Patient EmpowermentThrough social media

Tuesday 30th of September 2014

Mitchell SILVA, PhD

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Trend in internet use

10/3/2014 2

More and more people use technology to go to the Internet

Why are social networks important for patients?

Get more precise information about diagnosis & treatment

Share & get advice to/from other patients

Get support

Get empowered:

scientific studies clearly show that empowered patients (w/o cancer) have a better

survival compared to normal patients.

e-Patients want to play an active role in their life and in the management of their

disease!

10/3/2014 4

Social Media: also for physicians?

10/3/2014 5

More and more doctors and hospitals use Social Media

Facebook

Twitter

Hospital perspective - why?

– Communication channel to patients

– Patient Empowerment

– Activated patients are

• better to understand their medical procedures,

• have better functional status and satisfaction,

• are more likely to perform self-management behaviors,

• report higher medication adherence rates

Cancer Patient

Community

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Dr. Erard le Beau de Hemricourt• Medical Doctor in Nuclear Medicine• Medical author

Dr. Mitchell Silva• Doctor in Bio-Engineering• Empowered lung patient

Esperity

Founded in September 2012

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Partnerships

10/3/2014 9

Advisory Board

10/3/2014 10

Prof Martine PiccartJ Bordet Institute

Prof Dominique BRONJ Bordet Institute

Prof Gerald BATISTMcGill University

Prof Marc HamoirCliniques Univ. Saint-Luc

The Future of Cancer Treatment

50% of cancer can be

PREVENTEDQuality of Life

SURVIVORSHIPBiomarkers for

TARGETED

THERAPY

50%

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The Future of Cancer Treatment

PATIENT EMPOWERMENT

&

Crowdsourcing Data

50%

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Vision

Mapping Genetic Information on Dynamic Patient Data will lead to new insights on the relation between

Quality of Life and Treatment Outcome

Information and

education

Track patient health

Perform Research

Body Area Networks/sensors included

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Our solution

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Secured Web Platform

News & ForumFind SupportTrack your condition

Social

Find other people like yourself

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Participate in Communities

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QoL and

Symptoms

Quality of Life

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Adverse Events

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Questionnaire

Questionnaire

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Adherence

Adherence

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Adherence

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Extensive database

250 cancer types

300 genetic abnormalities

800 anti-cancer drugs

(+ synonyms)

30 Specific questions per cancer 1400 side effects

1000 other drugs

(+ synonyms)

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Clinical Trials

Module

Clinical Trials Module

Cancer Patients Clinical Trials• 3% of all patients in clinical

trials• 97% standard care :• Missed opportunity

(patients & pharma)

Patient enrollment: the most time-consuming aspect of the clinical trial process

InformationAwareness

What influences patient recruitment?

Clinical Trials Module

Cancer Patients Clinical Trials

Extra Feature

Extra Feature

Select open Clinical Trials

Information

Get Informed

InformationAwareness

Become Aware

Select Cancer Type

Select a Trial

Get Information

Show your interest

Select a Trial

Boosted trials

Show your interest

Show your interest

Confirm your interest

Confirm your interest

We will contact you!

Going further…

Semantics AnalysisAnalyzing user stories to perform sentiment analysis

Data Visualization toolsReporting tool for studies andPlatform management

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>3000 subscribers since launch

March April May June

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Privacy

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Data Privacy

• Submitted to Privacy Commission

• Informed consent: allow to capture data for research purpose

• De-identification of data: anonymization techniques (third party)

• No real name, no real address is acquired

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Also a research focus!

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Careware

The CareWare project aims to develop and leverage novel unobtrusive cyber physical systems for monitoring and advancing personal health and wellbeing.

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Value Chain

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Value Chain

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Research Goal for Esperity

Hypothesis: “Lifestyle can be quantified and linked with treatment outcome”

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Research Goal

Development of a model to quantify medication impact based on objective parameters from sensors (body area network) in combination with reported outcomes.

Quality of Life

Sensor Type & Position

Data processing

Context

Medication Impact

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Medication

Nutrition

Activity

PATIENT

Genetics

Environment

Lifestyle Treatment Outcome

Health Parameters

Sensors

Medication

Health Parameters

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Lifestyle and Quality of Life• How to define lifestyle?

– No clear definition

– Lifestyle is related to Quality of Life and wellbeing (physical and mental condition)

– Quality of life: validated questionnaires in clinical settings (QOLS , WHOQOL-BREF , QOL30 , Fact-G) but not in real life situation

– Objective measure of lifestyle using sensors: how?

– Sensors give data: define what parameter in data is relevant

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Info: mitchell@esperity.com

Thank you!