. Arnold Estate $179,922

MISSION POSSIBLE

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22 | 2015 SOCIETY LEADERSHIP CONFERENCE 2 4 | 2 0 1 5 A N N U A L R E P O R T

FOUNDATION SUPPORTMany thanks to the following foundations & trusts who provided grants in 2015.

Beckman Coulter Foundation, $10,000

MS Research at UCI and Dr. Lutz Postdoctoral Fellowship

Covidien Cares, $6,240 Adaptive Wellness Programs in San Diego County

Cushman Foundation, $3,500

Adaptive Wellness Programs in San Diego County

CSA San Diego Unified School District, $800 MS Connection Newsletter

Disneyland VoluntEARS Community Fund, $5,000 Holiday Turkey Delivery Program

Dr. Seuss Foundation, $2,500 Sycuan Annual Holiday Party

Edison International, $5,000

Moving Forward Program and OC MS Symposium

Enterprise Holdings, $1,000 Transportation Financial Assistance

Employees Community Fund of Boeing California, $7,500 Caregiver Support Services

Samuel I. and John Henry Fox Foundation, $3,900 Local Programs & Services in San Diego County

Friends of Hawaii Charities, Inc., $1,000 Financial Assistance Program

O.L. Halsell Foundation, $5,000 The Carol & Bob Webster Memorial Scholarship Fund

HMSA Foundation, $10,000 Hawaii Expansion Project

Insperity, $1,000

Financial Assistance Program

Judy Zankel Fund, $30,000 Respite Care Program

McGrory Family Fund, $10,000 Financial Assistance Program

Morgan Stanley, $2,000 Financial Assistance Program

National Charity League, $600 MS Connect iPad Project

Sempra Energy Giving Network, $10,000 Adaptive Aquatics Programs in San Diego County

Softchoice Cares $4,900 Product donation, MS Connect iPad Project

Sunwest Bank Charitable Foundation, $20,000 Financial Assistance Program

Women of St. James By the Sea Epicopal Church, $5,000 Summer Energy Assistance Program

Walter J. and Betty C. Zable Foundation, $5,000 The Carol & Bob Webster Memorial Scholarship

Program

Page 27: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

#MSleadership | 23

The Lawry Circle is comprised of generous and caring individuals who know that the quest for a world free of MS must continue. It honors donors who have informed the Society of their intention to help create a better future for the MS community through a gift in their will, trust, or estate plan.

LAWRY CIRCLE

Karen Adam

Taryl Andersen

Rena Bareham

Dawn Beattie

Eric Beck

Ellen Beshears

Bill Bisch

Phil Bresnick

Stephanie Butcher

Robert Cima

Dr. Jody Corey-Bloom

Elaine Danny

Douglas Danny

Heather Dean

Janice Donaldson

Ruth & Ed Evans

Erich Foeckler

Cecelia Garr

Jennifer Gaylord

Shirley Gilmore

Sharon Glickman

Robert Goldberg

Kimberly Gramling

Linda Greenwood

Norman Harris

Charlotte Hayes

Carol Hedwall

Louise Heffner

Cheryl & Bill Hile

Tim & Erin Holl

Karen Hooper

Linda Ingram

Irani Family Trust

Jessica Ishikawa

Richard V. Israel

Sarah Janssen

Greg Joumas

Niki Kammer

Barbara Katz

Marilyn Klein

Richard Klein

Gary Klein

Robert Kronenbitter

Nan Luke

Peter MacCracken

Penny Martin

Rachel Mathews

Robert Mauer

Marilyn McAvoy

Brenda Meyer

RD Meyer

Melissa Miller

Diane Nelson

Lynn Nelson

Darrell Netherton

Gil Ortega

Guadalupe Pedroza

Justin Reckers

Rose Rick

Suzanne Schulman

Renata Sahagian

Allan Shaw

Linda Shaw

James Smith

Alan Suding

Mary Suding

Jenny Tumin

Robin Turner

Diana Twadell

Kristin Vance

Carol Vanderree

Arthur Vanderree

Patricia Walkenbach

Jennifer West

Jaclyn Wexler

Christine Wiley

Penelope Williams

Martha Woodworth

Cynthia Young-Moreno

Peter Zarcades

2015MEMBERS

2 0 1 5 A N N U A L R E P O R T | 2 5

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24 | 2015 SOCIETY LEADERSHIP CONFERENCE

The Golden Circle was created in 1993 as the Pacific South Coast Chapter’s elite annual giving campaign recognizing annual gifts of $1,000 or more. Since that time, individuals, foundations and corporations have contributed millions of dollars to help create a world free of MS.

GOLDEN CIRCLE 2015MEMBERS

A Little Help Foundation Fund

Noah Auerhahn

John Barnes

Doug & Nancy Barnhart

Beckman Coulter Foundation

Betty Berni

James & Ellen Beshears

Vicky Biggins

Matthew & Tiffany Birkett

Bill & Kristi Bisch

Paul Brailsford

Frank Brenner

Philip & Arlene Bresnick

Morris & Hannah Brown

Racquel Bueno

Douglas Campion

Jeff & Tia Cassett

Change a Life Foundation

Christ Chialtas

Barry & Debra Clarkson

Ronald & Guadalupe Cohn

Aaron Cohn

Frank & Helen Comerford

Conrad N. Hilton Foundation

Dr. Jody Corey-Bloom

Covidien Cares

John Creel

Curci Family Foundation

Cushman Foundation

Doug Dahmer

Joan Damask

Paul & Amy Dechary

Kathleen Denny

Disney VoluntEARS Community Fund

Michael Dittbenner

Beverly Dyer

Stephen Easley

Edison International

Dr. George & Elizabeth Ellison

Enterprise Holdings Foundation

Jill Esrock

Paul & Mimi Extance

Pam Fair & Glen Sullivan

Randy Finch

Erich Foeckler

Paul & Rita Frohna

Cecelia Garr

Dr. Rand & Carol German

Don & Ellen Goodwin

Nancy Grondhuis

Grossmont Healthcare District Foundation

Omar & Nazish Hamid

Shirley & Mel Harrier

Rich Henry

David Hillman

Steve Hilton

Leonard Hirsch

Michael Hirt

HMSA Foundation

Don Hoeksema

Skip & Judy Hogan

Tim & Erin Holl

Ron & Karen Hooper

Zdenek Hostomsky & Zuzana Hostomska

Kenneth Hullings

Jason & Ashley Hutchison

Insperity

Richard & Michelle Israel

Hal Jacobs

Sarah Janssen

Greg Joumas

Judy Zankel Fund

Justine B. Fenton Foundation

Tom & Julie Karlo

Barbara Katz

Marilyn Katzman

Dan & Patricia Keefe

Tom & Clare Keller

Melinda King

Dan & Sheri Kleeburg

Richard & Marilyn Klein

Walter Knox

Patrick & Bo Lee

Carol & Carl Lewis

Jeffrey & Sheila Lipinsky

Nick & Cindy Locke

Barrett & Francis Lossing

Roberta Lott

Nan Luke

Mark & Ginny Mahigian

Al & Ellen Majewski

Ray McAfoose

2 6 | 2 0 1 5 A N N U A L R E P O R T

Page 29: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

#MSleadership | 25

2015MEMBERS

Jay & Tina McCabe

Carol McCallum & Susan Sadowski

Bill & Kristi McCune

John McDonough

McGrory Family Fund

Samir & Sonal Mehta

Milton & Henrietta Kushkin Fund

Miracle Foundation Fund

Greg & Kathy Moore

Javier & Doris Morgan

Morgan Stanley Foundation

John G. & Jodi Most

Lizbeth Najm

Darrell Netherton & Robert Wheeler

Network For Good

Lynne Nieto

O.L. Halsell Foundation

Susan O’Brien

Kim & Ryan O’Neal

John Pagano

Lillian Pagano

Troy & Heidi Parish

Michael Parizino

Dr. & Mrs. M. Park

Sam Passanisi

Tom & Cynthia Perazzo

Douglas Peterson

Robert Pink

Alan Puzarne

Justin Reckers

Doug & Denise Regnier

Indo Reyes & Ally McGrory-Reyes

Donna Roatcap

Phyllis Robsham

Robert Rosner

Nancy Rossi

Ted Rossin

Kimberly Roush

Valerie Rubens

Richard Ryan

Gloria Samson

Samual I. & John Henry Fox Foundation

Scott & Meredith Sandland

Dr. Paul & Suzanne Schulman

Schwab Charitable Foundation

Ari & Corey Segal

Sempra Energy Giving Network

Chris & Joyce Serocke

Michelle Shapiro

Dave & Tammie Smith

James Smith

Austin Stadler

Dr. Martin & Christina Stern

Patricia Sullivan

Sunwest Bank Charitable Fund

Don & Nancy Swearingen

Andy Tang

Tom Telesco

Peter & Mary Tennyson

The Allergan Foundation

The Boeing Company Employee Individual Giving Program

The Sam & Salwa Ellis Foundation

The San Diego Foundation

The Zarcades Family Fund

Greg & Jonell Tibbitts

Marcia Tilker

Annaliese Train

Dr. Nick & Ruth Tsoulos

Barbara Twadell

Diana Twadell

Blake von Sprecken

Christian & Lina Waage

Steve & Laura Wagner

Walter J. & Betty Zable Foundation

Nat & Diane Ward

John & Lois Wareham

Julie Webster

Kelly White

William & Lorraine McCune Family Foundation

Donald & Margie Willis

Will Wills

Eric & Cynthia Wittenberg

Bob Wolfsberger

Women of St. James By The Sea Episcopal Church

Richard & Alice Zamboni

2 0 1 5 A N N U A L R E P O R T | 2 7

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26 | 2015 SOCIETY LEADERSHIP CONFERENCE

THANK YOU SPONSORS

Ability CenterAbility Magazine

Ace Relocation Systems, Inc.Ace Wellness Now

AcordaAdvanced Reservation Systems

Albertsons & So FreshAllie’s Party Rentals

APXAt Your Home Family Care

Barefoot Wine & BubblyBarney & Barney LLC

BeanFieldsBeanitos Chips

Beckman Coulter FoundationBetter Buzz Coffee

Beyond CoastalBiogen

BJ’s Restaurant & BrewhouseBlistex

Blue DiamondBobo’s Oat Bars

Brothers All Natural Fruit CrispsCalifornia Sulpher

Canari Custom WearCARES

Cart MartCbiz

CBS Outdoor

Certified AirClear Channel Outdoor

Cliff BarsCruise PlannersCrunchmasterCrystal Geyser

Daily by the Sea Deloitte

Design-ologyE & E Industries

EMD SeronoEpsom Salt

European Wellness CosmedicalFedEx

Finch, Thornton & Baird, LLP Fish & Tsang LLP

Flowers by Coley The Flower Fields

Fox5 San DiegoG/M Business Interiors

GEICOSanofi Genzyme

GMI SecurityGoddess Garden Organics

Hansen Beverage CompanyHeavenly Petals

HMSA HiloHMSA KauaiHMSA Oahu

Hoag Hospital

Honey StingersiHeartRadio

Industrial Shoe CompanyInternational Print &

PromotionsKenda Tires

KIND BarKool-N-Fit Sport

KOST 103.5/MyfmKPBSKPMG

KSBR 88.5 FM Saddleback CollegeKTLA & Fox 5 San Diego

KyXy & Energy 103.7La Casa Del Zorro

La Costa LivingLangers Juice

LEGOLAND® California Resort Leo Hamel Fine Jewelers

Lexus San DiegoLiberty Mutual Insurance

Loews Coronado Bay ResortLuna Grill

MadibaMallinckrodt Pharmaceuticals

MARC Marvin K. Brown

MedMediaMelissa’s World Variety Produce

Mens Barbershop Quartet

2014-2015SPONSORS

2 8 | 2 0 1 5 A N N U A L R E P O R T

Page 31: 2015 Pacific South Coast Chapter Annual Report · • At the University of California, Irvine; LEGOLAND® California Resort in Carlsbad; and NTC Park in San Diego, 9,201 people and

#MSleadership | 27

2014-2015SPONSORS

Merrill Lynch Wealth ManagementMoss Adams

MOST Branding Development + Advertising

Mother To BabyNBC 4 Los AngelesNBC 7 San Diego

Neal ElectricNovartisOC Corps

OC Family MagazineOne Stop Bling Shop

Orange County RegisterOutdoor Insight

Pacific Ambulance Pacific Research Network

Pacific Wealth Management Papa John’s Pizza of

Southern CaliforniaParenting OCParty DJ’s 4 UPasta Chips

Payam LarijaniPecoraro Inc.

Performance Bicycle Co.PIMCO

Pizza Port BreweryPoint Loma Sports Club

Project WalkRanch & Coast Magazine

Raphael’s Party RentalsReceptos

Redfearn & AssociatesRehab UnitedRIDE CycleryRockAdemyRossin SteelSaladmasterSalsa Steel

San Diego Business JournalSan Diego County Credit Union

San Diego Family MagazineSan Diego Gulls & Anaheim

DucksSan Diego Union Tribune

Scripps HealthcareSDG&E

SDG&E/Energy for OthersSDRBA

ShoreTel SIDE JOBZ - Band

Small Luxury HotelsSouplantation/Garden Fresh

Restaurant Corp.Soy Joy Bars

Spectrum Hotel GroupSullivan’s Moving & Storage

Sycuan Casino Sycuan Tribe of the Kumeyaay Nation

Teva NeurosciencesTex & Jan Barnhart

The Curl Riders Surf BandThe Cyclist

The Disneyland ResortThinOptics

Thorn Street BreweryTorrey Pines BankUC Irvine Health

UCI Recreation CenterUltraStar Cinemas

United Airlines Union Bank

United Site ServicesUrban Corps of San Diego County

ViaSatVisitCarlsbad

VTDS Inc./ProSonixWalmart

Wawanesa InsuranceWelda Massage Oil

Wells FargoWhittier Investment

CorporationWinston’s Crown Jewelers

WrigleyZippy’s

2 0 1 5 A N N U A L R E P O R T | 2 9

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