TRANSIT

IONIN

G

Insight to:

Patient & Family

Impact

PEDIATRIC to ADULT CARE

FAMILY IMPACTNew career path - CEO of Sean’s life

financial stability Be a master planner - coordinating care Assure quality care is constant Focus on a continuum of multifaceted

succession/transition plans. Learn how to manage “the System” Forced into the world of medicine Maintain sanity & Go with the Flow!

FAMILY IMPACT

Transitioning is a constant TRIP

Taking

Responsibility

In

Planning

Who is

SEAN ??

• Wolf Hirshhorn Syndrome

• Physical and Mental Challenges

• Non Verbal

COMPLEX MEDICAL ISSUES

Requires Collaborative Relationships

Ortho

Immunology

ENT

Neuro

Urology

Cardio

Renal

GI

Open Communication

And

Relationship BuildingIs

PARAMOUNT

TRIP

Tim

e to

take

anot

her

KEY COMPONENTSTHE OBVIOUS

Comfort level Collaboration Teach – share info Treat with respect DON’T forget to Listen Concern for Sean and his families needs

THE STAFF IS A REFLECTION OF YOU!

Every person is part of transitioning

Office personnel interaction Staff interaction with Sean

Staff concern to accommodate Sean and the families needs

THE BIG DAY Current PCP accompanied us to the appointment

Consult appointment was scheduled at our convenience

Credit to Dr. Kitty O’Hare

Our NEEDS were MET!

Collaboration occurred between PCP’s after transition

Give guidance - Empower

Pediatrician help research available adult PCP

Collaboration with Pedi & adult PCP before and after transition

Adult PCP - hold a “Get to Know Our Practice”

Keep staff informed – have a “primary go to” person

Be accessible

Do not attempt to discuss this at age 18

Do not divorce abruptly

Do not shop and drop

Do not dismiss any concern

Don’t hesitate to ask the families opinion

Don’t be afraid to form a relationship

TAKE AWAYDo’s Don’t

THANKS FOR

LISTENING