cdc ehdi resources for states. cdc ehdi website cdc ehdi website purpose: to provide up-to-date

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CDC EHDI RESOURCES

for States

CDC EHDI Website CDC EHDI Website http://www.cdc.gov/ncbddd/ehdi/http://www.cdc.gov/ncbddd/ehdi/

Purpose:

To provide up-to-date information about EHDI-related topics, issues, and research to parents, professionals, and other interested parties.

Outline:

•World of EHDI

•Professionals and Parents

•Research, Findings, and State Data

•What CDC EHDI Does

http://www.cdc.gov/ncbddd/ehdi/http://www.cdc.gov/ncbddd/ehdi/

States Awarded 2001 CDC FundingStates Awarded 2001 CDC Funding

CDC EHDI WebBoardCDC EHDI WebBoardhttp://ehdi.forum.cdc.gov/http://ehdi.forum.cdc.gov/

Purpose: To facilitate the sharing of documents, announcements, and other relevant information between the CDC EHDI Program and its state grantees.

• CDC Announcements • Family Issues Committee • Using the WebBoard • Special Topic Calls • Conference Call Schedules • General Information & Articles • Executive Committee • Meeting Transcripts • Data Items Committee • Cooperative Agreements

Reviewing a messageReviewing a message

Posting a messagePosting a message

Attaching a fileAttaching a file

Joining the WebBoard

• Each state is welcome to have a representative on the CDC EHDI WebBoard. If your state is currently not a member and is interested in being represented please contact:

• Marcus Gaffney at MGaffney@cdc.gov or (770) 488-3504

EHDI Listserv & Contact ListEHDI Listserv & Contact ListGeneral Listserv:

An e-mail list used to send EHDI information to representatives in states & territories with a CDC Cooperative Agreement.

EHDI Contact List: A directory of EHDI personnel at the CDC and in thestates with cooperative agreements.

Outline:•Name •Phone Number•Organization •Fax Number•Mailing Address •E-Mail Address

DSHPSHWA DataDSHPSHWA DataPurpose:

To give a perspective about the status of hearing

screening and intervention efforts among states

and territories.

Items asked: • # Infants screened

• # Infants referred for evaluation

• # Infants identified with a hearing loss

• # Infants enrolled in intervention

• # Birthing hospitals and UNHS hospitals

• Type and severity of identified cases of hearing loss

• Legislation status

2000 DSHPSHWA Form2000 DSHPSHWA Form

CDC EHDI Ad-Hoc TeleconferencesCDC EHDI Ad-Hoc Teleconferences

Purpose:

To serve as a forum in which people involved with newborn hearing screening and/or intervention can present, discuss, and share thoughts about EHDI issues, ideas, and activities with others.

Past topics have included: Data Integration, Family Issues, Cochlear Implants

AD-HOC Transcripts on the EHDI websiteAD-HOC Transcripts on the EHDI website

Summary of State EHDI Summary of State EHDI Family ResourcesFamily Resources

Purpose:

To serve as a reference guide

of information detailing each

state’s materials for families

of children who are screened,

referred for diagnostic evaluation,

and/or identified with a hearing

loss.

State EHDI Family ResourcesState EHDI Family Resources

Details state family resources concerning:• Structures of the ear• Definitions & causes of hearing loss• Impact of hearing loss on language and speech• Communication approaches & assistive technologies• Parenting a child with a hearing loss• Local & national resources• Availability in languages other than English

BCulpepper@cdc.gov or AKenneson@cdc.gov

State EHDI Websites and State EHDI Websites and Protocol LinksProtocol Links

Purpose:

To provide information about which states have an EHDI website and/or links to information about state protocols for screening, assessment, etc…

Categories:

•Website •Early Intervention

•Screening •Medical

•Assessment •Family Resources

•Amplification •Genetics

EHDI Guidance ManualEHDI Guidance Manual

Purpose:

A guide for state health departments that are starting a new EHDI program or already have an EHDI program.

It is intended to:

1) Help plan and evaluate EHDI programs.

2) Provide recommendations about uniform data

collection and reports for monitoring EHDI program objectives.

EHDI Guidance ManualEHDI Guidance ManualSection 1: Planning & Evaluation

• Chapter 1 – Approach to Planning & Evaluation• Chapter 2 – Vision,Goals, & Performance Indicators• Chapter 3 – State EHDI Annual Report

Section 2: Data for Tracking & Evaluation

• Chapter 4 – Database & Information Systems• Chapter 5 – Tracking Infants & Children for EHDI

Screening & Referral

EHDI Guidance ManualEHDI Guidance Manual

Section 2: Data for Tracking & Evaluation (Cont.)

• Chapter 6 – Tracking Infants & Children for EHDI Diagnostic Evaluation & Referral

• Chapter 7 – Tracking Infants & Children for Intervention Services

• Chapter 8 – Registry of Infants & Children with Hearing Loss

• Chapter 9 – Privacy & Confidentiality of Data

EHDI Guidance ManualEHDI Guidance Manual

Section 3: Integration with Child Health Systems

• Chapter 10 – Links Between EHDI & Other State Health Departments

• Chapter 11 – Operating EHDI Screening, Referral, & Audiologic Services as Part of an Integrated Children Services Program

• Chapter 12 – Integration of Prevention & Medical Services for Infants

• Chapter 13 – Medical Home for Children• Chapter 14 – EHDI Websites

State ProfileState Profile

Purpose:

The state profile is a

repository of information

available to state health

departments, other

government agencies, and

those interested in learning

more about EHDI programming.

State ProfileState Profile

Chapters:1. State Program Information

2. State Legislation

3. State Program Description

4. State Program Funding

5. Screener Training

6. Hospital-Based Newborn Hearing Screening Programs

7. Hospital Newborn Hearing Screening: Data Reporting

8. Outpatient Re-Screening & Diagnostic Evaluation

9. Outpatient Re-Screening & Diagnostic Evaluation: Data

Reporting

State ProfileState Profile

Chapters (Cont.):10. State EHDI Screening Database

11. Early Intervention Services

12. Early Intervention: Data Reporting

13. Hearing Loss Registry

14. Reimbursement/Payment Policies

15. Medical Home

16. Coordinating EHDI Infant Tracking with Other States

17. Coordination with Other State EHDI Programs

18. Healthcare Promotional Items

19. Family Issues

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