PowerPoint Presentation

Presented at the Health Informatics Society of Ireland, #HISI2016 17 November 2016Presented by: Vanessa Carter (Founder of #hcsmSA and South African e-Patient activist) and Dr. Jamie Saris (Maynooth University Anthropology Department and Co-chair of the Global Diseases of Poverty Consortium)

Vanessa Carter

The first 8 years were a failure after multiple surgeries. siloed care and poor communication between doctors were a problem. Resources online were a mess.

In my 9th year of searching online, I started writing overseas.

One day a world famous face transplant surgeon in boston offered to skype me. He had seen cases like mine often.

I took his advice and searched FOR doctors in my area who mimicked it. within 8 months my surgeries were successful. The access to information made the difference.

The e in e-patient has many meanings

E-patients evolve as technology evolves

As we move towards web 3.0 and industry 4.0, e-Patients will become even more informed with connected objects and wearables

Its important to remember:e-patients are not all equal. Some may not want to use digital technology and stay in a paternal role with their physician. Some may need support to understand how to use technology. Others may expect better technology from their provider.

As we move towards smart health, social media will play a major role in connecting people

We have started to develop a course in south Africa which teaches hcps and other stakeholders like patients how to use the web and social media to improve digital literacy for the future digital health systems

We host a monthly tweetchat to gain insight from diverse stakeholders. We base our topics around the sdgs. We promote community participation and idea sharing

A prominent aspect of social media is how it enables community building. Patient communities are especially helpful to providing peer-to-peer support

There are many technical applications using social media, we have focused on how others have been applying it to build the course

Thank you