The Voice of People With Chronic Pain

MISSION

Improve the quality of life for people living with chronic pain in Europe.

AIMS

For PAE, quality of life for a chronic pain patient means giving the patient the right to choose the best possible solutions and support to live her/his life, according toher/his possibilities and wishes.

PAE aims to raise awareness of chronic pain, to promote a European policy on chronic pain and to reduce the impact of chronic pain on the European society, in all areas.

OBJECTIVES

• work in close relation with the other stakeholders;• gather and distribute relevant information on chronic pain from the patient’s point of view;• establish good relations with potential sponsors;• promote and or initiate research on chronic pain;• grow the association;• obtain visibility through events, website and media coverage.

Founded in 2011, Pain Alliance Europe (PAE) is a unique, democratic alliance that functions as a European umbrella organisation of national and regional associations involved with chronic pain, regardless of any underlying condition.

Working equally for everyone living with chronic pain in Europe, PAE is always looking for opportunities to cooperate in order to accomplish its mission. This has led to PAE being awarded important prizes: in 2014, the ‘60 & Over’ prize presented by the Italian Minister of Health, and in 2016 the ‘Institutions Excelling in the Field of Pain’ prize by EFHRE International University Excellence Awards.

SOME OF OUR LATEST PROJECTS AND COLLABORATIONS:

PAE is participating in scientific project proposals and in presenting its case in several events in the European Parliament. This raises awareness not only of the medical issues, but also of the social and economic problems that chronic pain patients experience. These are problems which occur by not seeing the patient as a person and notrespecting a basic patient right:

• with the European Pain Federation (EFIC) and Grünenthal as a collaborative partner for the Societal Impact of Pain Platform;• with the European Pain Federation (EFIC) as administrators of the SIP Stakeholder Group and the SIP Thematic Network on the EU Health Policy Platform;• with ERASMUS University of Rotterdam in PAE’s annual surveys on chronic pain;• with Active Citizenship Network (ACN) and Grünenthal in the Pain Patients Pathway Recommendations project;

THE RIGHT TO BE BELIEVED!

• with The European Federation of Neurological Association (EFNA), The European Pain Federation (EFIC), and The European Academy of Neurology (EAN) - as the leading organisation in the Brain, Mind and Pain Patient-Centred Innovation Grant;• with EFNA in the creation of the European Parliament interest group on Brain, Mind and Pain;• with Boston Scientific in the pain awareness campaign ‘Red Balloon’.

Grensstraat 71831 DiegemBelgium

Tel: +32 2 660 05 01info@pae-eu.euwww.pae-eu.eu

/pain_europe/PainAllianceEurope/pain-alliance-europe

Austria EURAG Österreich

BelgiumEuropean Network of Fibromyalgia AssociationsFOCUS Fibromyalgie BelgiqueVlaamse Pijnliga

Cyprus ACT Healthy

Denmark Foreningen af Kroniske Smertepatienter

Finland Suomen CRPS rySuomen Kipu ry

France Association Francophone Pour Vaincre Les DouleursFédération d’Associations Thera Wanka

GermanyDeutsche Schmerzliga e.V.ICA Deutschland e.V.Multinational Interstitial Cystitis AssociationUVSD SchmerzLOS e.V.

Greece Η Ελληνική Εταιρεία Αντιρευματικού ΑγώναΣύλλογος Ασθενών με Ημικρανία & Κεφαλαλγία Ελλαδος

Ireland Chronic Pain IrelandEndometriosis Association of Ireland

Italy CittadinanzattivaFondazione ISAL

Malta No Pain Foundation

The Netherlands

Fibromyalgie en SamenlevingInternational Painful Bladder Foundation PijnPlatform NederlandSamenwerkingsverband Pijnpatiënten naar één stemStichting Pijn-Hoop

Poland Fundacja ChustkaPolskie Stowarzyszenie Pomocy Chorym na Szpiczaka

Portugal Associação De Doentes De Dor Crónica Dos Açores

Romania Myeloma Euronet Romania

Spain

Fibromialgia y Fatiga Crónica EspañaLiga Reumatolóxica GalegaRed Española para la defensa de los enfermos de fibromialgia, síndrome de fatiga crónica y sensibilidad química múltipleSine Dolore Fundation

Sweden Fibromyalgiförbundet

United Kingdom

Arthritis and Musculoskeletal AllianceBackCarePain ConcernPain UKPelvic Pain Support NetworkTrigeminal Neuralgia Association UK

PAE MEMBERS